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Author Topic: First Results  (Read 3784 times)

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Offline MoltenStorm

  • Member
  • Posts: 477
  • Poz & Fabulous
First Results
« on: June 01, 2006, 12:57:54 AM »
Howdy All,

I don't know if you all got a chance to read this on the other forums, so I'm reposting it for your viewing pleasure! :) I think that night, the Frontline PBS report had everyone's attention.

I went to the doctor May 30th, and my numbers were not what I was hoping for. They weren't bad, but they weren't great. In good news, my liver, kidneys, blood sugars, cholesterol, etc. are all fine.

CD4: 359 (23%)
VL: 33,900

My doctor told me meds were up to me at this point. I'm right in the middle range, he said. He would start me on Sustiva/Truvada when I do go on meds. We're waiting a month to see how those numbers change before deciding. Should I wait longer?

I also saw my dietrician that day. She gave me some Acidophilus and Centrium Silver to take once a day. She and I discussed a better food plan for me, and laughed quite a bit. I think I needed that shortly after seeing my doctor.

I cried a few times that day. The numbers not being what I'd hoped kind of brought it home for me. This is a disease that I am going to have to live with for the rest of my life. It's not going away until the day I die. It was just a bit overwhelming.

Today, I saw my theurapist. I felt a lot better about everything after leaving today.

That's the update on me. Just sputterin' on along. :)

MoltenStorm
"Love is always patient and kind. It is never jealous. Love is never boastful nor conceited. It is never rude or selfish. It does not take offense and is not resentful. Love takes no pleasure in other people's sins, but delights in the truth. It is always ready to excuse, to trust, to hope, and to endure whatever comes." - 1 Corinthians 13:4-7, adaptation in A Walk To Remember

CD4: 555 / 29% / Undetectable - 7 Nov 2006
CD4: 555 / 29% / Undetectable - 5 Feb 2007

Offline Matty the Damned

  • Member
  • Posts: 12,228
  • Ninja Please
Re: First Results
« Reply #1 on: June 01, 2006, 01:20:14 AM »
Hi Molten,

I haven't had the chance to welcome you to the Forums yet. So, welcome! :D

Anyhoo -- I think your numbers are pretty good. Sure they're not the best, but considering that you have HIV they could be a lot worse. Maybe you should read the AIDSMEDS lessons on what your CD4 and VL test results mean for some more detailed information. You'll find the link in the upper left hand corner of the page.

Fondly,

MtD

Offline DancerBoy

  • Member
  • Posts: 281
  • 5,6,7,8 step touch step touch
Re: First Results
« Reply #2 on: June 01, 2006, 03:05:42 AM »
I think that you should also read the lesson about Sustiva.... In addition to that, I would let a few more bloodworks go by to find a trend before you make the descision to go on meds...
:)
-D
Boys are Stupid

Offline MoltenStorm

  • Member
  • Posts: 477
  • Poz & Fabulous
Re: First Results
« Reply #3 on: June 01, 2006, 12:30:57 PM »
Dancer and Prancer, (Sorry Matt, I couldn't resist  ;D )

I read the lessons on Viral Loads/TCell tests, and the information there is really helpful. I've also been reading a book I purchased shortly after being diagnosed titled The First Year - HIV by Brett Grodeck (ISBN: 1-56924-490-1). I read the information on Truvada and Sustiva as well.

All of this information is really helpful. Thanks!
"Love is always patient and kind. It is never jealous. Love is never boastful nor conceited. It is never rude or selfish. It does not take offense and is not resentful. Love takes no pleasure in other people's sins, but delights in the truth. It is always ready to excuse, to trust, to hope, and to endure whatever comes." - 1 Corinthians 13:4-7, adaptation in A Walk To Remember

CD4: 555 / 29% / Undetectable - 7 Nov 2006
CD4: 555 / 29% / Undetectable - 5 Feb 2007

Offline HIVworker

  • Member
  • Posts: 918
  • HIV researcher
Re: First Results
« Reply #4 on: June 01, 2006, 12:45:44 PM »
You should definitely check with your doc about what to do next, but here is a question to ask him or some food for thought. You might be sad by the results you got but as has been said, you have only just got HIV and you are re-adjusting to it. During the first stages of HIV, there is an initial high round of replication that leads to lower CD4 cells and higher viral loads. Eventually this number comes down and the CD4 cells can recover a little. What you might want to think about is whether this measurement represents the resting level of HIV and CD4 counts or whether it represents a mid-point or point of decline of the virus after acute infection. It might impact your decision to take meds now. I would definitely talk to your doctor about it, but maybe ask them what they think of this idea.

R
NB. Any advice about HIV is given in addition to your own medical advice and not intended to replace it. You should never make clinical decisions based on what anyone says on the internet but rather check with your ID doctor first. Discussions from the internet are just that - Discussions. They may give you food for thought, but they should not direct you to do anything but fuel discussion.

Offline Rob - Dublin

  • Member
  • Posts: 51
Re: First Results
« Reply #5 on: June 01, 2006, 05:25:00 PM »
Hi Molten,

I am a little similar to you in that our timing for infecting nd testing poz is not altogether unalike. My first labs were last week and while a little different to urs, I have decided to analyse mine over the next six months. I beleive a trend will establish itself and a level will present itself. You and I are also very recently infected and have not had the virus in our systems for very long. Personally I would not consider meds for myself now and certainly not until a trend has been established.

Keep us posted.

Rob
14 Dec 2005 Tested Neg
21 Jan 2006 Infected
09 May 2006 Tested Poz
29 May 2006 CD4 551  (33%) VL 21,000
10 July 2006 CD4 632  (34%) VL 24,500

......when i'm good, i'm very good - when i'm bad i'm even better......

Dream as if you will live forever - Live as if you will die today.....

Offline Matty the Damned

  • Member
  • Posts: 12,228
  • Ninja Please
Re: First Results
« Reply #6 on: June 01, 2006, 05:33:22 PM »
Dancer and Prancer, (Sorry Matt, I couldn't resist  ;D )

I read the lessons on Viral Loads/TCell tests, and the information there is really helpful. I've also been reading a book I purchased shortly after being diagnosed titled The First Year - HIV by Brett Grodeck (ISBN: 1-56924-490-1). I read the information on Truvada and Sustiva as well.

All of this information is really helpful. Thanks!

Hehehehe, actually it's 'Mincer', love. ;)

MtD

Offline randym431

  • Member
  • Posts: 1,125
Re: First Results
« Reply #7 on: June 02, 2006, 04:36:01 AM »
Well... Just my .02 worth, but if me, I'd get right on meds now. You dont want to see that cd4 get to 200. Myself, I fear the virus much more than the meds. And the meds bring that vl down to undetectable fairly fast with these latest meds. You could easily see your cd4 getting back to and over the 500 range, once the vl is kicked on its behind via the meds. Its usually easy for the meds to bring that vl to undetectable, but its can be a loooong hard road getting that immune system back in sync.
But thats just my opinion here.
Take care!
« Last Edit: June 02, 2006, 04:38:55 AM by randym431 »

 


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