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Author Topic: about to lose it  (Read 1064 times)

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Offline Longislander

  • Member
  • Posts: 2,486
about to lose it
« on: May 28, 2009, 03:25:33 PM »
Ever since I became positive, I've had an ongoing problem with flat warts on my chin and around the mouth area. Easy enough to deal with, saw the derm's PA once every 2 weeks on my lunch hour for freezing, shave much less often ( go around looking like hell for days at a time), etc.

About a year ago, I developed a wart on my thumb, a big monster that would appear to be growing from under the side of the nail. The PA said I needed to see a plastic surgeon or a hand specialist.  That was a near impossible feat. All the Plastic Surg's I called would only do breasts or facework. Hand surgeons couldn't imagine why the derm couldn't treat it. Finally, a receptionist could sense my frustration and got me to a derm associated with their hosp. Made an appointment, and he was about to freeze it and I guess, saw the despair in my face. He got the nurse to get out the tools and he cut it off, and put something he called beetlejuice on it. He's since become my new derm, and he's handsome as hell and very nice to me. ( I like to think that he and I are having an affair~) He's a 45 minute drive and making his appt's involve leaving work, which is getting to be a problem.

Anyhow, about 2 months ago, something started to grow on my lower lip, and I assumed it was one of those warts, as I had one on my upper lip just prior to DX, and the old derm removed it, came back a wart, and that was that.  The new Derm wouldn't take it out at first thinking it may just be something from chewing on your lip ( which I really don't do as a habit, but did do for a week back in Oct-dating nerves). On May 8 appt, I basically begged him to get it off my lip as it has grown and is quite noticeable and embarrassing. Again, I'm back to staying home a lot and avoiding people.

Turns out he only scaled it off, and the biopsy came back precancerous not ruling out squamous something or another. Fantastic. He wants me to see a derm surgeon in his office, next appt is 6/3, and then only a consultation. Since I had my regular visit with derm on the 26th, on my way I called to see if the surgeon had any cancellations and I lucked out and was able to see him today. I just got home from that. Another nice guy. He doesn't close his MOHS surgeries on 3 areas, eyes, lips, and genitalia, so I have to have a consult with a plastic surgeon around the corner first. They'll call me when they get a fax from derm surgeon. They just called. I made an appt for 6/8. They don't take my insurance!?

Maybe I'll finish this later, just found a diff plastic surgeon that says they'll work with my ins, which is very good. They can see me today.

OK , I'm back home, good news ( maybe) the plastic surgeon thinks that I won't need his services, but just the same the derm surgery has to be scheduled with the plan of seeing the P.S afterwards, just in case.

On my way there, I called my ID docs office and asked the PA to call me in a prescription for Wellbutrin. She was happy to do so, as long as I agreed to see their psychiatrist. I didn't even know they had one. So she tried to schedule me an appt with him. He's only there on Mondays, from 1-5 pm, and doesn't work anywhere else?? That's not going to work for me, especially considering all my other Dr appts coming up, so on 6/8 ( start of another weeks vacation, when my mom will be up here from Florida, I have to go in and see the same social worker I saw yesterday?? Whatever, just glad to get the script. After I left the plastic surg., I tried to call the derm surg to get that appt made, but the scheduler had just left, I have to call at 9 am. I want this done like yesterday, but of course, I seem to be the only one.

Yesterday I saw the social worker at my ID office, a nice lady , poss a lesbian, she thinks that even though I do have reasons to be somewhat depressed, I should ask the doc about something like wellbutrin. When I was leaving, I passed the other PA sitting at her desk and told her about it, and she asked when my next appt was. Since it isn't for almost 3 months, she changed the subject or something and I left.

Tomorrow morning I see an ass Dr. to get that checked out to see if anythings going on in there. Nothing major going to happen as I don't have to prep or anything.

So, this is my week off from work, hell of a vacation.

Believe it or not I feel so much better after having seeing the plastic surgeon. I was originally told by the 1st office that doesn't take my insurance that it may be done the day after the MOHS surgery, and may be in a hosp under gen anaesthesia?? That didn't help my mood. Along with the far off consultation appt date.  Now that I have that part done, and the good results from it, I feel a lot better.

After I filled out my paperwork, the receptionist, who was awesome to have gotten me in there this afternoon, came to the waiting room to ask me if I worked in (a  town), and I said yes. She asked me if I knew  (so and so), I said yes, we work together everyday. She is the receptionists aunt. So we chatted about her for a few minutes.

When the plastic surgeon came in and sat with me, he looked at my paperwork, and said' you're a pretty healthy guy', I said 'well...', he then saw HIV, and as he pointed to it with his pen, he says 'HIV-how did you get that?' I said, 'well, being gay..." and left it at that. It was all casual and harmless, I think he was just a little surprised to see it. He also said he was surprised it was a cancer because it doesn't look like it to him.

So yeah, mentally things have been rough, but for some reason I now feel a lot better.  Time will tell.


Paul
« Last Edit: May 28, 2009, 06:07:19 PM by Longislander »
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline Oceanbeach

  • Member
  • Posts: 3,565
Re: about to lose it
« Reply #1 on: May 28, 2009, 07:15:08 PM »
Hi Paul,

This was 15 years ago and in Seal Beach but my MD thought I was having a nervous breakdown and was trying different things to get rid of a skin rash, none of which worked.  He referred me to a dermatologist who asked, "What is your HIV status? this question is off the record."  I had just gotten a negative result that month but at the 6 months test, I did test positive for Christmas.  It was from this conversation I believe I was diagnosed by a Seal Beach Dermatologist and everything else was just a confirmation.

When asked, "how did you get your HIV?" by a medical professional, I like to say, "I got mine the old fashioned way, I earned it (with apologies to Smith Barney)".  Having lived with one of the Barneys in college, it seems fair.   ;D  Have the best day
Michael
« Last Edit: May 28, 2009, 07:17:21 PM by Sonomabeach »

Offline J.R.E.

  • Member
  • Posts: 7,099
  • Joined Dec-2003 Living positive, since 1985.
Re: about to lose it
« Reply #2 on: May 28, 2009, 08:54:00 PM »
Paul,

I can certainly understand your frustration with the warts. This had ( I say had) been a problem for me , for several years. I would get them on the corners of my mouth and in particular the lower lip.

It was a constant battle and endless visites to the derm, to finally get rid of these things. I had so many needles stuck in my lips, and then the cutting that takes place, to get them all removed.

I am happy to say, I have been wart free on the face and lips now for over a year !! The lips healed up great. The main thing my derm, says is to get these removed as soon as they are noticed.

I was going to the derm probably 4 times a year, down to two times now, and everything seems to be ok !!

Glad to hear that your in good hands,and that these specialist are working with you. Believe me, I do understand how frustrating this all is. Good luck, wishing you the best !


Take care-----Ray
« Last Edit: May 28, 2009, 08:56:54 PM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

 


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