Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
October 21, 2014, 08:50:27 AM

Login with username, password and session length


Members
  • Total Members: 23737
  • Latest: mithras
Stats
  • Total Posts: 642858
  • Total Topics: 48905
  • Online Today: 221
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Another way AIDS affects us.... I schedule a trip-I get sick!  (Read 1184 times)

0 Members and 1 Guest are viewing this topic.

Offline todd123

  • Member
  • Posts: 67
  • "You don't ask, you don't know."
Well I'm really disappointed because I had to cancel a much in the making scheduled trip
for my partner to go meet my family and to go to a friend's wedding.

I was so looking forward to this trip.  I haven't seen my family since my diagnosis last August.
(They don't know anything yet)  But the disappointment in my Mom's voice and the voice of the groom
really got to me.  I know I did the right thing.  But I'm going to be so hesitant to schedule flights (and they
have to be done so far in advance for fear that I'll feel "sick" and  not be able to go.

Just general aches and fever up to 101.7.  And swollen glands are back.  I've been tested for lymphoma
(Pet Scan) , cmv, toxo, epstein barr and a few others. All negative.  My doc and I are feeling frustrated at this point.
I must add that this thing comes and goes.  On for three weeks, off for two, on again for week, off......
well, you get the picture.

Any thoughts of encouragement or , better, advice from experience would be really helpful.

You guys are great,,

Scott
« Last Edit: May 14, 2009, 11:13:32 PM by todd123 »
Tested HIV+ July 28, 2008
CD4 16 VL over 400,000
Started Prezista/Norvir, Isentress and Intelence; Mepron
8/08   CD4 64    2%      VL 1500
9/08   CD4 135  6%      VL 371
11/08 CD4 104   9%     VL 156
12/08 CD4 161   9%     VL 400
01/09 CD4 109   7%     VL 351
02/09 CD4 218   8%     VL   98
03/09 CD4   80   5%     VL   98 at least that's the same
04/09 CD4 150   7%      VL 100
05/09 CD4 232   8%      VL   90

Offline Assurbanipal

  • Member
  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: Another way AiDS affects us.... I schedule a trip-I get sick!
« Reply #1 on: May 14, 2009, 08:24:27 PM »
Scott

Sorry to hear you are not feeling well.  It is so disappointing, but you need to take care of yourself.

Only suggestion I have to offer is that once you feel up to travel, try to schedule flights in the mornings.  Those flights are a lot less likely to be delayed and it reduces the stress on you from travel a lot when things are less uncertain. 

Best
A
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline moratorium79

  • Member
  • Posts: 44
Re: Another way AIDS affects us.... I schedule a trip-I get sick!
« Reply #2 on: May 15, 2009, 04:01:22 AM »
I wish I could offer advice.  I just want to say that I'm sorry you aren't feeling well and that it's totally interfering with your life.  There is nothing more frustrating than not being able to depend on yourself because you just don't know what's going to happen, or what your body decides to put you through. 

Try and keep your chin up, and get some rest if you can!
*these are not times for the weak of heart*

Offline todd123

  • Member
  • Posts: 67
  • "You don't ask, you don't know."
Re: Another way AIDS affects us.... I schedule a trip-I get sick!
« Reply #3 on: May 16, 2009, 01:07:03 AM »
Thanks to both of you.  I appreciate the support.  Really.
Tested HIV+ July 28, 2008
CD4 16 VL over 400,000
Started Prezista/Norvir, Isentress and Intelence; Mepron
8/08   CD4 64    2%      VL 1500
9/08   CD4 135  6%      VL 371
11/08 CD4 104   9%     VL 156
12/08 CD4 161   9%     VL 400
01/09 CD4 109   7%     VL 351
02/09 CD4 218   8%     VL   98
03/09 CD4   80   5%     VL   98 at least that's the same
04/09 CD4 150   7%      VL 100
05/09 CD4 232   8%      VL   90

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.