Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
October 22, 2014, 11:32:07 AM

Login with username, password and session length


Members
Stats
  • Total Posts: 643060
  • Total Topics: 48931
  • Online Today: 217
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Elevated TSH - Subclinical Hypothyroidism: Does Anyone Have This?  (Read 1804 times)

0 Members and 1 Guest are viewing this topic.

Offline Inchlingblue

  • Member
  • Posts: 3,119
  • Chad Ochocinco PETA Ad
I got my latest labs yesterday and they looked very good overall: 686 CD4s, undetectable and good liver and kidney panels.

Over the past two years I've had intermittent elevated TSH levels, not super high but slightly above the normal range and not every time, only sometimes.

I don't know why but I'm having a harder time accepting having to take thyroid replacement hormone than I did accepting HAART. Once one starts taking it, it's for life, or so I've read. For some reason, it just makes me feel so broken and useless. I know I need to get over it but I was reading online that "subclinical hypothyroidism" is not always treated.

I don't seem to have any of the classic symptoms of low thyroid, although my skin is a bit dry.

I was just wondering if others have had this issue and what they did about it.



  
« Last Edit: January 06, 2010, 10:57:37 AM by Inchlingblue »

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,974
Re: Elevated TSH - Subclinical Hypothyroidism: Does Anyone Have This?
« Reply #1 on: January 06, 2010, 11:12:38 AM »
I have to take synthroid, and have been taking it for years.  Treating hypothyroidism is probably one of the easiest things I've dealt with, given other illnesses much harder to treat.  And yes, I'll be on the synthroid for life, but it's a tiny pill, and it keeps things under control.  Hell, my HIV meds are bigger than the synthroid, so it's really not a big issue (for me, I mean). 
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Miss Philicia

  • Member
  • Posts: 24,209
  • celebrity poster, faker & poser
Re: Elevated TSH - Subclinical Hypothyroidism: Does Anyone Have This?
« Reply #2 on: January 06, 2010, 01:55:23 PM »
Inchling, so what's your doctor saying?  In my experience it's not unusual to have different things on labs out of range, and you did say "only sometimes" not every time.  And you also said it's not super high.  I can't say I've had this particular lab line out of range as I didn't even recognize what TSH is, but I thought I'd just throw that out there.

I'm surprised, however, to see you write feeling "broken and useless" over this and I hope you can shake out of that quickly.
"Iíve slept with enough men to know that Iím not gay"

Offline Inchlingblue

  • Member
  • Posts: 3,119
  • Chad Ochocinco PETA Ad
Re: Elevated TSH - Subclinical Hypothyroidism: Does Anyone Have This?
« Reply #3 on: January 14, 2010, 07:12:28 PM »
Thanks BT and Miss P

My doctor is basically saying I should start thyroid replacement therapy but he's one of these doctors who loves writing prescriptions. The medication is inexpensive (generic) and I'm already on ARVs so it should not be a big deal,  I'm just having a hard time psychologically for some weird reason. As I mentioned before it's for life.

For now I'm going to hold off a little more and research it more. I have read that it's not always treated at my numbers but maybe I'm just prolonging the inevitable.

I was curious if this was HIV-related but I guess it's not or it would be more common on these forums.

 

Offline max123

  • Member
  • Posts: 377
  • Carpe Diem
Re: Elevated TSH - Subclinical Hypothyroidism: Does Anyone Have This?
« Reply #4 on: January 14, 2010, 10:07:31 PM »
inch,

are your t3/t4 values within normal limits? has thyroid hormone testing been done? the results of these, when combined with the tsh, should be fairly conclusive in ruling out a true hypothyroidism.

maintaining adequate thyroid hormone levels (naturally or via medical management) helps ensure a healthy cardiovascular & immune systems....food for thought.

max
1/86 - 6/08 (annually): neg elisa
7/09: pos elisa/pos wb
8/09: cd4 560, cd4% 35, vl 13,050
12/09: cd4 568, cd4% 33, vl 2,690
4/10: cd4 557, cd4% 29.3, vl 6,440
7/10: cd4 562, cd4% 29.6, vl 3,780

Offline Inchlingblue

  • Member
  • Posts: 3,119
  • Chad Ochocinco PETA Ad
Re: Elevated TSH - Subclinical Hypothyroidism: Does Anyone Have This?
« Reply #5 on: January 14, 2010, 10:33:17 PM »


are your t3/t4 values within normal limits? has thyroid hormone testing been done? the results of these, when combined with the tsh, should be fairly conclusive in ruling out a true hypothyroidism.

 

In the past couple of years I had only one time where they did the t3/t4 and they were fine (I have not always been asking for this complete Thyroid Panel but from now on I will) . . . I think I'm going to wait until my next appointment and get the whole Thyroid panel done and take it from there

I've also decided on my own that I'm not going every 3 months for my HIV stuff . . . I'm going to go every 4 months this year and if all is still good, I'll go every 6 months next year . . . I do think that HIV treatment is not a "one size fits all" and not everybody should have to go every three months if they are stable and adherent


Offline max123

  • Member
  • Posts: 377
  • Carpe Diem
Re: Elevated TSH - Subclinical Hypothyroidism: Does Anyone Have This?
« Reply #6 on: January 14, 2010, 10:56:20 PM »
inch,

sounds like a good plan.

the choice to manage hypothyroidism through medical management is an important decision that must be medically justified, because it's hormone therapy. too little or too much l-thyroxine can invite other problems. i too would insist on the full gamut of testing to make the best informed decision.

max

1/86 - 6/08 (annually): neg elisa
7/09: pos elisa/pos wb
8/09: cd4 560, cd4% 35, vl 13,050
12/09: cd4 568, cd4% 33, vl 2,690
4/10: cd4 557, cd4% 29.3, vl 6,440
7/10: cd4 562, cd4% 29.6, vl 3,780

Offline tednlou2

  • Member
  • Posts: 4,979
Re: Elevated TSH - Subclinical Hypothyroidism: Does Anyone Have This?
« Reply #7 on: January 15, 2010, 12:14:31 AM »
I'm curious why thyroid meds would be started if you aren't having any problems??  I'm not saying you shouldn't.  I just wondering if it is normal to start thyroid meds if you aren't experiencing problems?  I have a doc appt next week about the fatigue I've been having.  They said they would check liver, thyroid, etc.  I've read thyroid can cause fatigue and even panic attacks--so they say.

Offline Inchlingblue

  • Member
  • Posts: 3,119
  • Chad Ochocinco PETA Ad
Re: Elevated TSH - Subclinical Hypothyroidism: Does Anyone Have This?
« Reply #8 on: January 15, 2010, 10:23:50 AM »
I'm curious why thyroid meds would be started if you aren't having any problems??  I'm not saying you shouldn't.  I just wondering if it is normal to start thyroid meds if you aren't experiencing problems?  I have a doc appt next week about the fatigue I've been having.  They said they would check liver, thyroid, etc.  I've read thyroid can cause fatigue and even panic attacks--so they say.

When you read a list of typical symptoms of hypothyroidism, many of them are things that can be cause by other things too:

Fatigue
Weakness
Weight gain or increased difficulty losing weight
Coarse, dry hair
Dry, rough pale skin
Hair loss
Cold intolerance (you can't tolerate cold temperatures like those around you)
Muscle cramps and frequent muscle aches
Constipation
Depression
Irritability
Memory loss
Abnormal menstrual cycles
Decreased libido


I do have some of the symptoms above but who's to say if it's due to the thyroid.

I'll probably try the thyroid replacement but for now I need to research the crap out of it first, lol.
« Last Edit: January 15, 2010, 11:08:38 AM by Inchlingblue »

Offline veritas

  • Member
  • Posts: 1,410
Re: Elevated TSH - Subclinical Hypothyroidism: Does Anyone Have This?
« Reply #9 on: January 15, 2010, 10:53:22 AM »

Inch,

I know once you start researching something, you leave no stone unturned. I don't know how I missed this post before but if I can help you out with your research I will. I'm sure you have already seen many of  these abstracts, but in case you haven't, here goes:

http://www.google.com/search?sourceid=navclient&ie=UTF-8&rlz=1T4ADBR_enUS308US309&q=TSH+and+hiv+abstracts+2009

I know all will not pertain to you, however, in the spirit of "researching the crap out of it", they should keep you busy until your next appt.(lol)

Hope you zero in on the problem.

v

Offline Inchlingblue

  • Member
  • Posts: 3,119
  • Chad Ochocinco PETA Ad
Re: Elevated TSH - Subclinical Hypothyroidism: Does Anyone Have This?
« Reply #10 on: January 15, 2010, 11:07:59 AM »
Thanks, v ;)

I look forward to delving in.

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,974
Re: Elevated TSH - Subclinical Hypothyroidism: Does Anyone Have This?
« Reply #11 on: January 15, 2010, 12:07:11 PM »
Inch, don't get too upset about this.  If it does turn out you truly have hypothyroidism, it's fairly easy to treat.  I've been on thyroid replacement for years, and have never had a serious problem.  And the pills are pretty small also, which is always nice compared to some of the horse pills we have to take.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.