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Author Topic: what's ONE word that captures the state of HIV/AIDS to you?  (Read 12355 times)

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Offline pozhope

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what's ONE word that captures the state of HIV/AIDS to you?
« on: September 08, 2009, 05:45:44 PM »
Hey everyone! I hope this reaches you in great spirits.

Question: What is ONE word that captures the essence of where HIV/AIDS needs to go or is today to YOU?

Examples:
Dignity
Resolve
Uncured  
Accountability

I'm interested to hear everyone's response(s) - feel free to give multiple ONE word answers.

Get creative!

Best
« Last Edit: September 08, 2009, 05:51:53 PM by pozhope »

Offline veritas

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #1 on: September 08, 2009, 06:02:05 PM »


 Today --- unrelenting

 To go --- oblivion


 v

Online mecch

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  • red pill? or blue pill?
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #2 on: September 08, 2009, 06:11:44 PM »
redefined
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Dachshund

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #3 on: September 08, 2009, 06:17:45 PM »
tedious

Offline Moffie65

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #4 on: September 08, 2009, 06:25:23 PM »
SAD!!!
The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline BlueMoon

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #5 on: September 08, 2009, 06:27:56 PM »
Degrading
...................VL.....CD4.....%
-----------------------------------------
08/10-- ......<40.....290.....42
05/10-- ......<48.....290.....46
02/10-- ......<48.....481.....44
10/09-- ......<48.....277.....46
07/09-- ......<48.....300.....38
05/09-- ........51.....449.....39
03/09-- Added Isentress
02/09-- ........65.....299.....34
11/08-- ........62.....242.....40
08/08-- ........66.....212.....29
05/08-- ......202.....217.....27
03/08-- ....5210.....187.....21
02/08-- Began Truvada/Reyataz/Norvir
12/07-- 273,000.....157.....22
11/07-- 229,000.....209.....22
10/07-- Diagnosis

It's a complex world.

Offline Puckslinger

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #6 on: September 08, 2009, 06:38:12 PM »
Wearisome

Offline Rev. Moon

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  • Smart ass faggot ©
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #7 on: September 08, 2009, 06:58:41 PM »
Most days:
               * adjustment [to a life that's changed]
               * resignation [to something that I can't change]
               * determination [to keep myself healthy]    
               * admiration [towards those who have been fighting this for many years before me]
               * humility ['cause I realise that I have it "easier" than many --by comparison]
          
Some days:
               * disappointment [in myself]
               * anger ['cause I may not be able to trust people again -- or at least for a good while]
               * fear [of the unknown]
               * sadness [when I think of what others before me have endured]
          
« Last Edit: September 08, 2009, 07:00:50 PM by livebythemoon »
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline PeteNYNJ

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    • Dance for Me, Puppets
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #8 on: September 08, 2009, 07:33:30 PM »
incurable

Offline BT65

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #9 on: September 08, 2009, 08:19:50 PM »
Devastating.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline anniebc

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #10 on: September 08, 2009, 08:39:35 PM »
Invasive.
Unwanted.

Jan
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Basquo

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #11 on: September 08, 2009, 09:11:05 PM »
Love.

(I'll clarify if asked, but you did ask for ONE word.)

Offline newt

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #12 on: September 08, 2009, 10:20:13 PM »
I'm with Dachshund

TEDIOUS sums it up

but if you want another new one unique to me it's

BUGGER!

- matt
"The object is to be a well patient, not a good patient"

Offline GNYC09

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #13 on: September 08, 2009, 10:25:04 PM »
Struggle.

Offline pozhope

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #14 on: September 08, 2009, 10:34:25 PM »
WOW, I'm really enjoying reading all your words!!! keep them coming ;D

best

Offline Snowangel

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #15 on: September 08, 2009, 11:06:43 PM »
For everyone that has it-undetectable
For those who don't- prevention
Of all the things you wear, your expression is the most important

The heaviest thing you can carry is a grudge..

One thing you can give and still keep...is your word.

One thing you can't recycle is wasted time.

Offline leatherman

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #16 on: September 08, 2009, 11:11:05 PM »
honestly, I would agree with ALL the words mentioned. Having lived with this for some time, I've gone through stages where any and all of the previous words could have summed up some period of my live with AIDS.

However, I can give you one word not yet used:
Death

this disease brought death to nearly every friend I had in the early 90s
Twice it tried to kill me, but the hospital doctors and newer drugs barely saved my life
However, it did succeed in bringing about the death of not one but two partners

every day that I'm alive (and right now I'm actually healthier and feeling better that I ever have in over a decade), I can't help but notice that my partners are dead; so underneath anything else that I think about it, I am quite sure that AIDS=Death.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline confidentIwillbeOK

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #17 on: September 08, 2009, 11:11:41 PM »
*New!

*incurablebutmanageableandchronic

..ok ok I know I cheated on the second one but you have to forgive me due to answer #1....newbies don't know nuttin'  ;)

Offline the trebmeister

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    • daddy, you bastard
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #18 on: September 08, 2009, 11:28:31 PM »
defenestration

banal
« Last Edit: September 09, 2009, 10:33:23 PM by the trebmeister »
Your friends may say that I’m a stranger
My face they’ll never see no more
There is but one promise that’s given
I’ll sail on God’s golden shore

Offline GSOgymrat

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #19 on: September 08, 2009, 11:36:28 PM »
Expensive

Offline Jeffreyj

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #20 on: September 09, 2009, 12:26:22 AM »
stigmatized
Positive since 1985

Offline LBpozguy

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #21 on: September 09, 2009, 12:37:13 AM »
As with Bluemoon, the first word that came to mind was "Degrading"
Feb 08 neg
Sept 08 - First poz test
Sept 08 CD4 558 (% unk) VL 11000
Dec 08 CD4 480 (29%) VL less than 700
Mar 09 CD4 370  VL 25000
June 09 CD4 425 VL 68000
Aug 09 Started Atripla
Sept 09 CD4 639 VL 100
Nov 09  CD4 716 (35%) VL Undet!!!!!!!!!!!!!
Jan 10 CD4 685 VL UND

Offline skeebo1969

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #22 on: September 09, 2009, 07:46:14 AM »


  Change
I despise the song Love is in the Air, you should too.

Offline joemutt

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #23 on: September 09, 2009, 08:03:02 AM »
challenge

Offline Texan38

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #24 on: September 09, 2009, 08:12:39 AM »
Alone.
In Hollywood an equitable divorce settlement means each party getting fifty per cent of publicity.
~ Lauren Bacall

Offline piercedPINOY

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  • ..because I trust!
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #25 on: September 09, 2009, 09:02:26 AM »
EWWW!
"always photographs what is beautiful in life.."

Offline ARMANDO

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #26 on: September 09, 2009, 09:17:54 AM »
LIMBO

Offline denb45

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  • "1987 Classic Old School POZ+"
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #27 on: September 09, 2009, 09:36:10 AM »
BIO HAZARD..............I hate that, but that's the way I feel, having AIDS
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline pozhope

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #28 on: September 09, 2009, 11:18:12 AM »
GREAT WORDS!

I'm really interested in Hopeful ONE words or phrases that unify us all in the struggle affected and infected

Thrive
Banded
Strive
Overcome
Upward
Preserver

*please leave 5 of ONE word ideas!


excited to see everyone's responses  ;D



« Last Edit: September 09, 2009, 03:10:29 PM by pozhope »

Offline Scotian

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #29 on: September 09, 2009, 05:14:33 PM »
Gratitude   ( ..not for the HIV --but to live in a country that provides an amazing health care system to keep me healthy --at no cost  ;D

Offline denb45

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  • "1987 Classic Old School POZ+"
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #30 on: September 09, 2009, 05:17:17 PM »
FITNESS
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline SoSadTooBad

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #31 on: September 09, 2009, 05:52:30 PM »
Uncertain.  Because HIV/AIDS throws every single aspect of your life into constant turmoil. 

Offline randym431

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #32 on: September 09, 2009, 05:54:02 PM »
Needs to go? Id say the word is
 
education.

Way too many young kids still think they can't get it.
And if they do, its no big deal treating it.

Offline OneTampa

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  • "Butterflies are free."
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #33 on: September 09, 2009, 06:33:48 PM »
Legacy

Memories

Many

Love

Cost

Tears

Lost

Laughter

Anger

Help

Shoulder

Amazed

Friends

Family

Future

Still

Here

Years



"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaíto frito."

Offline newt

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  • the one and original newt
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #34 on: September 09, 2009, 06:58:50 PM »
erm

as to hope...

LISTEN
STATISTICS
WE, THE PEOPLE
STATiSTICS
SPEAK

In that order

Good advocacy depends on understading the science well, and what this means for people

- matt
"The object is to be a well patient, not a good patient"

Offline Miss Philicia

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #35 on: September 09, 2009, 07:01:37 PM »
teh suxorz
"I’ve slept with enough men to know that I’m not gay"

Offline LTSurviver

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #36 on: September 10, 2009, 03:56:14 PM »
Isolated

Stigmatized

Marginalized

Fear

Judged

Forgotten.


Offline BM

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #37 on: September 10, 2009, 04:15:04 PM »
Observed.

Offline onemoretime

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #38 on: September 10, 2009, 09:51:00 PM »
foreever
08/04 diag 490 cd4 vl 50,000
10/25/05 436 50,513 hvb 1.1 billion
12/13/05 truvada sustiva
02/16/06 742 und, hpb 63,000
04/27/06 740 und hpb 60,000
01/05/07 458 und hvb und
03/08   470 undetectable still on atripla. Non smoking (chantex)
08/08 cd4 550 undetectable hiv, Hep B UND. Atripla
06/09  cd4 444, vl undetectable testo 130
09/09/09 CD4 687 46% UND  Testo 213 started androgel
10/12/09 cd4 682 46% und testo 597
01/12/10 cd4 842 48% und testo 434
041010 cd4 693  53% testo 492
100410 cd4 568 48% testo 523
012711 cd4 523 hcv 56 testo 596
083011 cd4 280 Hcv/HIV und
042912 cd4 158 hcv /hiv und, was on hep c for 11 months. do have ssdi filed and getting LTD
061912 cd4 151, bactrum, hep c and hiv und
071712 cd4 287 52% HIV HCV und
112012 cd4 520

Online mecch

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #39 on: September 11, 2009, 06:26:24 PM »
cranky
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Cliff

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #40 on: September 11, 2009, 07:20:47 PM »
coping

Offline Rev. Moon

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #41 on: September 11, 2009, 07:23:25 PM »
today: prevention.
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline Joe K

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #42 on: September 11, 2009, 08:12:03 PM »
Devastated forever.

Forever forgotten.

Offline confidentIwillbeOK

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #43 on: September 11, 2009, 10:44:44 PM »
Forever forgotten?  ???  After the "The Power of Positive" post of Aug. 29. I would not have expected that....    :'(

Offline dingowarrior

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #44 on: September 11, 2009, 10:49:39 PM »
sucks.

Offline webontheweb

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #45 on: September 11, 2009, 10:51:52 PM »
NEXT!

Offline Joe K

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #46 on: September 11, 2009, 11:19:23 PM »
Forever forgotten?  ???  After the "The Power of Positive" post of Aug. 29. I would not have expected that....    :'(

Yes, all the millions who have simply vanished, due to HIV, forever forgotten.

Offline onemoretime

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #47 on: September 11, 2009, 11:25:12 PM »
i think about them all the time
08/04 diag 490 cd4 vl 50,000
10/25/05 436 50,513 hvb 1.1 billion
12/13/05 truvada sustiva
02/16/06 742 und, hpb 63,000
04/27/06 740 und hpb 60,000
01/05/07 458 und hvb und
03/08   470 undetectable still on atripla. Non smoking (chantex)
08/08 cd4 550 undetectable hiv, Hep B UND. Atripla
06/09  cd4 444, vl undetectable testo 130
09/09/09 CD4 687 46% UND  Testo 213 started androgel
10/12/09 cd4 682 46% und testo 597
01/12/10 cd4 842 48% und testo 434
041010 cd4 693  53% testo 492
100410 cd4 568 48% testo 523
012711 cd4 523 hcv 56 testo 596
083011 cd4 280 Hcv/HIV und
042912 cd4 158 hcv /hiv und, was on hep c for 11 months. do have ssdi filed and getting LTD
061912 cd4 151, bactrum, hep c and hiv und
071712 cd4 287 52% HIV HCV und
112012 cd4 520

Offline Dale Parker

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #48 on: September 11, 2009, 11:43:42 PM »
I have two words.
I guess the one word that everyone is missing so far is right in front of our eyes.
POSITIVE
the second one is:
LUCKY

I'm positive that:
My blood is bad.
Life is far different today than it was before I found out I was sick.
That I can't beat this but will manage it the best way possible.
Pills will be needed to keep me alive.
HIV/Aids meds will keep improving and make all of our lives better and longer.
That I will have good days and bad days.
At some point I will have more bad days than good.
The number of HIV and Aids cases will grow as kids today don't see it as being a death sentence but a manageable disease much the same as diabetes. Sad but true.

I'm lucky that:
I read the article in the paper (one I would have not normally read) that listed all the symptoms I had leading me to get tested.
I live in a city that has great HIV/Aids testing and medical services.
I got to see an Aids specialist on his day off the day after I was diagnosed.
I have great support groups that are there to look after all my needs when required.
I found this website with great people that have and share a wealth of knowledge. They also give a ton of support to people that they don't even know.
My health is still good where OI's are concerned and overall I feel great.
I got funding for my drugs.
I got subsidized housing in about 7 weeks instead of the normal 7 years.
My family (even my homophobic brother in'law) are 150% behind me.
I truly have the most amazing & generous friends in the world.
The internet is what it is.  All the knowledge that is known about HIV/Aids is available with the click of a mouse. Some of you could be my next door neighbour or could be half way around the world.

Above all I'm positive that I have the will and strength to fight for life.
I'm lucky that I was able to live today the best way possible and that I would have no regrets if my life were to end tonight.
« Last Edit: September 11, 2009, 11:49:22 PM by Dale Parker »
Apr 09  CD4 21, CD4/CD8 ratio 0 VL 500,000+
July 09 CD4 158, CD4/CD812% VL 750
Oct 09 CD4 157 CD4/CD8 14% VL UD
Feb 10 CD4 197, CD4/CD8 11% VL UD
May 10  CD4 252 CD4/CD8 12% VL UD
Aug 10 CD4 211 VL UD
Nov 10 CD4 272 CD4/CD8 0.138 VL UD

Offline next2u

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #49 on: September 11, 2009, 11:59:27 PM »
resilient (2 times)

1) the bugger won't go away
2) neither will we
midapr07 - seroconversion
sept07 - tested poz
oct07 cd4 1013; vl 13,900; cd4% 41
feb08 cd4  694;  vl 16,160; cd4% 50.1
may08 cd4 546; vl 91,480; cd4% 32
aug08 cd4 576; vl 48,190; cd4% 40.7
dec08 cd4 559; vl 63,020; cd4% 29.4
feb09 cd4 464; vl 11,000; cd4% 26
may09 cd4 544; vl 29,710; cd4% 27.2
oct09 cd4 ...; vl 23,350; cd4% 31.6
mar10 cd4 408; vl 59,050; cd4% 31.4
aug10 cd4 328; vl 80,000; cd4% 19.3 STARTED ATRIPLA
oct10 cd4 423; vl 410 ;); cd4% 30.2
jun11 cd4 439; vl <20 ;); cd4% 33.8 <-Undetectable!
mar12 cd4 695; vl ud; cd4% 38.6
jan13 cd4 738; vl ud; cd4% 36.8
aug13 cd4 930; vl ud; cd4% 44.3
jan14 cd4 813; vl ud; cd4% 42.8
may14 cd4 783; vl *; cd4%43.5

 


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