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Author Topic: More Positive Thoughts for Bob  (Read 5018 times)

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Offline bear60

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More Positive Thoughts for Bob
« on: May 27, 2009, 09:19:07 AM »
Hi
You may remember my post a while ago about my friend Bob who was in the hospital and not doing well.  Some of the members of this forum suggested a healing circle and we had one for him.  It was really successful.  Bob continued to improve and went home.  Also, I mentioned that Kurt and I were going to help him paint his bedroom.  Actually the painting went way beyond his bedroom.  He decided he wanted to repaint the living room and the den ( read: media room) and the office and the spare bedroom and the stairway.  So Kurt and I did all that painting for him.  It felt good to do this because Bob had started the work a long time ago and never was able to finish.  Now its finished.
Bob seemed to be doing OK. Just the regular trips to the hospital for draining fluid out of his abdomen.... adjusting his diabetes and liver meds and so on.
Last week Bob became disoriented and was readmitted to the hospital and his lover Don had to return from Thailand ( where he had gone for a vacation and some time away from his responsibilities at home with Bob).  Bob was sent home after more adjusting of meds and an over night stay.
This week Bob is back in the hospital and the doctors have decided to put him "out" ( I guess that means in a drug induced coma) because he was acting out and being a very difficult patient.  Its sad.  I know  Bob does not know what he's doing during those episodes.  So, he is in ICU for monitoring and is "out".   If he bounces back again it will be another miracle.
Please send your positive thoughts to Bob......at the University of Pennsylvania Hospital in Philadelphia, Pa.

edited for spelling
« Last Edit: May 27, 2009, 09:22:15 AM by bear60 »
Poz Bear Type in Philadelphia

Offline AlanBama

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Re: More Positive Thoughts for Bob
« Reply #1 on: May 27, 2009, 12:22:06 PM »
will do, Joel.......

 :-*
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline bear60

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Re: More Positive Thoughts for Bob
« Reply #2 on: May 27, 2009, 12:40:17 PM »
Thanks Alan
Poz Bear Type in Philadelphia

Offline BT65

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Re: More Positive Thoughts for Bob
« Reply #3 on: May 27, 2009, 01:37:48 PM »
Positive thoughts have been sent, Joel.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline bear60

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Re: More Positive Thoughts for Bob
« Reply #4 on: May 27, 2009, 02:23:30 PM »
Thanks Betty
Poz Bear Type in Philadelphia

Offline MOONLIGHT1114

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  • Cheech 2.2.94 - 4.23.10 We miss you so much!
Re: More Positive Thoughts for Bob
« Reply #5 on: May 27, 2009, 09:52:30 PM »
I'm praying for Bob tonight.  I hope he does better in the days to come.  :)

~ Cindy
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline AndyArrow

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Re: More Positive Thoughts for Bob
« Reply #6 on: May 28, 2009, 01:55:50 AM »
You & Kurt sound like really amazing friends.

I send out lots of positive energy for Bob and a little extra to Don, Kurt, you and all his care takers!


Hugs,
AA
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline bear60

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Re: More Positive Thoughts for Bob
« Reply #7 on: May 28, 2009, 08:06:28 AM »
Thanks Moonlight and Andy.
Here is the latest from Don, Bob's partner:
bob update 5-27-2009

still at HUP ICU, on ventalator, has a blood infection
that is being treated with antibiotic;the blood infection
plus the ammonia from the hep B contibuting to his
dementia. They have the ammonia under control but still
loopy due to the infection. As that clears, they will
cut back on the sedatives he is on and try to wean him
off the ventalator. This is the hairy part, getting him
off the ventalotor.

Right now, expect he may be on the ventalor for another four days
or so. I'm very concerned if it goes much longer than that,  it will be
harder to get him off.

I'll be keeping everyone posted.

Don
Poz Bear Type in Philadelphia

Offline aztecan

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  • 29 years positive, 57 years a pain in the butt
Re: More Positive Thoughts for Bob
« Reply #8 on: May 29, 2009, 10:06:21 AM »
Hey Joel,

I am sending much positive energy for Bob.  He will be in my thoughts.

HUGS,

Mark

"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline bear60

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Re: More Positive Thoughts for Bob
« Reply #9 on: May 29, 2009, 10:24:09 AM »
Todays update from Don:

no real change; still on ventulator;

they have decreased sedation and changed the med to one that has a shorter half-life, still agitated.

I'm hoping they will be able to get him off the ventulator within the next day. fever is down from 102 to 99; continuing antobiotics for the
blood infection.
Poz Bear Type in Philadelphia

Offline leatherman

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  • Google and HIV meds are Your Friends
Re: More Positive Thoughts for Bob
« Reply #10 on: May 29, 2009, 10:36:34 AM »
what a wonderful thing you too did, finishing up the painting for Bob. It had to have brought him a little bit of comfort knowing that project was finally completed. Kudos guys! :D

I've been keeping tabs on this thread and have been keeping Bob AND Don in my thoughts. From too much personal experience, I know how hard it is to be in a hospital yourself, much less how hard it is to have your partner lying in that bed. My best wishes and thoughts for both your friends.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline bear60

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Re: More Positive Thoughts for Bob
« Reply #11 on: May 29, 2009, 11:02:33 AM »
Thanks Mark.
Thanks Mikie.
Poz Bear Type in Philadelphia

Offline franfrog

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Re: More Positive Thoughts for Bob
« Reply #12 on: May 29, 2009, 11:32:26 AM »
Joel,
I am sorry I did not see this earlier.  I am still going to send positive thoughts that way.  I hope things are going better.  You and Kurt are great friends to help him as you do.  I will send some good thoughts and hope to hear good news soon.
7/05 diagnosis cd4- 52 vl -?
08/05 cd4-299 vl-1900
10/05 cd4-249 vl-349
12/05 cd4-349 vl-52
03/06 cd4-454 vl-<50
06/06 cd4-508 vl-<50

Offline bear60

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Re: More Positive Thoughts for Bob
« Reply #13 on: May 30, 2009, 09:51:27 AM »
Thanks Fran.  Good to hear from you!

update on Bob...5/29
 
- pretty much same status
- continues to spike fevers, on three antibiotics
- doing a spinal tap to rule out CNS infection
- tried to wean him off of vent, but not successful
- still too unresponsive.
- low dose sedatives
- low setting on vent, so he is breathing on own, with just minimal assist
- his liver and kidney functions still about the same as when he came in, so no impact on them so far; hope that stays.

Don
Poz Bear Type in Philadelphia

Offline Texan38

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Re: More Positive Thoughts for Bob
« Reply #14 on: May 30, 2009, 10:00:00 AM »
Joel,

I'm so deeply sorry.  My thoughts and prayers go out to Bob and a huge hug goes out to you and Kurt.
In Hollywood an equitable divorce settlement means each party getting fifty per cent of publicity.
~ Lauren Bacall

Offline heartforyou

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  • Posts: 1,105
  • I must be a survivor in many ways...
Re: More Positive Thoughts for Bob
« Reply #15 on: June 01, 2009, 05:24:01 AM »
Sending positive thougths over to you all and specially to Bob.

May he recover soon

And yes, to echo the others, I think you are doing a wonderful job...

hugs

Hermie
Diagnosed in 1987 and still kicking
Viread, Kivexa (Epzicom),Viramune once daily

Happiness is the freedom of breathing fresh air every day.

Offline bear60

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Re: More Positive Thoughts for Bob
« Reply #16 on: June 01, 2009, 07:47:01 AM »
Thanks Hermie, it was good of you to offer your thoughts for Bob.  I'm so glad you came thru your "episode" OK.

5/30 update on Bob
Bob is off sedation and off the ventalator! and of course being bitchy.

He's still groggy but he's awake and talking.

No visitors today but starting Monday will be OK. He may get transferred
to a regular floor. I don't expect transfer before Monday night or Tuesday morning; I'll keep everyone posted.
Poz Bear Type in Philadelphia

Offline BT65

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Re: More Positive Thoughts for Bob
« Reply #17 on: June 01, 2009, 09:55:01 AM »
Well, that's good news.  He just keeps defying the odds, doesn't he.  I'll keep him (and you) in my thoughts.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline bear60

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  • Posts: 4,104
Re: More Positive Thoughts for Bob
« Reply #18 on: June 03, 2009, 08:17:51 AM »
update on Bob (from his partner Don)
6-2-09
scheduled to be released tomarrow, Wed. Pretty weak but recovering. This has been a hard hospitalization for him, both physically and mentally.

looking to have a gardening party this Sat or Sun if anyone is interested to come out and garden under Bob's command.

Don
Poz Bear Type in Philadelphia

Offline AndyArrow

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Re: More Positive Thoughts for Bob
« Reply #19 on: June 03, 2009, 06:55:55 PM »
Hopefully some fresh air out in the garden will lift his spirits.
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline bear60

  • Member
  • Posts: 4,104
Re: More Positive Thoughts for Bob
« Reply #20 on: June 07, 2009, 10:12:29 AM »
I'm sorry to have to tell you that Bob's stay at home was short lived.  He went back into the hospital with fluid in his lungs::
update from Don ( Bob's partner

..."will be at HUP at least thru the weekend and
probably part of next week.

he had fluid in his right lung. this is
common for people with severe ascites due
to liver disease. they drained 2 liters (!!!!)
of fluid from his lung, basically he was working
at about 50% lung capacity. he may need to now
get his lung drained on a regular basis as well
as his belly.

still an infection that's not fully characterized
but he is on IV vancomycin which covers just about
everything. He needs to be on that for 14 days; with
the days he was when he was in the ICU, he has about 5
days left.

long term, we're starting the process for evaluation
for transplant and to get him on a transplant list.
Problem is finding a program that will accept him. UPitt
looking like best option. HUP can;t do it as they are part of
an NIH study with strict protocol that Bob does not meet. Dr Forde (who is wonderful; if any of you ever need a liver doc, she is the
one to go to!)  is going to present Bob's case to the transplant board to see if HUP can make an exception.

visitors welcome.He is at HUP Founders building rm 1470.

don"
Poz Bear Type in Philadelphia

Offline BT65

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Re: More Positive Thoughts for Bob
« Reply #21 on: June 07, 2009, 12:23:10 PM »
I'm sorry to hear this, Joel.  More good thoughts sent to Bob, Don, you and your partner.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Miss Philicia

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  • celebrity poster, faker & poser
Re: More Positive Thoughts for Bob
« Reply #22 on: June 07, 2009, 01:28:50 PM »
I'm sending good thoughts for Bob -- he's really been having a time of it.
"Iíve slept with enough men to know that Iím not gay"

Offline bear60

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Re: More Positive Thoughts for Bob
« Reply #23 on: June 07, 2009, 06:08:34 PM »
Thanks David and Betty
Kurt and I went to visit him at U Penn Hospital today.  He was in pretty good spirits given what he's been through.  He said he did not remember anything from the ICU...he was strapped down to the table on a ventilator.  Just as well.
He is  tired of hospitals and wants to go home.
Poz Bear Type in Philadelphia

Offline AndyArrow

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Re: More Positive Thoughts for Bob
« Reply #24 on: June 08, 2009, 05:36:39 AM »
Poor Bob ... my heart goes out to him and I'll be sending good thoughts his way.
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline MOONLIGHT1114

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  • Cheech 2.2.94 - 4.23.10 We miss you so much!
Re: More Positive Thoughts for Bob
« Reply #25 on: June 09, 2009, 09:23:45 PM »
Hi Joel~

I can't believe what Bob has had to endure.  I was happy to see he went home and then in the next post he's back in the hospital again.  He must be so frustrated and exhausted.  I feel terrible about this and will continue to send prayers your way for him.  Hang in there, Bob.   :-*

~Cindy
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline bear60

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  • Posts: 4,104
Re: More Positive Thoughts for Bob
« Reply #26 on: June 15, 2009, 10:59:05 AM »
Update on Bob...June 15
Kurt and I drove out to see Bob yesterday.  Don was planting the flowers that Bob had purchased but never had a chance to put in the ground.  Bob was ok. Its hard to see him in this situation.  Makes me sad.
Anyway, Kurt and I had taken a movie out to watch with him and Don. ..." Sordid Lives."... and we all had a chuckle.  I didnt realize it had been a series on TV (based on the movie), so now I want to buy the TV series DVD.
Kurt is going to go into rotation being with Bob during the day while Don is at work.  Don is making up a schedule for all thier volunteers to "sit" with Bob 2 days a week.
It aint over till the fat lady sings ...as they say.
Poz Bear Type in Philadelphia

Offline BT65

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Re: More Positive Thoughts for Bob
« Reply #27 on: June 15, 2009, 06:19:54 PM »
Joel, so nice of you and Kurt to be so supportive.  Still sending good thoughts......... :-*
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

 


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