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Author Topic: Ryan white funding JERKED OUT FROM UNDER ME !  (Read 22680 times)

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Offline weasel

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Ryan white funding JERKED OUT FROM UNDER ME !
« on: March 11, 2010, 05:23:32 PM »


   Well Here in Southern Missouri Whistle Blowers get screwed !

   I got  OUTED by the HEATH Dept !

   They sent out a flyer  with HIV/ STD  on the  flyers outside ! IN RED LETTERS !!!!!!!!!!!!!!!!!

I LIVE IN A TOWN OF 57 PEOPLE !!!!!!!!!!!!!!!!

   I got Pissed and called ,they  said  it was a mistake !

 Then  three weeks later  they   JERKED  my   Ryan White  funding . Stating  I indangered

      The CASE WORKER on the phone AFTER  working HOURS    FORTY miles AWAY !

  I am trying to get reinstated !   The Veterans Association did not know why I was upset !

 She even said I was rich !    $ 15,000.  a year   RICH ???????????????????????

 Now I will have to hire a lawyer IF i can find one !

 My AIDS DOCTOR said it was Federal and Missouri could NOT just throw me out !

I am very Pissed !   

THEY OUTED ME !!!!!!!!!!!!!!!

THEY SENT A PLEASE FORGIVE US LETTER !

THEN  FUCKED ME BIG TIME !

NOW I WILL FIND IT HARD TO GO TO SAINT LOUIS  TWICE A MONTH !

IT IS A 250 MILE TRIP ! 

I really do NOT think one  little  Secretary should be able to throw out an AIDS VICTUM !

At the GROUP in Saint Louis some JERK said I was a consummer of AIDS !

GOD bless me I was ready to deck him !

I am not a CONSUMMER . I'M BEING CONSUMED BY AIDS !

                         STILL PISSED ,
                                                     CARL
" Live and let Live "

Offline Theyer

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #1 on: March 12, 2010, 10:12:08 AM »
Carl,

I am not surprised you are so angry, the events are awful, I wish you all the best for channelling that anger and getting even, take good care,
t
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #2 on: March 12, 2010, 11:37:53 AM »
15,000 a yr. is POVERTY at least in the State of New Mexico it is, if you make that here, you won't get Medicaid, QMB, or Food Stamps, however you do get (Rental Assistance,HUD Sec eight), Ryan White, and ADAP   Carl.......FIGHT FOR THIS, if you still qualify for this, if you do not, ask them WHY you don't and also tell them to explain to you WHY you don't, this just doesn't sound correct to me, that you do not at least qualify for Ryan White or ADAP :(
« Last Edit: March 12, 2010, 11:46:28 AM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline madbrain

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #3 on: March 12, 2010, 01:45:36 PM »

   Well Here in Southern Missouri Whistle Blowers get screwed !

What whistle blowing are you referring to ?

Quote
   I got  OUTED by the HEATH Dept !

   They sent out a flyer  with HIV/ STD  on the  flyers outside ! IN RED LETTERS !!!!!!!!!!!!!!!!!

I LIVE IN A TOWN OF 57 PEOPLE !!!!!!!!!!!!!!!!

What did the letter say, and did they name you in it ?

Quote
Then  three weeks later  they   JERKED  my   Ryan White  funding . Stating  I indangered

      The CASE WORKER on the phone AFTER  working HOURS    FORTY miles AWAY !

Did they put that in writing ?

Quote
  I am trying to get reinstated !   The Veterans Association did not know why I was upset !

 She even said I was rich !    $ 15,000.  a year   RICH ???????????????????????

 Now I will have to hire a lawyer IF i can find one !

http://www.dhss.mo.gov/HIV_AIDS/HIVMedications.pdf
It says you are eligible for ADAP in Missouri if your income is below 300% of the federal poverty level, which is $10,830, ie. up to $32,490 . You are well within the income qualifications.

Quote
My AIDS DOCTOR said it was Federal and Missouri could NOT just throw me out !

It is a funded by both federal and state dollars, and it is administered by individual states.

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #4 on: March 12, 2010, 04:29:43 PM »
   Well Here in Southern Missouri Whistle Blowers get screwed !

It's reasons like this that I severely hesitate to ask any questions that could possibly be construed as being difficult or challenging at the clinic I attend. I begrudgingly take the medicine they give me me, do what they tell me, nod my head, be polite and save any questions or comments I have for this forum or other sites on the internet. Since "stretching" meds or going off of them can cause resistances, not to mention the assorted problems it would cause my system, I can't risk pissing someone off. Sadly, they have people in my situation right "under their thumb".
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #5 on: March 12, 2010, 04:42:29 PM »
Carl, I'm not really clear on exactly what happened to you from your first post, but I hope someone can help you get this sorted out.  The whistleblower part and sending out fliers and outing you didn't make any sense to me, but maybe either you or someone else here can help me understand it.

Clearly $15,000 income/yr would be under any states cut off, even the worst ones. (at least I think so).

Is there a legal entity in Saint Louis that works with an ASO there to offer you pro bono services?  We have that here. 

If you didn't have a month of meds saved up then I'm sure this will be stressing you to no end, and maybe if you can state what meds you are on some of us here can send you some extra supplies to help ease those worries.
"Iíve slept with enough men to know that Iím not gay"

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #6 on: March 12, 2010, 04:46:57 PM »
It's reasons like this that I severely hesitate to ask any questions that could possibly be construed as being difficult or challenging at the clinic I attend. I begrudgingly take the medicine they give me me, do what they tell me, nod my head, be polite and save any questions or comments I have for this forum or other sites on the internet. Since "stretching" meds or going off of them can cause resistances, not to mention the assorted problems it would cause my system, I can't risk pissing someone off. Sadly, they have people in my situation right "under their thumb".

Well yes, most all ASO's operate that way, if you don't follow the rules (whatever they may be) they will cut-you-off, and not pay for ANY, of whatever it is you get from them, it's a 2-way-street, not a one-way FREE-FOR-ALL, here in New Mexico, you have to be available every month (when they call for a follow-up) also, you have to do a 4 month FACE TO FACE with your case worker, as well as an annual re-enrollment to keep your benefits going, without ANY gaps, if YOU fail to do any of the above, then you leave them NO CHOICE, and there are lots of others and more SICKER people than you are, as funding IS and can be VERY LIMITED  :D
« Last Edit: March 12, 2010, 04:56:38 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #7 on: March 12, 2010, 04:51:11 PM »
here in New Mexico, you have to be available every month ( when they call for a follow-up) also, you have to do a 4 month FACE TO FACE with your case worker, as well as an annual re-enrollment to keep your benefits going, without ANY gaps

Yes, about the same here - and I don't mind that at all.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline weasel

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #8 on: March 12, 2010, 04:56:32 PM »


 As  some of you know I live in a town of 57 people !

 The heath dept. sending HIV/STD  Meeting  invitations  ARE OUTTING  people !

  Unlike ALL the  Churches flyers , This one had my full name and address !

  Half the people in town work for the post office .

  It has happened before that  someones  car and home have been burned for having  HIV/AIDS !

  The clerk at the health dept KNEW of the situation and still  decided to SAVE MONEY on and envelope !

  I will wait  for monday and check back and see IF  I can find some answers !

   I got really pissed with the health dept . and they got even !

   Not fare ! 

  I feel better  just saying it !

 I will NOT  loose  meds , but i loose dental and  travel pay , and when you live  125  Miles from the doctor

 that adds up .

 Thanks for caring , just knowing you all care gives me strenth to figure it out .

                                               I'll post WHEN I get my Ryan White back   

                                                              Carl
" Live and let Live "

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #9 on: March 12, 2010, 05:03:22 PM »

 As  some of you know I live in a town of 57 people !

 The heath dept. sending HIV/STD  Meeting  invitations  ARE OUTTING  people !

  Unlike ALL the  Churches flyers , This one had my full name and address !

  Half the people in town work for the post office .

  It has happened before that  someones  car and home have been burned for having  HIV/AIDS !

  The clerk at the health dept KNEW of the situation and still  decided to SAVE MONEY on and envelope !

  I will wait  for monday and check back and see IF  I can find some answers !

   I got really pissed with the health dept . and they got even !

   Not fare ! 

  I feel better  just saying it !

 I will NOT  loose  meds , but i loose dental and  travel pay , and when you live  125  Miles from the doctor

 that adds up .

 Thanks for caring , just knowing you all care gives me strenth to figure it out .

                                               I'll post WHEN I get my Ryan White back   

                                                              Carl

Ok well then, you need to get your Ryan White re-instated then, $15,000 a yr. is STILL POVERTY, unless the requirements for the Sate of MO. is a lot less then THIS, that might be why it was taken away form you  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Moffie65

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #10 on: March 12, 2010, 06:33:08 PM »
First, the cutoff level this year is right at $30,000 for a single person.  This is a federal rule, and the state has no say in the guidelines that are stated in the contract with HHS.  Also the poverty level for Ryan White is determined by the Federal standard, and not Missouri.  She/he can go to hell if they think otherwise.

Now, for your case, it is obviously a "personal" situation with your case manager.

I will offer to interceed for you Carl, but you will have to give me a PM with all the particulars.  I will chat with the case manager, and find out what her/his story is, and if they are dangerously close to breaking the law, I will make her wish she didn't do that to you. 

For your assurance, I have already had four case managers, one supervisor, and one arrogant Doctor canned for breaking the law in this fashion.  I also know some of the people in HHS and will make it very painful for people in your little neck of the woods.

This I will do for you my buddy.
The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline madbrain

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #11 on: March 12, 2010, 07:00:40 PM »
First, the cutoff level this year is right at $30,000 for a single person.  This is a federal rule, and the state has no say in the guidelines that are stated in the contract with HHS.  Also the poverty level for Ryan White is determined by the Federal standard, and not Missouri.  She/he can go to hell if they think otherwise.

It certainly looks to me like the ADAP income eligibility varies by state. For example in California anyone below 400% of the FPL is eligible for ADAP. A copay is required between 400% and $50,000 .
http://www.cdph.ca.gov/programs/aids/Documents/FSADAP.pdf

Offline denb45

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  • "1987 Classic Old School POZ+"
Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #12 on: March 12, 2010, 07:15:18 PM »
It certainly looks to me like the ADAP income eligibility varies by state. For example in California anyone below 400% of the FPL is eligible for ADAP. A copay is required between 400% and $50,000 .
http://www.cdph.ca.gov/programs/aids/Documents/FSADAP.pdf


Mad.......Carl didn't loose his ADAP, he lost his Ryan White, and Travel Voucher, that he needs to get to his doctor 125 miles away........
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline madbrain

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #13 on: March 12, 2010, 08:19:15 PM »
Mad.......Carl didn't loose his ADAP, he lost his Ryan White, and Travel Voucher, that he needs to get to his doctor 125 miles away........

sorry, my bad.

Offline Peacock

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #14 on: March 13, 2010, 05:07:04 AM »
sending a flyer to someone about an hiv aids meeting-with the patients name and address on the flyer is unacceptable.
I work at a pathology lab and we send Hiv results to Doctors in confidential envelopes only, and we are not even allowed to fax the results to the doctors receptionist- or even to a Sr in the hospital ward- that is how much we value privacy and confidentiality. the point Im making is that with Hiv/Aids confidentiality is extreemly important and any organisation, private or government, should respect it.
My medical fund sends my medication to my local post office in a sealed brown box...I would be very pissed off if they placed any hiv/aids flyers on my parcel.
Peacock,Steve
Diagnosed 07/01/2002
Started Haart- 25/11/04 Cd4: 205 VL: 76'500
                      19/12/08 Cd4: 623 VL: UD
      26/03/12 Cd4: 497 Cd4%: 30.10 VL: UD
Combivir and Nevirapine(200mg) x1 of each-Am & pm
Not changed Meds since starting on HAART
Green Tea,Multivit,Selenium ACE,Folic acid,Vit C,Aciclovir 200mg 5x per day for 3 days-(ONLY when I have Shingles!)
100 percent adherence-with the help of a wristwatch!

Offline Ann

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #15 on: March 13, 2010, 01:52:23 PM »
Carl, as the flyer was sent to you by the Health Department, I'd be looking into whether or not this was a breach of HIPAA laws.

Good luck with this - it must be scary and frustrating.
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

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Offline weasel

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #16 on: March 15, 2010, 08:04:44 PM »


 Thank you all !

 I am trying to Muster enough  oomph  to call and see  WHEN  i will be reinstated !

 IF  it goes   BAD    I will take   Moffie up on his offer !

  The whole thing is so frustrating to me .   I am NOT a child !

 I have issues  , BUT they went over board on this !

               Again , thank you all !
                                                 Carl
" Live and let Live "

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #17 on: March 15, 2010, 08:09:19 PM »

 Thank you all !

 I am trying to Muster enough  oomph  to call and see  WHEN  i will be reinstated !

 IF  it goes   BAD    I will take   Moffie up on his offer !

  The whole thing is so frustrating to me .   I am NOT a child !

 I have issues  , BUT they went over board on this !

               Again , thank you all !
                                                 Carl

Yes, well Carl..........you need that Ryan White, it pays for your dental, at least here in New Mexico it does , even tho it only has a $1,500 limit, but that's better than NOTHING at all , I'd be toothless
without it :)  Please keep us updated  ;D
« Last Edit: March 15, 2010, 08:13:22 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #18 on: March 15, 2010, 08:34:11 PM »
Well yes, most all ASO's operate that way, if you don't follow the rules (whatever they may be) they will cut-you-off, and not pay for ANY, of whatever it is you get from them, it's a 2-way-street, not a one-way FREE-FOR-ALL, here in New Mexico, you have to be available every month (when they call for a follow-up) also, you have to do a 4 month FACE TO FACE with your case worker, as well as an annual re-enrollment to keep your benefits going, without ANY gaps, if YOU fail to do any of the above, then you leave them NO CHOICE, and there are lots of others and more SICKER people than you are, as funding IS and can be VERY LIMITED  :D

I never see a case worker unless I was to.  Basically I get a form mailed to me around Thanksgiving that I fill out to prove that I still live at my address, xerox a utility bill, sign my name and that's all she wrote to stay on ADAP.
"Iíve slept with enough men to know that Iím not gay"

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #19 on: March 15, 2010, 08:36:23 PM »
First, the cutoff level this year is right at $30,000 for a single person.  This is a federal rule, and the state has no say in the guidelines that are stated in the contract with HHS.  Also the poverty level for Ryan White is determined by the Federal standard, and not Missouri.  She/he can go to hell if they think otherwise.

Are you sure?  The cut offs in PA are different than in Maryland, New Jersey and New York.  Yes, they're based on a % of federal poverty level but it can be 300%, 350%, 400% etc.
"Iíve slept with enough men to know that Iím not gay"

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #20 on: March 15, 2010, 08:37:28 PM »
I never see a case worker unless I was to.  Basically I get a form mailed to me around Thanksgiving that I fill out to prove that I still live at my address, xerox a utility bill, sign my name and that's all she wrote to stay on ADAP.

Not that easy here in New Mexico, just ask Mark, he knows  ;D My case worker, does a very good job of keeping track of things, he says, I'm very easy to get a hold of, unlike some of his other clients, he wished all of them were more like me, where as, I don't need that much assistance, and I'm not very problematic.. ;D every time he sees me he always says to me "is there anything I can do, are is there anything you need, I know you don't need much, but, I still have to ask you this"... ;)
« Last Edit: March 15, 2010, 08:46:35 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline weasel

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #21 on: March 15, 2010, 08:41:06 PM »


 Here in   Missouri   we get $1,000   for dental !

 BUT they pay travel !

 I hope I get it back

                                                  Carl
" Live and let Live "

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #22 on: March 15, 2010, 08:47:51 PM »

 Here in   Missouri   we get $1,000   for dental !

 BUT they pay travel !

 I hope I get it back

                                                  Carl

Yes, and that is why YOU need this  ;D I cannot imagine what it would be like to travel 125 miles just to see a ID-Doctor  ;) I hope you DO get this back  ;D
« Last Edit: March 15, 2010, 08:53:13 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #23 on: March 15, 2010, 09:47:08 PM »
Are you sure?  The cut offs in PA are different than in Maryland, New Jersey and New York.  Yes, they're based on a % of federal poverty level but it can be 300%, 350%, 400% etc.

Well I guess I don't have to worry then, I'm 200% to 300% somewhere around that, so I was told, I'm not really sure what the cut-off is here in New Mexico, I'll have to ask Mark, I'm sure he would know this
Miss p..... aren't the requirements different in each State, what I mean is, in CALIF. I qualified for almost EVERYTHING, but, here in New Mexico, I don't :)
« Last Edit: March 15, 2010, 09:55:58 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #24 on: March 15, 2010, 10:04:49 PM »
If you ask me the cut-offs shouldn't be done state by state -- they should be done by an urban/rural formula.
"Iíve slept with enough men to know that Iím not gay"

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #25 on: March 15, 2010, 10:08:32 PM »
If you ask me the cut-offs shouldn't be done state by state -- they should be done by an urban/rural formula.

Ahh, I think you may be right about that, if they just went by that alone, then nobody would qualify for anything  ;) I was never able to get any kind of Medicaid, as I made too much for that......that's why last yr. I lost that QMB part of that.....
« Last Edit: March 15, 2010, 10:14:39 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #26 on: March 16, 2010, 12:46:25 AM »
If you ask me the cut-offs shouldn't be done state by state -- they should be done by an urban/rural formula.

With preferences to which?
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #27 on: March 16, 2010, 02:04:56 AM »
With preferences to which?

Cost of living is MUCH higher in urban areas... everyone knows this.  Why should the cut off in NYC be the same as in Ithaca?
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Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #28 on: March 16, 2010, 04:33:16 AM »
Cost of living is MUCH higher in urban areas... everyone knows this.  Why should the cut off in NYC be the same as in Ithaca?

Considering in many areas, rural funding is practically non-existent as it is and that in many cases that is exactly where it is needed, this type of urban-centric thinking is counter-productive. While cost of living might be much higher, cost of meds ISN'T. I'm not indicating that the following statement is what you meant, but it is partially the "screw-the-hillbillies" mentality that allows HIV to grow rampant in rural areas.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline weasel

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #29 on: March 16, 2010, 09:51:57 AM »
  @ Black WingBear ,
                            That IS a huge problem in Rural  Missouri and I am sure all Rural area's !

            Here there is virtually NO  education about HIV/AIDS !

         I think the case workers LIKE the fact  HIV/AIDS  is raising !

       It may be mean  , but I feel they enjoy  knowing THIER  jobs are secure !

        Missouri is the METH Capital of the Country !  Yet " THEY "  see no need  to  teach

        the basics of NOT getting  HIV/AIDS  !

        NOW  the " GOOD "  people are going after   POT  ::)

        It is all so backwards ...................................

                                                                      Carl
       
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Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #30 on: March 16, 2010, 10:56:35 AM »
The most assistance I could ever get form ANY ASO was ADAP & Ryan White Dental ,anything else just wasn't available to me due to income Level requirements, so, I'm really not in the know as far as what other help I could get  ::) is there any other benefits that anyone might know about, that I may be missing out on?
« Last Edit: March 16, 2010, 10:59:13 AM by denb45 »
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Offline Ann

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #31 on: March 16, 2010, 11:17:00 AM »
I wish I could gift the NHS to all of you in the States. It really breaks my heart how you all (even those with insurance) have to jump through hoops just to get basic health care. :-\
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HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #32 on: March 16, 2010, 11:35:03 AM »
I wish I could gift the NHS to all of you in the States. It really breaks my heart how you all (even those with insurance) have to jump through hoops just to get basic health care. :-\

It will only get worse Ann, I really don't see any light at the end of this tunnel anytime soon  :-[
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Offline Jeff G

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #33 on: March 16, 2010, 11:36:28 AM »
 My financial situation changed this last year but just one small part of it figured into the picture and cost me my medicaid benefits . It was a $68 a month pension my dad left me . It put me over the limit in my state by about $9 . I paid out over $600 last month in medical co pays and the bills keep coming . If health care reform becomes law I will see some relief soon .

Offline skeebo1969

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #34 on: March 16, 2010, 11:37:53 AM »
Considering in many areas, rural funding is practically non-existent as it is and that in many cases that is exactly where it is needed, this type of urban-centric thinking is counter-productive. While cost of living might be much higher, cost of meds ISN'T. I'm not indicating that the following statement is what you meant, but it is partially the "screw-the-hillbillies" mentality that allows HIV to grow rampant in rural areas.

  Great point!  I live in a county that is approximately a 2 1/2 hr drive from the city of Miami.  Here in Florida, when I used ADAP, you had to apply in the county you resided in.  I was originally going to an ASO in Miami and received many benefits from programs offered there.  In Miami I had access to: dental, food assistance, a nutritionist, a therapist, case managers, and gas cards were routinely given monthly.  Here in the county I live now, which is rural, there are absolutely no programs offered and unless you qualify for foodstamps no food for you.

  Two weeks after I moved here the ASO in Miami basically told me I could not go there anymore for treatment, because I had to use one up here in Highlands County.   There is one case manager here and from my dealings with him I learned that you better have all your records straight, because once you leave his office it was like your case  no longer existed.  In my city alone, there were 33 people who needed these services.  With a Cd4 count of 103 it took them 4 months to get me my first bottle of Atripla and that's with the knowledge that I had already been on it for 1 month.  My case manager did not seem to care one bit that I was out of meds, luckily someone assisted me by mailing me 3 bottles to get me through.

   In short, I was really amazed at the differences in services in two cities just 120 miles apart.

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Offline Ann

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #35 on: March 16, 2010, 11:43:15 AM »

It will only get worse Ann, I really don't see any light at the end of this tunnel anytime soon  :-[


I know. I don't see any light either. I actually get sick to my stomach sometimes when reading threads like this one. I think I suffer from a form of survivor's guilt. I feel guilty that I managed to find myself living in a country with socialised health care and don't have to worry about where my care is coming from.

I know all too well what that's like. When I was a young adult and still living in the States, I didn't have health insurance and lived in fear of something happening to me that needed medical attention. And that was when I was young, healthy and hiv-free. To be ageing and have hiv and no health insurance ... I can hardly even contemplate it. I really feel for you guys.
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #36 on: March 16, 2010, 11:45:03 AM »
Yeah Skee.......you really have to choose wisely just where to live now-a-days, moving to the wrong place
could mean the difference between life or death, feast or fem mine.....it's CRAZY the way they figure this formula in certain area of the country, somebodies doing something SLICK, and it aint right  :-[
« Last Edit: March 16, 2010, 11:48:21 AM by denb45 »
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Offline leatherman

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #37 on: March 16, 2010, 02:09:07 PM »
you really have to choose wisely just where to live now-a-days, moving to the wrong place
could mean the difference between life or death, feast or fammine
and it's not just ADAP or hiv funding, this sort of issue goes through a lot of social services. Speaking of "famine" while in Ohio, I received $174 in food stamps each month, which for some reason was $2 short of what the calculator on the fed website told me, but that was easy to live with. However in SC, they use a different forumla than the fed does (unearned income is not added to earned income, but is used later in the equation) and I only receive $90 a month in food stamps down here.

So now I'm living in a state where they only give half what the federal gov't allows in food stamps, where the state medicaid offers no dental or eye care, and where they are currently trying to cut ALL ADAP and HIV/AIDS funding (including all prevention programs). Thank goodness I moved in with my mom, or me and the dogz would have already had to have hitched a ride back up to OH just to have enough food to live.
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Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #38 on: March 16, 2010, 02:22:45 PM »
Yeah Skee.......you really have to choose wisely just where to live now-a-days, moving to the wrong place
could mean the difference between life or death, feast or fem mine.....it's CRAZY the way they figure this formula in certain area of the country, somebodies doing something SLICK, and it aint right  :-[

Most of the money goes to urban areas, and rural areas get royally screwed - you basically have it "taught" to you that you are less than a human-being because you don't live in the Super-Megalopolis, and it just makes it all the worse that you have these city queens that would almost love to see all funding for rural areas cut. I don't know if they think this would increase the funding to their area (which it wouldn't)  or if they are simply that mean-spirited and hateful. Unfortunately the "screw-the-hillbillies" mentality is alive and well all across the country and many urbanites and suburbanites only perpetuate it.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline Joe K

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #39 on: March 16, 2010, 02:43:56 PM »
Most of the money goes to urban areas, and rural areas get royally screwed - you basically have it "taught" to you that you are less than a human-being because you don't live in the Super-Megalopolis, and it just makes it all the worse that you have these city queens that would almost love to see all funding for rural areas cut. I don't know if they think this would increase the funding to their area (which it wouldn't)  or if they are simply that mean-spirited and hateful. Unfortunately the "screw-the-hillbillies" mentality is alive and well all across the country and many urbanites and suburbanites only perpetuate it.

As much as I support an even distribution of services, rants like the above, do nothing to add anything constructive to the discussion. Why exactly do you insist that somehow "city queens" want to eliminate funding for rural areas? I have worked with both the state and federal government, concerning HIV services and the vast majority of the decision makers, happen to be straight, but what does that have to do with anything?

I might suggest, that if you really want to bring change, you seriously reconsider the tone of your dialogue. I once lived in the suburbs of Detroit, but I spent my time, working in the city, because they had little, while the suburbs had all forms of services. I could make the claim that all those "straight bigots" were to blame for the lopsided funding, but what purpose would that serve? Personally, I tire of reading your responses, where you insist that someone is always out, to stick it to the other person and for me, that's one sad way to look at life.

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #40 on: March 16, 2010, 05:30:30 PM »
Considering in many areas, rural funding is practically non-existent as it is and that in many cases that is exactly where it is needed, this type of urban-centric thinking is counter-productive. While cost of living might be much higher, cost of meds ISN'T. I'm not indicating that the following statement is what you meant, but it is partially the "screw-the-hillbillies" mentality that allows HIV to grow rampant in rural areas.

How many HIV+ people are in your rural county?  How many are in the greater Philadelphia metropolitan area?  Seriously, I'm just curious.

The bottom line is that if you choose to live in a rural area you know you're going to have less services ( like no ASO for a dozen people in one town) and will have to drive a couple hours to find one.  That's just reality.

btw, I was priced out of NYC where I was diagnosed after 15 years of living there -- I purposely did the research to locate an affordable urban area with lots of medical resources, as well as ASO's, etc.  I doubt my rent is much higher than yours, yet I'm only 2 subway stops from my HIV specialist and ASO.  That was my choice.
« Last Edit: March 16, 2010, 05:34:10 PM by Miss Philicia »
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Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #41 on: March 16, 2010, 05:57:20 PM »
How many HIV+ people are in your rural county?  How many are in the greater Philadelphia metropolitan area?  Seriously, I'm just curious.

The bottom line is that if you choose to live in a rural area you know you're going to have less services ( like no ASO for a dozen people in one town) and will have to drive a couple hours to find one.  That's just reality.

btw, I was priced out of NYC where I was diagnosed after 15 years of living there -- I purposely did the research to locate an affordable urban area with lots of medical resources, as well as ASO's, etc.  I doubt my rent is much higher than yours, yet I'm only 2 subway stops from my HIV specialist and ASO.  That was my choice.
Miss P.... I did the exact same thing when I was priced-out-of-Calif. so I did the same thing you did, and found a urban area large enough to have a lot of services, so, I choose Albuquerque, NM, and I'm still here after 8 yrs. however Phoenix AZ. was my 2nd choice, and El Paso TX, was my 3rd choice.....I really didn't want to stray too far away from the southwest  ;D
« Last Edit: March 16, 2010, 06:06:08 PM by denb45 »
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Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #42 on: March 16, 2010, 06:07:15 PM »
I wish I could gift the NHS to all of you in the States. It really breaks my heart how you all (even those with insurance) have to jump through hoops just to get basic health care. :-\

The UK does do well, but not that well if you look at the number of yearly new infections.  Having only half the infection rate as the US, while good, isn't all that great in the large scheme of things.
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Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #43 on: March 16, 2010, 06:10:46 PM »
city queens

Weren't you just mocking people for calling other rural redneck hillbillies (though, of course, nobody said that) -- so there you go being a rank hypocrite.  Quelle surprise!
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Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #44 on: March 16, 2010, 06:54:02 PM »
Mikie.........I cannot even imagine what it would be like to be without food or the basic needs, as for myself, I never qualified for Food Stamps, HOPWA-Rental Assistance, the ASO food pantry, travel vouchers are anything else, other than ADAP & Ryan White, however I did volunteer at one before, and gave out what little Food they had to give, it was very disheartening to close the doors of the food pantry, when they run-out, and people were still waiting in line , that wasn't a very good feeling for me :'(
« Last Edit: March 16, 2010, 06:58:23 PM by denb45 »
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Offline leatherman

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #45 on: March 16, 2010, 08:36:48 PM »
the food pantry, when they run-out, and people were still waiting in line , that wasn't a very good feeling for me
oh my! That would be depressing.

Currently, I've been working 2X a month in my ASO's pantry; but it's not food, just the "taxable items". Thankfully, I haven't been back to a church food pantry since 1993 when the AZT was kicking my ass and Randy was very ill and nearing death, so neither of us were working. We were getting food from two Catholic churches up there in Ohio; but I'd be terrified if (without my Mom's help here) I would have to be visiting one of Baptist churches here in SC to get a food handout. After being in a Baptist school and church all those years, I just think I'd either be in for a heap of preaching and talking about changing my sinful ways or there'd be some sort of strings to getting them to help "my type". ::)

The bottom line is that if you choose to live in a rural area you know you're going to have less services ( like no ASO for a dozen people in one town) and will have to drive a couple hours to find one.  That's just reality.
Philly and Den, though I agree with that reality (less population = fewer services), do realize that it's not always a choice per se. Sometimes you have to live where you can.

After our pet store failed, Randy and I were too poor to move to Cleveland to have better access to HIV services. After Jim died and the aftermath, I did not even have the money to continue living in that smaller city of Canton. So now I'm living way out in sticks of a SC county, having to cope with the benefit differences between the two states because I have no other choice. I've just been too poor over the last 15 years to be able to "pick" where I can live to have better access to services.

(I tell you what. More than any health problem I've had from HIV, the poverty it has caused has been the much bigger burden. Well except that time when the PCP was killing me.  ::) :D )

They sent out a flyer  with HIV/ STD  on the  flyers outside ! IN RED LETTERS
by the way, I meant to ask this earlier. Exactly what kind of flyer was this?

Two weeks ago, I was volunteering time to sticker-n-stamp a newsletter that my ASO sends out. It was not an "internal" newsletter to clients; but an informative newsletter about the ASO and it's activities, mainly sent out to sponsors but also to people that signed up to receive it. It's a 6 page printed letter, folded in half, clearly showing the ASO's name, slogan, etc, and easily opened to read the content. Going out to Dr and Mrs. So-n-So, Dean Smith from the local college, Ki Sigma Delta House, a few local bank branches and even the dog grooming parlor just up the street from me.

Was yours the kind of newsletter sent to a client, and is that why you feel "outed"? Or are you more worried about the stigma you might/will receive within your area from just receiving any material about HIV or the ASO?

I was just curious about your situation after having sent out nearly 2000 newsletters easily identified with HIV information and my local ASO. I don't know whether it's a subject to bring up with my ASO about concealing the nature of the mailer or whether it would just continue to promote stigmatism by concealing the mailer. ???
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Offline skeebo1969

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #46 on: March 17, 2010, 03:21:35 AM »
Most of the money goes to urban areas, and rural areas get royally screwed - you basically have it "taught" to you that you are less than a human-being because you don't live in the Super-Megalopolis, and it just makes it all the worse that you have these city queens that would almost love to see all funding for rural areas cut. I don't know if they think this would increase the funding to their area (which it wouldn't)  or if they are simply that mean-spirited and hateful. Unfortunately the "screw-the-hillbillies" mentality is alive and well all across the country and many urbanites and suburbanites only perpetuate it.

LOL Wow, and I think the 2nd shooter was in the Lincoln's glove compartment.

The bottom line is that if you choose to live in a rural area you know you're going to have less services ( like no ASO for a dozen people in one town) and will have to drive a couple hours to find one.  That's just reality.

I wish they woud allow that in Florida.  When I moved up here my original intentions were to drive the 2 1/2 hours to see Dr.  Elena down in Miami.  They shot that idea down the moment they found out my address had changed.  The only thing here is the Highlands County health department.  It really disappointed me when I found out I had no options, damn ASO in Miami might as well been a pot of gold at the end of a rainbow.lol

« Last Edit: March 17, 2010, 03:58:28 AM by skeebo1969 »
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Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #47 on: March 17, 2010, 06:40:20 AM »
Philly and Den, though I agree with that reality (less population = fewer services), do realize that it's not always a choice per se. Sometimes you have to live where you can. I've just been too poor over the last 15 years to be able to "pick" where I can live to have better access to services.

Something the wealthy will never understand.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #48 on: March 17, 2010, 06:49:18 AM »
Something the wealthy will never understand.

Honey, I'm on disability -- I hope that wasn't aimed at me.  Rural folks have a gross misperception that only the wealthy live in cities, but then of course they also always mock the welfare queens that live there so there's a bit of cognitive dissonance.

If you don't like big cities (meaning you can't cope with it) then just spit it out instead of gussing it up in a bunch of bs.

I live in what I call an "OK" neighborhood of greying Italians and hipsters wearing skinny jeans.  My rent can't be much more than what you pay in a small town for a one bedroom.  I don't own a car, nor have I owned one in 20 years, and use public transportation.  I doubt you can say the same, so the combination of your rent and your car payment means you probably pay more in monthly expenses than I do.

Meanwhile I have access to much better HIV doctors and services.  See how that works?
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Offline Dachshund

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #49 on: March 17, 2010, 08:18:56 AM »
Don't you just hate how all of those big city queers have stolen all of the AIDS resource money from their country cousins? Stocking our food pantries with champagne and caviar. I helped start and organize the first food pantry for people with AIDS in Memphis back in 85. This was done without federal, state or city dollars. We begged, borrowed or stole every dented can on the shelf. As money became available we were able to provide more and better quality of food and dry goods. At one point we provided groceries twice a week. Now because of economic necessity we can only provide one bag every two weeks. Yep, the AIDS impoverished are living the high life in the big city. Our food bank is named after my lover who died under the most horrific conditions in late 1985.

I know several people who have moved to the country because their disabilty dollars stretch a little further. Housing is usually much cheaper in the sticks. Unfortunately when you're poor, it's damned if you do, damned if you don't. It beats being homeless. Been there, done that.


Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #50 on: March 17, 2010, 08:31:46 AM »
Honey, I'm on disability -- I hope that wasn't aimed at me.  If you don't like big cities (meaning you can't cope with it) then just spit it out instead of gussing it up in a bunch of bs.My rent can't be much more than what you pay in a small town for a one bedroom. 

I bring in $647 a month and $395 of that goes for rent.... And you?
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline Dachshund

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #51 on: March 17, 2010, 08:42:45 AM »
Look, if anyone thinks having AIDS and being poor is any easier in the city versus living in the country, they are just flat out wrong. Each brings it's unique set of unfortunate challenges. Money and resources are finite in each situation.

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #52 on: March 17, 2010, 08:59:33 AM »
Look, if anyone thinks having AIDS and being poor is any easier in the city versus living in the country, they are just flat out wrong. Each brings it's unique set of unfortunate challenges. Money and resources are finite in each situation.

I didn't say it was easier - but Miss P was insinuating HIV-funding for rural-areas should be CUT.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #53 on: March 17, 2010, 09:13:49 AM »
How many HIV+ people are in your rural county?  How many are in the greater Philadelphia metropolitan area?  Seriously, I'm just curious.

Miss P, you know damn well that getting funding to rural areas cut would NOT increase it in the city. It was mean-spirited, nothing more.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #54 on: March 17, 2010, 09:20:40 AM »
I bring in $647 a month and $395 of that goes for rent.... And you?

Oh, I bring in substantially more than that, but I was that Fierce Manhattan Queenô with the fancy pants job in Soho making the big bucks...and yeah, I managed an entire high end design firm as CFO all with a big ole AIDS diagnosis.  My disability claim was based on that income level, but I still had to move to a cheaper city when I went on disability.  A girl's gotta do what a girl's gotta do.  My rent is more than yours, but only a little -- and like I said I don't own a car -- do you?  You neglected to mention your automotive costs.

As far as the $647 you bring in, well -- are you working or on the dole?

And by the way, I never once said AIDS service in rural areas should be cut so stop with your mendacious tediousness.
"Iíve slept with enough men to know that Iím not gay"

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #55 on: March 17, 2010, 09:22:05 AM »
Miss P, you know damn well that getting funding to rural areas cut would NOT increase it in the city. It was mean-spirited, nothing more.

What exactly is your IQ?
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Offline Hellraiser

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #56 on: March 17, 2010, 10:00:13 AM »
Careful who you call wealthy on here man.  I think most of us are either temporarily or partially disabled and it screws your finances over big time.  Just stop setting up the "us" vs "them" scenarios.  No one is out to get you mister persecution complex.

Offline Assurbanipal

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #57 on: March 17, 2010, 10:01:01 AM »
If you ask me the cut-offs shouldn't be done state by state -- they should be done by an urban/rural formula.

What did you mean to suggest here?  
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Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #58 on: March 17, 2010, 12:04:06 PM »
What did you mean to suggest here? 

Just that whatever formulary is used should take into account that living expenses in a rural area are cheaper.  For example, why should the 350% of poverty level to qualify for ADAP in Pennsylvania (I think that's the current level, but that's not important) be the same for someone living in the Philadelphia metropolitan area as it would be for, oh... living in Altoona?  I mean it's the same line of thinking that there are higher cut offs in Maryland than there are in Nebraska, am I right?

But aside from ADAP cut offs, I get tired of people who live in a county where there may be five HIV+ people and yet they yell and scream that they don't have an ASO, or that they have to drive 250 miles to see an HIV specialist.  Well, then MOVE.  I mean really, what do they expect?  It's the same thing for any other "niche" disease one can get.
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Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #59 on: March 17, 2010, 12:04:44 PM »
What did you mean to suggest here?  

I Think it means what it says.....Rent, Food, Gas & Electricity, local Sale Tax, and the overall cost-of-living
it's not the same in every County, City or State, it is very different, as far as Rent go's , that is calculated by Fair-Market-Value, my Rent cost about $700 Dollars a month, but, back in California, that same square-footage would cost $1,200 month, you see, it's very different , I'm sure it even cost more in NYC, PHILLY, DC, and the like , and let's NOT forget about local sale tax, that varies too.........
« Last Edit: March 17, 2010, 12:09:07 PM by denb45 »
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Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #60 on: March 17, 2010, 12:12:42 PM »
I Think it means what it says.....Rent, Food, Gas & Electricity, local Sale Tax, and the overall cost-of-living
it's not the same in every County, City or State, it can and is very different, as far as Rent go's , that is calculated by Fair-Market-Value, my Rent cost about 700 Dollars a month, but, back in California, that same square-footage would cost $1,200 month, you see, it's very different , I'm sure it even cost more in NYC, PHILLY, DC, and the like , and let's NOT forget about local sale tax, that varies too.........

The one bedroom that I live in ain't grand, but it's a good location on a subway line and just 3 stops from City Hall.  I can walk downtown if I need to.  I pay $550/month, no utilities included.  Most similar units in this area (i.e. with newly renovated bathrooms/kitchens... which mine doesn't have) would be about $850 or so.  Right downtown it would be $1000 I think.  

It's a fairly good size one bedroom -- it's not a studio efficiency.  I think it might be like 700 sq/ft but I've not measured it.  In Brooklyn this would easily cost $1500/mo and probably $2500 in Manhattan.

But whatever, I moved to Philly because of all the northeast cities (DC, Baltimore, NYC, Boston) it's by far the most affordable, and doable for someone who doesn't own a car (I have a license, I just don't like the extra expense of owning a car, plus I'm an envirotard).

Due to the amount of SSDI I receive, I do not qualify for any other programs aside from ADAP.  None.  I pay my rent, utilities and food costs all from my SSDI.  I don't get food stamps like most of the rest of you, nor do I get any rental assistance.

But the bottom line is that I made the choice to relocate to a place with a large selection of highly qualified HIV specialists, with top notch hospitals and university related medical programs, as well as resources for clinical trials.  Everyone here knows my HIV is in the "advanced" tier, so I need these things.  But my point is that each and every person has the ability to relocate just like I did.  You don't have to sit back in rural Georgia and complain that you have one doctor and they got their medical degree from the Barbizon Modeling School.  Sorry, but that just doesn't cut it.
« Last Edit: March 17, 2010, 12:14:47 PM by Miss Philicia »
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Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #61 on: March 17, 2010, 12:22:41 PM »

Due to the amount of SSDI I receive, I do not qualify for any other programs aside from ADAP.  None.  I pay my rent, utilities and food costs all from my SSDI.  I don't get food stamps like most of the rest of you, nor do I get any rental assistance.


Me too Miss P, I don't get any other benefits other than ADAP & Ryan White, I do not qualify for  anything else, but, I live with someone else in a 2 1/2 bedroom with my other half, and he makes the same amount of SSDI as I do, he doesn't have a car, but I do, and we split everything down to 50 to 50, so that works, if I lived alone, I would really have to downsize almost everything, if i didn't I wouldn't be able to live like I do now.....
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Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #62 on: March 17, 2010, 01:46:09 PM »
Yeah, that's the other thing with Miss P -- she's a spinster and does all of this on her own lonesome (except when fuckbuddies like Carlos spill poppers over expensive books that I only own from that long ago era when I made a high salary...)

My only "cushion" so to speak is some hidden money that I got when my grandmother passed away five years ago, but I spent half of it getting set up in this apartment, and I'm going to have to dip in it again to buy a new computer because the one I have right now is pushing on five years.

There's enough room here if I ever had a boyfriend, and yes it would save me a tidy sum of around ~$500/mo and I could use it to go out to fancy romantic dinners and trips with Mr. Right... but alas, that Rightness never seems to ring the door bell.  These days any trips I take are a cheap Greyhound to NYC where I have free places to crash, or trips with Mom and Dad.
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Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #63 on: March 17, 2010, 02:25:44 PM »
Well, you don't really need someone to live with you, seems like you got that under control...I don't think I make quite as much SSDI as you do tho, I worked in Calif. which was good enough to secure a decent SSDI income, but you worked in NYC, so, there is quite a bit of difference but not by that much at all
Hey, you gotta do what you can do, so, don't feel to bad about replacing that old PC, they are a lot faster now, better, and a lot cheaper too  ;D I haven't lived alone for the last 15 yrs. but I often think about it a lot, just me and my Cat, living VERY modestly and happy enjoying the single life, I can't say that I envy your
single life, but, I do dream about it tho  ;)
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Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #64 on: March 17, 2010, 02:27:02 PM »
Oh, I bring in substantially more than that, but I was that Fierce Manhattan Queenô with the fancy pants job in Soho making the big bucks...and yeah, I managed an entire high end design firm as CFO all with a big ole AIDS diagnosis.  My disability claim was based on that income level, but I still had to move to a cheaper city when I went on disability.  A girl's gotta do what a girl's gotta do.  My rent is more than yours, but only a little -- and like I said I don't own a car -- do you?  You neglected to mention your automotive costs. As far as the $647 you bring in, well -- are you working or on the dole?

And by the way, I never once said AIDS service in rural areas should be cut so stop with your mendacious tediousness.

I figured yours was quite a bit more... Just a hunch.
I don't own a car, but my other-half does.. Insurance is about $269 every six months.

You might not have outright said it, but you sure insinuated it..
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #65 on: March 17, 2010, 02:36:44 PM »
I figured yours was quite a bit more... Just a hunch.
I don't own a car, but my other-half does.. Insurance is about $269 every six months.

You might not have outright said it, but you sure insinuated it..

Hey blackwingbear.....why are you so bitter hon  :-\  I don't get it?
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Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #66 on: March 17, 2010, 02:40:09 PM »
What exactly is your IQ?
142...And yours?

Careful who you call wealthy on here man.  I think most of us are either temporarily or partially disabled and it screws your finances over big time.  Just stop setting up the "us" vs "them" scenarios.  No one is out to get you mister persecution complex.

It's not "us" vs. "them" at all, but you & Miss P have been tag-teaming on me since I started here - and you'll get away with it, no matter what you say, insinuate or who you insult & call names. At least when Matty jumps someone's hide he usually has a reason. Now since I responded to her insinuation rural funding should be cut, you are jumping in. Hmmmm....

 You don't have to sit back in rural Georgia and complain that you have one doctor and they got their medical degree from the Barbizon Modeling School.  Sorry, but that just doesn't cut it.

Yep, everyone in rural Georgia is hicks and idiots ... Go on, get your stereotype on... Actually, I have one of the best doctors in the region - but I can guarantee he doesn't need the funding pulled-out from under him. And that was your insinuation..
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #67 on: March 17, 2010, 02:41:41 PM »
Hey blackwingbear.....why are you so bitter hon  :-\  I don't get it?

I don't think it's bitter to raise a point when someone insinuates rural-funding should be cut and that will somehow increase funding to urban areas.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline skeebo1969

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #68 on: March 17, 2010, 03:04:54 PM »



   Are you hearing voices?
I despise the song Love is in the Air, you should too.

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #69 on: March 17, 2010, 03:26:05 PM »
I don't think it's bitter to raise a point when someone insinuates rural-funding should be cut and that will somehow increase funding to urban areas.

Please stop misstating what I wrote, you duplicitous bitter party of one.  Everyone's on to your little bag o' tricks and Joan of Arc martyrdom routine since you first pranced on this board.
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Offline RapidRod

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #70 on: March 17, 2010, 03:36:05 PM »
There is a huge difference in SSI and SSDI payments.

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #71 on: March 17, 2010, 03:42:04 PM »
If you ask me the cut-offs shouldn't be done state by state -- they should be done by an urban/rural formula.

Show me how I purposely misconstrued this statement please.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #72 on: March 17, 2010, 03:50:37 PM »
Show me how I purposely misconstrued this statement please.

Why is the % of poverty level in Nebraska not the same as in New York state?  Then you'll have your answer.  It's not an issue of cutting rural funding.

You really aren't very smart.
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Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #73 on: March 17, 2010, 03:51:32 PM »
There is a huge difference in SSI and SSDI payments.

Of course there is -- some people actually once worked for a living, and I don't mean a drive through at Wendy's.
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Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #74 on: March 17, 2010, 03:52:24 PM »


   Are you hearing voices?

Does that happen with Asberger syndrome?
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Offline skeebo1969

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #75 on: March 17, 2010, 03:54:04 PM »



   All I know is Georgia is good for something, namely Atlanta.  Never seen so many fine redbones in my life!
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Offline skeebo1969

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #76 on: March 17, 2010, 03:56:03 PM »
Does that happen with Asberger syndrome?

How can you be sure that's what his problem is though?  I think we need to further test before we jump to conclusions.
I despise the song Love is in the Air, you should too.

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #77 on: March 17, 2010, 04:00:39 PM »
You really aren't very smart.

And you really aren't anything but a bitter, cynical ****  out to see how much you can insult & degrade others before you shuffle off this mortal coil because of your own misery and loneliness.... And personally, I'd like to know the source for your figures because your logic doesn't jive with reality.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #78 on: March 17, 2010, 04:01:29 PM »
Does that happen with Asberger syndrome?

"Hon'", your cattiness is showing.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #79 on: March 17, 2010, 04:06:09 PM »
There is a huge difference in SSI and SSDI payments.

Yes Hal, your correct, they are very different  ;)
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Offline RapidRod

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #80 on: March 17, 2010, 04:09:45 PM »
Of course there is -- some people actually once worked for a living, and I don't mean a drive through at Wendy's.
There you go Miss P. You don't know what you're talking about. Do you know that if you don't pay into SS two years before filing for SSDI you are not qualified. I've worked since I was 16 and paid into SS but the last two years before I was sick my employment didn't take out SS and it disqualifies you and paying into SS for 34 years doesn't qualify. I will however qualify for my SS when and if I make it to age.

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #81 on: March 17, 2010, 04:25:33 PM »
There you go Miss P. You don't know what you're talking about.

I'm glad someone said it - "her" self-importance is rather nauseating.. Apparently the working-class are less than human to "her". I've done everything from owning my own business to working for AOL as an IT-specialist to the aforementioned "flipping burgers" - and none of it made me less of a human-being just because it had a lower pay-scale. Now (hopefully) we can get back to the problem in SC...
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #82 on: March 17, 2010, 04:33:42 PM »
There you go Miss P. You don't know what you're talking about. Do you know that if you don't pay into SS two years before filing for SSDI you are not qualified. I've worked since I was 16 and paid into SS but the last two years before I was sick my employment didn't take out SS and it disqualifies you and paying into SS for 34 years doesn't qualify. I will however qualify for my SS when and if I make it to age.

Yeah, I know they base it on the last 2-3 years of what you paid into SS.  Can't say it's my fault you didn't look at your check stubs to see that payroll was making a mistake, now can I?  As the CFO where I worked I do have a bit of a handle on how stuff like this works.  Plus those last couple of years I'd gotten a hefty raise so that pumped my SSDI up high, plus salaries are high in Manhattan to begin with.

And guess what honey, this queen worked since around the age of 14 though it was off the books at that time since it wasn't technically legal to be working.  Lazy is one thing I never was in terms of employment, so you can pimp your cause elsewhere Roddles.  I'm sorry, however, that you got screwed by your employer, but I can't imagine not noticing that it was happening.  Don't you have any legal case regarding that or did you already pursue it?
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Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #83 on: March 17, 2010, 04:35:13 PM »
I'm glad someone said it - "her" self-importance is rather nauseating.. Apparently the working-class are less than human to "her". I've done everything from owning my own business to working for AOL as an IT-specialist to the aforementioned "flipping burgers" - and none of it made me less of a human-being just because it had a lower pay-scale. Now (hopefully) we can get back to the problem in SC...


Since when did I morph into a trust fund baby?  Just because I earned more money than you, and have multiple college degrees, is no reason for you to resort to your typical web forum bitterness with me.  If I didn't know better I might assume you don't like me.
"Iíve slept with enough men to know that Iím not gay"

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #84 on: March 17, 2010, 04:36:59 PM »
And personally, I'd like to know the source for your figures because your logic doesn't jive with reality.

What "figures", sweetheart?  Be specific.  And as far as logic goes I highly doubt you know what the word means.
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Offline David_CA

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #85 on: March 17, 2010, 04:40:27 PM »
Ladies, be nice.   ;)
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Offline skeebo1969

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #86 on: March 17, 2010, 04:48:40 PM »


  Um, forget it..  had a real cool pic, but it just shows a link.
I despise the song Love is in the Air, you should too.

Offline skeebo1969

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #87 on: March 17, 2010, 04:52:25 PM »
Now (hopefully) we can get back to the problem in SC...

Brownbear, We won't be discussing SC here, that's the other thread.  You OK man?
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Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #88 on: March 17, 2010, 05:00:46 PM »
Since when did I morph into a trust fund baby?  Just because I earned more money than you, and have multiple college degrees, is no reason for you to resort to your typical web forum bitterness with me.  If I didn't know better I might assume you don't like me.

I have multiple degrees also - in fields ranging from Broadcasting to Psychology to Computer Programming and Systems Technology. Personally, I really could not care less how much money you made - it's your attitude that's grating. And it's not that I don't like you - honestly, I don't grant you enough importance to really matter to me. Now, how about we get back to discussing the OP's problems?

What "figures", sweetheart?  Be specific.  And as far as logic goes I highly doubt you know what the word means.

Your poverty per area figures... And to satisfy your smugness - logic is a system of reasoning , as in a structure of propositions distinguished from their content in measure of deductive reasoning ability. To borrow and paraphrase an ol' Rocky Horror audience-participation line, "something you'll only read about." Now, can you get off your high-horse long enough to attempt to come up with some positive advice for the situation?

Ladies, be nice.   ;)

I'm trying to diffuse it, but someone is attempting to keep it going.

Brownbear, We won't be discussing SC here, that's the other thread.  You OK man?

Sorry, I mixed them up in the heat of the attempt...
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #89 on: March 17, 2010, 05:08:25 PM »
"Iíve slept with enough men to know that Iím not gay"

Offline Assurbanipal

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #90 on: March 17, 2010, 05:28:00 PM »
There you go Miss P. You don't know what you're talking about. Do you know that if you don't pay into SS two years before filing for SSDI you are not qualified. I've worked since I was 16 and paid into SS but the last two years before I was sick my employment didn't take out SS and it disqualifies you and paying into SS for 34 years doesn't qualify. I will however qualify for my SS when and if I make it to age.

Apologies to Karl for the continued hijack, but the above info does not sound correct and if this is what you were told you may want to look into filing an appeal.

In general Social Security disability requires that you have worked recently, which they define as working and paying social security taxes in 5 of the last 10 years. (Technically you need 20 "Quarters of Coverage" where you earned at least a certain minimum amount and paid the required social security taxes)  You must also have contributed for a minimum duration which varies by age but is generally less than 10 years.

There are ramp up rules for young people (under age 31) for whom 5 of the last 10 might be difficult to meet.

A simplified explanation of the rules is at:  http://www.ssa.gov/pubs/10029.html

A

5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #91 on: March 17, 2010, 06:52:26 PM »
I bring in $647 a month and $395 of that goes for rent.... And you?

Have you considered living in the Greater Atlanta Metro area, it is very possible that at your income level
that you may qualify for a lot more services that you wouldn't other wise get.......just saying  ;D are you anywhere near the Atlanta area?
« Last Edit: March 17, 2010, 06:54:21 PM by denb45 »
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Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #92 on: March 17, 2010, 07:41:42 PM »
Have you considered living in the Greater Atlanta Metro area, it is very possible that at your income level
that you may qualify for a lot more services that you wouldn't other wise get.......just saying  ;D are you anywhere near the Atlanta area?

He's an hour away (70 miles) -- practically a suburbanite.  It's a lot of crying over nothing.
"Iíve slept with enough men to know that Iím not gay"

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #93 on: March 17, 2010, 08:19:22 PM »
He's an hour away (70 miles) -- practically a suburbanite.  It's a lot of crying over nothing.

$600 a month isn't very much to live on, I wouldn't be able to do it, hell, I'd be crying too  :'(
however, I'm sure there are many others on this forum who somehow make do, with what little they do have to live on  :-[
« Last Edit: March 17, 2010, 08:23:23 PM by denb45 »
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Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #94 on: March 17, 2010, 08:47:08 PM »
$600 a month isn't very much to live on, I wouldn't be able to do it, hell, I'd be crying too  :'(
however, I'm sure there are many others on this forum who somehow make do, with what little they do have to live on  :-[

No, I was meaning more the fact that he says there's no ASO and only one HIV specialist where he lives, or something like that.  I can't speak to his income as when I read his bio it doesn't sound like he's on disability for HIV, just perhaps unemployed?  Maybe he can clear this up for all of us.
"Iíve slept with enough men to know that Iím not gay"

Offline leatherman

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #95 on: March 17, 2010, 08:54:50 PM »
we could probably start a whole new thread about poverty, and how to live on less than $100 after housing and utilities. ;)  :D

I spent 3 years repaying SS and only getting about $500 a month SSD (losing two homes because of that too) and I'm marking it a year this month being back up by nearly a third to $750. With that increase, and being a yr off cigs, I've been a rich man this year. ROFL back when I had a pet store I would have never imagined that I could live on less than $9000 a yr, much less feel like I was really "rich" having that much money in a year. LOL (although I have taken a hit by SC paying out only half the federal food stamp amount.)

Looking back, Carl, maybe this explains why that case worker said you were "rich". You bring in almost twice what some of us have each month. ;) By the way, did you contact the health dpt this week? Get any results or excuses?
leatherman (aka mIkIE)


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Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #96 on: March 17, 2010, 09:09:18 PM »
No, I was meaning more the fact that he says there's no ASO and only one HIV specialist where he lives, or something like that.  I can't speak to his income as when I read his bio it doesn't sound like he's on disability for HIV, just perhaps unemployed?  Maybe he can clear this up for all of us.

I remember when I was on State-Disability before my SSDI kicked-in, I made like $432 a week back in 1998, and that was the MAX I could get in California back then, and that was almost 12 yrs ago, when I got sick, and had 90-t-cells and severe amounts of diarrhea, along with a lot of Trush......I was SICK  ???
it didn't match my monthly income, before, but, it was enough to at least live on......
« Last Edit: March 17, 2010, 09:12:55 PM by denb45 »
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Offline ds4146

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #97 on: March 17, 2010, 09:14:17 PM »
Wow! This communication, from clearly two bitchy and unhappy people, makes it very clear why I rarely sign in. You guys make it very uncomfortable to post or ask anything on this site, except for the above. Move on with your drama.

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #98 on: March 17, 2010, 09:18:50 PM »
Yeah Carl, update us all here, were a little worried, we haven't heard from you  :-[
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #99 on: March 17, 2010, 09:59:14 PM »
Have you considered living in the Greater Atlanta Metro area, it is very possible that at your income level
that you may qualify for a lot more services that you wouldn't other wise get.......just saying  ;D are you anywhere near the Atlanta area?

Actually, I wouldn't be able to afford to live there - the time that I did live there the $647 I bring in now would only cover the rent on a place, not living expenses or utilities - not to mention food. I don't bring in enough. Although I do have one of the best doctors in Georgia and a decent clinic don't really want to give that up just to live in Atlanta. While they do have more programs, more isn't necessarily better.

No, I was meaning more the fact that he says there's no ASO and only one HIV specialist where he lives, or something like that.  I can't speak to his income as when I read his bio it doesn't sound like he's on disability for HIV, just perhaps unemployed?  Maybe he can clear this up for all of us.

Nope, not unemployed... I never have been, except for a short while after one place I worked for "downsized" and I became homeless shortly after. Like you, I have been working since I was 14 (although, also like you, "off the books" for legal reasons). I am on disability now as my health went downhill after PCP.

He's an hour away (70 miles) -- practically a suburbanite.  It's a lot of crying over nothing.

I'm not the one crying - I never stated that I wanted to live there, just that I was unable to financially by a long shot. Actually, I'm about an hour & a half away from Atlanta.... And really do not wish to live closer to it. Believe it or not, I have one of the best HIV doctors in the state and do not want to give that up just to live in a city. That would be really silly.

Wow! This communication, from clearly two bitchy and unhappy people, makes it very clear why I rarely sign in. You guys make it very uncomfortable to post or ask anything on this site, except for the above. Move on with your drama.

I'm just responding to "her"..... but I regret you're experiencing the same thing I saw at my introduction to this site. Unfortunately, I have found this is typical of "her" posts. Apologies to you (and the rest of you) for the part I played in it - all of this started because "she" was proposing rural areas get their funding pulled to favor urban areas. At some point hopefully "she'll" let it drop and we can get back to the OP.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline Miss Philicia

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #100 on: March 17, 2010, 10:11:11 PM »
all of this started because "she" was proposing rural areas get their funding pulled to favor urban areas. At some point hopefully "she'll" let it drop and we can get back to the OP.

Since you continue repeatedly to misstate my position I will be reporting this to the moderators.  I'm done with your propensity to lie.
"Iíve slept with enough men to know that Iím not gay"

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #101 on: March 17, 2010, 10:15:08 PM »
I will be reporting this to the moderators. 

And, of course, you shall portray yourself as completely innocent and as a sweet, gentle individual...
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline Jeff G

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #102 on: March 17, 2010, 10:15:27 PM »
Kick him in the balls .... I really don't want to see anyone kicked in the balls I just got carried away watching the fight ... sorry .

Offline gregftl

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #103 on: March 18, 2010, 02:08:40 AM »
It is illegal for people to tell others that someone is poz. If I were you I'd contact the ACLU

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #104 on: March 18, 2010, 02:41:16 AM »
It is illegal for people to tell others that someone is poz. If I were you I'd contact the ACLU

Good idea, except if this is the only source for meds in the area. That might present quite a problem!
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline weasel

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #105 on: March 18, 2010, 10:10:14 AM »


 Hullo ALL ,
                    Some very   sparky  topics here ....   LOL


    I GOT a letter from my case worker ASKING  ME    IF  I  had heard anything  yet ?????

   I will  FAX  the Lady in Jefferson City on Monday .

   I seem to have been dropped from any CASE-WORKER  care .

 
  Althou I am allowed to attend support groups  :)

  I will update when I hear !   AND  i assume I WILL hear when I contact this time

                                         be well , Carl 


  P.S. I am fortunate to get SSDI and we  live  the woodsman's life .
         I LOVE the city ,but that was NOT  in the cards ....................
" Live and let Live "

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #106 on: March 18, 2010, 11:29:57 AM »
Carl....let us know the outcome ........and whoever took your Ryan White away had better have a good reason for doing so, it seems to me, that they could loose their job over this SHIT  ??? also keep notes, and document who you talked to and spoke with get their NAME & Title, how long they worked there, and who they are   ???
« Last Edit: March 18, 2010, 11:33:30 AM by denb45 »
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Offline Dachshund

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #107 on: March 18, 2010, 12:38:32 PM »
I'm just curious. How does one stretch 600 or so a month? I remember years ago when I became really ill and spent almost a year on the dole. I brought in around six something a month and even with food stamps I couldn't make ends meet. Lost my apartment and truck. Didn't have cable, internet, cell or any other luxury items. Basically became homeless and still came up short every month. Even though I was ill I went back to work after eight months. Today I work full time but still must budget my finances every month. I remain close to the poverty level guidelines in order to maintain ADAP/Ryan White. Either folks are getting some outside help or there is some creative accounting going on.

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #108 on: March 18, 2010, 01:06:45 PM »
I remain close to the poverty level guidelines in order to maintain ADAP/Ryan White.
Hal, that is the way it is for me, however I happen to live with someone who makes the same income as I do, so, this helps some, but, every time I go to the Grocery Store, it seems that every week or so, I come out with STICKER-SHOCK, and the price of gas is going up & up again, as well as rent, and none of this helps anyone, it's called GREED Hall plain and simple, someone is getting rich, but I can assure you it anit me are anyone of us in here ,working or not........
« Last Edit: March 18, 2010, 01:11:56 PM by denb45 »
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Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #109 on: March 18, 2010, 01:27:35 PM »
I'm just curious. How does one stretch 600 or so a month?

VERY carefully! You have to budget every penny of it - forget ever having any extra $ to throw around.. It's a "water-tight" budget. :-\
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #110 on: March 18, 2010, 01:31:37 PM »
VERY carefully! You have to budget every penny of it - forget ever having any extra $ to throw around.. It's a "water-tight" budget. :-\

bear  :'(  it would be a lot worse if you didn't live with someone  :-[ are you sure you cannot go to your local HUD-office (Section eight) you may get some relief on your rent, I think it's a 3rd of what your income would be, your rent that is  :-[
« Last Edit: March 18, 2010, 01:35:12 PM by denb45 »
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Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #111 on: March 18, 2010, 01:35:00 PM »
bear  :'(  it would be a lot worse if you didn't live with someone  :-[

Actually, I bring all the money in... He's unemployed.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #112 on: March 18, 2010, 01:36:04 PM »
Actually, I bring all the money in... He's unemployed.
go to the HUD-office, and see above what I suggested  ;) you may qualify for HOPWA from your local ASO, also, they may have some sort of rental assistance, most ASOs do have this to help w/ rent, it sure  sounds like you would qualify for this  :-\
« Last Edit: March 18, 2010, 01:41:11 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #113 on: March 18, 2010, 01:38:06 PM »
go to the HUD-office, and see above what I suggested  ;)

Good idea, but the waiting-list is about a year...
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #114 on: March 18, 2010, 01:40:22 PM »
Good idea, but the waiting-list is about a year...

see above again  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Dachshund

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #115 on: March 18, 2010, 01:40:56 PM »
VERY carefully! You have to budget every penny of it - forget ever having any extra $ to throw around.. It's a "water-tight" budget. :-\

How two people are able to live on what you bring in is beyond comprehension, but more power to you.

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #116 on: March 18, 2010, 01:44:26 PM »
How two people are able to live on what you bring in is beyond comprehension, but more power to you.

Hall , I think he said his BF is on unemployment....dunno  :-[
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #117 on: March 18, 2010, 02:51:47 PM »
Hall , I think he said his BF is on unemployment....dunno  :-[

No, he is not eligible... I merely said he is unemployed. He was a "victim" of the change in radio from disc-jockeys and on-air personalities to automated systems the station-manager programs once a week. Atlanta Radio Theater Company (which he helped found and start) has somewhat died down due to one of their heads attempting to cater solely to convention crowds. After his stroke, most other businesses wouldn't hire him due to his mobility problems.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #118 on: March 18, 2010, 03:05:30 PM »
Bear......you may qualify for HOPWA from your local ASO, also, they may have some sort of rental assistance, most ASOs do have this to help w/ rent, it sure sounds like you would qualify for this
it really couldn't hurt if you were more pro-active about your situation, I'd start making some calls
and start applying for some of these things, that can help you out some hon  ;)  
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #119 on: March 18, 2010, 04:29:15 PM »
Bear......you may qualify for HOPWA from your local ASO, also, they may have some sort of rental assistance, most ASOs do have this to help w/ rent, it sure sounds like you would qualify for this
it really couldn't hurt if you were more pro-active about your situation, I'd start making some calls
and start applying for some of these things, that can help you out some hon  ;)  

My partner is H.I.V. negative - would I still be eligible considering we live together?
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline Jeff G

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #120 on: March 18, 2010, 04:43:15 PM »
My heart goes out to you Bear . Do you guys have friends near to socialize with ?

 I lived on $800 a month for many years but I didn't have to pay rent , just utility's and food . I never did anything except go to the store and back home again . I had some friends I would go see once a month that lived about a 100 miles away and that kept my sanity in tack LOL sort of .

When my doctor found out my lack of a social life he and his boyfriend treated me to a movie and dinner every Tuesday . I felt embarrassed at first but they were so sweet about I gave in . My situation has changed recently so I'm able to treat them to a night out every now and then . Thank god for good friends .

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #121 on: March 18, 2010, 05:05:37 PM »
My partner is H.I.V. negative - would I still be eligible considering we live together?

You might be eligible for HUD rental assistance, if you are your partner can prove that one of you may need assistance, but, that only means, that whoever needs a caregiver only one of you, the sickest one, will get assistance with a doctors note that says that person need help with cooking, driving, and house-work (like your partner which has mobility issues) so that would mean he would have to apply, as far as getting rental assistance form your local ASO, HOPWA sounds like it would be more geared to you, since you are way below the Federal Poverty Line.....@ 100%

 I don't think it really matters if you live with someone, it does, if he has a job, or other household income, but in your case he doesn't......but please keep in mind that you are the one that is HIV+ and you are the one that needs help, so, play this card VERY wisely  as THIS can be VERY TRICKY.... if you do apply for any help most ASOs have strict guidelines on this matter, where household income come into play.....  

however HUD-sec-eight is a little different and go's by who is the sickest, and who needs the most assistance, and NOT by your household income, you should however apply for both, it couldn't hurt any  , and one more thing, if your partner is sick & has mobility problems perhaps, maybe
you should take him to a doctor, are go apply for some SSI or SSDI  or Medicaid it sounds like he cannot work anymore, and may need some help too....

bear my heart go's out to ya, and I do hope that you use some of this info to get the help you need, sounds to me like both you and your partner need some help, I do hope you find your way outta this mess your in ...good luck to ya hon  ;)
« Last Edit: March 18, 2010, 05:14:56 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #122 on: March 18, 2010, 05:14:39 PM »
My heart goes out to you Bear . Do you guys have friends near to socialize with ?

He's from about 35 miles from here and has several friends locally.. I have a few nearby also; socialization isn't a problem for us..
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline gregftl

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #123 on: March 18, 2010, 05:20:53 PM »
Another option is you might try one of those free clinics Dr. Oz helped to create. I know there are all over the country now. Here is the website you can put in your zip code to see if one is near you:

http://www.freeclinics.us/freeclinic.php

Offline phildinftlaudy

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #124 on: March 18, 2010, 06:44:41 PM »
In regards to how HOPWA works here in Miami if you have a non-positive roommate, HOPWA will split the rent in half (they will have your obligation as half the rent and your non-positive roommate's as 1/2 the obligation) they then will pay whatever portion you are eligible for based on your half.  His income shouldn't enter into the equation..... the only other way around it is if you show that you need someone there to be a caregiver to you, then they don't expect the other person to pay their half of the rent and do the equationi based on what the rent is, what their allowance is to cover and what your income is
Hope all of that wasn't too confusing.... :)
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Matty the Damned

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #125 on: March 18, 2010, 07:12:54 PM »
If you can afford an internet connexion, you're not poor.

MtD

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #126 on: March 18, 2010, 07:58:10 PM »
Another option is you might try one of those free clinics Dr. Oz helped to create. I know there are all over the country now. Here is the website you can put in your zip code to see if one is near you:

http://www.freeclinics.us/freeclinic.php

Already use it for "hubby's" health-care! Thanks though!

If you can afford an internet connexion, you're not poor.

MtD

$40/month... Unnecessary expense maybe, but it makes life tolerable.

It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline Cliff

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #127 on: March 19, 2010, 05:05:24 AM »
I was thinking the same thing.  Your free cash flow is $252 a month but yet you have access to the internet.  At $40 a month that's 16% of your income (post rent) going towards the internet (excluding the cost of owning/buying a computer)! 

It is a shame the level of poverty, the gov expects people to live on....whilst wealth is all around. 

Offline actupts

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #128 on: March 19, 2010, 06:52:01 AM »
Yeah, I know they base it on the last 2-3 years of what you paid into SS.  Can't say it's my fault you didn't look at your check stubs to see that payroll was making a mistake, now can I?  As the CFO where I worked I do have a bit of a handle on how stuff like this works.  Plus those last couple of years I'd gotten a hefty raise so that pumped my SSDI up high, plus salaries are high in Manhattan to begin with.

And guess what honey, this queen worked since around the age of 14 though it was off the books at that time since it wasn't technically legal to be working.  Lazy is one thing I never was in terms of employment, so you can pimp your cause elsewhere Roddles.  I'm sorry, however, that you got screwed by your employer, but I can't imagine not noticing that it was happening.  Don't you have any legal case regarding that or did you already pursue it?

Actually, many Americans have jobs that do not pay into Social Security.  It is, for example, common for government employees to pay into a mandatory pension plan instead of Social Security.

In my case, I worked for several years at a state university where, instead of sending money to SSA, the university sent the money to the public employee retirement fund.  (They did, however, take money out for Medicare.)   I am therefore ineligible for SSDI. 

Unfortunately, I worked for the university for less than the five years required for to be eligible for disability or a pension.  The fact that I was forced to leave because my co-workers were terrified of working with or eating near a PWA was irrelevant; I was ineligible for disability or retirement benefits because I worked there less than five years.

As a result, I collect SSI, Medicare, and Medicaid.
« Last Edit: March 19, 2010, 04:53:32 PM by actupts »

Offline Dachshund

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #129 on: March 19, 2010, 08:03:45 AM »
I was thinking the same thing.  Your free cash flow is $252 a month but yet you have access to the internet.  At $40 a month that's 16% of your income (post rent) going towards the internet (excluding the cost of owning/buying a computer)! 

It is a shame the level of poverty, the gov expects people to live on....whilst wealth is all around. 
Cable, cell phone service? Factor in the car insurance payment and gas and either this guy is the most frugal man in America or he's not revealing other sources of income.

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #130 on: March 19, 2010, 09:00:52 AM »
Cable, cell phone service? Factor in the car insurance payment and gas and either this guy is the most frugal man in America or he's not revealing other sources of income.
Yeah, I just don't see how 2 adult men can both live off $647 a month, it really doesn't seem likely at all to me, no matter how many corners you cut each month  ::) my hat go's off to him and his partner just for pulling that off, without Foodstamps, General Relief, are some other type of help  :-[
« Last Edit: March 19, 2010, 09:08:39 AM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #131 on: March 19, 2010, 12:01:49 PM »
I was thinking the same thing.  Your free cash flow is $252 a month but yet you have access to the internet.  At $40 a month that's 16% of your income (post rent) going towards the internet (excluding the cost of owning/buying a computer)! 

Again, unnecessary expense... It's a lil' extra that makes for sanity. There is no cost as far as owning or buying a computer - it's one Willie has has for about 4 years and it seems to still work fine.

 
Yeah, I just don't see how 2 adult men can both live off $647 a month, it really doesn't seem likely at all to me, no matter how many corners you cut each month  ::) my hat go's off to him and his partner just for pulling that off, without Foodstamps, General Relief, are some other type of help  :-[

DO get Foodstamps, actually... Sorry didn't think to mention that before - that DOES add in - and make a Hell of a difference!

Cable, cell phone service? Factor in the car insurance payment and gas and either this guy is the most frugal man in America or he's not revealing other sources of income.

The cellphone service is via Safelink, so it's free. The house-phone is MagicJack, so it's $20 per year. The "cable" (which I don't really use but "hubby" does) comes free with the internet.

I know some on here simply can't wrap their brain around living on less than $1000-$2000 a month, but believe it or not it is a reality. When you don't have a choice, all you CAN do is learn how to do it.
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #132 on: March 19, 2010, 07:55:03 PM »

DO get Foodstamps, actually... Sorry didn't think to mention that before - that DOES add in - and make a Hell of a difference!


Is Medicaid aware that your hubby is living with you, and is disabled as well, this may help too, as he has ZREO-income, it couldn't hurt, also, did you know that he can apply for Medicaid as well, this would help pay for his medical bills, co-pays, and doctors visits, general relief is also available to him ( it's an additional $200 to $300 a month, whatever your State or County allows) as he has NO-income, he should apply for these things was well , as THIS will help the both of you out a lot, DON'T be ashamed of any of this, and it again, couldn't hurt to ask hon, you and your sick hubby needs to both be pro-active to go out and apply for what you need  ;)
« Last Edit: March 19, 2010, 08:01:07 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #133 on: March 19, 2010, 08:13:28 PM »
Is Medicaid aware that your hubby is living with you, and is disabled as well, this may help too, as he has ZREO-income, it couldn't hurt, also, did you know that he can apply for Medicaid as well, this would help pay for his medical bills, co-pays, and doctors visits, general relief is also available to him ( it's an additional $200 to $300 a month, whatever your State or County allows) as he has NO-income, he should apply for these things was well , as THIS will help the both of you out a lot, DON'T be ashamed of any of this, and it again, couldn't hurt to ask hon, you and your sick hubby needs to both be pro-active to go out and apply for what you need  ;)

Thanks, Dennis!!! :)
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline denb45

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #134 on: March 19, 2010, 08:24:27 PM »
Thanks, Dennis!!! :)

Your welcomed hon, I've never had to use most of these programs before, I've been lucky, but, I do know that most of them do exist to help everyone in need, as I was very happy to pay the taxes to keep them going before I got sick myself  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline midland moe

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #135 on: March 20, 2010, 05:22:51 AM »
I agree its total BS and im a hothead who is quick to go on the offensive when i feel trodden upon, that being said and becuase i can be objective since im not the one who is angry (if i was i wouldnt be able to think it through until i stopped and forced myself to) as wrong as it is, and as hurt as you are by this, think about whats important...your health and your ability to access affordable care...if that means you have to sacrifice a little dignity unfortunately that is the hidden cost, is it fair no! is life fair? not always...when it comes to treating hiv unless your a millionaire you cant afford to take a stand on principles...call them and say your sorry for getting angry (even if your not) ask them to see it from your point of view and ask them to overlook the outburst you directed at them, and to PLEASE help you (you dont have to like doing this, but it will make your life easier in the long run) just my 2 cents
Diagnosed + 4/15/08               VL 570,000  cd4  85
started ATRIPLA 7/20/08         VL 301,757  cd4  45
8/22/08                                 VL       171  cd4  185
11/25/08    undetectable                           cd4  371

03/30/09    undetectable                           cd4  464
07/07/09    undetectable                           cd4  419
12/04/09    undetectable                           cd4  534
        cd4 % 20
04/09/10 undetectable                                cd4  667
         cd4%  22.1
07/16/10   undetectable                              cd4  573
         cd4%  23.8
03/25/11   undetectable                              cd4  655
         cd4%  29.4

Offline blackwingbear

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #136 on: March 24, 2010, 05:05:47 AM »
It's all a sham. Politics is a big game, same as the media - and same as religion. The point is to distract & control. If we're looking at what they tell us is the "big issue", we're not looking at what they are doing. In time, there will be different causes and different minorities to pick-on. All in the name of keeping the system going, and the people distracted.

Offline weasel

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Re: Ryan white funding JERKED OUT FROM UNDER ME !
« Reply #137 on: April 01, 2010, 07:21:03 PM »

   Hullo, ALL

        Well it looks like I MAY  get my Ryan white back   OCTOBER   first !

       I am NOT  going to fight  it anymore .

        AS  suggested I have pleaded my point , and asked for forgiveness !

     I miss NOT being  able to go to my group or see the friends I have made thought the years !

     It is MY life !  We do NOT do anything but eat piddle around and go to support groups
      when we feel good !

     I AM  SORRY that this happend !  Won't be doing that again !

       **************

       I am surprised that some of you find it hard to believe  how little  one can live on !

       We are OK  NOW !

      But for a few years  we did with out   cable . ( fuzzy T.V. )  one station !

      I had   Dial up  (    $9.99 )  a month  !

      Ate   only  cheap  food !

      We still do NOT  use the air conditioning much !

      Conserve  electric !

      Our idea of fun is chopping a tree down  ::)

     I pray  WE ALL get to live better lives one day .

                                                             Carl
" Live and let Live "

 


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