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Author Topic: MANAGING FATIGUE - ANY TIPS?  (Read 1297 times)

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Offline UK_SL

  • Member
  • Posts: 51
MANAGING FATIGUE - ANY TIPS?
« on: December 02, 2009, 01:05:57 PM »
Hiya, was just wandering if any one can advice me on how you have dealt with fatigue, I know I've only been recently diagnosed 8 weeks ago and I've been on Sustiva / Truvada for 6 weeks. The thing is I really want to get back to work and normal life but I just don't feel I could manage it.

My doctor originally signed me off on sick when I was first diagnosed with viral fatigue and I ve been off ever since, it's been 9 weeks now and I just keep thinking the longer I leave it the harder it's going to be, my current sick note runs out in 2 weeks and I just no I'm not gonna be fit for work.

I work full time in a busy bakery/cafe so it's quite hard work, my employers have been a bit funny since I was signed off, they keep ringing me at home to ask whats wrong with me and when I'll be back. How do I deal with it if I need to reduce my hours?

All advice welcome!!
 
05/10/2009 ~ DIAGNOSED, CD4 = 8
22/10/2009 ~ CD4 = 11/VL = 430,000, STARTED ATRIPLA and SEPTRIN
26/11/2009 ~ CD4 = 121/VL = 840
22/12/2009 ~ CD4 = 184 (6%)/VL = 340
11/03/2010 ~ CD4 = 177 (12%)/VL = 72
01/07/2010 ~ CD4 = 247 (12%) VL = 76
20/01/2011 ~ CD4 = 350 / VL = 29

Offline WildcatCC

  • Member
  • Posts: 91
Re: MANAGING FATIGUE - ANY TIPS?
« Reply #1 on: December 02, 2009, 01:22:06 PM »
First off, your numbers look really good. In just a short time your body has reacted to the new drug regimen. That's great!

You may want to get your testosterone level checked. One sign of low testosterone is sluggishness and fatigue. It's a simple blood test.

Take time to fully recover physically (and mentally  ;) ) before going back to the stressors of work. You may want to discuss this with your doc as well as you get close to the end date of your sick note.

Regarding your employer, what's your relationship with them? Was it on great terms? Are they a caring organization? Maybe they are worried? Looking out for you? Want to know when you are ready to come back? They are running a business and perhaps they are balancing their business needs and your personal ones the best they know how. You don't have to tell them why you are off on sick leave just maybe have a frank conversation about when for sure you can return 100% - that's best for you and them.
Apr  08 - Diagnosed
Apr  08  cd4 8, vl 150k
Meds: Prezista/Norvir/Truvada
June 08 cd4 250, vl 1600
Aug  08 cd4 275, vl 450
Meds: Atripla
Nov  08  cd4  386, vl 255
Jan   09  cd4  415, vl 2100 (spike?)
Feb   09  cd4 460, vl 212
May   09  cd4 515, vl 1200
Aug   09  cd4 717, vl 1535 % 23
Sept  09  cd4 535  vl 1710 % 18
Oct   09  genotype shows mutation. Discussing w/ ID Doc
Nov  09   cd4 480  vl 650   % 19
Dec  09 genotype slight mutation to Epivir and Retrovir
Jan 10   cd4 508 vl 250 (21%)  low vitamin d - on supplement 2000 iu/day
Mar 15 Change to Isentress and Truvada
May 5 cd4 498 vl 1485
June 16 cd4 550 vl undect!!!! (finally dammit)

Offline aztecan

  • Member
  • Posts: 5,357
  • 28 years positive, 56 years a pain in the butt
Re: MANAGING FATIGUE - ANY TIPS?
« Reply #2 on: December 05, 2009, 04:46:49 PM »
Hey UK SL,

I agree with Wildcat that the improvement in your numbers is a good sign However, you were diagnosed with a very low CD4 and a pretty high viral load.

It may take some time to feel on top of your game again, even though the response has been good.

People bounce back at different rates. It is pretty individual.

Is there a way for you to go back to work part time? Perhaps that would be easier than trying to go back full time to a job that is physically demanding.

I hope your numbers keep improving and you feel your vitality return soon.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline mecch

  • Member
  • Posts: 10,712
  • red pill? or blue pill?
Re: MANAGING FATIGUE - ANY TIPS?
« Reply #3 on: December 05, 2009, 07:17:31 PM »
I would get some professional advice about how to manage the sick leave and confidentiality issues. You could also ask you doctor for advice.  I went back to work feeling like crap and I don't regret it, however.  A year later I did get some pay back cause some colleagues had not been happy I was sick and felt I didn't give an excuse.  It was none of their business but they wanted one anyway and I did not and will not tell anyone who has that attitude.  However, you might be able to get a doctor to write a fairly persuasive letter about how much time you need off and just see if your company will put up with it or not - and here you have to refer to experts to see what your rights are and those of your companies...
Also you should listen carefully to your ID - if she/he has a LOT of experience with HIV, he may know when its time physically to go back to work.  Mentailly may be the issue.  I know I could ONLY work for a few months, not much else.  But then the old routine came back and I feel much the better for it.
So, my personal advice is - try to get back to work as soon as you and the doc feel iits possible, and be ready to strip down the rest of your days to essentials.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Dale Parker

  • Member
  • Posts: 265
Re: MANAGING FATIGUE - ANY TIPS?
« Reply #4 on: December 06, 2009, 04:56:52 PM »
Just after I was put on the meds I found that I was really tired. I seemed to be OK until mid afternoon then I was dead tired for 3 or 4 hours.  During that time I tried not to do anything too dangerous i.e. drive a car. Both the doctor and pharmacist said that it was due to the meds and I could ignore the tiredness if I wanted to. That feeling did go away after a few months.
  I thought that I was able to go back to work. I really would like to go to work full time but I was worried 1) about screwing up my disability, 2) I tend to overdue things and didn't want to screw up my progress.  I started to volunteer and I'm finding that even though I was feeling good and like I could handle a full time job I'm getting fairly tired. I only volunteer two days a week for about 6 hours. It's not too physical a job, doing laundry, and I get to sit around while I wait for the dryer to stop then I fold the sheets.  I find that I'm fairly tired after the two days.
  I'm glad that I didn't go back to work and even though mentally I'm ready to go, physically I'm finding that I'm not.
Apr 09  CD4 21, CD4/CD8 ratio 0 VL 500,000+
July 09 CD4 158, CD4/CD812% VL 750
Oct 09 CD4 157 CD4/CD8 14% VL UD
Feb 10 CD4 197, CD4/CD8 11% VL UD
May 10  CD4 252 CD4/CD8 12% VL UD
Aug 10 CD4 211 VL UD
Nov 10 CD4 272 CD4/CD8 0.138 VL UD

Offline dvinemstre

  • Member
  • Posts: 96
  • hot in carolina
Re: MANAGING FATIGUE - ANY TIPS?
« Reply #5 on: December 16, 2009, 01:36:45 PM »
Your reason for being out of work is not any of your employers business unless you want it to be. I would strongly encourage you to go to the local vocational rehabilitation office and do an intake. They can assist you. I am a voc counselor. i have to say your best bet to return to full time work or any paid employment is to get your body in order, which will take LOTS of time, requires lots of rest, and also requires you lower yoru stress. You could take with your ID doc and see if you have long term or short term disability with yoru employer, applying for SSDI, and working through things with VR to see if they can help you with advocacy and your employment. thanks, z

 


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