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Author Topic: RINGING IN THE EARS ! HELP ! I AM GOING NUTS !  (Read 2446 times)

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Offline weasel

  • Member
  • Posts: 1,723
RINGING IN THE EARS ! HELP ! I AM GOING NUTS !
« on: October 24, 2009, 10:08:52 PM »
Does anyone else suffer from   Ringing in the ears ?

 I am really besides myself !

 It has become so loud I can barely function !

If not for Clonazapram  I would be in a rubber room !

 Any help ?????????????????????


                                       be well ,
                                                      Carl
" Live and let Live "

Offline positively_me

  • Member
  • Posts: 87
  • love me...love my monkey
Re: RINGING IN THE EARS ! HELP ! I AM GOING NUTS !
« Reply #1 on: October 25, 2009, 12:24:01 AM »
i have ringing in the ears too!  people have told me that it's tinnitus and that it comes with age and/or damage to your ear drums. if you find any info on how to lessen it, please let me know.
Great minds discuss ideas; Average minds discuss events; Small minds discuss people.  - Eleanor Roosevelt

Offline Inchlingblue

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  • Chad Ochocinco PETA Ad
Re: RINGING IN THE EARS ! HELP ! I AM GOING NUTS !
« Reply #2 on: October 25, 2009, 01:46:50 AM »
There was a thread about this last year:

http://forums.poz.com/index.php?topic=21473.0

Offline weasel

  • Member
  • Posts: 1,723
Re: RINGING IN THE EARS ! HELP ! I AM GOING NUTS !
« Reply #3 on: October 25, 2009, 11:28:42 AM »
Thanks BLUE ,
                      I read those responces .

 AUSPOZ  was the most  comforting to me ! I suffer from Music too .

   At least I am NOT crazy !

    MATT's  reply also is on the mark  :)

                                                           Carl
" Live and let Live "

Offline J.R.E.

  • Member
  • Posts: 7,280
  • Joined Dec-2003 Living positive, since 1985.
Re: RINGING IN THE EARS ! HELP ! I AM GOING NUTS !
« Reply #4 on: October 25, 2009, 11:55:33 AM »
Carl,

I still have the ringing in the ears, and not much has changed, from that earlier link provided to you.

Some days are bad, other days, not so bad. I take nothing for it. I have no problem with my hearing, just that high pitch noise, like someone set off a firecracker next to my ears. It does get agrivating at times.


Take care---Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 25 mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 12/10/14,  t-cells are at 350,  Previous 8/25/14--- 402/ Viral load remains <40

 Current % is at 13% / Previous 8/25/14 11%

  
 63 years young.

Offline David_CA

  • Member
  • Posts: 3,246
  • Joined: March 2006
Re: RINGING IN THE EARS ! HELP ! I AM GOING NUTS !
« Reply #5 on: October 25, 2009, 04:48:08 PM »
Add me to the list of those with tinnitus.  I don't recall having it until becoming HIV+, being in the hospital with PCP, and starting meds (Atripla).  I take my Atripla in the morning, and the ringing seems to be its worse a few hours after dosing.  I read this thread around 10:00 am and it was pretty bad.  It's now 4:45 and it's very noticeable but not as bad as earlier.  It's a steady pitch but will sometimes drop a note or two for a while.  It kind of reminds me of being in one room with an old TV on, with the sound turned down, in a different room.  I remember an old tube TV from the very early '70's that did that really badly.  Anyway, it's very annoying to me, but I can kind of drown it out with some background noise.  White noise at night and streaming audio (on my PC at work during the day) help a lot. 

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline weasel

  • Member
  • Posts: 1,723
Re: RINGING IN THE EARS ! HELP ! I AM GOING NUTS !
« Reply #6 on: October 25, 2009, 08:00:39 PM »
Thank you  :)

   Kind words  from you GUYS   means more than any I.D. Doctor can ever say !

     I am cooking   Bison BALLS   and Bison sausage !

     Rigatoni  to cum ................................

                                                 Feeling like a part ,
                                                                               Carl
" Live and let Live "

Offline ARMANDO

  • Member
  • Posts: 255
Re: RINGING IN THE EARS ! HELP ! I AM GOING NUTS !
« Reply #7 on: October 29, 2009, 09:20:54 AM »
i've been suffering from ringing in my right ear for  a long time and it seems to be getting worse,it's actually affecting my quality of sleep.i've checked into the drug LIPOFLAVONOID and GINKO BILOBA but i've heard that these have had bad interactions with my hiv drugs,,,ANYBODY WITH ANY COMFORTING THOUGHTS??

Offline david25luvit

  • Member
  • Posts: 1,409
  • Member since March 2005
Re: RINGING IN THE EARS ! HELP ! I AM GOING NUTS !
« Reply #8 on: October 29, 2009, 09:31:30 AM »
Oh yeah.....my ears have been ringing since I started taking Sustiva ( I no longer take it).....You get accustomed to it after a while...or at least I did.  Of course I hate to sit in silence....I've always got something going....music, TV or a conversation to take my mind off of it.  Hope yours is not too loud or distracting???

In Memory of
Raymond David McRae III
Nov. 25, 1972- Oct. 15, 2004
I miss him terribly..........

Offline rondrond

  • Member
  • Posts: 1,712
Re: RINGING IN THE EARS ! HELP ! I AM GOING NUTS !
« Reply #9 on: October 29, 2009, 01:13:56 PM »
Carl,

When I told the doctor my ears were ringing, he told me to "answer them" ( as the phone or doorbell) He was retiring, so I just let it go. I have really had no respsonse from any of my doctors. Mom says it's because they don't know.

Mine is usually running in the background on mute, then suddenly, it's like a field of crickets on a dark summer night. Wave after wave...the worst time is in the mornings or if I am awakened from a nap.

Sorry I can't offer any other help.
Ronnie
"I may not be exactly where I want to be, but I sure as Hell am not where I was"
Wynnona Judd

Diagnosed/HIV
1993
AZT
Norvir
1994-2001
Crixivan/Epivir/Zerit
No Meds for 7 Years

04jul07/DVT-right leg/Bi Lateral PE's     
16oct08/DVT-left leg
Sept '09  6 blood clots in left arm
Coumadin 5mgs
                                     
Atenolol/50mg/2x
Hydrochlorth 25mg/1x
Gemfibrozil/300mgs/2X
Symbicort
Proventil Inhaler
Potassium
Rhinocort


*APR 08~Viramune/Truvada
March08  CD4 330 23% VL 452.000 
*Jan09 Med change~Epzicom/Viramune

Aug09   CD4 523 23%  VL<48
Diagnosed: COPD
Dec 2013: CD4 645 45% VL 49
Med Change: Viramune/Epivir/Ziagen/Isentress

Offline weasel

  • Member
  • Posts: 1,723
Re: RINGING IN THE EARS ! HELP ! I AM GOING NUTS !
« Reply #10 on: October 29, 2009, 03:56:21 PM »
HI all  :D

 RonRond I am glad YOU  mentioned crickets  :o

  Confirms   I am not crazy (   well  not most of the time )    LOL LOL LOL


    But I feel better knowing many of you guys hear what I hear  !

     There is comfort in  Camaraderie !

                                           Be well ,

                                        Hope to meet some of you in Las Vegas   :)

                                            Carl


              P.S,  :  rainy , I AM  off to play in the brook  , those nasty branches and leaves  :o

                         Are clogging  the brook ! How dare them     LOL LOL LOL
" Live and let Live "

Offline MitchMiller

  • Member
  • Posts: 482
Re: RINGING IN THE EARS ! HELP ! I AM GOING NUTS !
« Reply #11 on: October 31, 2009, 03:09:32 AM »
A couple aspirin helps take the edge off Sustiva related tinnitus for me.  Sometimes I also have trouble getting to sleep if the ringing has gotten really annoying... it's as if I feel it as much as hear it.  That's when I reach for the aspirin.  In about 20 minutes, I can feel it taking the edge off so I can fall asleep.

I think Sustiva may be causing some type of inflammatory response in the brain that's behind the tinnitus.

Offline jay195

  • Member
  • Posts: 67
Re: RINGING IN THE EARS ! HELP ! I AM GOING NUTS !
« Reply #12 on: October 31, 2009, 08:30:22 AM »
Hi ! I experienced buzzing in my ears about twenty-five years ago. I wasn't hiv + then. I saw a specialist who ran some tests and he couldn't find anything wrong. He said it was due to stress ,which figures, as I was living at my mother-in-laws at the time. When we moved out it stopped.               

                                               Jay xx                     

 


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