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Author Topic: Write your Congressmen and Senators  (Read 3262 times)

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Offline mewithu

  • Member
  • Posts: 160
  • mewithu
Write your Congressmen and Senators
« on: January 04, 2010, 12:25:16 PM »
  It is vitally important that you use congress.org to contact your Representatives in your area not to forget that many people are still  dying in this country from AIDS/HIV complications. We need to get more funds to save  our very lives we live.
1997 is when I found out, being deathly ill. I had to go to the hospital due to extreme headache and fever. I fell coma like,  two months later weighing 95 pounds and in extreme pain and awoke to knowledge of Pancreatis, Cryptococcal Meningitis, Thrush,Severe Diarea,  Wasting, PCP pneumonia. No eating, only through tpn. Very sick, I was lucky I had good insurance with the company I worked for. I was in the hospital for three months that time. 
(2010 Now doing OK cd4=210  VL= < 75)
I have become resistant to many nukes and non nukes, Now on Reyataz, , Combivir. Working well for me not too many side effects.  I have the wasting syndrome, Fatigue  . Hard to deal with but believe it or not I have been through worse. Three Pulmonary Embolism's in my life. 2012 520 t's <20 V load

Offline kellyspoppi

  • Member
  • Posts: 153
Re: Write your Congressmen and Senators
« Reply #1 on: January 30, 2010, 07:02:01 PM »
 ;D

 ;D

i absolutely agree with you. and if at all possible, please participate in AIDSWATCH in washington dc in late april. you can learn more about this event by going to "napwa.org".

you will be trained on how to be an effective advocate during legislative visits as well as have an opportunity to tell your personal story in regard to how the funding they appropriate to your state has helped make your life easier (ie. ADAP funding allows you to access your meds.)

on the other hand, if your state is not receiving an adequate amount of funding to help you with affording your meds or accessing medical treatment, you need to tell your legislators that they need to appropriate more money toward for these services.

kellyspoppi

 


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