Welcome, Guest. Please login or register.
December 08, 2016, 10:24:59 PM

Login with username, password and session length

  • Total Posts: 704661
  • Total Topics: 56099
  • Online Today: 307
  • Online Ever: 1421
  • (August 13, 2016, 05:18:44 AM)
Users Online
Users: 3
Guests: 192
Total: 195


Welcome to the POZ Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: is a HIV research wiki a good idea?  (Read 2036 times)

0 Members and 1 Guest are viewing this topic.

Offline parteboy

  • Member
  • Posts: 37
is a HIV research wiki a good idea?
« on: December 25, 2009, 06:30:42 PM »
Hi all,

not sure if this is the right forum for this general comment but I was wondering if anyone has ever thought of building a hiv research wiki? Whilst these forums are great to keep uptodate it takes ages to find stuff. One of the things I have noticed is really there is no central repository of all research. Wouldn't it be wonderful to be able to go to a web site and see what is being researched and the current status of it? I'm sure it would also help in the field of reseach in that people can quickly cross reference any work they are doing.

your thoughts...

Offline burr0108

  • Member
  • Posts: 3
Re: is a HIV research wiki a good idea?
« Reply #1 on: December 26, 2009, 08:00:11 PM »
Interesting idea.  One problem with this site (and would subsequently be a problem with a wiki) would be separating out the junk science and research from the real meat.  There is a lot of science fiction on the net about where HIV research COULD be in 10-20 years.  However, I am more interested in dealing with present day realities and studies that are actually being done now.

Furthermore, from my own literature searches (which I have done extensively), HIV research has temporarily hit a plateau.  We could be there for the next 5-10 years.  The first big wave of excitement came with the advent of AZT in 1987.  Then there was excitement surrounding the advent of HAART and the Protease inhibitors around 1996.  Then in 2006, another wave of excitement came with the advent of the integrase inhibitors, entry inhibitors, and CCR5 inhibitors.  As it seems around every 10 years, something BIG happens in HIV/AIDS research.  Some people on this forum like playing what-if games.  However, I like to take a more cautious approach and wait to see what is actually happening.

Finally, what we do have for drugs now is good (obviously could be better, though).  A person who is diagnosed early and who adheres to their meds for their lifetime can live a more or less healthy life for more or less their full natural life span.

Offline John2038

  • Member
  • Posts: 1,529
  • Happiness is a journey, not a destination.
    • HIV Research News (Twitter)
Re: is a HIV research wiki a good idea?
« Reply #2 on: December 28, 2009, 03:21:40 PM »
The idea is great but the wiki of the scientist are made of paper.
Scientists won't publish anywhere else that in an scientific journal (and the most possible renewed one).

Still, publishing a research is not like posting an article in a wiki.
Wikipedia is to act as an encyclopedia but it won't be an appropriate tool for publishing on going research.

Among the problems: Credibility, copyrights, renowned, visibility, money, etc

Now a wiki just talking about on-going research is nice. But it won't serve the research itself.

And there are numerous of such site, some maintained by doctors, associations, etc
Most of them have a forum instead of a wiki.

If it can be of any interest, I am personally working on such tool (a tool able to collect, filter, classify, publish) all the research made on HIV (or any others subjects). A google like, with addons to provide some added values to the results of the search made (sort of data mining)

Offline Inchlingblue

  • Member
  • Posts: 3,119
  • Chad Ochocinco PETA Ad
Re: is a HIV research wiki a good idea?
« Reply #3 on: December 28, 2009, 06:36:18 PM »
John's points are well taken. In March of this year Science Magazine published a piece calling for an HIV Latency Collaboratory, stating that:

A coordinated initiative involving academia, industry, government, and patient advocates could greatly accelerate the identification of potential interventions and their clinical assessment. We conceive an initiative, termed here a collaboratory, in which the government contributes funding, regulatory oversight, and coordination; industry contributes funding, drug discovery, technology, and expertise; and academia contributes ideas and investigative capacity. Long-term support for a flexible, collaborative public-private joint venture might improve efficiency and conserve resources, while at the same time catalyzing progress that no single group could achieve.

The goal of the collaboratory would be to accelerate basic discovery and the clinical translation of these discoveries that allows for eradication of HIV in infected patients or at least a stable drug-free remission. This collaboratory is designed to include all interested investigators with meritorious ideas. These investigators will be funded via the collaboratory and will have access to a range of core technologies provided by the collaboratory that should promote scientific synergy and enhanced experimental efficiency. The collaboratory would be governed by a Board of Directors comprised of representatives from each of the partners in the joint venture. HTS, high-throughput screening; IP, intellectual property; and siRNA, small interfering RNA.



Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: is a HIV research wiki a good idea?
« Reply #4 on: December 29, 2009, 07:22:17 AM »
A website of this nature (wiki) would have to be rigorously policed as it would probably attract aids denialists in droves. This forum used to be a big target for denialists but they don't bother much any more because they know I'm here to kick them out and ban their IP as soon as they appear. ;D

Condoms are a girl's best friend

Condom and Lube Info  

"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts


Terms of Membership for these forums

© 2016 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.