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Author Topic: Hello All - Been a While - Just throught I'd Check In  (Read 1150 times)

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Offline BrooklynGuy

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  • Tomorrow is not a promise, it's a gift.
Hello All - Been a While - Just throught I'd Check In
« on: October 18, 2009, 07:06:10 AM »
it's bee a long summer in more ways than one.  glad to say that my partner's ordeal with Hodgkin's Lymphoma has come to a happy ending.  He was "cancer free" after 4 chemo treatments and was officially done with chemo in August (after the standard 12 bi-weekly ABVD treatements).  he still has the mediport in him which has to get flushed once a month.  we hope that will come out shortly.  we are also in the process of switching to another oncologist since the one that treated him(albeit to a successful conclusion), takes the attitude that we don't need to do any follow up scans.  his philosophy is "we will deal with something if/when symptoms return".  we are not of that casual mindset and i personally would at least like scans every 6 months for the next few years.  other than that, partner is back at work flying the skys with Delta airlines and glad to be back at work.  i still hate my job and now have no vacation left since it was all used for chemo and doctor appointments - don't get me wrong - i'd use it all again in a heartbeat but the rest of the year is going to be tough with no vacation left.  plus the houshold savings has been descimated since we lost an income for the last year but we still have a roof over our head and food on our plates and we both have our "health".  guess i can't ask for anything more than that

hope everyone here is doing well.
Infected:  Probably 1995
Diagnosed: June 2005
Baseline VL: 650,000
Baseline CD4: 30

Last Dr. Visit: 12/2013
VL: Undetectable
CD4: 700
Meds: Complera

Offline Assurbanipal

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Re: Hello All - Been a While - Just throught I'd Check In
« Reply #1 on: October 18, 2009, 09:51:53 AM »
Congratulations to you and your partner on the recovery. 

It's hard to come out the other side from something like that and pick everythng back up to settle in to the new normal.  But each day ...

Overall though, that's great news!
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%
2014 VL UD - 48
2015 VL 130 Moved to Triumeq

Offline Ann

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    • Num is sum qui mentiar tibi?
Re: Hello All - Been a While - Just throught I'd Check In
« Reply #2 on: October 18, 2009, 09:57:00 AM »
Hi BG, good to hear from you again and it's fantastic  to hear your partner has beat the HL! Way to go! I don't blame you one little bit for wanting a more proactive doctor. I'd be wanting follow-up scans for a year or two as well. Why wait until symptoms appear? ::) That sounds foolhardy to me.

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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

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Offline Miss Philicia

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Re: Hello All - Been a While - Just throught I'd Check In
« Reply #3 on: October 18, 2009, 10:18:48 AM »
Glad to hear that your partner is on the upswing, BrooklynGuy.
"Iíve slept with enough men to know that Iím not gay"


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