Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
December 25, 2014, 12:53:55 AM

Login with username, password and session length


Members
  • Total Members: 24283
  • Latest: mineal
Stats
  • Total Posts: 650350
  • Total Topics: 49650
  • Online Today: 128
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 6
Guests: 102
Total: 108

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: HIV-associated diarrhea study  (Read 1024 times)

0 Members and 1 Guest are viewing this topic.

Offline Trish

  • Member
  • Posts: 332
HIV-associated diarrhea study
« on: April 05, 2009, 09:53:32 AM »
A couple of weeks ago I entered a study for HIV-associated diarrhea at KCUMB (Dybedal Research Center) in Kansas City, MO.  After dealing with diarrhea on a daily basis for nearly 20 years, I decided I needed to do something because nothing else seemed to help ease the diarrhea.  I got tired of rushing to the bathroom, leakage, etc.  You get the picture.  Anyway, the study is a double-blind, randomized study.  I began taking the medication 2 weeks ago and the results so far... still pooping the same.  I'm assuming I'm on the placebo for time being, but I've been told that eventually I'd be on the actual drug which is "Crofelemer" (I think I spelled it right.)  It's being researched by Napo Pharmaceuticals.  There are only 50 sites throughout the U.S. and they enroll approximately 10-20 subjects at each site.  I'll be in the study for 24 or so weeks.  I'm hoping this medication is going to work in the end, because my butt is tired. lol  Each day I have to call in to report on my everyday poops.  They ask what kind of poop it was: watery, loose, formed, hard or very hard.  They even give pictures of each one.  Eeeewww!  And they ask questions like "Have you had any urgency?  Leakage?  Severity of abdominal pain? etc.  Being that I've been a pro (so to speak) on diarrhea for many, many years, I was told that I need to act as though it's new to me.  Living with the diarrhea & cramps for all these years, it's become like second nature to me and I just live with it.  So I have to think like a newbie to it... they don't want me to underestimate the severity of the diarrhea.  I'll keep you posted.

Oh yeah, another reason I joined the study... I figure I may as well get paid to poop!!  :) lol
"People grow through experience if they meet life honestly and courageously. This is how character is buit."  Eleanor Roosevelt

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.