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Author Topic: Update: Treatment for Osteoporosis sucessfull  (Read 3674 times)

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Offline smalltown66

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  • Posts: 73
Update: Treatment for Osteoporosis sucessfull
« on: September 29, 2009, 07:29:41 PM »
In previous post I have talked about dealing with severe osteoporosis over the last two years.
I started on Forteo injections 1 year ago. Just recently had a repeat bone density scan and my T score went from -3.0 to a -1.0.

-3.0 was condsidered osteoporosis and -1.0 is considered osteopenia. Quite an improvement in a year. I hope this treatment continues to work and some other weird side affect doesnt show up.

Just thought I would share.

Smalltown 66
Lifting the weight of the world sure is easier with others with the same goal.

Offline veritas

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Re: Update: Treatment for Osteoporosis sucessfull
« Reply #1 on: September 30, 2009, 05:04:33 AM »

smalltown66,

Great news  and wonderful results. Is there any indication as to how long you will have to be on therapy ? I was just diagnosed with osteopenia in one hip and I'm taking vit d and calcium for it. Haven't had a second scan yet.

v

Offline BT65

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Re: Update: Treatment for Osteoporosis sucessfull
« Reply #2 on: September 30, 2009, 05:45:23 AM »
I've never heard of Forteo, that's interesting.  How many injections did you have to have, and how often? 
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline veritas

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Re: Update: Treatment for Osteoporosis sucessfull
« Reply #3 on: September 30, 2009, 08:46:21 AM »

BT65,

Here's some information on Forteo:

http://www.drugs.com/forteo.html

v

Offline BT65

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Re: Update: Treatment for Osteoporosis sucessfull
« Reply #4 on: September 30, 2009, 05:36:32 PM »
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline aztecan

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  • 29 years positive, 57 years a pain in the butt
Re: Update: Treatment for Osteoporosis sucessfull
« Reply #5 on: October 03, 2009, 10:17:01 AM »
Hey Smalltown,

That is great news! It is something to remember because I think more of us will be facing this situation.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline smalltown66

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  • Posts: 73
Re: Update: Treatment for Osteoporosis sucessfull
« Reply #6 on: October 08, 2009, 07:12:29 PM »
Thanks everyone for the nice encouragement!

Smalltown
Lifting the weight of the world sure is easier with others with the same goal.

Offline AndyArrow

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Re: Update: Treatment for Osteoporosis sucessfull
« Reply #7 on: October 09, 2009, 01:45:31 AM »
Sorry to come into this late -- that is really great news & thanks for sharing the info with everyone
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline freddy65

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  • Posts: 4
Re: Update: Treatment for Osteoporosis sucessfull
« Reply #8 on: November 07, 2009, 11:15:57 AM »
In previous post I have talked about dealing with severe osteoporosis over the last two years.
I started on Forteo injections 1 year ago. Just recently had a repeat bone density scan and my T score went from -3.0 to a -1.0.

-3.0 was condsidered osteoporosis and -1.0 is considered osteopenia. Quite an improvement in a year. I hope this treatment continues to work and some other weird side affect doesnt show up.

Just thought I would share.

Smalltown 66


Hi Smalltown 66, congratulation for the great results. I'm writing from Italy, so please forgive my bad  english.  :)
I'm dealing with osteoporosis  and my last score was -3.0, i'm now taking alendronate but i found your result very interesting.
Just two questions:did you have  any specific side effects and how many injections do you have to do?
Thanks in advance.
Freddy
« Last Edit: November 07, 2009, 11:56:35 AM by freddy65 »

Offline sharkdiver

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Re: Update: Treatment for Osteoporosis sucessfull
« Reply #9 on: November 07, 2009, 02:40:49 PM »
Welcome to the forum Freddy, please take some time to introduce yourself? How long have you been poz?

Offline freddy65

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  • Posts: 4
Re: Update: Treatment for Osteoporosis sucessfull
« Reply #10 on: November 07, 2009, 08:06:35 PM »
Welcome to the forum Freddy, please take some time to introduce yourself? How long have you been poz?

I think you are right Sharkdiver. This is actually my second post here but the first one has been very long time ago, was about the Ensoli vaccine.....an Italian story!  :)

Hello to everybody. I'm 44, italian and have been tested poz in 1985 so up to now i have been positive for 24 years. Quiet long time and enough to get tired about that!

Fortunately I have passed through this long period without any particular problems, my lab test are ok and no lipo. I'm taking therapy since 1998 and about two years ago I discovered my osteoporosis troubles.

Times ago I was reading Poz forum quiet often found it very interesting, especially the long term section. I belive that no matter where we are from, our story are always quiet similar and being here  now, sharing our life, is already a succes.
That's all for the moment, not much but takes time for me write in english.  :)

Ciao

Freddy

« Last Edit: November 07, 2009, 08:10:58 PM by freddy65 »

Offline beau1200

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  • Posts: 17
Re: Update: Treatment for Osteoporosis sucessfull
« Reply #11 on: November 07, 2009, 10:08:00 PM »
I have also been a long term survivor with recent issues of osteoporosis.  Last summer I had to have my left hip replaced, then this summer, my right hip had to be replaced.  We haven't been able to find medication that will help me with bone density that doesn't compromise my system.  On a bright note,  if you are faced with a hip replacement, do it as soon as you can.  I had no idea how much pain I was really in!  No we are working with the nerve issues that were created when I used my right side to compensate for my left hip weakness, then my left side.  Now I have lower spine issues, and continue with physical therapy. 

Offline rondrond

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Re: Update: Treatment for Osteoporosis sucessfull
« Reply #12 on: November 08, 2009, 01:12:17 PM »
Hi Smalltown,

I'm glad for your improvement with the new treatment. Hope it continues to work for you.

I have been having hip pain, they are associating with my scoliosis/degenerative discs. I'll have to to do some study on this one, thanks for the info.


I'd like to welcome freddy and beau.



"I may not be exactly where I want to be, but I sure as Hell am not where I was"
Wynnona Judd

Diagnosed/HIV
1993
AZT
Norvir
1994-2001
Crixivan/Epivir/Zerit
No Meds for 7 Years

04jul07/DVT-right leg/Bi Lateral PE's     
16oct08/DVT-left leg
Sept '09  6 blood clots in left arm
Coumadin 5mgs
                                     
Atenolol/50mg/2x
Hydrochlorth 25mg/1x
Gemfibrozil/300mgs/2X
Symbicort
Proventil Inhaler
Potassium
Rhinocort


*APR 08~Viramune/Truvada
March08  CD4 330 23% VL 452.000 
*Jan09 Med change~Epzicom/Viramune

Aug09   CD4 523 23%  VL<48
Diagnosed: COPD
Dec 2013: CD4 645 45% VL 49
Med Change: Viramune/Epivir/Ziagen/Isentress

Offline smalltown66

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  • Posts: 73
Re: Update: Treatment for Osteoporosis sucessfull
« Reply #13 on: November 08, 2009, 03:52:45 PM »
Yes a big welcome to Freddie and to Beau!
Thanks everyone for the nice support.

Freddie you asked about the injection. I take my forteo injection just once a day. The suggested time is 24 months. I saw good results at 12 months. I am continuing for another 12 months. I have had no noticeable side affects so far.  I hope this information will help ohters that are having osteoporosis issues.

smalltown66
« Last Edit: November 08, 2009, 03:55:21 PM by smalltown66 »
Lifting the weight of the world sure is easier with others with the same goal.

Offline BT65

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Re: Update: Treatment for Osteoporosis sucessfull
« Reply #14 on: November 08, 2009, 07:58:17 PM »
Smalltown, I take it the injection goes into a muscle, and you inject yourself?  Curious.  Do you ever develop hard lumps in the muscle you're injecting into?

And welcome to Freddy and Beau.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline freddy65

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  • Posts: 4
Re: Update: Treatment for Osteoporosis sucessfull
« Reply #15 on: November 10, 2009, 12:05:56 PM »
Hi, thank you for answers Smalltown and also for the welcome that you guys gave me. I appreciated!  :)

Freddy

 


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