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Author Topic: UPDATE: Bob  (Read 9503 times)

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Offline bear60

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UPDATE: Bob
« on: February 14, 2010, 02:29:18 PM »
My friend Bob who has been the subject of several threads here.....is waiting to be approved for a new liver.  He has Hep C and HIV and is experiencing liver failure.
He was recommended for a liver transplant by his doctors here in Philadelphia but was DENIED by Medicare. 
He has a deposition scheduled this week and I guess you will hear more soon.
Wishing him luck.  Lets send lots of positive energy his way.

Joel
Poz Bear Type in Philadelphia

Offline BT65

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Re: UPDATE: Bob
« Reply #1 on: February 14, 2010, 06:42:27 PM »
Energy sent, Joel.  I hope things move fast for him.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline AndyArrow

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Re: UPDATE: Bob
« Reply #2 on: February 15, 2010, 02:59:19 AM »
Positive energy on it's way!
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline leatherman

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Re: UPDATE: Bob
« Reply #3 on: February 15, 2010, 09:57:23 AM »
damn medicare! can't live without 'em, can hardly live with 'em. ::)
Much good luck to BOB on a speedy deposition, a quick approval ..
and getting a nice new liver transplanted SOON. ;D

wow, though Joel. How long has he been waiting now? I know you had mentioned Bob at least last March. And we've almost come back around a full year to that. So he's been dealing with this quite some time. I guess the good thing is that he's held on so long; but how has he been doing then in this past year? I would imagine that the negative governmental/medicial issue and the length of time can't have done Bob's physical health nor mental health much good.

I'm thinking extra hard about my "good vibes" and making it extra strong so Bob can hang on and get through this criisis; so he enjoy things on the other side of this situation :-*
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Online aztecan

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Re: UPDATE: Bob
« Reply #4 on: February 15, 2010, 03:44:18 PM »
Hey Joel,

Lots of positive energy heading his way.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline bear60

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Re: UPDATE: Bob
« Reply #5 on: February 20, 2010, 09:45:06 AM »
Good news. 
Bob's deposition/hearing went real well.  There was a video hookup to a judge in OHIO and with doctors and with Bob here in Philadelphia.
Bob had to listen to all the doctors explain WHY he should get a new liver.  Also the doctors testified that there was no known reason why he is still alive.  When it came Bob's turn to testify, he just broke down and cried.
He has been approved for a new liver.  Now he just has to wait for one.
Its another miracle.
Poz Bear Type in Philadelphia

Offline BT65

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Re: UPDATE: Bob
« Reply #6 on: February 20, 2010, 02:44:34 PM »
That's great news, Joel.  I'll still send some positive flows that way.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline leatherman

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Re: UPDATE: Bob
« Reply #7 on: February 20, 2010, 07:12:58 PM »
OHIO
He has been approved for a new liver.  Now he just has to wait for one.
When it came Bob's turn to testify, he just broke down and cried.
WooHoo Ohio! and WooHoo for Bob!!! ;D That's great to hear.

When it came Bob's turn to testify, he just broke down and cried.
poor guy! sometimes that's all you can do to express such extreme emotions.

Let Bob know we thinking and hoping the good thots for a liver to come thru soon now! :-*
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Theyer

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Re: UPDATE: Bob
« Reply #8 on: February 22, 2010, 12:26:42 PM »
Thats wonderful, congrats has Bob made history-----t
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline unclespongebob

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Re: UPDATE: Bob
« Reply #9 on: February 26, 2010, 02:35:24 PM »
hey thats great ,let bob know that we are still praying for him
friends are gods way of apologizing to us for our familys. / a real friend os one who walks in when the rest of the world walks out. / everybody wants to ride with you in the limo,but what you need is sombody who will take the bus with you when the limo breaks down./ one friend in a lifetimeis much; two are many; three are hardly possible.

Online Jeff G

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Re: UPDATE: Bob
« Reply #10 on: February 26, 2010, 02:50:33 PM »
This made my day !!!

Offline netta

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Re: UPDATE: Bob
« Reply #11 on: March 10, 2010, 12:22:25 PM »
Great news,
My brother had the same problem , couldn't get the operation, but he passed last year.
"to thine own self be true"

Offline AndyArrow

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Re: UPDATE: Bob
« Reply #12 on: March 13, 2010, 02:02:13 AM »
I haven't been on much lately so I'm a little late but that's great news!!!!  Now the real waiting begins so I'll keep on sending out that positive energy Bob's way.
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline bear60

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Re: UPDATE: Bob
« Reply #13 on: March 16, 2010, 07:49:17 AM »
I am doing some work for Bob at his house.  Yesterday he was describing a proceedure to bypass  blood going to the liver, so that it goes around his liver,  so it wouldnt make all that protein that fills him up.  I didnt really get all the details, but he is having this done soon.


He is otherwise about the same.
Poz Bear Type in Philadelphia

Offline anniebc

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Re: UPDATE: Bob
« Reply #14 on: March 16, 2010, 05:17:56 PM »

Hi Joel

It sounds like they are going to place a transvenous shunt into Bob...this is what they use to create a shunt in the liver then (I think) this is linked to portal vein and this starts draining the blood away from the liver with a stent...it's been along tiem since I did my general but if it's not this procedure then it will be something very similar, as far as I can remember.

Ok sorry to impose in your forum so I'll wish you and Bob well and get the hell out of here... ;D

Hugs
Jan :-*

-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline bear60

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Re: UPDATE: Bob
« Reply #15 on: March 17, 2010, 08:40:19 AM »
Thanks Jan.
That sounds right.  He used "stent" and "shunt" to describe what the proceedure is.  I think this is aimed at making his kidneys work harder,  instead of the liver.  Am I right?

Poz Bear Type in Philadelphia

Offline Ann

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Re: UPDATE: Bob
« Reply #16 on: March 17, 2010, 11:08:00 AM »
It sounds like he has ascites. Shunting is fairly common procedure before liver transplant.

I hope he gets his new liver SOON!

Hugs,
Ann
xxx
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Offline anniebc

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Re: UPDATE: Bob
« Reply #17 on: March 17, 2010, 06:21:01 PM »
Hi joel

Yes the surgery will help the kidneys, the portal vien is used quite a lot in major organ surgery..or at least parts of it are.

As always Ann is right, shunting is a fairly common procedure.

Hugs to you both
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline bear60

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Re: UPDATE: Bob
« Reply #18 on: March 18, 2010, 01:38:18 PM »
In medicine (gastroenterology), ascites (also known as peritoneal cavity fluid, peritoneal fluid excess, hydroperitoneum or more archaically as abdominal dropsy) is an accumulation of fluid in the peritoneal cavity.

Ann...yup thats what he has.  He gets his abdominal cavity drained onece a week.
Poz Bear Type in Philadelphia

Offline AndyArrow

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Re: UPDATE: Bob
« Reply #19 on: March 23, 2010, 01:42:22 AM »
I always learn so much here ... either you guys are really smart or  ??? ??? ???
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline AndyArrow

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Re: UPDATE: Bob
« Reply #20 on: March 23, 2010, 01:43:26 AM »
PS  Thanks for the update on Bob & (i know you will anyway but) please let us know how this procedure goes.
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline bear60

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Re: UPDATE: Bob
« Reply #21 on: March 23, 2010, 12:58:07 PM »
Andy...
I thought the by pass proceedure was happening this week but I was wrong.  I'll let you know when it happens.

Joel
Poz Bear Type in Philadelphia

Offline bear60

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Re: UPDATE: Bob
« Reply #22 on: March 28, 2010, 12:02:53 PM »
Bob is having the by-pass proceedure done on April 5th.
Poz Bear Type in Philadelphia

Offline RapidRod

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Re: UPDATE: Bob
« Reply #23 on: March 28, 2010, 12:07:27 PM »
Thanks for the update Joel.

Offline bear60

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Re: UPDATE: Bob
« Reply #24 on: March 29, 2010, 12:38:48 PM »
The (Philadelphia) AIDS LAW PROJECT is going to have an article/interview about Bob in an upcoming newsletter.
Poz Bear Type in Philadelphia

Offline leatherman

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Re: UPDATE: Bob
« Reply #25 on: March 29, 2010, 07:04:43 PM »
wow. Keep us informed about that too. Though I don't post every time you update, I do pay attention to this this thread and think about your friend Bob. I know how my little brain worries just about keeping things together to keep the meds going, I can't imagine trying to hang on for an organ! :o Plus like that old adage "there but for the grace of god, go I" you never know what might befall you in the future, so it pays to follow these kinds of tales in case it ever happens to you.

Best wishes to Bob!!
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline bear60

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Re: UPDATE: Bob
« Reply #26 on: April 05, 2010, 02:45:50 PM »
Well, as far as I know, Bob is having his liver bypass proceedure done today. 
Sendibng POSITIVE thoughts!
Poz Bear Type in Philadelphia

Offline bear60

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Re: UPDATE: Bob
« Reply #27 on: April 07, 2010, 12:14:27 PM »
Bob survived the proceedure Monday,  but because the drugs used during surgery were not clearing from his body very fast,  they kept him in the hospital for an extra night.  He should be going home today.  
« Last Edit: April 07, 2010, 05:26:52 PM by bear60 »
Poz Bear Type in Philadelphia

Offline RapidRod

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Re: UPDATE: Bob
« Reply #28 on: April 07, 2010, 12:42:34 PM »
Thanks for the good news Joel.

Offline bear60

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Re: UPDATE: Bob
« Reply #29 on: April 10, 2010, 01:03:00 PM »
Thanks Rod.
I am breathing a sigh of relief.  Every time Bob has a crisis my stress level goes way up.  Thats just how I am.  When Kurt was in the hospital getting a knee replacement and things went badly I nearly freaked out.  So, since Bob is such a long time friend and we are so closely tied to him and his partner Don, I feel the stress each time Bob faces a health crisis.  I guess really one could call this thread  "Support for Joel ".
Kurt spent Friday out at Bobs house and took him to a doctors appointment.  Seems Bob is doing ok... just tired.
Poz Bear Type in Philadelphia

Offline anniebc

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Re: UPDATE: Bob
« Reply #30 on: April 11, 2010, 05:25:57 AM »
{{{{HUGS}}}}} just for you Joel... ;)

Glad to hear Bob is doing well.

Hugs
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline bear60

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Re: UPDATE: Bob
« Reply #31 on: April 11, 2010, 11:15:01 AM »
Thanks Jan.
Well, as fate or whatever would have it, my 66th birthday celebration was scheduled for today and I just got a call from Don saying that Bob had been nausaeous and vomiting last night and they would not be able to come.  Shucks.
 It just sucks that Bob has had such a hard time.
Poz Bear Type in Philadelphia

Offline leatherman

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Re: UPDATE: Bob
« Reply #32 on: April 11, 2010, 01:47:54 PM »
my 66th birthday celebration
It just sucks that Bob has had such a hard time.
Sorry to hear that Bob is still having such a rough go of things. My positive vibes must be on the fritz. LOL I'll have to go give'em a kick and see if I can't jumpstart them into being a little more helpful. ;) ;D

I'm sorry. I meant to say something to you back on the 6th; but I get "better late, than never" you know, so...
HAPPY BIRTHDAY!
I bet you never thought, in your 20's, that turning older would be such a good thing. Best wishes and hope you have many more bdays to come! :-*
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline bear60

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Re: UPDATE: Bob
« Reply #33 on: April 11, 2010, 06:02:56 PM »
Mikie
Yea....well it still sucks.....and I had a very pleasant birthday celebration, none the less.  I just am sorry Bob was not well enough to attend.
Poz Bear Type in Philadelphia

Offline RapidRod

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Re: UPDATE: Bob
« Reply #34 on: April 11, 2010, 09:10:45 PM »
Mikie
Yea....well it still sucks.....and I had a very pleasant birthday celebration, none the less.  I just am sorry Bob was not well enough to attend.
Sorry Bob couldn't come but I hope you had a Happy Birthday.

Offline AndyArrow

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Re: UPDATE: Bob
« Reply #35 on: April 12, 2010, 03:23:32 PM »
I'm glad Bob came through surgery ok and hope this is just a hiccup on his road to (slow) recovery.

I'm sorry I'm late but Happy Birthday!  66 ... WOW you're getting OLD  :D

Hugs & Stuff!!!
AA
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Online aztecan

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Re: UPDATE: Bob
« Reply #36 on: April 12, 2010, 08:09:18 PM »
Hey Joel,

I am happy to hear Bob came through the surgery OK for the most part.

As for you, a belated Happy Birthday!  I hope the old saying holds true for you: May you live as long as you want, but never want as long as you live.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Andy Velez

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Re: UPDATE: Bob
« Reply #37 on: April 16, 2010, 09:51:34 PM »
Good to hear Bob came through ok. And that you have completed another year, Joel. Happy, happy belated birthday to you and good wishes to both of you.

You are one swell 66!

Cheers and hugs.
Andy Velez

Offline bear60

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Re: UPDATE: Bob
« Reply #38 on: April 17, 2010, 02:56:56 PM »
Thanks Andy.  66 doesnt sound so bad now that I AM 66.  
News on Bob:
He has been in the hospital twice this week for ammonia induced dementia.  This happens when the ammonia level in his system gets too great...I understand, anyway.  If anyone has more to say on that type of "dementia" please do.  He is in the hospital today.
AND
Kurts back went out on Monday and he has been in a muscle relaxer daze since Monday.  I broke a tooth and had it repaired with a porcelain filling but the filling didnt hold as too much of the tooth was missing.  So I was back in for a crown, cap.... whatever..... this week and my mouth is still a little sore.  For those who have blood issues....there was blood all over the front of me and on the spit basin. My dentist has been dealing with HIV patients for years. HE wore the protective gloves and mask.
So, life goes on.

modified for spelling
« Last Edit: April 18, 2010, 11:28:12 AM by bear60 »
Poz Bear Type in Philadelphia

Offline leatherman

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Re: UPDATE: Bob
« Reply #39 on: April 17, 2010, 09:09:54 PM »
He has been in the hospital twice this week for ammonia induced dementia.  This happens when the ammonia level in his system gets too great...I understand, anyway.  If anyone has more to say on that type of "dementia" please do.  He is in the hospital today.
poor Bob. issue after issue; but I'm still thinking of him. Things have got to turn around at some point!
http://www.merck.com/mmhe/sec10/ch135/ch135f.html
Hepatic encephalopathy (portal-systemic encephalopathy, liver encephalopathy, hepatic coma) is deterioration of brain function that occurs because toxic substances normally removed by the liver build up in the blood and reach the brain.

dang, you and Kurt seem to have your share of problems too. Now, stop that!  :D
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Online Jeff G

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Re: UPDATE: Bob
« Reply #40 on: April 17, 2010, 09:21:16 PM »
Hi Bear , Just want you to know I thinking of you . Your friend will be in my prayers .

Offline unclespongebob

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Re: UPDATE: Bob
« Reply #41 on: April 18, 2010, 07:22:31 PM »
glad bob is doing well ,happy birhday bear60
friends are gods way of apologizing to us for our familys. / a real friend os one who walks in when the rest of the world walks out. / everybody wants to ride with you in the limo,but what you need is sombody who will take the bus with you when the limo breaks down./ one friend in a lifetimeis much; two are many; three are hardly possible.

Offline bear60

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Re: UPDATE: Bob
« Reply #42 on: April 24, 2010, 02:15:45 PM »
Oh My God

Bob is going to Pittsburgh this week..... he is going to get a new liver.   
Poz Bear Type in Philadelphia

Offline denb45

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Re: UPDATE: Bob
« Reply #43 on: April 24, 2010, 02:31:45 PM »
Oh My God

Bob is going to Pittsburgh this week..... he is going to get a new liver.   

It's about time, that's Great News Joel  :)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline bear60

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Re: UPDATE: Bob
« Reply #44 on: April 25, 2010, 03:35:40 PM »
It IS good news Dennis.
But...I had no idea that he was going so soon....he is right now...in an ambulance.... on a 5 hour ride to Pittsburgh.  This happens so quickly.
We have to take care of their house and cat while they are away. They have a cat named Buster and so do we.  How coincidental is that!
Poz Bear Type in Philadelphia

Online Miss Philicia

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Re: UPDATE: Bob
« Reply #45 on: April 25, 2010, 03:37:55 PM »
That's really great news then!
"Iíve slept with enough men to know that Iím not gay"

Offline BT65

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Re: UPDATE: Bob
« Reply #46 on: April 25, 2010, 06:22:27 PM »
Terrific, Joel! 
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline bear60

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Re: UPDATE: Bob
« Reply #47 on: April 26, 2010, 11:02:05 AM »
Bob called me from Pittsburgh this morning......he is ok and his usual feisty self.

More later.
Poz Bear Type in Philadelphia

Offline BT65

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Re: UPDATE: Bob
« Reply #48 on: April 26, 2010, 03:44:41 PM »
Good he's keeping that feisty attitude-I'm sure he's going to need it.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline leatherman

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Re: UPDATE: Bob
« Reply #49 on: April 26, 2010, 05:03:14 PM »
WooHoo!
best wishes to Bob for a successful surgery AND recovery!
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

 


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