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Author Topic: 1st report after meds for 4 months...just got the result from doctor~  (Read 1647 times)

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Offline jinghua

  • Member
  • Posts: 138
I have to admit that i am nervous about tomorrow hospital visit as it will be the first report after months of taking combivir and sustiva....i hope that the report is good...

Still horrified by the fact that started combivir and viramune which caused bloody eyes...switched to sustiva after 2 weeks on viramune...

After i started sustiva, it cause me dizziness at night...even after months of taking it...so i quitted my job and sitting at home ever since last month...Hopefully everything will not be too hard for me to accept tomorrow morning....

Jing Hua
« Last Edit: September 10, 2009, 06:35:35 AM by jinghua »
Live started to change...i wish i can have a better life...

Offline komnaes

  • Member
  • Posts: 1,893
Wow... you should update us more.

Has sustiva been so hard on you that you have to stop working? I don't doubt your judgment but it's my view that as long as health permits it's better to be working than sitting at home. Did you have a chance to speak to your doctor about this side effect?

I am also on sustiva and initially it did cause a bit of dizziness but for me it was the nightmares and insomnia that almost made me asking my doctor to switch. Fortunately they have all come to past almost entirely - now my dreams are still vivid but just, well, weird instead of horrifying. I was also very happy one night last month I woke up NOT remembering any dreams (and well rested), which is something I had not had experienced since starting sustiva.

Best of luck to you buddy! Hugs, Shaun
Aug 07 Diagnosed
Oct 07 CD4=446(19%) Feb 08 CD4=421(19%)
Jun 08 CD4=325(22%) Jul 08 CD4=301(18%)
Sep 08 CD4=257/VL=75,000 Oct 08 CD4=347(16%)
Dec 08 CD4=270(16%)
Jan 09 CD4=246(13%)/VL=10,000
Feb 09 CD4=233(15%)/VL=13,000
Started meds Sustiva/Epzicom
May 09 CD4=333(24%)/VL=650
Aug 09 CD4=346(24%)/VL=UD
Nov 09 CD4=437(26%)/VL=UD
Feb 10 CD4=471(31%)/VL=UD
June 10 CD4=517 (28%)/VL=UD
Sept 10 CD4=687 (31%)/VL=UD
Jan 11 CD4=557 (30%)/VL=UD
April 11 CD4=569 (32%)/VL=UD
Switched to Epizcom, Reyataz and Norvir
(Interrupted for 2 months with only Epizcom & Reyataz)
July 11 CD=520 (28%)/VL=UD
Oct 11 CD=771 (31%)/VL=UD(<30)
April 12 CD=609 (28%)/VL=UD(<20)
Aug 12 CD=657 (29%)/VL=UD(<20)
Dec 12 CD=532 (31%)/VL=UD(<20)
May 13 CD=567 (31%)/VL=UD(<20)
Jan 14 CD=521 (21%)/VL=UD(<50)

Offline jinghua

  • Member
  • Posts: 138
Shaun,

Indeed i quitted my job due to this side effect as it caused me a lot of troubles working night shift...I'll be talking to the doctor tomorrow and ask for his/her opinion (not much drugs offered in my country..have to make the decision together with the doctor)

Strangely enough, i don't have other side effects except dizziness...lucky...

kisses and hugs,

Jing Hua
Live started to change...i wish i can have a better life...

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,945
Hi Jing,

Nice to hear from you.  I'll be thinking about you and hoping for the best with your doctor's visit.  Please keep us updated.
   Luv,
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline markaj

  • Member
  • Posts: 80
Hey Jing

Good luck for tomorrow friend.

Just a thought but if you aren't able to try an alternative combo some people take their Sustiva in the mornings rather than the evenings, if you're going back to night shift work might be worth looking at with your doc.

Keep us posted.

Mark
Infected Jan 08 / diagnosed Feb 08
Feb 08 - CD4 230 (9%) VL 3.5 million
Mar 08 - CD4 440 (6%) VL 660.000
Apr 08 - CD4 420 (11%) VL 3 million
Jun 08 - CD4 200 (7%) VL 3 million
Started Kaletra/Truvada Jul 08
Jul 08  - CD4 250 (14%) VL 23.893
Aug 08 - CD4 410 (15%)  VL 4.313
Switched to Sustiva/Truvada Aug 08
Switched to Reyataz/Norvir/Truvada Sep 08
Diagnosed with Hep C, HIV meds stopped for a bit
Nov 08 - CD4 414 (12%) VL 500.000+
Started Isentress/Truvada Nov 2008
Dec 08 - CD4 381 (17%) VL 1.116
Jan 09 - CD4 534 (20%) VL <50
Started Interferon/Ribavirin Jan 09
Feb 09 - CD4 407 (24%) VL <50
Mar 09 - CD4 360 (28%) VL <50
Apr 09 - CD4 279 (30%) VL <50
Jun 09 - CD4 298 (36%) VL <50
Aug 09 - CD4 303 (35%) VL <50

Offline jinghua

  • Member
  • Posts: 138
Thanks a lot~~~Betty and Mark~~

I will update you guys when i get back frmo the doctor~

Mark, my previous job was not permenant night shift..it's rotate shift..so, it was very hard for me to stay focus while working...i'll be looking for a permenant day shift office job (althought shift job pays more...hahaha)

XX

Jing Hua   ;)
Live started to change...i wish i can have a better life...

Offline komnaes

  • Member
  • Posts: 1,893
..it's rotate shift..so, it was very hard for me to stay focus while working..

Got it buddy.. rotating shift can be very demanding even for folks that do not have to deal with side effects caused by medication.

So it's more of a transition than not planning to work again until having a solution with meds' side effects.

Do have a longer chat with their doctor, though I understand the system in Malaysia is not as friendly as it should be.

Will keep you in my thoughts dear..
Aug 07 Diagnosed
Oct 07 CD4=446(19%) Feb 08 CD4=421(19%)
Jun 08 CD4=325(22%) Jul 08 CD4=301(18%)
Sep 08 CD4=257/VL=75,000 Oct 08 CD4=347(16%)
Dec 08 CD4=270(16%)
Jan 09 CD4=246(13%)/VL=10,000
Feb 09 CD4=233(15%)/VL=13,000
Started meds Sustiva/Epzicom
May 09 CD4=333(24%)/VL=650
Aug 09 CD4=346(24%)/VL=UD
Nov 09 CD4=437(26%)/VL=UD
Feb 10 CD4=471(31%)/VL=UD
June 10 CD4=517 (28%)/VL=UD
Sept 10 CD4=687 (31%)/VL=UD
Jan 11 CD4=557 (30%)/VL=UD
April 11 CD4=569 (32%)/VL=UD
Switched to Epizcom, Reyataz and Norvir
(Interrupted for 2 months with only Epizcom & Reyataz)
July 11 CD=520 (28%)/VL=UD
Oct 11 CD=771 (31%)/VL=UD(<30)
April 12 CD=609 (28%)/VL=UD(<20)
Aug 12 CD=657 (29%)/VL=UD(<20)
Dec 12 CD=532 (31%)/VL=UD(<20)
May 13 CD=567 (31%)/VL=UD(<20)
Jan 14 CD=521 (21%)/VL=UD(<50)

Offline jinghua

  • Member
  • Posts: 138
i have got the result from doctor~~~

CD4: 522
CD4%: 27%
viral load: 65 copies/ml

everything else is as normal as normal person...

the previous one during May 09:
CD4:338
CD4%: 17%
Viral load: 127,885

i wonder if i should celebrate this after 4 months of meds? i think the meds is working~~

Jing Hua  ;D
« Last Edit: September 10, 2009, 06:36:07 AM by jinghua »
Live started to change...i wish i can have a better life...

Offline markaj

  • Member
  • Posts: 80
Re: 1st report after meds for 4 months...just got the result from doctor~
« Reply #8 on: September 10, 2009, 08:28:57 AM »
Jing those are brilliant figures  :)

Well done you.
Infected Jan 08 / diagnosed Feb 08
Feb 08 - CD4 230 (9%) VL 3.5 million
Mar 08 - CD4 440 (6%) VL 660.000
Apr 08 - CD4 420 (11%) VL 3 million
Jun 08 - CD4 200 (7%) VL 3 million
Started Kaletra/Truvada Jul 08
Jul 08  - CD4 250 (14%) VL 23.893
Aug 08 - CD4 410 (15%)  VL 4.313
Switched to Sustiva/Truvada Aug 08
Switched to Reyataz/Norvir/Truvada Sep 08
Diagnosed with Hep C, HIV meds stopped for a bit
Nov 08 - CD4 414 (12%) VL 500.000+
Started Isentress/Truvada Nov 2008
Dec 08 - CD4 381 (17%) VL 1.116
Jan 09 - CD4 534 (20%) VL <50
Started Interferon/Ribavirin Jan 09
Feb 09 - CD4 407 (24%) VL <50
Mar 09 - CD4 360 (28%) VL <50
Apr 09 - CD4 279 (30%) VL <50
Jun 09 - CD4 298 (36%) VL <50
Aug 09 - CD4 303 (35%) VL <50

Offline WillyWump

  • Member
  • Posts: 7,177
  • your ramblings bore Yamaguchi Kitteh
Re: 1st report after meds for 4 months...just got the result from doctor~
« Reply #9 on: September 10, 2009, 03:25:57 PM »
VERY impressive! I love your percentage! Good job, Congrats!

Yes, I believe the meds are working :D

-Will
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

 


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