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Author Topic: Amazing the things that pop up  (Read 4678 times)

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Offline aztecan

  • Member
  • Posts: 5,388
  • 29 years positive, 57 years a pain in the butt
Amazing the things that pop up
« on: June 23, 2009, 09:57:26 AM »
I thought it was a cold sore, or, as I like to describe it, mouth herpes. ;)

It wasn't and I have another $40 copay receipt to prove it.

I have shingles.

I had heard that shingles could pop up virtually anywhere, but I never thought about it being on my face.  :-\

The doctor, who started me on Famvir immediately, said he hoped to prevent the spread of the shingles into my eye, my right eye as luck would have ti.

It apparently can cause problems with the eyes, including the need for corneal transplants.

Of course, it couldn't be simple. All the meds taken to combat shingles interact with Truvada, which I just started taking a month ago.

Apparently, Truvada can cause elevated levels of the shingles meds in the bloodstream.

So, we are experimenting, my doc and I. I am taking the Famvir only twice a day, rather than three times a day, as normally would be prescribed.

I will take the Truvada as usual. I will have bloodwork done Thursday to make sure this combination of drugs doesn't cause any kidney problems.

We'll see what happens. Let's hope this experiment works.

I now understand what folks mean when they say shingles are a pain.

UGH!

HUGS,

Mark
« Last Edit: June 23, 2009, 09:59:46 AM by aztecan »
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Miss Philicia

  • Member
  • Posts: 23,904
  • celebrity poster, faker & poser
Re: Amazing the things that pop up
« Reply #1 on: June 23, 2009, 10:02:28 AM »
Oh dear.  Sorry to hear of this.  Sounds as if you caught it early though, right?  I've also never heard of the truvada angle with shingles treatment, but then I've fortunately escaped this curse thus far.

You've really not had an easy year.
"Iíve slept with enough men to know that Iím not gay"

Offline rondrond

  • Member
  • Posts: 1,712
Re: Amazing the things that pop up
« Reply #2 on: June 23, 2009, 10:23:26 AM »
Poor Mark...oucheeee

I had shingles under arm and across back, then another outbreak across the waist. The last outbreak was on my leg when I had the DVT.

I can't imagine how I would deal with them on my face or eyes. Are your eyes at risk because of the 'cold sore' and just being on the face?

Do you still have your moustache?

((A really big hug))
Ronnie
"I may not be exactly where I want to be, but I sure as Hell am not where I was"
Wynnona Judd

Diagnosed/HIV
1993
AZT
Norvir
1994-2001
Crixivan/Epivir/Zerit
No Meds for 7 Years

04jul07/DVT-right leg/Bi Lateral PE's     
16oct08/DVT-left leg
Sept '09  6 blood clots in left arm
Coumadin 5mgs
                                     
Atenolol/50mg/2x
Hydrochlorth 25mg/1x
Gemfibrozil/300mgs/2X
Symbicort
Proventil Inhaler
Potassium
Rhinocort


*APR 08~Viramune/Truvada
March08  CD4 330 23% VL 452.000 
*Jan09 Med change~Epzicom/Viramune

Aug09   CD4 523 23%  VL<48
Diagnosed: COPD
Dec 2013: CD4 645 45% VL 49
Med Change: Viramune/Epivir/Ziagen/Isentress

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: Amazing the things that pop up
« Reply #3 on: June 23, 2009, 10:32:27 AM »
Mark, you'll get thur this, and your still a sexy hunk to me, {{{NAKED BEAR HUGS}}} Dennis in NE Albuquerque  ;)
« Last Edit: June 23, 2009, 10:34:04 AM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline bear60

  • Member
  • Posts: 4,104
Re: Amazing the things that pop up
« Reply #4 on: June 23, 2009, 10:33:34 AM »
Hey Mark...
Well isnt that just the pits.  On your face!
I am keeping you in my thoughts.  
We dont want any eye complications!


Joel
Poz Bear Type in Philadelphia

Offline Dwayn20

  • Member
  • Posts: 374
  • dbscooter0@gmail.com
Re: Amazing the things that pop up
« Reply #5 on: June 23, 2009, 11:23:50 AM »
Hey Mark I feel for you been lucky so for mine has been on my lower mid section and behind yes the shingles can cause blindness.I always worry about my situation then a reality check comes along and then I realize how small my problems are.I will keep you in my prayers Mark hope it clears up soon.
Dwayn20


I thought it was a cold sore, or, as I like to describe it, mouth herpes. ;)

It wasn't and I have another $40 copay receipt to prove it.

I have shingles.

I had heard that shingles could pop up virtually anywhere, but I never thought about it being on my face.  :-\

The doctor, who started me on Famvir immediately, said he hoped to prevent the spread of the shingles into my eye, my right eye as luck would have ti.

It apparently can cause problems with the eyes, including the need for corneal transplants.

Of course, it couldn't be simple. All the meds taken to combat shingles interact with Truvada, which I just started taking a month ago.

Apparently, Truvada can cause elevated levels of the shingles meds in the bloodstream.

So, we are experimenting, my doc and I. I am taking the Famvir only twice a day, rather than three times a day, as normally would be prescribed.

I will take the Truvada as usual. I will have bloodwork done Thursday to make sure this combination of drugs doesn't cause any kidney problems.

We'll see what happens. Let's hope this experiment works.

I now understand what folks mean when they say shingles are a pain.

UGH!

HUGS,

Mark


Offline AlanBama

  • Member
  • Posts: 3,604
  • Alabama: the 'other' 3rd World Country!
Re: Amazing the things that pop up
« Reply #6 on: June 23, 2009, 02:42:05 PM »
Lord, honey....what next?

Shingles on the face?  YIKES.   I've been lucky enough to have them elsewhere (which was bad enough)....

Hope the Famvir does the trick.   I'm on the daily prophylaxis dose of Valtrex.......

hugs,

Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline J.R.E.

  • Member
  • Posts: 7,099
  • Joined Dec-2003 Living positive, since 1985.
Re: Amazing the things that pop up
« Reply #7 on: June 23, 2009, 06:19:13 PM »
Hello Mark,

Sorry to hear about the shingles.  The good thing is you caught it early. Yes,... you got to watch this if it spreads around the face and eyes.

Wishing a speedy recovery----Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,868
  • Vegas baby!
Re: Amazing the things that pop up
« Reply #8 on: June 23, 2009, 07:28:28 PM »
Wow, Mark.  You've really not had a good year.  I hope things improve, and soon!  I'll be thinking about you.
 Luv,
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Robert

  • Member
  • Posts: 2,643
Re: Amazing the things that pop up
« Reply #9 on: June 23, 2009, 11:53:03 PM »

aww mark.

yeah, this has been a raunchy year for you, hasn't it?

In the middle of summer, I can't imagine this god-awful infliction being anything but a royal pain. I hope your think adobe walls keep you cool.  A few years ago I had the small pox all over my body, including eyes and mouth.  It was dreadful.  I quaranteened myself to the cool basement.

not sure what to think about the truvada/famvir issue.  I can only hope that with increased levels of the shingles meds caused by the truvada, maybe it will clear up real fast.

my prayers....robt
..........

Offline AndyArrow

  • Member
  • Posts: 1,196
Re: Amazing the things that pop up
« Reply #10 on: June 24, 2009, 02:22:02 AM »
Mark,

How simply dreadful.  I want to wish you quick recovery.  It sounds like you've got a very good ID doc how wants to keep on top of things.

Hugs,
AA
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline gemini20

  • Member
  • Posts: 262
Re: Amazing the things that pop up
« Reply #11 on: June 24, 2009, 04:52:16 AM »
Dear Mark,

Ouch!

Sorry to hear about this latest development in your health. Good that your doctor caught it so promptly and I do hope the treatment works quickly for you.

I've had two bouts of shingles but never had an outbreak on my face; the first did spread into a rather delicate area though where no woman wants to be finding sores!

I'll be sending you some healing thoughts.

Best wishes,

Emma
Diagnosed 11th September 1991
Current CD4 count 484 (26%); viral load undetectable (December 2011).
Restarting boosted Prezista 08/04/11

Offline GNYC09

  • Member
  • Posts: 702
Re: Amazing the things that pop up
« Reply #12 on: June 24, 2009, 07:20:44 AM »
 Mark, I wish you a speedy recovery! I will keep you in my prayers. Get well soon.

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: Amazing the things that pop up
« Reply #13 on: June 24, 2009, 07:24:11 AM »
Mark,
Damn! So sorry to hear that you have the dreaded Shingles...I had them in 1995 and I can still recall how painfull it was. I hope it's not that bad for you dear friend!

My Mom actually has had herpies in her eye, so if you need or want any advice let me know. But let's hope and pray it stays where it is.

I wish you the best. Are you able to work? I  hope you are home, taking plenty of pain killers and relaxing.
Hang tough, I know you will.
Positive since 1985

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: Amazing the things that pop up
« Reply #14 on: June 24, 2009, 07:20:06 PM »
Mark!

holy crap, I hate shingles,    sorry you are experiencing it!

Offline Lakis

  • Member
  • Posts: 83
Re: Amazing the things that pop up
« Reply #15 on: June 26, 2009, 05:33:40 PM »
Hi Mark,

I hope your meds are working and you will be in a good shape soon.
Take care.
Lakis

Offline rondrond

  • Member
  • Posts: 1,712
Re: Amazing the things that pop up
« Reply #16 on: July 01, 2009, 10:09:23 AM »
Hey Mark,

Are you all pretty again for the Holidays?

((HUG))
Ronnie
"I may not be exactly where I want to be, but I sure as Hell am not where I was"
Wynnona Judd

Diagnosed/HIV
1993
AZT
Norvir
1994-2001
Crixivan/Epivir/Zerit
No Meds for 7 Years

04jul07/DVT-right leg/Bi Lateral PE's     
16oct08/DVT-left leg
Sept '09  6 blood clots in left arm
Coumadin 5mgs
                                     
Atenolol/50mg/2x
Hydrochlorth 25mg/1x
Gemfibrozil/300mgs/2X
Symbicort
Proventil Inhaler
Potassium
Rhinocort


*APR 08~Viramune/Truvada
March08  CD4 330 23% VL 452.000 
*Jan09 Med change~Epzicom/Viramune

Aug09   CD4 523 23%  VL<48
Diagnosed: COPD
Dec 2013: CD4 645 45% VL 49
Med Change: Viramune/Epivir/Ziagen/Isentress

Offline buca45

  • Member
  • Posts: 187
Re: Amazing the things that pop up
« Reply #17 on: July 01, 2009, 06:37:43 PM »
I remember having severe shingles at the same time I was diagnosed 17 years ago. Although they were on my legs, the Doc gave me stict instructions not to touch them and spread it to my eyes. Kept washing my hands constantly and after a few weeks, they did disappear. I did have one small one on my chin, but it was not as serious as my legs.
Be very careful about transferring after dressing or touching your legs. It does spread easily during the 'messy' part of the outbreak.
Good Luck and hope the drugs don't interact...
"Love and Laughter and Happiness Ever After"

Offline aztecan

  • Member
  • Posts: 5,388
  • 29 years positive, 57 years a pain in the butt
Re: Amazing the things that pop up
« Reply #18 on: July 01, 2009, 11:12:34 PM »
Hey all,

Thanks for all the wonderful support. Yes, it has been a trying year.

But, you know, it could always be worse. I am grateful I have been as lucky as I have.

The shingles are fading. I was really lucky. I caught them, or rather my doctor caught them, very early and started me on treatment immediately.

I think that made a big difference. Most of the pain/numbness has subsided. There is still one spot on my lip that is troublesome, but, its not oozing any more, so that's a plus.

I also did fine with the the Famvir (Famcyclovir). No interactions, the kidneys are just fine and the shingles were kicked in the butt.

I really do think "hit hard, hit early" was key for me.

Again, thank you all for the wonderful support.

HUGS,

Mark
« Last Edit: July 01, 2009, 11:14:51 PM by aztecan »
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: Amazing the things that pop up
« Reply #19 on: July 02, 2009, 08:01:34 AM »
Glad to here Mark, I knew you'd beat this, I had a lot of faith in you, to do just that  ;D
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline bear60

  • Member
  • Posts: 4,104
Re: Amazing the things that pop up
« Reply #20 on: July 02, 2009, 11:52:00 AM »
Mark
Thats a relief!  I know you are greatful for having a good doctor.

Joel
Poz Bear Type in Philadelphia

Offline rondrond

  • Member
  • Posts: 1,712
Re: Amazing the things that pop up
« Reply #21 on: July 02, 2009, 12:49:19 PM »
Mark,

Glad to hear that you are improving.

Enjoy your 4th.  Maybe a sparkler or two: nah:  a bottle rocket.

(HUG)
Ronnie
"I may not be exactly where I want to be, but I sure as Hell am not where I was"
Wynnona Judd

Diagnosed/HIV
1993
AZT
Norvir
1994-2001
Crixivan/Epivir/Zerit
No Meds for 7 Years

04jul07/DVT-right leg/Bi Lateral PE's     
16oct08/DVT-left leg
Sept '09  6 blood clots in left arm
Coumadin 5mgs
                                     
Atenolol/50mg/2x
Hydrochlorth 25mg/1x
Gemfibrozil/300mgs/2X
Symbicort
Proventil Inhaler
Potassium
Rhinocort


*APR 08~Viramune/Truvada
March08  CD4 330 23% VL 452.000 
*Jan09 Med change~Epzicom/Viramune

Aug09   CD4 523 23%  VL<48
Diagnosed: COPD
Dec 2013: CD4 645 45% VL 49
Med Change: Viramune/Epivir/Ziagen/Isentress

 


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