Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
October 31, 2014, 03:34:33 PM

Login with username, password and session length


Members
Stats
  • Total Posts: 644197
  • Total Topics: 49030
  • Online Today: 208
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: A series of blows..  (Read 1634 times)

0 Members and 1 Guest are viewing this topic.

Offline bc0203

  • member
  • Posts: 1
A series of blows..
« on: August 15, 2006, 04:48:03 AM »
The past few weeks have been a series of blows for me.  First finding out I was poz - I was asymptomatic, so figured we caught it early.  In response, I got a good ID specialist, a psychiatrist who seems to have endocrinology as a hobby (I'm bipolar and figure meds will be an issue) and a solid primary care physician an as my core medical team.

About a week ago, the bomb dropped: I found out my CD4 was at 221 and my viral load was at 272,000.  Slowly, I'm beginning to get an awareness of what all that means.  As best I understand it, given my "viral setpoint":

There are about 80% odds I'll have an AIDS diagnosis in the short term, simply because my T-Cells will drop below 200 before rebounding.

The odds of me developing an opportunistic infection during the next six months is about 10-15%.  With this in mind, I need to get vaccinated against OIs NOW rather than wait around.

I may have to go through more than one co use of antivirals to achieve viral suppression, if this is possible at all, given where we are starting.

In other words, it's not rosy, but it's liveable.  Am I being realistic here?  Is there anything else I need to take into consideration?   Last but not least, should I be upset with my ID specialist because they didn't forward my CD4 and viral load results to my physician, or should I just make a point of politely requesting they forward test results each time they become available?

Thanks in advance.

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: A series of blows..
« Reply #1 on: August 15, 2006, 06:44:45 AM »
Hi BC, welcome to the forums.

I can't help but wonder if you might have a new infection? Your high viral load despite being asymptomatic is what makes me wonder, because the viral load can be sky high in the first few months of infection. If this is a new infection, your numbers should stabilise soon, which means your viral load would drop and your CD4 would rise.

As for your ID specialist not forwarding your labs, you need to expressly give him permission to do this - possibly in writing. Otherwise, his hands are tied by the strict laws that protect your privacy and prevent him from disclosing to other health care providers without your permission.

Please read through the Just Tested Poz Welcome Thread and follow the links to the other sections of this website. In particular, check out the Lessons, especially the ones about your lab results. One thing you don't mention is your CD4% - you will learn the significance of this number in the labs lesson. If your CD4% is fairly high, this would lend weight to the idea that you have a primary infection.

I'm glad you found us - this place has some of the best hiv information out there. And the forums are like family too - but be warned that just like family, we argue amongst ourselves from time to time. Don't let that put you off, we love each other really. ;)

You are going to be alright. It sounds as though you have a good care team assembled and that is a big part of winning this battle.

Hope to hear more from you soon - and feel free to ask any questions that might come up while reading the lessons - and feel free to come here to vent some of those rollercoaster emotions you're likely to be experiencing. We've all been there.

Hang in there...

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline J.R.E.

  • Member
  • Posts: 7,221
  • Joined Dec-2003 Living positive, since 1985.
Re: A series of blows..
« Reply #2 on: August 15, 2006, 08:00:09 AM »
Hello Bc,

Welcome to the forums. I am sorry to hear about your positive status, but I am sure you will find plenty of support here.

As Ann has stated, if this is a new infection, your viral load numbers will bounce around, and then drop. Your t-cells should continue to rise.


When t-cells drop around the 200 range, that is when opportunistic infections can start occurring. PCP, being the main concern. PCP is a type of pneumonia, but there is no vaccination to prevent this. What does prevent this is BACTRIM, which is an anti-biotic. This is taken until your cd-4's are back up again and maintaining.

I know you are dealing with quite a bit right now, but try to take a breath ! If you haven't already, check out the lesson by clicking below ;

http://www.aidsmeds.com/lessons/StartHere4.htm


The following link, will give you some info on vaccinations : ( you may find it helpful)

http://www.thebody.com/nmai/vaccination.html


http://www.aidsmeds.com/OIs/PCP1.htm

some nutritional info :

http://forums.poz.com/index.php?topic=234.0


Take your time reading, and don't cram yourself with too much info. Take it slowwww....


How often/ frequent are you appointments currently set up for blood work?


Don't hesitate to ask questions. And it is always helpful to have some sort of notebook handy, that when you have questions write them down. It's too easy to forget things, when your going to the doctor.



Stay in touch with us, and let us know how you are doing !! I know things seem tough right now, but you will get through this.



Take care of yourself---------Ray





 



« Last Edit: August 15, 2006, 08:07:34 AM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline wellington

  • Member
  • Posts: 508
  • Don't sweat the little things.
Re: A series of blows..
« Reply #3 on: August 15, 2006, 01:11:45 PM »
When I was diagnosed in Feb/06, my CD4 was 45 and I was already suffering from an undiagnosed bout with PCP. All is not lost, even with low CD4 and OI's taking centre stage. Just adhere to the meds which have been prescribed for you, if any, eat well, get sufficient rest, and live each day to the fullest. If you're anything like me, those days do get better and better.

No need to fret about doctors not passing on your results. My clinic has standing orders from me to fax lab results to my home office but do they ever do it when results become available? No. I just give them a little nudge and a few minutes later, the fax machine starts to purr. The moral: don't be afraid to ask for the things you need to get on with the life you're planning to lead! As Ann points out, you may need to give them something in writing to make the process all official.

Remember to chime in here with any questions you may have. The AidsMeds (AM) team doesn't get paid to offer up their wisdom - they do it because they care about you and what you're facing. We're all in this together.

Best,

Offline ACinKC

  • Member
  • Posts: 2,994
  • Bring it VIRUS! #2 Ranked In-crowd Member!
Re: A series of blows..
« Reply #4 on: August 15, 2006, 02:47:35 PM »
Don't forget to wake up every day and appreciate life! 

 Don't forget to love those around you! 

Don't forget that you aren't alone. 

And most of all don't forget that you will make it through all of this and will be a stronger person!

Everyone Else will cover the medical "don't forgets" just thought id cover the other side.

Welcome, brother!  Enjoy the ride!
« Last Edit: August 15, 2006, 02:49:31 PM by ACinKC »
LIFE is not a race to the grave with the intention of arriving safely
in a pretty and well-preserved body, but, rather to skid in broadside,
thoroughly used up, totally worn out, and loudly proclaiming--WOW! WHAT A
RIDE!!!

Offline Eldon

  • Member
  • Posts: 2,664
Re: A series of blows..
« Reply #5 on: August 15, 2006, 03:44:02 PM »
You said it perfectly ACinKC!

Offline allopathicholistic

  • Member
  • Posts: 3,258
Re: A series of blows..
« Reply #6 on: August 16, 2006, 03:26:32 PM »
The odds of me developing an opportunistic infection during the next six months is about 10-15%.  With this in mind, I need to get vaccinated against OIs NOW rather than wait around.

I may have to go through more than one co use of antivirals to achieve viral suppression, if this is possible at all, given where we are starting.

  If you want, tell us what vaccinations have been ordered for you e.g. Pneumovax ...This forum family, which youre now part of, can be of tremendous help to you if you choose to share your doctor's plan of action with us. The knowledge and experiences here reflect amazing depth. 
« Last Edit: August 16, 2006, 03:29:45 PM by allopathicholistic »

Offline Christine

  • Member
  • Posts: 1,069
Re: A series of blows..
« Reply #7 on: August 16, 2006, 04:25:28 PM »
Hi bc,
Welcome! I agree with Ann, do you think you are newly infected? If yes, your numbers can increase once the initial fight in your body is over.

If no, I think you have reason be more optimistic in your thoughts. Many, many people find that their cd4 counts climb, and their vl drop significantly when started meds. I personally have had a very low cd4 count for years, and only in the past year have I have some health problems. Try not to let the numbers and the odds decide how you are going to feel. A number is a range, or a guideline for the doctors. If you would drop down below 200 on your cd4's- prophylactic meds for pcp would be started, an examination of your eyes.

Your health is based on how you feel physically, mentally, and spiritually. Eat well, sleep well, moderate exercise, don't abuse drugs or alcohol, go to all your doctor appointments, take all your meds as directed. If you feel a little off, call the doctor.

It sounds like you have a really good medical team working with you. And if you want all the info shared you will probably have to sign a waiver saying it is okay for all the info to be shared. Plus, a gentle reminder at your appointments will help.

Hang in there. It gets better with time.
Christine
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.