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Author Topic: A little more than a year on Viramune + Truvada ... an update  (Read 1079 times)

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Offline Nashvegas

  • Member
  • Posts: 196
A little more than a year on Viramune + Truvada ... an update
« on: August 19, 2009, 03:22:16 PM »
Got infected about three years ago, and started meds almost two years later, in late June 2008.  (I'm participating in a clinical trial to determine the efficacy of extended-release Viramune + Truvada; not sure if I'm getting the extended-release version of Viramune or the regular twice-a-day version.)  Overall, things have been good.  Went undetectable very quickly and, with the exception of a very minor blip, have stayed that way.  And while it's taken longer than I would have liked to get my CD4 count up, it's nearly 200 points higher than when I started meds.  Plus no side effects whatsoever (knock on wood), and I haven't had so much as a cold during the entire period, even as my partner, who is negative, has had a string of nasty colds and respiratory infections that he has done his best to pass to me.  ;-).  For those who are considering going on meds, you might want to consider Viramune.  It's not currently a recommended first-line treatment option, but it's certainly been great for me.  I was very concerned about the psychological side-effects of Sustiva (particularly because I've had issues with depression), and I'm glad I decided not to start with Atripla when my primary care physician recommended it. 

Probably the hardest part of being positive for me has been having relatively few people to talk about it with.  I'm happily partnered (almost 23 years), and continue to feel a bit embarrassed and guilty about getting infected, given how educated I was about HIV.  As a result, I haven't reached out to many of my long-term positive friends.  This site has been invaluable to me in making me feel like I've got folks to talk with, even though I haven't been particularly active here.   
8/12/06 - sero-conversion
9/14/06 -- Positive Test results confirmed
9/21/06 -- CD4 - 586; viral load 8,000; 29%
12/25/06 -- CD4 - 373; VL 2,800; 23%
2/10/07 - CD4 - 228; VL 865; 25%
3/15/07 -  CD4 - 365 (no viral load test)
5/1/07 = CD4 - 341; VL 4,358; 27%
8/1/07 - CD4 - 315; VL - 2,300; 25%
9/20/07 - CD4 - 378
11/22/07 - CD4 - 257; VL 7,300;
2/27/08 - CD4 231 (16.5 %), VL 5,960
5/20/08 - CD4 229 (18.3%), VL 11,100
6/17/08 - CD4 166 (14.5%), VL 9,030
6/17/08 - STARTED VIRAMUNE + TRUVADA
7/2/08 - CD4 272 (20%), VL 113  :-)
7/16/08 - CD4 -217 (21.1 %), VL - Undetectable
7/30/08 - CD4 - 220 (20.4%). VL - 92
8/14/08 - CD4 - 280 (22%) VL-undetectable
1/04/09 - CD4 - 250 (28%) VL-UD
5/15/09 - CD4 -393 (28%) VL-UD
8/15/09 - CD4-346, (26%) VL-UD
11/15/09 - CD4-373 (28%)

Offline Ann

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  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: A little more than a year on Viramune + Truvada ... an update
« Reply #1 on: August 20, 2009, 09:57:54 AM »
Hi Nash,

Nice report! Sounds like you're doing well. That's interesting about you being on Viramune as first-line. I don't want to gamble with Sustiva either, so maybe your combo is one for me to think about (vs. Reyataz/Norvir/Truvada) when the time comes for me.

Oh, and do yourself a favour and drop the embarrassment/guilt. What's done is done and lugging that baggage around with you won't do your health any good.

Ann
Condoms are a girl's best friend

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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Nashvegas

  • Member
  • Posts: 196
Re: A little more than a year on Viramune + Truvada ... an update
« Reply #2 on: August 20, 2009, 10:13:35 AM »
Yeah, I know you're right about the embarrassment and guilt Ann.  ;-)  Nice to hear it from someone else. 
8/12/06 - sero-conversion
9/14/06 -- Positive Test results confirmed
9/21/06 -- CD4 - 586; viral load 8,000; 29%
12/25/06 -- CD4 - 373; VL 2,800; 23%
2/10/07 - CD4 - 228; VL 865; 25%
3/15/07 -  CD4 - 365 (no viral load test)
5/1/07 = CD4 - 341; VL 4,358; 27%
8/1/07 - CD4 - 315; VL - 2,300; 25%
9/20/07 - CD4 - 378
11/22/07 - CD4 - 257; VL 7,300;
2/27/08 - CD4 231 (16.5 %), VL 5,960
5/20/08 - CD4 229 (18.3%), VL 11,100
6/17/08 - CD4 166 (14.5%), VL 9,030
6/17/08 - STARTED VIRAMUNE + TRUVADA
7/2/08 - CD4 272 (20%), VL 113  :-)
7/16/08 - CD4 -217 (21.1 %), VL - Undetectable
7/30/08 - CD4 - 220 (20.4%). VL - 92
8/14/08 - CD4 - 280 (22%) VL-undetectable
1/04/09 - CD4 - 250 (28%) VL-UD
5/15/09 - CD4 -393 (28%) VL-UD
8/15/09 - CD4-346, (26%) VL-UD
11/15/09 - CD4-373 (28%)

Offline mmj520

  • Member
  • Posts: 23
Re: A little more than a year on Viramune + Truvada ... an update
« Reply #3 on: August 25, 2009, 05:34:03 PM »
It's good to hear you are having success with this combo. 

My doc was concerned about the depression side effect of the Sustiva and said this was the next best option.  I am very interested in the extended release version you mentoned.  Hopefully that proves successful.

The two pills per day of the Viramune has never proven to be a challenge so far.  My doc said many have trouble remembering, and he has those patients take both at once.  I usually take one at 5am, the second by 1pm, but it can be as late as 6pm. 

I only skip the second one IF I am drinking alcohol, which ... is EXTREMELY rare these days. Even a couple beers since starting haart make me woozy and I have a weird reaction around 3am usually ... sweats, dizzy, can't sleep, woozy.  After a couple times of this "reaction", I just decided to eliminate the beer/ wine. 

Offline Nashvegas

  • Member
  • Posts: 196
Re: A little more than a year on Viramune + Truvada ... an update
« Reply #4 on: August 25, 2009, 08:12:51 PM »
Hey MMJ - I'm happy to say that I've never detected any interaction between alcohol and the Viramune, so I've not had to cut down on my drinking.  I don't think I'd like that so much.  ;-)

I've never really had a problem remembering to take the second pill either.  I take one in the morning (along with my Truvada) and one at roughly dinner time.  Sometimes I'll forget and take the pill when I go to bed.  On a couple of occasions, I've failed to take the second pill entirely, but my viral load has remained undetectable.  I'm completely comfortable with the two pills a day routine, but would be delighted if the extended release formulation works.  This has been a really easy combo for me, so I hope to stay with it as long as I can.   
8/12/06 - sero-conversion
9/14/06 -- Positive Test results confirmed
9/21/06 -- CD4 - 586; viral load 8,000; 29%
12/25/06 -- CD4 - 373; VL 2,800; 23%
2/10/07 - CD4 - 228; VL 865; 25%
3/15/07 -  CD4 - 365 (no viral load test)
5/1/07 = CD4 - 341; VL 4,358; 27%
8/1/07 - CD4 - 315; VL - 2,300; 25%
9/20/07 - CD4 - 378
11/22/07 - CD4 - 257; VL 7,300;
2/27/08 - CD4 231 (16.5 %), VL 5,960
5/20/08 - CD4 229 (18.3%), VL 11,100
6/17/08 - CD4 166 (14.5%), VL 9,030
6/17/08 - STARTED VIRAMUNE + TRUVADA
7/2/08 - CD4 272 (20%), VL 113  :-)
7/16/08 - CD4 -217 (21.1 %), VL - Undetectable
7/30/08 - CD4 - 220 (20.4%). VL - 92
8/14/08 - CD4 - 280 (22%) VL-undetectable
1/04/09 - CD4 - 250 (28%) VL-UD
5/15/09 - CD4 -393 (28%) VL-UD
8/15/09 - CD4-346, (26%) VL-UD
11/15/09 - CD4-373 (28%)

Offline BlueMoon

  • Member
  • Posts: 665
  • Calling from the Fun House
Re: A little more than a year on Viramune + Truvada ... an update
« Reply #5 on: August 25, 2009, 08:51:47 PM »
Most of what I've read of Viramune has been good.  Unfortunately it's not an option for me because of a resistant mutation.  Looks like it's been a great combo for you.  I hope it keeps working.

 
...................VL.....CD4.....%
-----------------------------------------
08/10-- ......<40.....290.....42
05/10-- ......<48.....290.....46
02/10-- ......<48.....481.....44
10/09-- ......<48.....277.....46
07/09-- ......<48.....300.....38
05/09-- ........51.....449.....39
03/09-- Added Isentress
02/09-- ........65.....299.....34
11/08-- ........62.....242.....40
08/08-- ........66.....212.....29
05/08-- ......202.....217.....27
03/08-- ....5210.....187.....21
02/08-- Began Truvada/Reyataz/Norvir
12/07-- 273,000.....157.....22
11/07-- 229,000.....209.....22
10/07-- Diagnosis

It's a complex world.

 


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