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Author Topic: My Ass Hurts! (and not in a good way)  (Read 6342 times)

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Offline PeteNYNJ

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My Ass Hurts! (and not in a good way)
« on: January 03, 2010, 07:35:02 PM »
Hola

I have been on my first regimen for about 3 weeks now.  I am on Truvada and Kaletra.  The Kaletra causes diarrhea about 2 hours after taking it.  It has gotten better, but I still go to the bathroom more then I did before treatment.

One thing that has come out of going so much is my ass is chaffed something fierce.  I have tried to not use as much toilet paper or use wet wipes instead, but to no avail.  

Has anyone else had to deal with this?  Any tips would be helpful.

Thanks
Pete

Offline Assurbanipal

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Re: My Ass Hurts! (and not in a good way)
« Reply #1 on: January 03, 2010, 08:10:21 PM »
Been there.  (ouch)

For me, it got better over time (especially as I ate more nuts and apples;  almonds were particularly helpful, although they can be cramping a little further up  ::) )

Sometimes a facial tissue with aloe (e.g., Puffs with lotion) was easier to take (if you aren't allergic).


Hope things clear up for you

A
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline Miss Philicia

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Re: My Ass Hurts! (and not in a good way)
« Reply #2 on: January 03, 2010, 08:20:14 PM »
If you're having diarrhea issues why aren't you taking something for it, Pete?
"Iíve slept with enough men to know that Iím not gay"

Offline PeteNYNJ

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Re: My Ass Hurts! (and not in a good way)
« Reply #3 on: January 03, 2010, 08:26:11 PM »
I am, Miss P.  It has controlled the overwhelming diarrhea for the most part but I still use the bathroom more then usual.

Fun fact - Diarrhea is a word I ALWAYS spell wrong.  Thank God for spell check.

Offline waldo59

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Re: My Ass Hurts! (and not in a good way)
« Reply #4 on: January 03, 2010, 09:35:23 PM »
Try witchhazel on a folded piece of papertowel. Just put it tween ur cheeks and hold it. This works for all ass rashes.

Offline PeteNYNJ

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Re: My Ass Hurts! (and not in a good way)
« Reply #5 on: January 04, 2010, 01:55:19 AM »
Thanks, Waldo and welcome to the forums!!

Offline Inchlingblue

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Re: My Ass Hurts! (and not in a good way)
« Reply #6 on: January 04, 2010, 10:22:42 AM »
As far as relieving ass irritation the best product, IMHO, is called Calmoseptine. If you are in NYC they have it at Bigelow's on 6th Ave. and I think Walgreens is starting to carry it.

LINK:

http://www.calmoseptineointment.com/

Offline jm1953

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Re: My Ass Hurts! (and not in a good way)
« Reply #7 on: January 05, 2010, 05:39:40 AM »
Also plain old Vaseline ointment can help.  Comes in real handy when you have to prep for the good old colonoscopy.

Just a tip.
Positive 25 years. 7/21/2012 Current CD 4: 780 Viral load: less than 50. 38 to 40%
Current drug regimen, Isentress, , Emtriva, Sustiva Wellbutrin, Klonipin, Allegra, Ambien, Testosterone, Nandrolone, Vicodin, Benedryl, Aspirin, lots of vitamin supplements.

Offline Miss Philicia

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Re: My Ass Hurts! (and not in a good way)
« Reply #8 on: January 05, 2010, 09:34:16 AM »
I bet Petey's a big ole bear bottom :)
"Iíve slept with enough men to know that Iím not gay"

Offline vanderarkk

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Re: My Ass Hurts! (and not in a good way)
« Reply #9 on: January 10, 2010, 05:36:29 PM »
Hey Pete, I work as a RN and see this problem alot in patients who have diarrhea. Zinc oxide cream is a good thing to try. It's used alot with babies and diaper rash and even older folks who are incontinent of urine and stool. It helps soothe the skin and provides a thick barrier to the skin from irritating juices/enzymes present in diarrhea. Its non prescription and can be gotten at any pharmacy over the counter.

Offline PeteNYNJ

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Re: My Ass Hurts! (and not in a good way)
« Reply #10 on: January 12, 2010, 12:50:26 AM »
Miss Philicia - how dare you!  I never kiss and tell :)

I am doing much better but the Diarrhea is still there.  2 hours after each Kaletra dose is followed by loose movements (if not just all water).  It has subsiding to only having to go once after taking the meds (instead of every 30 mins like when I first took the meds).  My gut feels fine, no cramping or nausea. 

I go back to my doc next week and will discuss possibly switching off the Kaletra if one of the other ARV would cause less gastric issues.


Offline Miss Philicia

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Re: My Ass Hurts! (and not in a good way)
« Reply #11 on: January 12, 2010, 02:06:38 AM »
You need to up your immodium intake STAT.  How many milligrams are you taking?  If it saves money you can get a prescription for generic loperamide, which is just imodium but in 2mg doses instead of the 1mg you get over the counter.
"Iíve slept with enough men to know that Iím not gay"

Offline PeteNYNJ

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Re: My Ass Hurts! (and not in a good way)
« Reply #12 on: January 12, 2010, 02:11:04 AM »
Good point, Philly about the generic.  Immodium is expensive (especially if you are going through like a bottle in 4-5 days)

As for milligrams..clueless.  I take the little cup full after the first movement and then half a cup after every one after.  There is a limit (at least on the bottle) on how much I should take so I havent been going over that.  I still have a good appetite and drink a ton of water during the day (like always) so I am not concerned about that.  I have noticed my urine output is lower I think because I am passing so much water through my bowel movements.

Offline vanderarkk

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Re: My Ass Hurts! (and not in a good way)
« Reply #13 on: January 12, 2010, 04:04:32 PM »
Pete, couple of things. If the Immodium is not working and you find yourself maxing out on the dose every day without any improvement ask your doctor about a prescription for Lomotil. It's the next thing up if Immodium doesn't work. Your right in noticing your urine output is down....most liking because you are passing so much fluid through the diarrhea and you're doing good about trying to replace it with water. You can become easily dehydrated and develope electrolyte imbalances with sustained diarrhea. Any dizzyness or lightheadedness, racing heart beat? especially when standing up? With diarrhea you can loose alot of electrolytes namely sodium and potassium. Drinking strictly water and loads of  can cause you to drive your sodium and postassium levels even lower. Ever hear those stories of college fraternity guys drinking 2-3 gallons on water as part of their initiation and dying 24 hrs later? Well it's because they lowered their sodium and potassium levels so low their bodies could not function properly. It would be better to drink things like Gator Aid if not contra indicated by your doc or the meds your taking-not just straight water, even things like tea or diluted juices unless told not to. Gator aid will replace the fluids you're losing but it also helps replace some of the sodium and potassium as well. Also, have you ever tried to hedge off the diarrhea by taking your immodium say and hour before your meds? I'm thinking why wait for it to begin but maybe try to stop it from starting?.....just some thoughts.

Offline PeteNYNJ

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Re: My Ass Hurts! (and not in a good way)
« Reply #14 on: January 19, 2010, 07:50:51 PM »
An exciting new development over the last two nights.   Diarrhea in my sleep!!!  Yes, I have woken up twice with an unexpected surprise in my pants.

This is ridiculous  What if I was staying at someone else's house and this happened?  ugh - I don't know what else to do.  I am already taking Imodium like it is going out of style. 

Should I stick a cork up my ass before bed? 


Offline Inchlingblue

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Re: My Ass Hurts! (and not in a good way)
« Reply #15 on: January 19, 2010, 08:48:53 PM »
Pete, I know you're happy with your doctor and he has lots of experience but it really makes no sense to start someone on Kaletra in 2010. No sense at all.

Offline Matty the Damned

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Re: My Ass Hurts! (and not in a good way)
« Reply #16 on: January 19, 2010, 10:30:03 PM »
Pete,

Have you considered trying psyllium husk (aka metamucil)?

I know it sounds counter-intuitive given that metamucil is used to clear a block bunghole, but it can actually help control the screaming shits too.

MtD

Offline PeteNYNJ

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Re: My Ass Hurts! (and not in a good way)
« Reply #17 on: January 19, 2010, 11:03:43 PM »
Well,  I see the doctor on Friday and we will have a chat about it. 

the Truvada seems to not have any side effects so I am happy with that.  What should I discuss switching to instead of Kaletra?

Pete

Offline Cosmicdancer

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Re: My Ass Hurts! (and not in a good way)
« Reply #18 on: January 20, 2010, 12:28:59 AM »
Pete, have you considered Atripla?  It has truvada and sustiva in it.  Some people have problems with sustiva (sleep disturbances, vivid dreams, some dizziness, a rash after about 10 days that lasts for a few days) but these side effects all dissipate after a few weeks.  It's not recommended for people with mood disorders or depression.  But I've been on it for almost 2 years and have had practically no side effects.  Once in a great while I wake up around 4 am and have trouble falling back to sleep, but I've never had any gastro-intenstinal problems with it. 
Summer, 2007 - &$#@?
November, 2007 - Tested poz, 300,000 vl, 560 cd4
Feb, 2008 - 57,000 vl, 520 cd4, started Atripla
June, 2008 - undetectable, 612 cd4
January, 2009 - undetectable, 670 cd4
May, 2009 - undetectable, 593 cd4
Sept, 2009 - 83 vl, 763 cd4, 34%
Dec, 2009 - undetectable, 889 cd4, 32%
April, 2010 - undetectable, 860 cd4, 31%
October, 2010 - undetectable, 800 cd4, 38%
April, 2011 - undetectable, t-cell test not done
October, 2011 - undetectable
April, 2012 - undetectable, 850 cd4, 39%
November, 2012 - undetectable, 901 cd4, 41%
April, 2013 - undetectable, 846 cd4, 36%
October, 2013 - undetectable
May, 2014 - undetectable, 784 cd4, 48%

Offline PeteNYNJ

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Re: My Ass Hurts! (and not in a good way)
« Reply #19 on: January 20, 2010, 12:31:56 AM »
I have mood disorder and depression....

Offline Inchlingblue

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Re: My Ass Hurts! (and not in a good way)
« Reply #20 on: January 20, 2010, 10:34:40 AM »
Isentress is twice a day but it's excellent. If you search on here you can see lots of people's experience with it, most of it great.

I've been on Isentress/Truvada since July 2009, went undetectable in about 2 weeks or less (viral load was only 9K); my CD4s are now 686 (last time checked), when I started meds when they were about 340. I'm not experiencing any side effects at all, it really feels like I don't even have HIV; if it were not for having to take the meds twice a day to remind me, I feel totally normal and healthy.

There are also the PIs such as Reyataz and Prezista, both boosted with Norvir.

These are the "preferred' options based on the guidelines.

PS: Try Calmoseptine, you won't regret it!
« Last Edit: January 20, 2010, 07:29:13 PM by Inchlingblue »

Offline Nashvegas

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Re: My Ass Hurts! (and not in a good way)
« Reply #21 on: January 20, 2010, 01:03:08 PM »
Pete - Truvada and Viramune is another combo you may want to consider with your physician.  No side effects for me on that regimen.  Good luck with finding a more tolerable combo. 
8/12/06 - sero-conversion
9/14/06 -- Positive Test results confirmed
9/21/06 -- CD4 - 586; viral load 8,000; 29%
12/25/06 -- CD4 - 373; VL 2,800; 23%
2/10/07 - CD4 - 228; VL 865; 25%
3/15/07 -  CD4 - 365 (no viral load test)
5/1/07 = CD4 - 341; VL 4,358; 27%
8/1/07 - CD4 - 315; VL - 2,300; 25%
9/20/07 - CD4 - 378
11/22/07 - CD4 - 257; VL 7,300;
2/27/08 - CD4 231 (16.5 %), VL 5,960
5/20/08 - CD4 229 (18.3%), VL 11,100
6/17/08 - CD4 166 (14.5%), VL 9,030
6/17/08 - STARTED VIRAMUNE + TRUVADA
7/2/08 - CD4 272 (20%), VL 113  :-)
7/16/08 - CD4 -217 (21.1 %), VL - Undetectable
7/30/08 - CD4 - 220 (20.4%). VL - 92
8/14/08 - CD4 - 280 (22%) VL-undetectable
1/04/09 - CD4 - 250 (28%) VL-UD
5/15/09 - CD4 -393 (28%) VL-UD
8/15/09 - CD4-346, (26%) VL-UD
11/15/09 - CD4-373 (28%)

Offline rioz

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Re: My Ass Hurts! (and not in a good way)
« Reply #22 on: January 20, 2010, 01:06:24 PM »
Hey Pete,

I had a wicked time with Kaletra and diarrhea. I finally switched to Truvada (plus Norvir and Lexiva) which solved the problem. Did you suffer any problems with your anus pre Kaletra? I did and had always been prescribed (what is now) Lotrimin (available OTC) or I sometimes use hydrocortisone cream but you should be aware that excessive use of the latter will thin the skin. Good luck!

Take care,

Richard
Living with HIV since 1985
Living with AIDS since 2007

Truvada, Lexiva, Norvir, Levothyroxine, Testim, Sertraline, Crestor

Offline PeteNYNJ

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Re: My Ass Hurts! (and not in a good way)
« Reply #23 on: January 20, 2010, 03:23:43 PM »
Hi Richard

My anus was fine pre Kaletra...ask anyone :)

I know it is the Kaletra - two hours after each dose is poop central.

Thanks guys for the options.  I will print this out and bring to the doctor. 

Does Isentress or Viramune need a Norvir boost?  I really don't want to add another pill (cost wise) ?

Offline Miss Philicia

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Re: My Ass Hurts! (and not in a good way)
« Reply #24 on: January 20, 2010, 07:08:04 PM »
Isentress doesn't require Norvir -- you'd just take it with Truvada so you'll only have two co-pays.  Aren't you on ADAP anyway?

ps: when I was on Kaletra I had to take 20 mg of imodium each day (10 pills), so I'll not have any bitching from you folks.
"Iíve slept with enough men to know that Iím not gay"

Offline rioz

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Re: My Ass Hurts! (and not in a good way)
« Reply #25 on: January 20, 2010, 09:53:25 PM »
Yes Miss P,

But, how many times a week did you shit your pants?

Take care,

Richard
Living with HIV since 1985
Living with AIDS since 2007

Truvada, Lexiva, Norvir, Levothyroxine, Testim, Sertraline, Crestor

Offline PeteNYNJ

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Re: My Ass Hurts! (and not in a good way)
« Reply #26 on: January 22, 2010, 12:57:06 AM »
Thanks Miss P

I sneezed today and shat my pants.  I am so done with this drug!

I am not on ADAP.  I was denied when I first tired for it.

I will ask my doc about Isentress

PEte

Offline Miss Philicia

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Re: My Ass Hurts! (and not in a good way)
« Reply #27 on: January 22, 2010, 01:05:58 AM »
Yes Miss P,

But, how many times a week did you shit your pants?

Take care,

Richard

Oh please missy -- try getting Explosive-D transferring to the C-train on the HoytĖSchermerhorn subway platform during a weekday evening rush hour and get back to me on that one.  Unless the rest of you are 100% at the mercy of public transportation (I've not owned a car for 20 years) then you've not earned your AIDS gold stars.  In fact, this happened not with Kaletra but with the even worse initial formulation of saquinavir.  But I did have accidents with Kaletra, but the subway platform one was the most traumatic.  The second worse one was exiting the subway, but I was just two blocks from my apartment so I was able to run before it soaked through my jeans and down my legs.  I've basically had to take large amounts of anti-diarrhea medication now for almost 15 years, including a pancreatic enzyme which actually did the most good in terms of intestinal absorption.

Pete, I don't understand how someone can be unemployed and not qualify for ADAP.  Something's not being done correctly by your case worker.
« Last Edit: January 22, 2010, 01:09:56 AM by Miss Philicia »
"Iíve slept with enough men to know that Iím not gay"

Offline PeteNYNJ

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Re: My Ass Hurts! (and not in a good way)
« Reply #28 on: January 22, 2010, 01:07:57 AM »
she said it was based off my last tax return

and yes, shittin your pants in yoru sleep sucks.

Offline Miss Philicia

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Re: My Ass Hurts! (and not in a good way)
« Reply #29 on: January 22, 2010, 01:10:52 AM »
she said it was based off my last tax return


That's BS, I'm quite sure.  But you're now in a new calendar year so you should reapply.  I'm quite sure that when I went on ADAP I was laid off in June and still qualified immediately by showing proof of unemployment benefits.
« Last Edit: January 22, 2010, 01:14:58 AM by Miss Philicia »
"Iíve slept with enough men to know that Iím not gay"

Offline PeteNYNJ

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Re: My Ass Hurts! (and not in a good way)
« Reply #30 on: January 22, 2010, 01:13:23 AM »
Well you know caseworkers, Philly

btw  in NJ each county has their own.  I right now live in a wealthy one (I guess with no dirty fags) so it is SOOOOO hard to get an appointment.

Offline Miss Philicia

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Re: My Ass Hurts! (and not in a good way)
« Reply #31 on: January 22, 2010, 01:19:30 AM »
If you say so... your life, not mine.  I'd go camp out in their office and refuse to leave for an entire day.
"Iíve slept with enough men to know that Iím not gay"

Offline tednlou2

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Re: My Ass Hurts! (and not in a good way)
« Reply #32 on: January 23, 2010, 01:53:12 AM »
I'm not on meds yet, so I don't pretend to know what you guys are going through.  However, I had sensitive bowels for years--even before being poz.  I was put on a beta-blocker, Atenolol, for high blood pressure due to stress this summer.  Many people experience constipation on Atenolol, but it has made me pretty regular.  I rarely have the hershey squirts anymore.  I use to have to run to the bathroom and had accidents.  Now, my poo is almost always solid.

I'm not saying everyone should go on a beta-blocker to cure diarrhea, but if you have high blood pressure and could benefit from one, it may help with the diarrhea as a benefit.  Just a thought.  Beta-blockers can cause fatigue--especially at first and low sex drive. 

 


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