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Author Topic: I know, I know, it's only numbers, but....  (Read 53537 times)

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Offline J.R.E.

  • Member
  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
I know, I know, it's only numbers, but....
« on: December 22, 2009, 04:18:58 PM »
 :)

Just to let you all know, I received my blood tests results from the doctors office today. I had my final labs drawn on December 2nd,09.   The only test done were CD-4 and Vial load, and %


I've been anxiously awaiting these results, because on October 19th,09 ,  I decided to stop taking Viread, and only stay on Epzicom and Viramune. This was discussed with my ID doctor.

See here :   http://forums.poz.com/index.php?topic=29722.0


I am happy  to say, that the Viral load remains <48  and the t-cells are 392, with a % @ 13% !! The % went down from 14%

 I am not concerned though. It's been constantly up and down, by a least a percentage point or two, for quite a while.

I also have my ID doctor appointment set up with the VA on Monday December 28 @9:00 AM. This will be at the Main building , 5th Floor at Bay pines St. Pete. So, I am anxious for that , and also prepared, with all the necessary documentation and files from my doctor.


I already had my Primary care (VA) appointment on December 9th. This was just a short distance, from where I live. She could not order the HIV medications.  This is restricted through the ID doctor , that I will be seeing next Monday. She also wanted to schedule a Colonoscopy, but I wanted to hold off on that until I see the HIV specialist.

The VA clinic in Dunedin, Fl ( about two miles south from me) has relocated to a new building  2 miles north in Palm Harbor with 9,000 more square feet. I have another  appointment scheduled with the primary care on January 12th.

My blood pressure has been high.  When I was at the VA primary care, it was 161 /101.  I've been monitoring it here at home( since that visit) and it's been around 128/89



On December 9th,  The Primary care VA ( at the Clinic)  decided to start me on 40mgs of Simvastatin.  However, the pills are 80mgs, and they sent me a pill splitter for that purpose. I started that on December 20th


I have more than enough HIV  meds to hold me over, until I get the first shipment through the VA. I am good probably until the end of March. It pays to order meds ahead of time !!


The main thing is, at least on the the blood tests on December 2nd , I am still undetectable.  Also , the 392 t-cells ,  is the highest that number has been since starting meds on October of 2003.

Hopefully that will continue !!!  Everything seems to be on track and so far going smoothly with the VA.  But ( I found out ) there is a little bit of follow up and follow through with the VA, But I am not complaining at all !!


Ray



« Last Edit: December 22, 2009, 04:36:55 PM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,915
Re: I know, I know, it's only numbers, but....
« Reply #1 on: December 22, 2009, 06:28:32 PM »
Ray, great news on the T-cells and viral load!  But I hope your blood pressure comes down.  Did the doctor say how long to monitor, in case you need to start meds for it?  I mean, you don't want to blow a gasket or anything.  Just concerned is all.  Again, congrats on the good numbers! :-*
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline CapeCodder

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  • Posts: 25
  • CapeCodder on the personals section.
Re: I know, I know, it's only numbers, but....
« Reply #2 on: December 22, 2009, 06:46:03 PM »
Great news Ray,

If this is the first episode of high blood pressure it could be a case of "White Coat Syndrome" My BP is always through the roof when I go to the Doctors and then at home it drops by 30 points or more.
128/89 is not a bad number at all. It's considered borderline high.

The other numbers are encouraging and it's great news that the VA will be assuming your health care and the costs associated with it. Have a Merry Christmas and a Healthy 2010
Find a guy who calls you handsome instead of hot, who calls you back when you hang up on him, who will lie under the stars and listen to your heartbeat or will stay awake just to watch you sleep. Wait for the guy who kisses your forehead, who wants to show you off to the world when you're in sweats, who holds your hand in front of his friends and is constantly reminding you of how much he cares and how lucky he is to have you. He's the guy who turns to his friends and says, 'That's The One!'

Offline AndyArrow

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  • Posts: 1,196
Re: I know, I know, it's only numbers, but....
« Reply #3 on: December 22, 2009, 08:39:29 PM »
Ray,

Those are numbers to be happy about!  I'm really glad this reduced combo is working for you.

Hugs,
AA
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline aztecan

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  • Posts: 5,394
  • 29 years positive, 57 years a pain in the butt
Re: I know, I know, it's only numbers, but....
« Reply #4 on: December 22, 2009, 11:16:13 PM »
Hey Ray,

That is great news!  ;D

Sounds like you will be doing OK with the VA. That is also good to hear.

I know a sigh of relief was probably in order when you saw those numbers.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline J.R.E.

  • Member
  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #5 on: December 30, 2009, 08:14:27 AM »
Just a quick update... ( I'm a little tired this morning)

I've been pretty busy this past week.  I had my appointment at the VA on Monday, and all went well. The doctor wasn't in, but I did meet with the nurse practitioner.

We had a very good discussion. I presented all my medical history.( she stated that I kept very good files) We went over everything. She seems very knowledgeable, and is one of 5 that treat those with HIV, at Bay Pines.  There are 2 ID doctors and 3 practitioners.

They took a chest X-Ray on Monday , also gave me a tetanus shot. All my other shots are current. I met with a pharmacy representative. She ordered my meds, and said they should arrive in the mail, in about ten days or so.


I also met with a Social worker from Ryan White ( works in the VA) ,  and she signed me up on the Ryan White program.  This should cover all VA co-pays, including dental. ( but I kept my dental insurance at work), so I won't be needing that at the moment.

Finally, I had to do an " In person authentication".  This is so I can view my prescriptions on the VA web site, and eventually, view some medical records.  As I understand it, the VA is still working on that portion of the site , and it's not available yet.

I also had them scan into the computer,  My advance directive and Durable power of attorney for health care and living will.


Once again,  I was very pleased how smooth everything went.  It went like clockwork !  I was in and out, in about three hours. The professionalism was outstanding !

Ed was with me on Monday, every step of the way.  He was also, once again, very impressed.  He couldn't believe how organized everything was. I didn't have more than a five minute wait, anywhere I went !


Ray
 

« Last Edit: December 30, 2009, 08:16:31 AM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline pozniceguy

  • Member
  • Posts: 1,176
  • Niceguy Dallas
Re: I know, I know, it's only numbers, but....
« Reply #6 on: December 30, 2009, 06:34:27 PM »
Ray,  so pleased to hear you have the great numbers... the BP thing really needs attention... stick with it.  your  sessions with the VA mirror what my friends have told me.... only one of them is eligible for support from Ryan white., ( he owns his business and isnt qualified) .  continued good  luck with them... sounds like you hit a winning combo...


Nick
remember the good times...honor the past but don't live there
Le stelle la notte sono grandie luminose, nel cuore profondo del Texas

Offline J.R.E.

  • Member
  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #7 on: December 30, 2009, 08:31:45 PM »
the BP thing really needs attention... stick with it. 


Nick

Thanks Nick,

The VA primary care doctor, at the clinic, will be monitoring the blood pressure and cholesterol. That appointment, is still set for Jan 12th.  All other blood tests will be done at the main building. Those blood test are scheduled for February. ( I have to verify that appt.)

When she checked the BP , this past Monday, it was only slightly elevated, and no where near as high as it was at the clinic. We'll be watching it.  I don't even want to start another medication if I can avoid it !

I really need to exercise more.  This desk job I have, doesn't help. On my old job, I was constantly on the go.

Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

  • Member
  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #8 on: December 30, 2009, 09:03:02 PM »
Oh yes,...

Just want to thank Betty, Capecodder, Andy, and Mark, for your thoughts and comments.  I didn't forget ya. Just a little scatterbrained at times !!  Got to head out for work now.

Ray :-*
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,915
Re: I know, I know, it's only numbers, but....
« Reply #9 on: December 31, 2009, 05:56:08 AM »
You're more than welcome, Ray.  I'm so glad to read that you're having such a good experience.  Here's hoping for continuance of that!
  Luv,
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline AndyArrow

  • Member
  • Posts: 1,196
Re: I know, I know, it's only numbers, but....
« Reply #10 on: January 05, 2010, 04:18:52 AM »
 :D Ray, you so funny sometimes.  I don't think any of us thought we were forgotten we are just glad things are working out.  Keep us updated on the BP & cholesterol.  I know mine was high at my last visit but he didn't have a complete breakdown of Good & Bad cholesterol so I'll find that out on my next visit in Feb.  High cholesterol runs in my family.  My mother who eats right is 5'2 and 120lbs has very high cholesterol so I'm really hoping on this one I got my fathers genes!

Hugs!
AA
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline randym431

  • Member
  • Posts: 1,121
Re: I know, I know, it's only numbers, but....
« Reply #11 on: January 10, 2010, 09:11:48 PM »
Yeah Ray, sounds like yu have a good team working with you. That old nasty government ran VA healthcare.  ;D

Offline J.R.E.

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  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #12 on: January 11, 2010, 07:15:43 AM »
Thanks Randy,

I've got fasting blood tests, scheduled for tomorrow.  There also going to wire me up for an EKG.

I had my appointment on the 28th of December, and received my meds on the 4th of January.  That was quick !

I have another follow up appointment on the 19th of January ( probably to discuss the results of the blood tests from tomorrow.

Will also find out if blood pressure medication, will be needed. I've got a feeling....

Also had a very nice letter from the social worker for Ryan White, that I met in the VA.  Stated how much of a pleasure it was to meet with Ed and myself.  Had two more forms to fill out, and I had to get a couple more blood tests sent to her, showing a detectable viral load, and/ or a positive test result.

So, I got those mailed out last week.


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 24,619
Re: I know, I know, it's only numbers, but....
« Reply #13 on: January 11, 2010, 08:22:15 AM »
Good luck with the latest tests, Ray. Here's hoping they continue in the direction of the numbers last month.

It's also good to read that you're getting responsive care in general.

Cheers!
Andy Velez

Offline J.R.E.

  • Member
  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #14 on: January 12, 2010, 04:49:48 PM »

Thanks Andy !! 


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

  • Member
  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #15 on: January 25, 2010, 08:41:49 AM »
Another Update...

I had cholesterol checked on the 12th of January, and went back in on the 19th to discuss those results.

Cholesterol dropped down to 205 from 257 from previous test on 11/19/09. The doctor was pleased with that. So it looks as though the 40mgs daily of Simvastatin is working.

Other results ;

TRIG:---- 61

HDLC:----60

LDCALC:133----  Refe. range is less than 130

TC/HDLC 3.4----  Ref. range : less than < 5



We rescheduled the CD4, viral load , and chemical profile tests for February 22nd. The results of those test will be discussed on March 29th.  The doctor stated that if anything doesn't seem right with those tests,  I will be called in prior to March 29th.


Blood pressure was also good !! So, no need to start any new medication for that.

My primary care (at the clinic) Is scheduling a colonoscopy for me, at Bay Pines.  I just called the the VA, and an appointment with a gastro enterologist has been set for Friday February 12th.

I've also just ordered a refill on my HIV meds, and had no problem. They will be mailed.

The Simvastatin won't be mailed until January 29th.  I was trying to set it up so all would be mailed together, maybe next time.

I received a bill for the meds. $16.00 for the simvastain. Since the simvastatin(80mgs)  is split in half, and a 30 day supply actually last two months,  there was two co-pays of $8.00

The HIV medication was $16.00.

Everything is going pretty well so far.

Next big thing will be the colonoscopy.  I've already informed work, that I will need time off, but was unable to corfirm the date, will find that out on February 12th.

Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline RAB

  • Member
  • Posts: 1,895
  • Joined March 2003
Re: I know, I know, it's only numbers, but....
« Reply #16 on: January 25, 2010, 07:57:51 PM »
Hi Ray

Looks like the move to the VA has been seemless and you're getting quality care.  Really good care.

I don't know if you've had a colonoscopy before, but just wanted to offer my experience. 

I put it off for over a year.  It was the last thing I wanted to do.

But you know what?

There's really nothing to it.  You probably won't remember a thing.

They give you drugs--really good drugs.   ;)  (Though you might be given the option of being awake to see it on a monitor--which I absolutely refused!)

The only thing that I hated was getting ready for it   ::), thank God I had the privacy of my own bathroom!  LOL

But in the end (no pun intended), being proactive and knowing that everything is probably O.K. is worth it.

Glad things are working out so well with the change.

RAB   ;D

Offline J.R.E.

  • Member
  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #17 on: January 25, 2010, 08:44:20 PM »
Hi Rab,

I was supposed to get one scheduled after I had those warts removed from the anal area back in May.  I kept putting it off.

I'm already for this, She also wanted to make sure there were no more warts.    I've done my own examination and  haven't noticed anything more on the exterior,( she didn't see anything either) and I don't think there is any problem with the interior, except that it's getting old !!  :P

The doctor also checked the prostate, the other week, and said it feels very normal.


Thanks----Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

  • Member
  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #18 on: February 11, 2010, 07:21:49 PM »
Well....

I have the appointment for consultation with the gastroenterologist tomorrow morning at 9:00.

Supposed to be in St. Pete by 8:30,  so it will be be a little rush for me, as I have to work until 7:00 in the morning.

I'll have just enough time to get home, take a quick shower, try to catch a second wind, and then head out the door again.  Ed will be with me tomorrow.

Hopefully I will get the date set tomorrow  for the colonoscopy . I've also been having some slight pain the lower abdominal area. I will make sure to mention that to him tomorrow also.




Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

  • Member
  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #19 on: February 12, 2010, 05:56:32 PM »

Everything went well today !! Once again, excellent professionalism from the VA. Everyone, should get this kind of care!! It just blows my mind.  Such a change from the private sector,.. having people with their hands out, asking for money first, before the even do anything. My stress and anxiety levels have dropped considerably, since getting into the VA system. Makes one realize even more, just how much we need health care reform in this country, and need it soon, like yesterday !!

We arrived at the VA, at 8:15,  I was called in for vitals about 5 minutes after checking in.  Blood pressure was a little high again.

 She rechecked it again about 20 minutes later and it was better. My weight has also gone up some.  I am now at 182 pounds. (5' 7')  The weight gain didn't surprise me, I monitor that weekly, and it seems that after I stopped taking the Viread, in October, was when the weight started coming on. ( not sure if stopping viread has anything to do with that but... Hmmmm .



We both met with a nurse practitioner, and discussed the entire procedure in detail. After telling her about the slight lower abdominal pain, she had me take my shirt off, and pull my pants down some, where she poked and prodded me again.  She didn't seem to think, that anything felt wrong. She also checked around the area where I had my hernia in 2002, And said nothing appears to be out of the ordinary. We had a very detailed discussion.

The colonoscopy is scheduled for Friday, March 5th @ 8:00 am. I was actually, able to pick the day I wanted. They do  colonoscopies at the VA Monday through Friday.

I will take off Thursday March the 4th, so I can prep, and I will have the weekend, to just take it easy. This fits into my schedule very well. The solution for cleaning me out, will be mailed to me in a few days.






Bottoms up----Ray  :)

« Last Edit: February 12, 2010, 05:58:19 PM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline aztecan

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  • Posts: 5,394
  • 29 years positive, 57 years a pain in the butt
Re: I know, I know, it's only numbers, but....
« Reply #20 on: February 14, 2010, 11:39:22 AM »
Hey Ray,

I go to the gastroenterologist March 22 for the consultation then I do the colonoscopy sometime after that. I am so not looking forward to that prep.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline bear60

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Re: I know, I know, it's only numbers, but....
« Reply #21 on: February 14, 2010, 02:21:43 PM »
Gee Mark
I thought the prep to be pretty straight forward....you take the stuff as directed and you sit on the toilet off and on for next few hours.  
Cleaning out is really important since they will not complete the proceedure if you are not cleaned out properly.  Then you have reschedule and go through the whole thing all over again.
Story about "cleaning out":  The proceedure I did was accompanied by lots of ginger ale. Just think of it as ginger ale fizz, high colonic!
Another story about cleaning out:  Wow, the combination of being cleaned out and high on the anesthesia (post proceedure) was really too good.  I had the best sleep in years.  Now I know why Michael Jackson used that stuff to sleep.

So...enjoy.

Joel
Poz Bear Type in Philadelphia

Offline RAB

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Re: I know, I know, it's only numbers, but....
« Reply #22 on: February 15, 2010, 06:52:55 PM »
Gee Mark
I thought the prep to be pretty straight forward....you take the stuff as directed and you sit on the toilet off and on for next few hours.

Yep that's pretty much how it works!   ;D

Quote
Another story about cleaning out:  Wow, the combination of being cleaned out and high on the anesthesia (post proceedure) was really too good.  I had the best sleep in years.  Now I know why Michael Jackson used that stuff to sleep.

So...enjoy.

Joel

Joel's right about the positive (sic) benefits of being both cleaned out (you'll feel lighter than a feather), and the anesthesia.  That stuff (anasthesia) is wonderful.  I asked for a doggy bag to take some home,  they declined unfortunately.   >:(

But seriously Ray, I know it can be a little intimidating, but it's really not that bad.  (Except for the prep of course.)

Here's hoping everything turns out fine.

RAB

Evil Giggle Evil Giggle

P.S.  Good for you and Mark for being so proactive about your health.  

Edited for typo
« Last Edit: February 15, 2010, 06:54:29 PM by RAB »

Offline J.R.E.

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Re: I know, I know, it's only numbers, but....
« Reply #23 on: February 24, 2010, 07:41:24 PM »
Update:

Had my HIV blood tests done on Monday. ( At clinic) The guy drawing the blood said " Wow, there really doing a workup on you. "

 Those results will be discussed o March 29th, unless they see something going on, and call me in before then.

They took 8 vials this time. None of these test had anything to do with cholesterol.


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

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  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #24 on: March 30, 2010, 06:17:36 PM »
Update

I went to Bay Pines VAMC yesterday.  Had a 9:00 am appointment. received my blood test results, from 2/22/10.  Unfortunately, they lost my viral load test, so I had to go back down to labs, and have it retaken.

  I am going to have to do some follow up after these tests are done !! Misplacing( or whatever they did, with the viral load) didn't make me happy !   As some of you remember, I stopped Viread on October 15th. So, even though I was <48 on tests taken on December 2nd,  there hasn't been a viral load, since that time.

Cd-4 went down from 392 to 320

Some of the other results are:

CD-8 ----1592 (normal range 144-796)

CD-3---2118 (normal range-688-1955

THELP%----15  ( Normal range---52-66)

CD4: CD8  0.20  ( Normal Range--- .83-6.1)


All of my other liver and kidney function test were within range.  There were two  that I am not sure of that were not in range:

NE% 38.5 L (normal range 39.3--73.5)

LY%--51.0 H   Normal range---16.2 -  48.2



Anyway the doctor told me it may take as long as 3 weeks to get the Viral load results
I was also informed that the VA uses a viral load test that measures only 78 and below.


I have fasting blood tests set up with the primary ( at the clinic) on April 8th,  and a follow up consultation on April 16th. These tests will be for cholesterol etc.



Ray
« Last Edit: March 30, 2010, 07:20:11 PM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

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  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #25 on: March 30, 2010, 06:30:16 PM »
Update





  There were two  that I am not sure of that were not in range:

NE% 38.5 L (normal range 39.3--73.5)

LY%--51.0 H   Normal range---16.2 -  48.2



Ray

OK, found out what these were.   :P

Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

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  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #26 on: March 30, 2010, 06:38:26 PM »
PS,


They also tested for syphyilis ( Non-reactive)

Also tested for Toxoplasma, also (Negative)

Also tested for Mono (negative)

Ray

 
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

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  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #27 on: April 16, 2010, 03:02:30 PM »


Received the results today for the Viral load that was taken on March 29th, because they lost the one from February 22nd.

< 75, so I am considered undetectable.  So I am happy about that.

Also discussed today with the Primary care ( at the clinic) was cholesterol.  It went back up, so it looks as though, I will have to go back on 40 mgs a day of simvastin instead of the 20mg.

She also arranged an appointment, with a dermatologist.  I have  a couple areas that need to be frozen or scraped.

Overall, a very productive visit this morning.

Results from last weeks test :

Chol----234

trig-----104

hdlc---55

ldcalc--158

tc/hdlc--4.3



My doctor also  set up an appointment at the VA, for a dietary nutritionist. We're going to see what else I can do with diet.

Also,  looks as though I will be starting on blood pressure medication. It was 143/95.  It was taken several times this morning with the same results. ( or very close) She mentioned HTCZ, mimimal dosage to start with. aahhhhh.......   :-\

So, I 'll be getting that medication in the mail shortly.


That's the latest----Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Andy Velez

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Re: I know, I know, it's only numbers, but....
« Reply #28 on: April 16, 2010, 09:48:53 PM »
Ray, it's good to see that overall your test results are good and encouraging and that you are being well monitored.

Just keep going!

Cheers.
Andy Velez

Offline J.R.E.

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  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #29 on: April 24, 2010, 03:28:07 PM »
Update...

I received the Hydrochlorothiazide, in the mail, and started the first dose yesterday.  It's the 25 mg tab. ( I thought it was going to be a smaller dose, but guess not)


Also received in the mail today, the dates for the Dermatologist, and the Nutritionist.

Dermatologist:  May 5th

Nutritionist : May 12th.


Ray

Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

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  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #30 on: June 05, 2010, 03:15:10 AM »
Update:


So Anyway,...  I had two appointment cards from the VA.  One had an appointment for Wednesday June 2nd at 1:30  ( At the Clinic, 2 miles from where I live)  and the other was for Friday the 4th of June at @ 1:30 at he main facility in St. Pete. ( Bay Pines VAMC)

I really have to watch these appointments. Both appts, were for labs, two days apart. This is the second time this has happenned.


When I went to the clinic on Wednesday, they drew 5 vials.  So I went back to the desk after they took the blood, and asked, what these five vials were for,  why do I have to go to Bay Pines on Friday for more labs.

So after some checking it was determined that the labs taken on Wednesday were the exact same labs to be taken on Friday.  They duplicated it !  Ouch!  What a costly error on their part.

So the guy at the clinic couldn't cancel the Friday appointment.   After I got home I called, and got things straightened out.

I was so close to going, prior to sorting this out, I thought they were doing different type of labs.

The test that were done on Tuesday, were for lipids, Liver panel, cd4 and viral load.

  So, I have the follow up ID consultant appt. , set for July 12! 10:30 AM,  to see how those results are.


Ray


Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

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  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #31 on: June 05, 2010, 03:42:17 AM »


Oh yes,... Everything went well at the dermatologist Appt on May 5th.  She did a pretty thorough check on me, and froze off two areas. Told me that if these areas that were frozen off return within 8 weeks, to make another appt. to have them shaved or cut down. So far so good.

The appt. with the nutritionist( May 12th) also went very well.  Lasted about an hour and 15 minutes. We discussed my diet in detail.  She's convinced, that if I make some dietary changes, that I can probably somewhere in the near future stop the BP medication along with the simvastatin. I am now on a higher fiber diet (25g-per day). More fruits and vegetables !!


Ray

Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

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  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #32 on: July 13, 2010, 07:52:16 AM »
Update 7/13/10

I went to the VA yesterday for my follow up results and consultation from my blood test taken on June 2nd.


Overall, not bad and not to much has changed ;

CD-4 -----  365

CD-8-----   1942 ( RANGE 144- 796)

CD-3----- 2465 ( RANGE 688-1955)

CD4:CD8 RATIO----0.19  ( RANGE 0.83-6.10)

CD4 %--- 14% ( DROP OF 1%)

VIRAL LOAD---<75 ( NO CHANGE)


OTHER TESTS THAT WERE OUT OF RANGE WERE:

ALKALINE PHOSPHATASE---95 ( RANGE 32-91)

LY---3.81  (RANGE-1.0-3.7

NE%  ---35.3 (RANGE --39.3-73.5)

LY%--- 53.7  (RANGE---16.2-48.2)


All other test within range.

I was also met by the Ryan white Social Worker , and was re-certified for another 6 months. She was right there waiting for me ! Hard to believe 6 months had past.


My BMI is 27% and the doc would like to see that get down to 24 or less. He's talking about a 20 pound weight drop !! :o I suppose if I have a boob and stomach reduction, that should just about take care of it .   ::)  

 He asked if I remembered what I weighed, when I was in the Army.  I told him about 140 pounds. this 140 pounds is what he initially wanted me to try to get down to.  No way possible for that !  :P I said, I'll try for 20 LBS !!


Blood pressure was good ;  128/78 Looks as though the BP medication is working.


Weight : 180 pounds


And finally, during my examination yesterday the doc said " Has anyone ever informed you that you have a heart murmur?"  I said no .   So this is new !!  ???  we"ll be watching this.


Otherwise, he says I'm doing OK .


Next Monday,  I have a appointment with The VA primary care. I have to do some fasting blood tests for her. This will be for cholesterol.


Otherwise,  Still hanging in there, and overall not feeling too bad.  The cancer spot that was frozen off a while back has returned, so I will mention that to the primary care, and she will set up another appointment, to finally scape or cut that out.


Ray


 





 




« Last Edit: July 13, 2010, 07:54:44 AM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

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  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #33 on: July 13, 2010, 08:30:52 AM »


Oh,... And the doctor said "no problem" for this test.  I asked if I could have it done. So this will be part of the blood test in 3 months :


http://www.brighthub.com/science/medical/articles/21297.aspx


Ray




Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline aztecan

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  • Posts: 5,394
  • 29 years positive, 57 years a pain in the butt
Re: I know, I know, it's only numbers, but....
« Reply #34 on: July 14, 2010, 02:31:45 PM »
Hey Ray,

I know how you feel regarding the weight gain. So far, I have dropped about 11 pounds, but it has been a struggle.

As for the CPK, my doc checks mine pretty regularly now, especially since it was at lethal levels last year.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline J.R.E.

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  • Posts: 7,126
  • Joined Dec-2003 Living positive, since 1985.
Re: I know, I know, it's only numbers, but....
« Reply #35 on: July 23, 2010, 02:05:00 PM »
Thanks Mark------Some more good news  !!

I went to my primary care today, to get the blood tests results taken earlier in the week.


Total cholesterol: 195----was 234 on 4/8/10 ( This is the second time in 7 years , I've had it at or below 200.

Trig:  117-------was 104 on 4/8/10

HDLC:  54-------was 55 on 4/8/10

LDCALC ----118   ------WAS 158 ON 4/6/10

TC/HDLC: 3.6 -------Was 4.3 on4/8/10



Glucose:  101----------Was 115 on 4/8/10


The doc was very pleased to see these results today  ! She still insisted on more exercise, especially walking.

Other test results:

NA---137
K+---3.7
CL---102
CO2-28
AGAP--7
Glu LX---101 ( this is the one she would like to see a little lower )

BUN LX---15
CREATLX---1.06
CA++---9.2
TP---6.6
ALB---4.8
ALK P---77
AST--31
ALT---44
TBILI----0.4


Things are looking up!!

She also heard the heart murmur today, and is not that concerned about it, but she is going to schedule more test at Bay Pines VAMC. Blood pressure was excellent today.

Ray






Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline BT65

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Re: I know, I know, it's only numbers, but....
« Reply #36 on: July 23, 2010, 05:52:11 PM »
Ray, I totally understand your frustration regarding the weight loss.  If only I had a magic wand to wave over my gut, things would be better.  But, I don't.  I have such a hard time staying totally away from sweets.  And I'm not a huge vegetable fan. 

Your cholesterol looks better, aye?  Good for you for getting it down.  I can't remember, are you on cholesterol meds?  I had to switch from Lipitor to Pravastatin.  Sometimes I skip it for a week (no, my doctor doesn't know this).   

Good luck with the weight thing.  If you find a good diet, let me know!
 Luv,
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline J.R.E.

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Re: I know, I know, it's only numbers, but....
« Reply #37 on: July 24, 2010, 07:01:26 AM »
Ray, I totally understand your frustration regarding the weight loss.  If only I had a magic wand to wave over my gut, things would be better. 

 I can't remember, are you on cholesterol meds?  I had to switch from Lipitor to Pravastatin.  Sometimes I skip it for a week (no, my doctor doesn't know this).   

Good luck with the weight thing.  If you find a good diet, let me know!
 Luv,
Betty


Thanks Betty  ;)

My gut size, is the biggest issue, cause I sure as hell don't have excess weight anywhere else on me !  :P

Anyway, yes I am, on 40 mg of simvastatin.  This pill is provided by the VA in a single 80 mg dose.  I spilt that one in half.

I also take Hydrochlorothiazide, for the blood pressure.  This pill is is 25 mg dose.

I also understand about the attraction to the sweets.  I've given most of this up, but it's impossible to not have some sweets, now and then.

  It's when the now and then turn to here and now, that I have the problem with the sweets. Then I over do it!!   ::)


Hugs-----Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline BT65

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Re: I know, I know, it's only numbers, but....
« Reply #38 on: July 25, 2010, 04:33:35 PM »
Ray, I have something sweet every night before going to bed.  There's this fabulous ice cream, made in Holland, Michigan, (and you know I live right over the border in Indiana), called Mackinaw Island fudge, that I bought the other day.  I have a little every night.  I just adjust the insulin accordingly. ;)

I don't have problems with BP.  Mine actually runs low, and I take a pill for my heart, so there you have it (the reason for it being low).  It can run like 80/60 sometimes.

Good luck with the weight loss.  If you find a tastey diet that works, please let me know.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline J.R.E.

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Re: I know, I know, it's only numbers, but....
« Reply #39 on: August 05, 2010, 04:21:39 PM »

She also heard the heart murmur today, and is not that concerned about it, but she is going to schedule more test at Bay Pines VAMC. Blood pressure was excellent today.

Ray


I received the appointment card in the mail today from Bay Pines.  I have an echo-cardiogram, appt. set for August 16th @ 1:00.  I've had EKG's before, but never this test.


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

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Re: I know, I know, it's only numbers, but....
« Reply #40 on: August 17, 2010, 08:36:07 PM »
EDITED:   Sorry folks!....I meant to place this update in this thread, which is a kind of abbreviated version of my personal journal.  I wasn't thinking clearly this morning when I posted. I was tired !   :P



An update from yesterday's echocardiogram .

Ed and I made it to Bay Pines around 12:15 yesterday afternoon, and checked in about 12:20.  I had the echocardiogram done around 12:45.  The entire procedure took about 25-30 minutes.  She wired me up with 3 electrode thingy's .  I only had to remove my shirt.

She then took that wand device, and asked me to lay on my left side.  She applied that gel stuff, and proceeded to get the pictures. ( and it came with sound) She had me listen to the good valves and then she had me listen to the defective ones. There was a definite difference in the sound !

Apparently, I have TWO heart murmurs.   Shocked        The echocardiogram discovered the other one. 

She believes, that I have had these since birth.  I am not having any kind of problems though.

She then told me I would get a follow up report and consultation with the cardiologist.



We had lunch around 2:00 and made it back home at 2:45, and I got to sleep around 4:30.  Back up at at 7:00, to try to get ready for work last night.  It was tough trying to stay awake at work last night.   Tongue




Ray
 

Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline BT65

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Re: I know, I know, it's only numbers, but....
« Reply #41 on: August 19, 2010, 03:55:36 AM »
Ray, that's good your faulty valves aren't bothering you.  I have a couple bad valves, and every once in awhile, they beat fast and erratic.  So, I know you're going to see a cardiologist, but has there been any talk of medication?  Or not yet?
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline J.R.E.

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Re: I know, I know, it's only numbers, but....
« Reply #42 on: August 19, 2010, 07:31:43 AM »
 So, I know you're going to see a cardiologist, but has there been any talk of medication?  Or not yet?

Hi Betty,

I've never been to a cardiologist !!  I never knew I had these heart murmurs, and never had any kind of problems.  The ID doctor at the VA was the first to hear it , on my last visit there to discuss lab results.


When I mentioned it to the primary care, ( a week or two later) she then heard it.  The primary care was the one that arranged for the echocardiogram at the VA.  

I imagine I will be hearing something from them as soon, as the cardiologist reviews.

My next scheduled appointment( for labs) is for Sep 13th,  but I have a feeling I will hear something before that.


Hugs---Ray





« Last Edit: August 19, 2010, 07:33:17 AM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline BT65

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Re: I know, I know, it's only numbers, but....
« Reply #43 on: August 20, 2010, 04:49:02 PM »
My doctor just ordered a test awhile back for my heart, and I can't remember the name of it.  It's like a stress test, but without the walking on the treadmill.  They shoot something into the veins to make the heart get up to about 120 beats per minute (and it happens in 5 seconds), and then take pictures of it, with the echo.

Good luck at the cardiologist.  I hope it goes well.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline J.R.E.

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Re: I know, I know, it's only numbers, but....
« Reply #44 on: August 20, 2010, 09:25:48 PM »
Thanks Betty,

I have no idea what tests may be scheduled next for me, so it's kind of wait and see ! Maybe one of those treadmill/stress test.  Never had one of those.


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

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Re: I know, I know, it's only numbers, but....
« Reply #45 on: October 13, 2010, 06:52:14 PM »
Update  10/13/10

Went to see the doctor today, to discuss blood test results from 9/13/10


CD-4------292----- WAS 355

CD-8-----1523---  WAS 1942

CD-3-----1908---- WAS 2465

THELP% -15%--  WAS 14%

CD4: CD8 ---  0.19 --- WAS 0.19

VIRAL LOAD---UNDETECTABLE ( <75 )


Other tests that were not within range :

MCH  33.8    Normal range---25.5-33.6

MCHC-35.5   Normal  range-30.9-35.1


Also discussed the heart murmurs today, from the echocardiogram on August 16th, and was told not to worry.  I will post those results a little later tonight , when I have more time.  


Ray
« Last Edit: October 13, 2010, 06:57:48 PM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

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Re: I know, I know, it's only numbers, but....
« Reply #46 on: October 14, 2010, 08:31:57 AM »
Continuation from Previous post:



Here's a little summary of the report I received yesterday regarding the heart murmurs:

Explain reason: Undiagnosed murmur (s)

Indications for test: Valvular heart disease

Date of test: 8/16/10----- BP  Echo cardiogram


Procedures performed:

Complete: Transthoracic echocardiogram, real-time 2-D and M-mode, Doppler echocardiography pulsed wave and/or continuous wave with spectral display, and Doppler echocardiography color flow velocity mapping.
Real time with 2 D image documentation with M mode recording

MEASUREMENTS: ( Not sure what some of this means)


                                                   Normal range
IVSd   1.1 cm----------------------- .7 -1.1

LVIDd  5.0cm-----------------------5.0-5.5

LVIDss--3.2cm---------------------NONE

LVPWd  1.1cm----------------------.7-1.1

AO root--3.2cm----------------------2.0-3.7

AO V opng--1.7cm------------------1.5--2.0

LA dem:   3.8cm----------------------2.0-4.0


Cardiac Chambers:

Left ventrical: 
Cavity size ---  Normal
Systolic function :  Normal
LVEF:  65%
----------------------------------------
Left Atrium:  Normal size

Right Atrium:  Normal size

Right Ventrical: Normal
-----------------------------------------
Cardiac valves:

Aortic Valve: trileaflet 
Aortic regurgitation: Trivial
PHT 433 msec
------------------------------------------
Mitral Valve:
Mitral regurgitation: Trivial
-----------------------------------------
Tricuspid valve:
RSVP 25mm hg
Tricuspid regurgitation: Trivial
------------------------------------------
Aorta root size: Normal
Pericardium Effusion:  None
-----------------------------------------
EKG lead shows: Normal Sinus rhythm
Normal ECG

-----------------------------------------
Impressions:

1.  Normal chamber sizes
2.  Normal LV systolic function
3.  Trivial AI, MR, and TR

----------------------------------------

Weight:  176 lbs

BP:  115/77

Height: 67.5 inches



Anyway,  That's the current state of my ticker. Doc says everything is fine.


After January, the doc is going to set me up with a Neurologist, and I will also be getting an MRI. He wants some more investigation into this "electrical shock " type feeling that I am getting.



Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline aztecan

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Re: I know, I know, it's only numbers, but....
« Reply #47 on: October 14, 2010, 02:52:56 PM »
Hey Ray,

From what I can tell, which isn't saying much, you seem to have the same issues I do. A bit of a murmur and a slightlly leaky mitral valve.

They told me the latter comes with age - the bastards. ;)

So, how do you feel?

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline J.R.E.

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Re: I know, I know, it's only numbers, but....
« Reply #48 on: October 14, 2010, 09:08:08 PM »
Hey Ray,


They told me the latter comes with age - the bastards. ;)

So, how do you feel?

HUGS,

Mark



Hey Mark,


Overall, I feel pretty good. This week had been a little tough.  Whenever my sleep pattern is interrupted, it usually makes the rest of my day difficult. Fatigue is still an issue at times,  and there are those times, when I really have to tell myself to slow down a notch, that I am not 30 or 40 anymore !   :P

Still trying to keep myself involved with cardiovascular exercises.  And, I am obsessive about getting that 30 minute, fast paced,  walk in 5 days a week. 

I think on a scale of 1-10 ( 1- being the best you feel, and 10 the worst)  I am between a 2 and 3, 95% of the time. And I am certainly not complaining. At  almost 59 years of age, and living with HIV for a quarter of a century, and being on meds 7 years , this month, I think  have a lot to be thankful for.

I just like to stay focused on the issues, and keep myself as busy as I can.

Well,  This is my Friday night at work,(got to get ready) and I have a nice long weekend ahead. I took Sunday and Monday off, so I don't have to be back to work until Tuesday night.

Tomorrow is Ed's birthday, so I am going to take him out for a nice dinner, and an enjoy an extended weekend !!  8)


Got to go...


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline BT65

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Re: I know, I know, it's only numbers, but....
« Reply #49 on: October 16, 2010, 06:02:03 AM »
Ray, that's good news about your echo.  I've had those done before, but I have a couple valves that are prolapsed.  I get times when my heart races, and I feel a pressure.  But, I suppose that comes with the territory.

Hey, if you're doing that much exercise, you're doing great.  More than a lot of younger people do, and more than people of all ages do (including me).  I hope your sleep improves!  And I hope you and Ed had a great time celebrating his birthday! :-*
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

 


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