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Author Topic: what's ONE word that captures the state of HIV/AIDS to you?  (Read 10271 times)

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Offline pozhope

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what's ONE word that captures the state of HIV/AIDS to you?
« on: September 08, 2009, 05:45:44 PM »
Hey everyone! I hope this reaches you in great spirits.

Question: What is ONE word that captures the essence of where HIV/AIDS needs to go or is today to YOU?

Examples:
Dignity
Resolve
Uncured  
Accountability

I'm interested to hear everyone's response(s) - feel free to give multiple ONE word answers.

Get creative!

Best
« Last Edit: September 08, 2009, 05:51:53 PM by pozhope »

Offline veritas

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #1 on: September 08, 2009, 06:02:05 PM »


 Today --- unrelenting

 To go --- oblivion


 v

Offline mecch

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  • red pill? or blue pill?
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #2 on: September 08, 2009, 06:11:44 PM »
redefined
ďFrom each, according to his ability; to each, according to his needĒ 1875 K Marx

Offline Dachshund

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #3 on: September 08, 2009, 06:17:45 PM »
tedious

Offline Moffie65

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #4 on: September 08, 2009, 06:25:23 PM »
SAD!!!
The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline BlueMoon

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  • Calling from the Fun House
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #5 on: September 08, 2009, 06:27:56 PM »
Degrading
...................VL.....CD4.....%
-----------------------------------------
08/10-- ......<40.....290.....42
05/10-- ......<48.....290.....46
02/10-- ......<48.....481.....44
10/09-- ......<48.....277.....46
07/09-- ......<48.....300.....38
05/09-- ........51.....449.....39
03/09-- Added Isentress
02/09-- ........65.....299.....34
11/08-- ........62.....242.....40
08/08-- ........66.....212.....29
05/08-- ......202.....217.....27
03/08-- ....5210.....187.....21
02/08-- Began Truvada/Reyataz/Norvir
12/07-- 273,000.....157.....22
11/07-- 229,000.....209.....22
10/07-- Diagnosis

It's a complex world.

Offline Puckslinger

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #6 on: September 08, 2009, 06:38:12 PM »
Wearisome

Offline Rev. Moon

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #7 on: September 08, 2009, 06:58:41 PM »
Most days:
               * adjustment [to a life that's changed]
               * resignation [to something that I can't change]
               * determination [to keep myself healthy]    
               * admiration [towards those who have been fighting this for many years before me]
               * humility ['cause I realise that I have it "easier" than many --by comparison]
          
Some days:
               * disappointment [in myself]
               * anger ['cause I may not be able to trust people again -- or at least for a good while]
               * fear [of the unknown]
               * sadness [when I think of what others before me have endured]
          
« Last Edit: September 08, 2009, 07:00:50 PM by livebythemoon »
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline PeteNYNJ

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    • Dance for Me, Puppets
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #8 on: September 08, 2009, 07:33:30 PM »
incurable

Offline BT65

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #9 on: September 08, 2009, 08:19:50 PM »
Devastating.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline anniebc

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #10 on: September 08, 2009, 08:39:35 PM »
Invasive.
Unwanted.

Jan
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Basquo

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #11 on: September 08, 2009, 09:11:05 PM »
Love.

(I'll clarify if asked, but you did ask for ONE word.)

Offline newt

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #12 on: September 08, 2009, 10:20:13 PM »
I'm with Dachshund

TEDIOUS sums it up

but if you want another new one unique to me it's

BUGGER!

- matt
"The object is to be a well patient, not a good patient"

Offline GNYC09

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #13 on: September 08, 2009, 10:25:04 PM »
Struggle.

Offline pozhope

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #14 on: September 08, 2009, 10:34:25 PM »
WOW, I'm really enjoying reading all your words!!! keep them coming ;D

best

Offline Snowangel

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #15 on: September 08, 2009, 11:06:43 PM »
For everyone that has it-undetectable
For those who don't- prevention
Of all the things you wear, your expression is the most important

The heaviest thing you can carry is a grudge..

One thing you can give and still keep...is your word.

One thing you can't recycle is wasted time.

Offline leatherman

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #16 on: September 08, 2009, 11:11:05 PM »
honestly, I would agree with ALL the words mentioned. Having lived with this for some time, I've gone through stages where any and all of the previous words could have summed up some period of my live with AIDS.

However, I can give you one word not yet used:
Death

this disease brought death to nearly every friend I had in the early 90s
Twice it tried to kill me, but the hospital doctors and newer drugs barely saved my life
However, it did succeed in bringing about the death of not one but two partners

every day that I'm alive (and right now I'm actually healthier and feeling better that I ever have in over a decade), I can't help but notice that my partners are dead; so underneath anything else that I think about it, I am quite sure that AIDS=Death.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Oh my friends, my friends forgive me
That I live and you are gone.
There's a grief that can't be spoken.
There's a pain goes on and on.
Empty chairs at empty tables
Where my friends will meet no more.

"Empty Chairs at Empty Tables" from Les Miserables

Offline confidentIwillbeOK

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #17 on: September 08, 2009, 11:11:41 PM »
*New!

*incurablebutmanageableandchronic

..ok ok I know I cheated on the second one but you have to forgive me due to answer #1....newbies don't know nuttin'  ;)

Offline the trebmeister

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    • daddy, you bastard
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #18 on: September 08, 2009, 11:28:31 PM »
defenestration

banal
« Last Edit: September 09, 2009, 10:33:23 PM by the trebmeister »
Your friends may say that Iím a stranger
My face theyíll never see no more
There is but one promise thatís given
Iíll sail on Godís golden shore

Online GSOgymrat

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #19 on: September 08, 2009, 11:36:28 PM »
Expensive

Offline Jeffreyj

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #20 on: September 09, 2009, 12:26:22 AM »
stigmatized
Positive since 1985

Offline LBpozguy

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  • Posts: 51
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #21 on: September 09, 2009, 12:37:13 AM »
As with Bluemoon, the first word that came to mind was "Degrading"
Feb 08 neg
Sept 08 - First poz test
Sept 08 CD4 558 (% unk) VL 11000
Dec 08 CD4 480 (29%) VL less than 700
Mar 09 CD4 370  VL 25000
June 09 CD4 425 VL 68000
Aug 09 Started Atripla
Sept 09 CD4 639 VL 100
Nov 09  CD4 716 (35%) VL Undet!!!!!!!!!!!!!
Jan 10 CD4 685 VL UND

Offline skeebo1969

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #22 on: September 09, 2009, 07:46:14 AM »


  Change
I despise the song Love is in the Air, you should too.

Offline joemutt

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #23 on: September 09, 2009, 08:03:02 AM »
challenge

Offline Texan38

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #24 on: September 09, 2009, 08:12:39 AM »
Alone.
In Hollywood an equitable divorce settlement means each party getting fifty per cent of publicity.
~ Lauren Bacall

Offline piercedPINOY

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  • ..because I trust!
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #25 on: September 09, 2009, 09:02:26 AM »
EWWW!
"always photographs what is beautiful in life.."

Offline ARMANDO

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #26 on: September 09, 2009, 09:17:54 AM »
LIMBO

Offline denb45

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #27 on: September 09, 2009, 09:36:10 AM »
BIO HAZARD..............I hate that, but that's the way I feel, having AIDS
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline pozhope

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  • Posts: 10
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #28 on: September 09, 2009, 11:18:12 AM »
GREAT WORDS!

I'm really interested in Hopeful ONE words or phrases that unify us all in the struggle affected and infected

Thrive
Banded
Strive
Overcome
Upward
Preserver

*please leave 5 of ONE word ideas!


excited to see everyone's responses  ;D



« Last Edit: September 09, 2009, 03:10:29 PM by pozhope »

Offline Scotian

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #29 on: September 09, 2009, 05:14:33 PM »
Gratitude   ( ..not for the HIV --but to live in a country that provides an amazing health care system to keep me healthy --at no cost  ;D

Offline denb45

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  • "1987 Classic Old School POZ+"
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #30 on: September 09, 2009, 05:17:17 PM »
FITNESS
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline SoSadTooBad

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  • Posts: 248
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #31 on: September 09, 2009, 05:52:30 PM »
Uncertain.  Because HIV/AIDS throws every single aspect of your life into constant turmoil. 

Offline randym431

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #32 on: September 09, 2009, 05:54:02 PM »
Needs to go? Id say the word is
 
education.

Way too many young kids still think they can't get it.
And if they do, its no big deal treating it.

Offline OneTampa

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  • "Butterflies are free."
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #33 on: September 09, 2009, 06:33:48 PM »
Legacy

Memories

Many

Love

Cost

Tears

Lost

Laughter

Anger

Help

Shoulder

Amazed

Friends

Family

Future

Still

Here

Years



"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaŪto frito."

Offline newt

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  • the one and original newt
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #34 on: September 09, 2009, 06:58:50 PM »
erm

as to hope...

LISTEN
STATISTICS
WE, THE PEOPLE
STATiSTICS
SPEAK

In that order

Good advocacy depends on understading the science well, and what this means for people

- matt
"The object is to be a well patient, not a good patient"

Offline Miss Philicia

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #35 on: September 09, 2009, 07:01:37 PM »
teh suxorz
"Iíve slept with enough men to know that Iím not gay"

Offline LTSurviver

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  • LTS since 1987. LTNP until 2008.
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #36 on: September 10, 2009, 03:56:14 PM »
Isolated

Stigmatized

Marginalized

Fear

Judged

Forgotten.


Offline BM

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #37 on: September 10, 2009, 04:15:04 PM »
Observed.

Offline onemoretime

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #38 on: September 10, 2009, 09:51:00 PM »
foreever
08/04 diag 490 cd4 vl 50,000
10/25/05 436 50,513 hvb 1.1 billion
12/13/05 truvada sustiva
02/16/06 742 und, hpb 63,000
04/27/06 740 und hpb 60,000
01/05/07 458 und hvb und
03/08   470 undetectable still on atripla. Non smoking (chantex)
08/08 cd4 550 undetectable hiv, Hep B UND. Atripla
06/09  cd4 444, vl undetectable testo 130
09/09/09 CD4 687 46% UND  Testo 213 started androgel
10/12/09 cd4 682 46% und testo 597
01/12/10 cd4 842 48% und testo 434
041010 cd4 693  53% testo 492
100410 cd4 568 48% testo 523
012711 cd4 523 hcv 56 testo 596
083011 cd4 280 Hcv/HIV und
042912 cd4 158 hcv /hiv und, was on hep c for 11 months. do have ssdi filed and getting LTD
061912 cd4 151, bactrum, hep c and hiv und
071712 cd4 287 52% HIV HCV und
112012 cd4 520

Offline mecch

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  • red pill? or blue pill?
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #39 on: September 11, 2009, 06:26:24 PM »
cranky
ďFrom each, according to his ability; to each, according to his needĒ 1875 K Marx

Offline Cliff

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #40 on: September 11, 2009, 07:20:47 PM »
coping

Offline Rev. Moon

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #41 on: September 11, 2009, 07:23:25 PM »
today: prevention.
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline Joe K

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #42 on: September 11, 2009, 08:12:03 PM »
Devastated forever.

Forever forgotten.
Life is what happens, when you are busy making other plans.

Though you may be only one person in the entire world, to one person, you may be the entire world.

I wish to become half the man, that my dog thinks I am.

Remember me with simple acts of kindness and I will live forever.

Offline confidentIwillbeOK

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  • Posts: 131
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #43 on: September 11, 2009, 10:44:44 PM »
Forever forgotten?  ???  After the "The Power of Positive" post of Aug. 29. I would not have expected that....    :'(

Offline dingowarrior

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #44 on: September 11, 2009, 10:49:39 PM »
sucks.

Offline webontheweb

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #45 on: September 11, 2009, 10:51:52 PM »
NEXT!

Offline Joe K

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #46 on: September 11, 2009, 11:19:23 PM »
Forever forgotten?  ???  After the "The Power of Positive" post of Aug. 29. I would not have expected that....    :'(

Yes, all the millions who have simply vanished, due to HIV, forever forgotten.
Life is what happens, when you are busy making other plans.

Though you may be only one person in the entire world, to one person, you may be the entire world.

I wish to become half the man, that my dog thinks I am.

Remember me with simple acts of kindness and I will live forever.

Offline onemoretime

  • Member
  • Posts: 142
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #47 on: September 11, 2009, 11:25:12 PM »
i think about them all the time
08/04 diag 490 cd4 vl 50,000
10/25/05 436 50,513 hvb 1.1 billion
12/13/05 truvada sustiva
02/16/06 742 und, hpb 63,000
04/27/06 740 und hpb 60,000
01/05/07 458 und hvb und
03/08   470 undetectable still on atripla. Non smoking (chantex)
08/08 cd4 550 undetectable hiv, Hep B UND. Atripla
06/09  cd4 444, vl undetectable testo 130
09/09/09 CD4 687 46% UND  Testo 213 started androgel
10/12/09 cd4 682 46% und testo 597
01/12/10 cd4 842 48% und testo 434
041010 cd4 693  53% testo 492
100410 cd4 568 48% testo 523
012711 cd4 523 hcv 56 testo 596
083011 cd4 280 Hcv/HIV und
042912 cd4 158 hcv /hiv und, was on hep c for 11 months. do have ssdi filed and getting LTD
061912 cd4 151, bactrum, hep c and hiv und
071712 cd4 287 52% HIV HCV und
112012 cd4 520

Offline Dale Parker

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  • Posts: 265
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #48 on: September 11, 2009, 11:43:42 PM »
I have two words.
I guess the one word that everyone is missing so far is right in front of our eyes.
POSITIVE
the second one is:
LUCKY

I'm positive that:
My blood is bad.
Life is far different today than it was before I found out I was sick.
That I can't beat this but will manage it the best way possible.
Pills will be needed to keep me alive.
HIV/Aids meds will keep improving and make all of our lives better and longer.
That I will have good days and bad days.
At some point I will have more bad days than good.
The number of HIV and Aids cases will grow as kids today don't see it as being a death sentence but a manageable disease much the same as diabetes. Sad but true.

I'm lucky that:
I read the article in the paper (one I would have not normally read) that listed all the symptoms I had leading me to get tested.
I live in a city that has great HIV/Aids testing and medical services.
I got to see an Aids specialist on his day off the day after I was diagnosed.
I have great support groups that are there to look after all my needs when required.
I found this website with great people that have and share a wealth of knowledge. They also give a ton of support to people that they don't even know.
My health is still good where OI's are concerned and overall I feel great.
I got funding for my drugs.
I got subsidized housing in about 7 weeks instead of the normal 7 years.
My family (even my homophobic brother in'law) are 150% behind me.
I truly have the most amazing & generous friends in the world.
The internet is what it is.  All the knowledge that is known about HIV/Aids is available with the click of a mouse. Some of you could be my next door neighbour or could be half way around the world.

Above all I'm positive that I have the will and strength to fight for life.
I'm lucky that I was able to live today the best way possible and that I would have no regrets if my life were to end tonight.
« Last Edit: September 11, 2009, 11:49:22 PM by Dale Parker »
Apr 09  CD4 21, CD4/CD8 ratio 0 VL 500,000+
July 09 CD4 158, CD4/CD812% VL 750
Oct 09 CD4 157 CD4/CD8 14% VL UD
Feb 10 CD4 197, CD4/CD8 11% VL UD
May 10  CD4 252 CD4/CD8 12% VL UD
Aug 10 CD4 211 VL UD
Nov 10 CD4 272 CD4/CD8 0.138 VL UD

Offline next2u

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #49 on: September 11, 2009, 11:59:27 PM »
resilient (2 times)

1) the bugger won't go away
2) neither will we
midapr07 - seroconversion
sept07 - tested poz
oct07 cd4 1013; vl 13,900; cd4% 41
feb08 cd4  694;  vl 16,160; cd4% 50.1
may08 cd4 546; vl 91,480; cd4% 32
aug08 cd4 576; vl 48,190; cd4% 40.7
dec08 cd4 559; vl 63,020; cd4% 29.4
feb09 cd4 464; vl 11,000; cd4% 26
may09 cd4 544; vl 29,710; cd4% 27.2
oct09 cd4 ...; vl 23,350; cd4% 31.6
mar10 cd4 408; vl 59,050; cd4% 31.4
aug10 cd4 328; vl 80,000; cd4% 19.3 STARTED ATRIPLA
oct10 cd4 423; vl 410 ;); cd4% 30.2
jun11 cd4 439; vl <20 ;); cd4% 33.8 <-Undetectable!
mar12 cd4 695; vl ud; cd4% 38.6
jan13 cd4 738; vl ud; cd4% 36.8
aug13 cd4 930; vl ud; cd4% 44.3

Offline confidentIwillbeOK

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #50 on: September 12, 2009, 12:37:46 AM »
Yes, all the millions who have simply vanished, due to HIV, forever forgotten.

...ah...I thought you were talking about yourself.


Offline confidentIwillbeOK

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #51 on: September 15, 2009, 11:49:20 PM »
Pozhope, I hope this works....I created a "Wordle" that visualizes all the words used in this post:

http://www.wordle.net/show/wrdl/1133956/%22One_Word%22_by_AMF_members

...I will test the link and if it doesn't work will attach a screen-print.

 :)

Steve

note: I pasted all the words into the "wordle" site that generates the image but can't guarantee they all made it into the final product.....I think they did but apologies if the generator dropped "your" word. 

Offline sharkdiver

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #52 on: September 16, 2009, 10:56:22 AM »
my word

a-major-pain-in-the-ass


Offline traveltramp

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #53 on: September 16, 2009, 11:40:50 AM »
Rejected
5/7 SEROCOVERSION
7/7 CD4 669
9/7 CD4 1079 V/L 1200
2/8 CD4 803   V/L 3050
4/8 CD4 805   V/L 2200
9/8 CD4 959   V/L 2418
1/9 CD4 909   V/L 550

Offline the trebmeister

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #54 on: September 16, 2009, 12:31:21 PM »
ineffable


is effable a word?
Your friends may say that Iím a stranger
My face theyíll never see no more
There is but one promise thatís given
Iíll sail on Godís golden shore

Offline Snowangel

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #55 on: September 16, 2009, 02:25:57 PM »
Confident-
The wordle was cool, thanks for creating it!

Snow
Of all the things you wear, your expression is the most important

The heaviest thing you can carry is a grudge..

One thing you can give and still keep...is your word.

One thing you can't recycle is wasted time.

Offline Rev. Moon

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #56 on: September 16, 2009, 07:38:51 PM »
Pozhope, I hope this works....I created a "Wordle" that visualizes all the words used in this post:


Steve, that was very neat.  Good work :)
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline antibody

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  • "every man thinks his burden is the heaviest"
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #57 on: September 16, 2009, 08:39:14 PM »
Forever
Hope
Timbuk      <50/ 794  CD4 10/06 
                 <50/ 1096 CD4 3/07
                 <40/ 1854 CD4 4/09

Started Atripla  7/14/06
Switched to boosted Reyataz Truvada 3/28/07

*Ask me about Medical Marijuana and how it can help you!*

Offline ruralguy

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #58 on: September 17, 2009, 05:15:21 PM »
permanent
tested positive June 19, 2009
7/3/09 vrl 9000 cd4 - 300
8/14/09 cd4 - 350, 20%
started Atripla 9/14/09
10/5/09 vrl undetectable, WOW so fast!
12/28/09 vrl undetectable, CD4 - 615  27% cholesterol down, kidney function normal
4/26/10 vrl undetectable, CD4-600, kidney and liver numbers normal
9/9/10 vrl undetectable, CD4-685
1/3/11 vrl undetectable, CD4-700
all 2011 and Jan 2012 visits vrl undetectable CD4 ranged from 715-645
5/7/2012  vrl undetectable, CD4-615, all liver, kidney, lipids, heart functions, etc normal


On Atripla:  "Your mileage may vary"

Offline ruralguy

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #59 on: September 17, 2009, 05:17:20 PM »
wow Steve - the wordle is very cool

thanks
tested positive June 19, 2009
7/3/09 vrl 9000 cd4 - 300
8/14/09 cd4 - 350, 20%
started Atripla 9/14/09
10/5/09 vrl undetectable, WOW so fast!
12/28/09 vrl undetectable, CD4 - 615  27% cholesterol down, kidney function normal
4/26/10 vrl undetectable, CD4-600, kidney and liver numbers normal
9/9/10 vrl undetectable, CD4-685
1/3/11 vrl undetectable, CD4-700
all 2011 and Jan 2012 visits vrl undetectable CD4 ranged from 715-645
5/7/2012  vrl undetectable, CD4-615, all liver, kidney, lipids, heart functions, etc normal


On Atripla:  "Your mileage may vary"

Offline Miss Philicia

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #60 on: September 17, 2009, 05:21:02 PM »
Today the word is "Explosive D" but that's because I've had this every fucking morning for the past 10 days, and just today figured out it was because I had the brilliant idea of using Xylitol in place of sugar so that I could peel off 5-8 lbs to appease my sense of vanity.  Unfortunately when I bought this I didn't realize that diarrhea is a common side effect, and I guess combined with Norvir it was triple the effect.
"Iíve slept with enough men to know that Iím not gay"

Offline Rev. Moon

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #61 on: September 17, 2009, 09:04:52 PM »
Today the word is "Explosive D"

Philly, I figured that at some point someone would have to use "diarrhoea" as the word of the day :)
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline Buckmark

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #62 on: September 17, 2009, 11:04:15 PM »
Indefinite
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline isitthatbad

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #63 on: September 18, 2009, 04:14:26 AM »
challenging

Offline hjeffs

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #64 on: September 18, 2009, 12:25:03 PM »
wisdom

shift

conscouise

power

change

Offline positively_me

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #65 on: September 18, 2009, 01:17:58 PM »
compromised

sucks

unwanted

undesireable

rejected
Great minds discuss ideas; Average minds discuss events; Small minds discuss people.  - Eleanor Roosevelt

Offline megasept

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #66 on: September 18, 2009, 02:30:57 PM »
Question: What is ONE word that captures the essence of where HIV/AIDS needs to go or is today to YOU?


misunderstood (reason: stigma, fear, discrimination, recrimination, disrespect)

genes (reason: medical possibilities)

8) -megasept

Offline Assurbanipal

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #67 on: September 18, 2009, 05:31:13 PM »
Consuming

5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline onemoretime

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #68 on: September 18, 2009, 06:46:45 PM »
we all got some great words!     they are all so true.   Notice how much HIV still wares on us,  even though it is a treatable condition.   It sure doesn't seem that way the way it effects us all
08/04 diag 490 cd4 vl 50,000
10/25/05 436 50,513 hvb 1.1 billion
12/13/05 truvada sustiva
02/16/06 742 und, hpb 63,000
04/27/06 740 und hpb 60,000
01/05/07 458 und hvb und
03/08   470 undetectable still on atripla. Non smoking (chantex)
08/08 cd4 550 undetectable hiv, Hep B UND. Atripla
06/09  cd4 444, vl undetectable testo 130
09/09/09 CD4 687 46% UND  Testo 213 started androgel
10/12/09 cd4 682 46% und testo 597
01/12/10 cd4 842 48% und testo 434
041010 cd4 693  53% testo 492
100410 cd4 568 48% testo 523
012711 cd4 523 hcv 56 testo 596
083011 cd4 280 Hcv/HIV und
042912 cd4 158 hcv /hiv und, was on hep c for 11 months. do have ssdi filed and getting LTD
061912 cd4 151, bactrum, hep c and hiv und
071712 cd4 287 52% HIV HCV und
112012 cd4 520

Offline Rev. Moon

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #69 on: September 18, 2009, 06:52:09 PM »
Today: Indignity
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline Miss Philicia

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #70 on: September 18, 2009, 06:55:44 PM »
today's word is: FAB.U.LOUS (because my diarrhea stopped enough to go see The September Issue!)
"Iíve slept with enough men to know that Iím not gay"

Offline Rev. Moon

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #71 on: September 18, 2009, 07:20:50 PM »
today's word is: FAB.U.LOUS (because my diarrhea stopped enough to go see The September Issue!)

Yay! Hope it was great (and I loved the film adaptation of 'The Devil Wears Prada').

"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline tash08

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #72 on: September 18, 2009, 11:06:42 PM »
Unforgiving.

Yet we need to move on, and kick its ass.
01/04/06-HIV-
03/09/06-HIV+
05/07-Atripla
04/01/10 CD4-681, VL-UD
07/10/10 CD4-450, VL-UD
10/10/10 CD4-473, VL-UD
01/21/11 cd4-522, VL-UD
05/02/11 CD4-638, VL-UD <20 copies Hell yeah!
08/3/12 CD4-806, VL-UD

Offline lidriver

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #73 on: September 18, 2009, 11:51:26 PM »
pain
struggle
re-evaluation (of life)
heart-ache
headache
sorrow

im sure there are other things.....

Offline tash08

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #74 on: September 19, 2009, 12:46:13 AM »
ineffable


is effable a word?

effableDefinition from Wiktionary, a free dictionaryJump to: navigation, search
[edit] English[edit] Adjectiveeffable (comparative more effable, superlative most effable)

Positive
effable
  Comparative
more effable
  Superlative
most effable
 

(archaic) able to be spoken of; able to be expressed
01/04/06-HIV-
03/09/06-HIV+
05/07-Atripla
04/01/10 CD4-681, VL-UD
07/10/10 CD4-450, VL-UD
10/10/10 CD4-473, VL-UD
01/21/11 cd4-522, VL-UD
05/02/11 CD4-638, VL-UD <20 copies Hell yeah!
08/3/12 CD4-806, VL-UD

Offline sensual1973

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #75 on: September 19, 2009, 09:47:04 AM »
depriving
God grant me the serenity to accept the things i can not change.

Offline onemoretime

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #76 on: September 25, 2009, 11:34:01 PM »
Mindfuck
08/04 diag 490 cd4 vl 50,000
10/25/05 436 50,513 hvb 1.1 billion
12/13/05 truvada sustiva
02/16/06 742 und, hpb 63,000
04/27/06 740 und hpb 60,000
01/05/07 458 und hvb und
03/08   470 undetectable still on atripla. Non smoking (chantex)
08/08 cd4 550 undetectable hiv, Hep B UND. Atripla
06/09  cd4 444, vl undetectable testo 130
09/09/09 CD4 687 46% UND  Testo 213 started androgel
10/12/09 cd4 682 46% und testo 597
01/12/10 cd4 842 48% und testo 434
041010 cd4 693  53% testo 492
100410 cd4 568 48% testo 523
012711 cd4 523 hcv 56 testo 596
083011 cd4 280 Hcv/HIV und
042912 cd4 158 hcv /hiv und, was on hep c for 11 months. do have ssdi filed and getting LTD
061912 cd4 151, bactrum, hep c and hiv und
071712 cd4 287 52% HIV HCV und
112012 cd4 520

Offline frenchpat

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #77 on: September 26, 2009, 03:42:50 AM »
Successful!

because from life's perspective, this virus is incredibly successful at perpetuating its lineage

because that is what my meds are when keeping the virus under control. They are not perfect but if it wasn't for their success I would most probably be dead by now

because it is what we, people living with this virus, all are. By living one more day with this predicament

because it is what human beings will be one day when, like many times before, they will find a way to eliminate the virus from one's body

Pat
People have the power - Patti Smith

Offline rioz

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #78 on: September 27, 2009, 04:36:29 PM »
Hi all,

My vote is for FOREVER, today. Tomorrow it most likely will be something else.

I would also like to say I keep ALL of my friends, lovers, acquaintances and strangers known to have died of AIDS or any other disease or accident alive in my mind, memories, heart, soul or whatever you would like to perceive "it" as.

Good wishes to all,
Richard
Living with HIV since 1985
Living with AIDS since 2007

Truvada, Lexiva, Norvir, Levothyroxine, Testim, Sertraline, Crestor

Offline mewithu

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #79 on: September 27, 2009, 05:55:07 PM »
death
1997 is when I found out, being deathly ill. I had to go to the hospital due to extreme headache and fever. I fell coma like,  two months later weighing 95 pounds and in extreme pain and awoke to knowledge of Pancreatis, Cryptococcal Meningitis, Thrush,Severe Diarea,  Wasting, PCP pneumonia. No eating, only through tpn. Very sick, I was lucky I had good insurance with the company I worked for. I was in the hospital for three months that time. 
(2010 Now doing OK cd4=210  VL= < 75)
I have become resistant to many nukes and non nukes, Now on Reyataz, , Combivir. Working well for me not too many side effects.  I have the wasting syndrome, Fatigue  . Hard to deal with but believe it or not I have been through worse. Three Pulmonary Embolism's in my life. 2012 520 t's <20 V load

Offline Rev. Moon

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #80 on: September 27, 2009, 09:13:42 PM »
Terror
Disillusionment
Frailty
Consequence
Silence

Providence
Disillusionment
Nothingness
Clarity
Silence
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline david25luvit

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #81 on: September 27, 2009, 09:35:14 PM »
NIGHTMARE!
In Memory of
Raymond David McRae III
Nov. 25, 1972- Oct. 15, 2004
I miss him terribly..........

Offline minismom

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #82 on: September 30, 2009, 06:40:56 AM »
Unrelenting
www.watoto.com
www.MotherBearProject.org
"Whichever way you throw me, i will stand"
"Don't worry about the world coming to an end today...it's already tomorrow in Australia"  Charles Schultz

Offline PRMike

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #83 on: September 30, 2009, 08:12:47 AM »
Lonliness...  It has been really hard to find someone to love
PRMike

Offline WildcatCC

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #84 on: October 01, 2009, 03:35:45 PM »
Accountable

- I'm accountable for getting the disease
- I'm accountable for managing my disease
- I'm accountable for educating others about my disease
- I'm accountable for informing others (sexually) about my disease
- I'm accountable for my physical and mental well-being
- I'm accountable for not letting the disease define who I am and how it effects me
Apr  08 - Diagnosed
Apr  08  cd4 8, vl 150k
Meds: Prezista/Norvir/Truvada
June 08 cd4 250, vl 1600
Aug  08 cd4 275, vl 450
Meds: Atripla
Nov  08  cd4  386, vl 255
Jan   09  cd4  415, vl 2100 (spike?)
Feb   09  cd4 460, vl 212
May   09  cd4 515, vl 1200
Aug   09  cd4 717, vl 1535 % 23
Sept  09  cd4 535  vl 1710 % 18
Oct   09  genotype shows mutation. Discussing w/ ID Doc
Nov  09   cd4 480  vl 650   % 19
Dec  09 genotype slight mutation to Epivir and Retrovir
Jan 10   cd4 508 vl 250 (21%)  low vitamin d - on supplement 2000 iu/day
Mar 15 Change to Isentress and Truvada
May 5 cd4 498 vl 1485
June 16 cd4 550 vl undect!!!! (finally dammit)

Offline MarcoPoz

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #85 on: October 01, 2009, 03:41:30 PM »
For the state of HIV in society:

Obsured

For my personal connection:

Visceral

Offline clsoca

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #86 on: October 03, 2009, 02:44:36 PM »
intruder
10/07 Infected
11/07 Seroconversion
07/08 Tested Poz
07/08 VL 487  CD4 658  (No Meds)
10/08 VL 286  CD4 724  (No Meds)
01/24/09 VL 30,100   CD4 329 CD4 30% (No Meds)
02/06/09 VL 44,000   CD4 367 CD4 36%  Blood Work @ UCLA (No Meds)
02/06/09 VL 44,000   CD4 317 CD4 35% Blood Work @ USC (No Meds)
02/12/09 VL 52,000   CD4 297 CD4 29%
02/12/09  Started Atripla
04/01/09 VL 60  CD4 667   CD4 48%
06-05-09  VL UD CD4 427   CD4 39%

Offline dtwpuck

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #87 on: October 04, 2009, 08:15:17 PM »
gadzooks
Floating through the void in the caress of two giant pink lobsters named Esmerelda and Keith.

Offline mikee

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #88 on: November 28, 2009, 12:06:26 PM »
SOBER (for each morning that i wake up in disbelief and regret)

AWAKENING
(for making me realise that I, together with other  hiv+ and hiv- people alike should be responsible in taking care of our selves)

HUMAN (that are only ordinary people who commit mistakes of acquiring this disease)

HELP (to remind us to extend our hands to those who've been diagnosed recently and totally lost in space.)

FAITH (for believing that in my lifetime and those of the younger generations, the cure to completely eradicate the virus will be discovered and be made available to all infected without personal gains and injustice)
2008  - EIA nonreactive
01/09 - Probable infection
01/09 - HIV 1/2 Quali Serodia PA - nonreactive
04/09 - Seroconertion (rash,fever, tonsillitis)
05/09 - Recurrence of rash and fever
07/09 - Diarrhea Started
09/09 - Severe Seborrheic Dermatitis
10/09 - Reactive Fujerebio Serodia Particle Agglutination
11/21 - EIA - Reactive
           Fujerebio Serodia PA - Reactive
           WB - Positive (gp160, gp120, p66, gp41,
           p24, p17 bands were formed)
12/15 - cd4 = 66; vl = pending

Offline sharkdiver

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #89 on: November 28, 2009, 04:20:55 PM »
Gassy,
or that could be the turkey

Offline bear60

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #90 on: November 28, 2009, 04:47:47 PM »
martini.
..which I need right now
Poz Bear Type in Philadelphia

Offline TheRoof

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #91 on: November 28, 2009, 10:20:07 PM »
Death

Offline wow1969

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #92 on: November 29, 2009, 11:13:52 AM »
Mindfuck

I was reading the words and the more I read the more I agreed ... then I saw Mindfuck and thought .. PERFECT ... summarizes all the rest of it for me ... HIV tosses everything into turmoil and fucks with your mind ... so my word is MINDFUCK

Offline Jeff G

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #93 on: November 29, 2009, 11:24:30 AM »
buttfluparade

Offline Peacock

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Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #94 on: November 29, 2009, 02:55:05 PM »
''Ooops!''
Just about sums it up for me in one word.
Peacock,Steve
Diagnosed 07/01/2002
Started Haart- 25/11/04 Cd4: 205 VL: 76'500
                      19/12/08 Cd4: 623 VL: UD
      26/03/12 Cd4: 497 Cd4%: 30.10 VL: UD
Combivir and Nevirapine(200mg) x1 of each-Am & pm
Not changed Meds since starting on HAART
Green Tea,Multivit,Selenium ACE,Folic acid,Vit C,Aciclovir 200mg 5x per day for 3 days-(ONLY when I have Shingles!)
100 percent adherence-with the help of a wristwatch!

Offline max123

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  • Carpe Diem
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #95 on: November 29, 2009, 03:03:05 PM »
elusive
1/86 - 6/08 (annually): neg elisa
7/09: pos elisa/pos wb
8/09: cd4 560, cd4% 35, vl 13,050
12/09: cd4 568, cd4% 33, vl 2,690
4/10: cd4 557, cd4% 29.3, vl 6,440
7/10: cd4 562, cd4% 29.6, vl 3,780

Offline ga1964

  • Member
  • Posts: 188
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #96 on: December 01, 2009, 02:05:23 AM »
Fear

Isolation

Devastation  (both emotional and financially)

Mortality 

Suicide






Offline skeebo1969

  • Member
  • Posts: 5,666
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #97 on: December 01, 2009, 02:31:20 AM »


   *Appreciation*

   Of those good days....
I despise the song Love is in the Air, you should too.

Offline elf

  • Member
  • Posts: 582
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #98 on: December 01, 2009, 10:52:51 AM »
abandoned  :'(
Let's have a Kiki!

Offline Florida69

  • Member
  • Posts: 428
Re: what's ONE word that captures the state of HIV/AIDS to you?
« Reply #99 on: December 01, 2009, 11:50:38 AM »
Overwhelming
Nothing in the world can take the place of Persistence. Talent will not; nothing is more common than unsuccessful men with talent. Genius will not; unrewarded genius is almost a proverb. Education will not; the world is full of educated derelicts. Persistence and determination alone are omnipotent. The slogan 'Press On' has solved and always will solve the problems of the human race.
Calvin Coolidge

 


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