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Author Topic: Update on Bob  (Read 4698 times)

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Offline bear60

  • Member
  • Posts: 4,104
Update on Bob
« on: August 01, 2009, 10:24:36 AM »
If you are following the saga of my friend Bob who is experiencing liver failure, you will be glad to know that he is still "hanging in there"..basically there is no change in his condition and he gets his lungs and abdomen drained of accumulated fluid once a week. Tuesday is abdomen and Friday is lungs. Naturally he sticks to a no sodium diet etc.
The big news however is that he will be going to Pittsburgh to be evaluated for a liver transplant.  This is great news, because he has been turned down here at the U of Penn Hosp.
We are going camping this next weekend and Bob and his partner Don are going to rent a motel room nearby and "visit" the campground......its leather weekend, and all the Philly leather club boys will be there.  Lets hope Bob will be able to enjoy himself.
My partner Kurt has been "sitting" Bob two days a week while Don is at work. Steve, sits with Bob for the other three, so he is never alone.
Poz Bear Type in Philadelphia

Offline BT65

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  • Posts: 9,945
Re: Update on Bob
« Reply #1 on: August 01, 2009, 10:42:58 AM »
Wow, that's great news about the possible liver transplant.  I know he's been waiting for something like this for awhile. 

Have fun camping, Joel.  I'm sure you will. ;)
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline anniebc

  • Member
  • Posts: 5,939
  • AM member since 2003
Re: Update on Bob
« Reply #2 on: August 01, 2009, 12:02:11 PM »
Hi Joel

I just wanted to echo Betty and wish Bob lots of love and luck with the evaluation, and have fun this weeend.

It sounds like Kurt and Steve are doing a wonderful job between them.

Hugs to you all
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Miss Philicia

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  • celebrity poster, faker & poser
Re: Update on Bob
« Reply #3 on: August 01, 2009, 12:54:19 PM »
Iits leather weekend, and all the Philly leather club boys will be there.

Well, except me...
"Iíve slept with enough men to know that Iím not gay"

Offline AndyArrow

  • Member
  • Posts: 1,196
Re: Update on Bob
« Reply #4 on: August 02, 2009, 03:48:39 AM »
Joel,

I hope Bob gets good news in Pittsburg and in the meantime that you boys place nice camping.  Unless, of course, you like it rough!  :o  :D

AA
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline bear60

  • Member
  • Posts: 4,104
Re: Update on Bob
« Reply #5 on: August 09, 2009, 02:10:03 PM »
We just returned from a three day camping trip.  Bob and his partner Don DID indeed make the trip and stayed in a TENT!  I am amazed at how resilient Bob is. He did not make it to the "events" but stayed on the camp site.....limited walking around. But people he knows dropped by to say Hi and chat.
It was a beautiful weekend until the rain started very early Sunday morning ...but we packed up and came home and no rain spoiled the events of the weekend.
« Last Edit: August 10, 2009, 10:06:55 AM by bear60 »
Poz Bear Type in Philadelphia

Offline MOONLIGHT1114

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  • Cheech 2.2.94 - 4.23.10 We miss you so much!
Re: Update on Bob
« Reply #6 on: August 09, 2009, 05:12:06 PM »
I'm glad to hear that Bob got to have a fun weekend.  Great news about the transplat plans, keep us posted!  :)

~ Cindy
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline BT65

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Re: Update on Bob
« Reply #7 on: August 09, 2009, 06:41:18 PM »
I'm glad it turned out to be such a good experience for everyone!
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Moffie65

  • Member
  • Posts: 1,755
  • Living POZ since 1983
Re: Update on Bob
« Reply #8 on: August 09, 2009, 06:47:40 PM »
Hi Joel,

Good to hear your friend is not giving up, and the possible transplant.  YEAH!

Also good to hear about the leather weekend, but alas, here in the desert humidity my leathers are looking kinda dry and in need of a good messy weekend in the woods.  Oh well, I'll take the days of sun anytime.
The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline bear60

  • Member
  • Posts: 4,104
Re: Update on Bob
« Reply #9 on: August 10, 2009, 10:10:27 AM »
Moffie...
Friday night at the campground was "snuggle time" in a big way...it was clear and cold and low humidity.  A really nice change from the pea soup humidity that we came home to.
We tried to stay by the campfire as long as possible...then hop into bed.  Poor Bob...he couldnt get warm.  But like the trooper he is...he got thru it.
Poz Bear Type in Philadelphia

Offline Andy Velez

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Re: Update on Bob
« Reply #10 on: August 10, 2009, 04:26:32 PM »
Hi Joel,

Hoping the transplant comes through for Bob. The only person I know who's had one is a HIV+ senior. He had it done about 5 years ago and it has transformed his health for the better.

Keeping fingers crossed that happens for Bob.

Cheers.
Andy Velez

Offline AndyArrow

  • Member
  • Posts: 1,196
Re: Update on Bob
« Reply #11 on: August 11, 2009, 09:57:30 AM »
I'm glad to hear the camping trip turned out and that Bob was able to go and enjoy himself a little bit.  Snuggle time is the best!!!!
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline unclespongebob

  • Member
  • Posts: 36
  • im the on on the right in the red shirt
Re: Update on Bob
« Reply #12 on: August 11, 2009, 11:08:08 PM »
hey joel

      tell bob i know what he is going through,and that im praying for him
friends are gods way of apologizing to us for our familys. / a real friend os one who walks in when the rest of the world walks out. / everybody wants to ride with you in the limo,but what you need is sombody who will take the bus with you when the limo breaks down./ one friend in a lifetimeis much; two are many; three are hardly possible.

Offline bear60

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  • Posts: 4,104
Re: Update on Bob
« Reply #13 on: August 12, 2009, 08:10:12 AM »
I know Bob will appreciate all the good wishes from you guys.  He leaves for Pittsburgh on Sunday the 16th and will be there for a week for evaluations.
Poz Bear Type in Philadelphia

Offline rondrond

  • Member
  • Posts: 1,712
Re: Update on Bob
« Reply #14 on: August 13, 2009, 07:42:28 AM »
Hey Joel,

Never known anyone who's had a transplant before. Hoping that Bob will be my first.

I'm glad you all had such a great camping trip.(turns a slight shade of green with envy) darn 'ol rain. But it sounds like you made the best of it.

Wishing all the best for Bob on the 16th.
"I may not be exactly where I want to be, but I sure as Hell am not where I was"
Wynnona Judd

Diagnosed/HIV
1993
AZT
Norvir
1994-2001
Crixivan/Epivir/Zerit
No Meds for 7 Years

04jul07/DVT-right leg/Bi Lateral PE's     
16oct08/DVT-left leg
Sept '09  6 blood clots in left arm
Coumadin 5mgs
                                     
Atenolol/50mg/2x
Hydrochlorth 25mg/1x
Gemfibrozil/300mgs/2X
Symbicort
Proventil Inhaler
Potassium
Rhinocort


*APR 08~Viramune/Truvada
March08  CD4 330 23% VL 452.000 
*Jan09 Med change~Epzicom/Viramune

Aug09   CD4 523 23%  VL<48
Diagnosed: COPD
Dec 2013: CD4 645 45% VL 49
Med Change: Viramune/Epivir/Ziagen/Isentress

Offline bear60

  • Member
  • Posts: 4,104
Re: Update on Bob
« Reply #15 on: August 13, 2009, 08:59:24 AM »
Thanks Ron
It sounds like you need a little vacation.  Be good to yourself and take one.
Poz Bear Type in Philadelphia

Offline rondrond

  • Member
  • Posts: 1,712
Re: Update on Bob
« Reply #16 on: August 13, 2009, 09:47:51 AM »
thanks Joel,

 ::) I've never been to Phialdelphia or on a camp put with a bunch of Leathermen, though I have been invited before by the Fort Worth Leathermens Society: but I didn't have any leather or a motorcycle...though I did flirt with the attendant in the leather shop at the Ripcord in Houston one night and got to try on anything I wanted, and parade around in it... ::)
"I may not be exactly where I want to be, but I sure as Hell am not where I was"
Wynnona Judd

Diagnosed/HIV
1993
AZT
Norvir
1994-2001
Crixivan/Epivir/Zerit
No Meds for 7 Years

04jul07/DVT-right leg/Bi Lateral PE's     
16oct08/DVT-left leg
Sept '09  6 blood clots in left arm
Coumadin 5mgs
                                     
Atenolol/50mg/2x
Hydrochlorth 25mg/1x
Gemfibrozil/300mgs/2X
Symbicort
Proventil Inhaler
Potassium
Rhinocort


*APR 08~Viramune/Truvada
March08  CD4 330 23% VL 452.000 
*Jan09 Med change~Epzicom/Viramune

Aug09   CD4 523 23%  VL<48
Diagnosed: COPD
Dec 2013: CD4 645 45% VL 49
Med Change: Viramune/Epivir/Ziagen/Isentress

Offline unclespongebob

  • Member
  • Posts: 36
  • im the on on the right in the red shirt
Re: Update on Bob
« Reply #17 on: August 14, 2009, 09:06:03 PM »
hey joel


              tell bob that john and i will be praying for him and his family
friends are gods way of apologizing to us for our familys. / a real friend os one who walks in when the rest of the world walks out. / everybody wants to ride with you in the limo,but what you need is sombody who will take the bus with you when the limo breaks down./ one friend in a lifetimeis much; two are many; three are hardly possible.

Offline bear60

  • Member
  • Posts: 4,104
Re: Update on Bob
« Reply #18 on: August 23, 2009, 02:08:30 PM »
Bob has returned from Pittsburgh and says he is being evaluated by a team of specialists who will give a verdict about his new liver this coming week. 
Lets hope for the best.


Joel
Poz Bear Type in Philadelphia

Offline unclespongebob

  • Member
  • Posts: 36
  • im the on on the right in the red shirt
Re: Update on Bob
« Reply #19 on: August 23, 2009, 05:00:02 PM »
hi joel

              that is great news about bob , we will keep him our prays


                                              peace bobby




                                                     
friends are gods way of apologizing to us for our familys. / a real friend os one who walks in when the rest of the world walks out. / everybody wants to ride with you in the limo,but what you need is sombody who will take the bus with you when the limo breaks down./ one friend in a lifetimeis much; two are many; three are hardly possible.

Offline unclespongebob

  • Member
  • Posts: 36
  • im the on on the right in the red shirt
Re: Update on Bob
« Reply #20 on: September 06, 2009, 08:21:44 PM »
is there any news about bob yet
friends are gods way of apologizing to us for our familys. / a real friend os one who walks in when the rest of the world walks out. / everybody wants to ride with you in the limo,but what you need is sombody who will take the bus with you when the limo breaks down./ one friend in a lifetimeis much; two are many; three are hardly possible.

Offline anniebc

  • Member
  • Posts: 5,939
  • AM member since 2003
Re: Update on Bob
« Reply #21 on: September 06, 2009, 08:49:24 PM »
Hi Spongebob..(love that show.. :D)

Bear is pretty good at keeping us updated about Bob, so as soon as he knows what's happening or how thing are going he will let us know..it is a worry though when we don't hear from them..but I'm sure it will be good news when we do hear something.

Hugs
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline bear60

  • Member
  • Posts: 4,104
Re: Update on Bob
« Reply #22 on: September 08, 2009, 01:58:23 PM »
Please refer to the new thread..."The Countdown Begins" .  Sorry if it became confusing.  Bob is "staus quo" health wise and now is waiting for a new liver to be offered him.
I will update that thread regarding the new liver. But not this one.
Poz Bear Type in Philadelphia

Offline anniebc

  • Member
  • Posts: 5,939
  • AM member since 2003
Re: Update on Bob
« Reply #23 on: September 09, 2009, 06:03:11 PM »
Hi everyone

I'm locking this thread with Bear60's permission..Bear has an updated one going titled "The Countdown Begins" so he can keep us informed on how Bob is doing...all those who have been following Bob progress please leave your replies in that thread from now on...thank you

Hugs
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

 


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