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Author Topic: Diagnosed with AIDS 3 years ago and still here  (Read 2236 times)

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Offline jcmiami

  • Member
  • Posts: 32
Diagnosed with AIDS 3 years ago and still here
« on: October 22, 2009, 10:01:17 PM »
Hi all, I felt like posting this because I want to give some hope out there. My name is Jose and I was diagnosed with full blown AIDS 3 years ago- of all days - Halloween! I was hospitalized with Pneumocystis carinii pneumonia (PCP) and Thrush, CD4 was 21 and Viral load over 800,000. I was hospitalized for over 3 weeks and was in real bad shape but I survived. The funny thing I never looked sick, never lost weight, never had that sunken face look - nothing but I was sick as hell. I remained the stocky guy I always was - not even with AIDS did I lose weight LOL!
Fast forward to now, I work a full time job and planning to finish school. I have my days of really bad fatigue then some bouts with depression as well - not an easy road but you go on. I am blessed to have a wonderful family and friends. I also possess a wacky sense of humor and a stubbornness to face obstacles and jump over them. The thing is you must go on and not to wallow in your illness. I joke about my diagnosis all the time and I even call myself "nuclear." LOL!

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,093
Re: Diagnosed with AIDS 3 years ago and still here
« Reply #1 on: October 23, 2009, 07:39:15 AM »
Welcome JC.  How long have you been positive?

Edited to add:  This thread started out in the "LTS'ers" forum, hence me asking how long JC's been positive.
« Last Edit: October 23, 2009, 07:43:06 AM by BT65 »
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Trace67

  • Member
  • Posts: 37
  • Live, Love, Laugh!
Re: Diagnosed with AIDS 3 years ago and still here
« Reply #2 on: October 23, 2009, 09:45:40 AM »
I am so glad that you are doing well-this disease can create an illusion. I was diagnosed with full blown AIDS 5 years and I too didn't look ill as I was the epitome of health. One thing that I have learned is that often the healthiest looking can be the most ill-strange! Take care of yourself Live, love, laugh!!

Offline weasel

  • Member
  • Posts: 1,723
Re: Diagnosed with AIDS 3 years ago and still here
« Reply #3 on: October 24, 2009, 09:10:26 PM »
Glad you are doing well !

 I have  been pos for nearly   30  years !!!!!!!!!!!!!!!!!!!


    AIDS   bloomed  5 years ago  :o

   Life goes on .

Some days are so awful I wish I were dead !

   BUT most days are so peaceful and  good , I bless  GOD  that I made it threw  the

 worst part of it all !

 That would be the loss of ALL MY FRIENDS !!!!!!!!!!!!!!!!!!!!!!!

 Life is often lonely ! I know there are Millions of people out there !

 It is hard to make new friends and NOT let go of the dream boats that died  :'(


   I wish you the best ! 

   You GOT IT ALL !

Never forget YOU are living in THE BEST TIMES TO HAVE HIV/AIDS !!


                            be well , Carl

" Live and let Live "

Offline WildcatCC

  • Member
  • Posts: 91
Re: Diagnosed with AIDS 3 years ago and still here
« Reply #4 on: October 26, 2009, 03:23:52 PM »
Hey (neighbor!) JC. My story is so similar to yours. I just wanted to say hi and welcome and keep at it, my friend.  ;)
Apr  08 - Diagnosed
Apr  08  cd4 8, vl 150k
Meds: Prezista/Norvir/Truvada
June 08 cd4 250, vl 1600
Aug  08 cd4 275, vl 450
Meds: Atripla
Nov  08  cd4  386, vl 255
Jan   09  cd4  415, vl 2100 (spike?)
Feb   09  cd4 460, vl 212
May   09  cd4 515, vl 1200
Aug   09  cd4 717, vl 1535 % 23
Sept  09  cd4 535  vl 1710 % 18
Oct   09  genotype shows mutation. Discussing w/ ID Doc
Nov  09   cd4 480  vl 650   % 19
Dec  09 genotype slight mutation to Epivir and Retrovir
Jan 10   cd4 508 vl 250 (21%)  low vitamin d - on supplement 2000 iu/day
Mar 15 Change to Isentress and Truvada
May 5 cd4 498 vl 1485
June 16 cd4 550 vl undect!!!! (finally dammit)

Offline BlueMoon

  • Member
  • Posts: 665
  • Calling from the Fun House
Re: Diagnosed with AIDS 3 years ago and still here
« Reply #5 on: October 26, 2009, 04:51:19 PM »
I joke about my diagnosis all the time and I even call myself "nuclear." LOL!

Didn't you know?  AIDS is serious business. . . just like the internet is.   ;)

Good to see that you're doing well and moving on. 
...................VL.....CD4.....%
-----------------------------------------
08/10-- ......<40.....290.....42
05/10-- ......<48.....290.....46
02/10-- ......<48.....481.....44
10/09-- ......<48.....277.....46
07/09-- ......<48.....300.....38
05/09-- ........51.....449.....39
03/09-- Added Isentress
02/09-- ........65.....299.....34
11/08-- ........62.....242.....40
08/08-- ........66.....212.....29
05/08-- ......202.....217.....27
03/08-- ....5210.....187.....21
02/08-- Began Truvada/Reyataz/Norvir
12/07-- 273,000.....157.....22
11/07-- 229,000.....209.....22
10/07-- Diagnosis

It's a complex world.

Offline rioz

  • Member
  • Posts: 54
Re: Diagnosed with AIDS 3 years ago and still here
« Reply #6 on: October 26, 2009, 08:03:54 PM »
Yes BlueMoon,

Moving on. It's all about moving on...

Somedays are harder than others.

Richard
Living with HIV since 1985
Living with AIDS since 2007

Truvada, Lexiva, Norvir, Levothyroxine, Testim, Sertraline, Crestor

 


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