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Author Topic: new with this and isolating  (Read 3771 times)

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Offline indigolime

  • Member
  • Posts: 8
new with this and isolating
« on: July 03, 2009, 03:29:46 AM »
After my diagnosis w/ hiv a month ago I asked for a prescription for wellbutrin, my old standby for depression and anxiety.   I'm now functional at work, and have the energy to take care of myself, get to the gym, make healthier meals etc.   However I'm a little lost and isolated.   My closest friends know, and are there for me if I need them but I hesitate since they have their own issues to deal with.  I saw a counselor twice to deal with the depression, and I am here all the time reading your posts and researching treatment issues. 

The guy I had been seeing tested positive right after I did, both of us were negative six months ago.  We are being adults and not blaming anyone.  He is dealing with it a bit better than I am and I now find myself relying on him for some emotional support, while he moves on with his life and is dating again.  To my other friends and acquaintences I basically fell off the earth. 

I need connection with and to be around people who have this virus right now.  Can someone advise me about support groups, or where to meet people in my area (SoCA LB/OC) who are newly diagnosed and dealing with this?   I was politely told by ASF I didn't qualify for their support group since I had resources (insurance, a mid level income).
12/08: negative
likely infected 12/08-3/09
6/4/09:   positive
6/09:   cd4 617;  36.4%;  vl 379
9/09:   cd4 579;  33.1%;  vl 3730
12/09: cd4 558;  31.0%:  vl 1880
4/10:   cd4 500;  30.0%;  vl 3890
     Isentress/Truvada started 4/19/10
6/4/10:  cd4 518; 32.0% vl undetectable

Offline positivmat

  • Member
  • Posts: 222
Re: new with this and isolating
« Reply #1 on: July 03, 2009, 07:02:59 AM »
Yea I was told that here in ny state too. I would look in monasterys both franciscan and buddhist to see if they have groups. I had success with that here. I wish you luck. It helped me a great deal to talk face to face with hiv+ especially long term survivors. Don't give up because there is surely a group near u. Also try meetup.com. There wasn't one near me but there might be one close to you.

Offline emeraldize

  • Member
  • Posts: 3,334
Re: new with this and isolating
« Reply #2 on: July 03, 2009, 08:02:36 AM »
Any chance you could attend AMG 2009 in Boston? You would have a chance to meet a variety of positive people from this forum. See the AM Gatherings section on the forum Contents list.

Offline positivmat

  • Member
  • Posts: 222
Re: new with this and isolating
« Reply #3 on: July 03, 2009, 08:53:34 AM »
Before I get caught, I am sorry if this is ladies forum. Can't tell on my blackberry. I will try to be more careful

Offline emeraldize

  • Member
  • Posts: 3,334
Re: new with this and isolating
« Reply #4 on: July 03, 2009, 12:04:04 PM »
no positivmat this is not the ladies forum--i was responding to indigolime's post.

Offline indigolime

  • Member
  • Posts: 8
Re: new with this and isolating
« Reply #5 on: July 03, 2009, 02:19:09 PM »
Meetupom has a wait list group for LA hiv'ers.  In some gay rags and I am seeing psychologists advertising support groups who will (likely for a fee) open the door.  Boston would be an ordeal but I found an LA based group www.posimages.com who hold events on this subject with presentations by medical professionals in this field.    I can also look into Yahoo groups in my area or starting one.  Then again I could "come out" to my neg friends and see if they can hook me up w/ experienced poz guys they may know. 
12/08: negative
likely infected 12/08-3/09
6/4/09:   positive
6/09:   cd4 617;  36.4%;  vl 379
9/09:   cd4 579;  33.1%;  vl 3730
12/09: cd4 558;  31.0%:  vl 1880
4/10:   cd4 500;  30.0%;  vl 3890
     Isentress/Truvada started 4/19/10
6/4/10:  cd4 518; 32.0% vl undetectable

Offline positivmat

  • Member
  • Posts: 222
Re: new with this and isolating
« Reply #6 on: July 03, 2009, 05:31:54 PM »
Good for you. Keep reaching out. I didn't want to tell too many people at first but its up to you. In the beginning months its good to have a strong support system in place. I am paying for a therapist who is helping me deal with the changes. We are mostly working on old issues which were brought up from this speed bump in my life. The more the days pass by you will find yourself putting this virus in perspective and not letting it be an ending but a beginning albeit one you may not have wanted to start. This forum has lots of good advice on it and people who have been there. Use it for any questions. Stay occupied. Get rest and take better care of yourself while you get used to these changes. You will be alright. Matt

Offline AndyArrow

  • Member
  • Posts: 1,196
Re: new with this and isolating
« Reply #7 on: July 04, 2009, 03:34:36 AM »
indigolime --

If you had a good relationship with your counselor you might ask them if they have any suggestions.

I'm not sure the extent of the services they have but you might want to check out:

Aids Families & Friends Support Group
Garden Grove, CA. 92840
(714) 534-2437

The Center
2017 E 4th St
Long Beach,CA 90814
(562) 434-4455
http://www.centerlb.org/index.html

Good luck,
AA
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline Miss Philicia

  • Member
  • Posts: 23,869
  • celebrity poster, faker & poser
Re: new with this and isolating
« Reply #8 on: July 04, 2009, 10:58:21 AM »
Just two one-on-one therapy sessions with the symptoms/isolation you just described?  Sorry, but that doesn't sound like enough.  You might want to go weekly, and ALSO supplement this with a "real world" support group.
"Iíve slept with enough men to know that Iím not gay"

Offline Assurbanipal

  • Member
  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: new with this and isolating
« Reply #9 on: July 07, 2009, 08:16:04 AM »
If you are looking for social interations with other poz gay men check out Strength in Numbers ("not-for-profit global social network for HIV+ gay men")

LA chapter has a yahoo group http://health.groups.yahoo.com/group/SINLosAngeles/
 
And the general page has a clickable map http://www.strengthinnumbers.org/
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline CallMeSid

  • member
  • Member
  • Posts: 88
Re: new with this and isolating
« Reply #10 on: July 11, 2009, 07:08:45 PM »
I'm a little late in replying to this post, but I just wanted to point out the L.A. Gay and Lesbian Center as a resource.  (www.lagaycenter.org)

They have mental health services (individual therapy and groups) there at their clinic and they also maintain a directory of private practice therapists.

Hope that helps!
07/2006 HIV-negative
06/2007 HIV-positive
07/2007 CD4: 795 (40%), VL: <50
09/2007 CD4: 629 (43%), VL: 895  (~2 weeks after measles/mumps/rubella booster)
12/2007 CD4: 854 (45%), VL: <50
03/2008 CD4: 880 (45%), VL: 151
12/2008 CD4: 943 (46%), VL: 116
05/2009 CD4: 865 (44%)  VL: 107

Offline LBpozguy

  • Member
  • Posts: 51
Re: new with this and isolating
« Reply #11 on: September 11, 2009, 03:06:21 PM »
Hey Indigo:

Checkout the C.A.R.E. program at St. Mary's in Long Beach. the URL is  http://www.careprogram.org It is one of the best ASF's in So Cal :-)
Feb 08 neg
Sept 08 - First poz test
Sept 08 CD4 558 (% unk) VL 11000
Dec 08 CD4 480 (29%) VL less than 700
Mar 09 CD4 370  VL 25000
June 09 CD4 425 VL 68000
Aug 09 Started Atripla
Sept 09 CD4 639 VL 100
Nov 09  CD4 716 (35%) VL Undet!!!!!!!!!!!!!
Jan 10 CD4 685 VL UND

 


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