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Author Topic: Hello everyone  (Read 2078 times)

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Offline foster2006

  • Member
  • Posts: 20
    • My home page
Hello everyone
« on: August 14, 2006, 05:39:35 AM »
I been living with HIV since June 2004 - month I was infected, Diagnosed 10-18-2004.   

Currently taking Truvada and Maravoric. Started the meds because I was always fatigued, GI issues, and VL >100,000 for months. even though at Dx VL was 27,900 and CD4 864. 

Started the meds Dec 05 

CD4 >1400, VL < 50

11/21/2006 CD4        VL <50
10/02/2006 CD4 1034 VL 114
09/06/2006 CD4 1595 VL   87
08/02/2006 CD4 1266 VL <50
06/07/2006 CD4 1412 VL <50

Diagnosed 10/18/2004
Truvada(1x day) & Maraviroc (2x day)

Offline emeraldize

  • Member
  • Posts: 3,353
Re: Hello everyone
« Reply #1 on: August 14, 2006, 05:49:18 AM »
Good Morning Foster,

It is rare that I am on-line at this hour, but I'm pleased to be the early bird greeting you on behalf of everyone involved in aidsmeds.com (which you'll also see referred to as AM).

I'm glad you found this site. I've not been a member for long, but have found it to be a great resource for hiv-related information, whether news, research findings, first-hand experiences or friendship. And, as you've no doubt already seen, a variety of topics abounds.

Welcome. May your journey with hiv be easier, more enlightened and, even enjoyable, for having found AM.

Em

Offline jordan

  • Member
  • Posts: 239
  • What I want is a celebration
Re: Hello everyone
« Reply #2 on: August 14, 2006, 05:52:40 AM »
Welcome to the forum  :)

Looks like you're viral burden has improved since starting the medicine.  That's good news.

I'm currently on Sustiva and Truvada

Peace,

Jordan
If you think your lonely now, wait until tonight.

Offline frenchpat

  • Member
  • Posts: 516
  • Love your friends, don't eat them.
Re: Hello everyone
« Reply #3 on: August 14, 2006, 06:13:46 AM »
Hello Foster,

and a warm welcome to the AM club. I've arrived recently here and have learnt a lot, weeped a bit and laughed more often than not. The atmosphere here has started to change my perspective on living with HIV for a more positive one (no pun intended).

I am glad you joined and look forward to your posts.

Pat
People have the power - Patti Smith

Offline BB

  • Member
  • Posts: 168
Re: Hello everyone
« Reply #4 on: August 14, 2006, 06:40:17 AM »
Hello Foster,

Having hiv is a drag, but finding this site will be a plus in your life. This place has lots of info and many wonderful people with real first hand experience living with hiv.

BB
Damn the Torpedoes! Full speed ahead! Adm. D. Farragut.

Started Atripla 8/18/06 and if I eat the right food when I take my meds, I get to go on a-trip-la.

Offline aztecan

  • Member
  • Posts: 5,399
  • 29 years positive, 57 years a pain in the butt
Re: Hello everyone
« Reply #5 on: August 14, 2006, 10:01:07 AM »
Howdy Foster,
Don't know where you're from, but greetings from the Southwest U.S.

Sounds like you have things in hand and are being proactive. Keep up the good work.

Now that you're here, you're family. So, settle in, make yourself at home. Glad you found us.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Christine

  • Member
  • Posts: 1,069
Re: Hello everyone
« Reply #6 on: August 14, 2006, 10:03:42 AM »
Hi Foster!
Welcome to the forums! I think you find great support here. How have you been feeling on the Maravoric? Your numbers really improved.
Christine
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

Offline ACinKC

  • Member
  • Posts: 2,994
  • Bring it VIRUS! #2 Ranked In-crowd Member!
Re: Hello everyone
« Reply #7 on: August 14, 2006, 11:13:17 AM »
Yeah, what Mark said!

Seriously Mark, well put!
LIFE is not a race to the grave with the intention of arriving safely
in a pretty and well-preserved body, but, rather to skid in broadside,
thoroughly used up, totally worn out, and loudly proclaiming--WOW! WHAT A
RIDE!!!

Offline wellington

  • Member
  • Posts: 508
  • Don't sweat the little things.
Re: Hello everyone
« Reply #8 on: August 14, 2006, 02:25:33 PM »
Welcome aboard :D

Offline bear60

  • Member
  • Posts: 4,104
Re: Hello everyone
« Reply #9 on: August 14, 2006, 02:50:48 PM »
Hi Foster.
Poz Bear Type in Philadelphia

Offline Eldon

  • Member
  • Posts: 2,664
Re: Hello everyone
« Reply #10 on: August 14, 2006, 03:04:43 PM »
Hello Foster, it is Eldon. Again, just as others has said it, WELCOME to the forums where your will find the support, encouragement, understanding, love, and answers to many different questions relating to HIV/AIDS.

You will be so happy that you have found this site just as I did!!!!

poznoregon

  • Guest
Re: Hello everyone
« Reply #11 on: August 14, 2006, 03:09:01 PM »
Welcome Foster your at the right place, a lot of great people here and a lot of knowledge shared amongst the forums.

Doug

Offline foster2006

  • Member
  • Posts: 20
    • My home page
Re: Hello everyone
« Reply #12 on: August 14, 2006, 05:55:26 PM »
I feel good on the Maravoric.  When I started on it initially it was Combivir with Maravoric(66% chance) or Sustiva (33%) when I entered the study.  Well 4 weeks into the study I became anemic due to ZDV part of combivir with some help from Depakote, had a bacterial infection from either food or rimming at same time.  Study nurse and my NP told me to stop all HIV meds. Anemia worsened 2 days after stopping, placed into hospital received blood and had to wait a couple weeks to start back on Truvada and Maravoric or Sustiva. 

The Maravoric are white round pills and and the sustiva pills are colored and shaped like sustiva but no markings.  I found out I was on the maravoric by accidently biting into the sustiva tablet. No medicine taste, decided to bite into one of the Maravoric pills, definite medicine taste.

Initial test results compared to sustiva (only rough values told to me by the study nurse)  Combivir or Truvada backbone
Maravoric 300 mg once a day (2 pills @ 150mg pill) not quite effective as sustiva with either backbone
Maravoric 300 mg twice a day (4 pills @ 150mg pill) same and maybe a bit better than sustiva with either backbone
Sustiva was the comparison drug (3rd arm)

So pfizer put every one in the once a day maravoric arm of study on 2 times a day. dropping the once a day arm.

Did take me a bit longer to go <50 due to interuption of meds

CD4 counts always been above 700. Went on meds to see if it would help with GI, fatigue problems and the almost 200,000 VL.  I already new that if the VL had stayed lower I  would not have been able to talk study nurse into meds.  My NP says I have more lab results than most people.  Well I entered an early infection and a genetic blood study within 2 months of Diagnosis.   I also suspect part of the high VL and CD4 count to depakote. 
Dr Ben Young on thebody.com agreed. I met him at a HIV community forum dinner. 
 

I had almost all acute HIV infection symptoms approx jun 15 - july 7 2004.  I was infected early June 2004. 
 
11/21/2006 CD4        VL <50
10/02/2006 CD4 1034 VL 114
09/06/2006 CD4 1595 VL   87
08/02/2006 CD4 1266 VL <50
06/07/2006 CD4 1412 VL <50

Diagnosed 10/18/2004
Truvada(1x day) & Maraviroc (2x day)

 


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