Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
December 18, 2014, 02:17:29 AM

Login with username, password and session length


Members
Stats
  • Total Posts: 649713
  • Total Topics: 49588
  • Online Today: 149
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 4
Guests: 108
Total: 112

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Newly Diagnosed Poz  (Read 4153 times)

0 Members and 1 Guest are viewing this topic.

Offline odyssey

  • Member
  • Posts: 767
  • One Crazy Mofo!
Newly Diagnosed Poz
« on: January 09, 2009, 10:15:20 AM »
I just found out this morning that I am HIV poz. I knew I had a positive ELISA test, and now the Western Blot confirmed it. I am only 22 years old. I'm so scared. People have told me that with the medicines that are available now, I can live a fairly long life, but I am still terrified of dying. I just don't know what to do or think at this point.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%  VL- 32,415
11/09- started Reyetaz/Norvir/Truvada
03/10- stopped R/N/T
10/18/11   CD4- 328   20%  VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
12/30/11  CD4- 523  29%
03/08/12  CD4- 503  31%  VL 57
07/02/12  CD4- 897  43%
08/31/12  CD4- 745  39%
12/27/12  CD4- 884  40%
03/28/13  CD4- 819  39%
07/19/13  CD4- 739  40%
10/17/13  CD4- 535  36%
01/16/14  CD4- 743  43%

02/14- switched from R/N/T to Tivicay/Epzicom because of CKD 3 suspected from tenofovir.

03/14- switched back to R/N/T due to severe nausea and inability to eat on T/E.
 
04/01/14 CD4- 898  42%   VL-

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 25,354
Re: Newly Diagnosed Poz
« Reply #1 on: January 09, 2009, 04:39:16 PM »
Hey Friend,

We're never happy that circumstances cause someone to come here but we're also always glad to welcome you. And to tell you that as stunned as you may feel now -- and whatever other feelings you have -- or even no feelings right now, that you're going to be ok. You're not going to fall through into a black hole.

Read our lessons that are relevant for someone newly infected. You can come here anytime and ask questions or talk about anything that is on your mind.  And you don't have to be concerned about how you say what you have to say. Just...talk.

It is important that you get a doctor who will regularly monitor your numbers. It needs to be someone with whom you can have a good working partnership to keep you healthy. Beyond that you really don't need to feel rushed about making any decisions right now about meds or anything else. Your numbers will need to be watched for a few months  until they begin to settle a bit. In the meantime, do the kinds of sensible things that anyone ought to for good health -- good nutrition, sufficient exercise and rest and avoiding stress as much as possible.

Take your time also about whom you disclose your status to. Read on our lesson on that subject for some pointers.

Gradually you are going to learn whatever you need to know in order to take good care of yourself.

For now, just keep breathing. Nice deep and slow breaths in and out if you find yourself tensing up. It really helps.

You've come to the right place. You're going to find a lot of well informed people here who will be generous about sharing with you and who have been where you're at right now.

Cheers, buddy.
Andy Velez

Offline Moffie65

  • Member
  • Posts: 1,755
  • Living POZ since 1983
Re: Newly Diagnosed Poz
« Reply #2 on: January 09, 2009, 05:38:53 PM »
Odyssey, welcome to the club. 

Let's see, when I got the news, I was 36, and pretty much felt the way you do right now.  However, that was in 1983, and next week I celebrate my 62nd birthday...  Yeeee ha..  I guess the three doctors that gave up on me and pronounced me dead and go home to die in peace were so very wrong.  :)

Ditto to everything Andy has said here, and I also suggest that you start thinking in terms of starting your career in whatever field you decide to choose.  Life is sure short, no matter what baggage the Gods give us to carry, so now is the time to be smart, savy, cunning and just about any other emotion you would ordinarily use to conquer an enemy. 

You'll do fine if you make sure to know everything you can learn about HIV, and don't be afraid to ask your doctors questions.  You'll be seeing them for the rest of your life.  Be choosy if you have that luxury, and make sure you develop a good relationship with said doctor.

Good luck, and ask anything anytime.
The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline odyssey

  • Member
  • Posts: 767
  • One Crazy Mofo!
Re: Newly Diagnosed Poz
« Reply #3 on: January 09, 2009, 06:51:34 PM »
Thank you for the replies. I went to the gym today. I figure that now that I'm poz I can't just sit around and keep eating junk food like I used to. Is it okay to exercise? I'm in college right now, and will graduate with my bachelor's in 2012. After that I'm hoping to go to graduate school and get my Ph.D. Does anyone know if having HIV would prevent me from doing that? Can I get turned down for admission to a graduate program because I'm poz?
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%  VL- 32,415
11/09- started Reyetaz/Norvir/Truvada
03/10- stopped R/N/T
10/18/11   CD4- 328   20%  VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
12/30/11  CD4- 523  29%
03/08/12  CD4- 503  31%  VL 57
07/02/12  CD4- 897  43%
08/31/12  CD4- 745  39%
12/27/12  CD4- 884  40%
03/28/13  CD4- 819  39%
07/19/13  CD4- 739  40%
10/17/13  CD4- 535  36%
01/16/14  CD4- 743  43%

02/14- switched from R/N/T to Tivicay/Epzicom because of CKD 3 suspected from tenofovir.

03/14- switched back to R/N/T due to severe nausea and inability to eat on T/E.
 
04/01/14 CD4- 898  42%   VL-

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 25,354
Re: Newly Diagnosed Poz
« Reply #4 on: January 10, 2009, 09:04:57 AM »
Thank you for the replies. I went to the gym today. I figure that now that I'm poz I can't just sit around and keep eating junk food like I used to. Is it okay to exercise? I'm in college right now, and will graduate with my bachelor's in 2012. After that I'm hoping to go to graduate school and get my Ph.D. Does anyone know if having HIV would prevent me from doing that? Can I get turned down for admission to a graduate program because I'm poz?

Yes, it is definitely ok to exercise. Appropriately. That is, you needn't suddenly go on to any kind of "fierce" regimen. Just exercise healthily. Eating nutritously is also a good idea. Both of those subjects are ones you may want to discuss with your primary care doctor or other appropriate professionals when you can.

And that's right to be thinking about college and beyond. You'll continue your education and working towards whatever goals you have in mind that you value. Your HIV status is irrelevant for admission to a graduate program and will not even enter into the conversation for admission.

You are HIV+. And who you are and what will be included in your live is about much more than your HIV status.

It's good to know that you're already thinking ahead to the future. All kinds of feelings are likely to come and go. Just keep taking healthy actions in your life.

Cheers.
« Last Edit: January 10, 2009, 09:06:46 AM by Andy Velez »
Andy Velez

Offline odyssey

  • Member
  • Posts: 767
  • One Crazy Mofo!
Re: Newly Diagnosed Poz
« Reply #5 on: January 12, 2009, 07:58:12 PM »
This whole thing is such an emotional rollercoaster. I feel so disgusted with myself. I feel like I am contaminated. I have such anger against myself and the cosmos right now. I'm just not sure how to cope. I don't really have anyone to talk to, and feel very alone. There is just a big part of me that wants to not believe that I'm poz, that somehow if I deny it, it won't be true. I'm going to see the ID doctor on Friday.
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%  VL- 32,415
11/09- started Reyetaz/Norvir/Truvada
03/10- stopped R/N/T
10/18/11   CD4- 328   20%  VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
12/30/11  CD4- 523  29%
03/08/12  CD4- 503  31%  VL 57
07/02/12  CD4- 897  43%
08/31/12  CD4- 745  39%
12/27/12  CD4- 884  40%
03/28/13  CD4- 819  39%
07/19/13  CD4- 739  40%
10/17/13  CD4- 535  36%
01/16/14  CD4- 743  43%

02/14- switched from R/N/T to Tivicay/Epzicom because of CKD 3 suspected from tenofovir.

03/14- switched back to R/N/T due to severe nausea and inability to eat on T/E.
 
04/01/14 CD4- 898  42%   VL-

Offline komnaes

  • Member
  • Posts: 1,898
Re: Newly Diagnosed Poz
« Reply #6 on: January 12, 2009, 09:51:05 PM »
"Denial" doesn't really help buddy. You will end up spending more time and efforts to will yourself not to think about it. It may sound counter-initiative, but acceptance is easier, trust me.

Take care of you health, find a local support group so you can start developing a support network, concentrate on study and other things importance in life and very soon you won't need to feel the need to "deny" it. It will become easier.

Best of luck my friend, Shaun
Aug 07 Diagnosed
Oct 07 CD4=446(19%) Feb 08 CD4=421(19%)
Jun 08 CD4=325(22%) Jul 08 CD4=301(18%)
Sep 08 CD4=257/VL=75,000 Oct 08 CD4=347(16%)
Dec 08 CD4=270(16%)
Jan 09 CD4=246(13%)/VL=10,000
Feb 09 CD4=233(15%)/VL=13,000
Started meds Sustiva/Epzicom
May 09 CD4=333(24%)/VL=650
Aug 09 CD4=346(24%)/VL=UD
Nov 09 CD4=437(26%)/VL=UD
Feb 10 CD4=471(31%)/VL=UD
June 10 CD4=517 (28%)/VL=UD
Sept 10 CD4=687 (31%)/VL=UD
Jan 11 CD4=557 (30%)/VL=UD
April 11 CD4=569 (32%)/VL=UD
Switched to Epizcom, Reyataz and Norvir
(Interrupted for 2 months with only Epizcom & Reyataz)
July 11 CD=520 (28%)/VL=UD
Oct 11 CD=771 (31%)/VL=UD(<30)
April 12 CD=609 (28%)/VL=UD(<20)
Aug 12 CD=657 (29%)/VL=UD(<20)
Dec 12 CD=532 (31%)/VL=UD(<20)
May 13 CD=567 (31%)/VL=UD(<20)
Jan 14 CD=521 (21%)/VL=UD(<50)

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 25,354
Re: Newly Diagnosed Poz
« Reply #7 on: January 13, 2009, 04:45:48 PM »
Ody, everything you are saying rings very true and familiar. That may not help you at this moment, but I can tell you that for sure everything you're describing is a part of what so many experience.

Give yourself a break. Gentleness. You haven't done anything "wrong." You have a virus. It's not a condemnation of you or your life. It's a virus.

Of course it would be preferred to not have happened. But it has. And it's all still terribly new for you. So like I said, gentleness with yourself is what is needed. Not beating up on yourself.

And keep going. Awaiting further words from you after your appointment on Friday. If you have questions in mind, write them down ahead of time. Too often it's easy to forget things you wanted to ask when you're actually in the doctor's office. So don't depend on your memory.

Cheers.
Andy Velez

Offline MaxPep

  • Member
  • Posts: 8
Re: Newly Diagnosed Poz
« Reply #8 on: January 14, 2009, 10:20:58 PM »
I'm newly diagnosed (Dec 5) at 27 years old.  I am also in school working on a doctorate and will be graduating in 2013. So our situations are kinda similar.  I don't plan to give up any of my goals or aspirations.  I've had my days where I just wanted to give up everything.  And then I realize that I have a very long life ahead of me I can do everything I planned to do before my diagnosis.  I know it may will not always be easy. But we can do it!!!

Take care.
12/5/08 - diagnosed
12/7/08 - CD4 70 15%, VL 21,181
12/19/08 - CD4 82 16.5%, VL 20,000
Started Atripla, Zithromax and Bactrim
1/24/09 - Next Labs
No OI's to date

Offline hotpuppy

  • Member
  • Posts: 555
Re: Newly Diagnosed Poz
« Reply #9 on: January 14, 2009, 11:17:21 PM »
I was diagnosed last December. (2007).  I can tell you that the first year will have it's ups and downs.  I chose to be thankful for what I had and to learn from the challenges and experiences.  It is not easy.  In fact at times it's frustrating, depressing, and scary.

However, I have made many new friends, found out who my true friends were, and learned as much as I can about HIV.  I'm on meds that work great for me with few side affects.  I encourage you to relax for a second, take a deep breath, and know that it will be okay if you want it to be.

Thriving with HIV means taking care of your body, eating right, exercising, and getting treatment.  Treatment means going to the doctor, participating in your care, and taking the meds as if your life depended on it.  Taking care of your body means re-evaluating bad habits like smoking, alcohol, and recreational drugs.  Abusing your body makes it harder to be in good health.  It's up to you now more than ever to decide how you will live your life.

Some say we create our own reality.  While physically this is impossible, mentally I think it is absolutely true.  The mind is a very powerful force that focuses in on what you wish to achieve.  If you are depressed and focused on negativity, your mind will find more of it.

It's natural to have feelings that are less than, um, successful when you find out you are HIV positive.  It will be okay.  I recommend finding a therapist or counselor to talk to.  Many ASO (HIV / AIDS Service Organizations) offer counseling on a free or sliding scale basis.  There are also many HIV support groups where you can go and meet other people with HIV.  I'm telling you that there is nothing like meeting a guy or gal who has had HIV for 5, 10, 15, or 20+ years to show you that it can be done.  There are many such people here who are an inspiration.  We have it so much easier than they did. 

Despite having HIV, you are still a living, loveable, valuable person.  It doesn't matter how you got it.  HIV doesn't care if you were right, wrong, victim, or aggressor.  HIV is truly equal opportunity.  It changes your life, but it should not destroy it.  It is possible to find a man or woman who will love you for who you are, including your HIV.  You can still go on to get a degree, fall in love, have adventure, experience life, and be a good person.  Don't let anyone tell you otherwise.  You will here things that are downright vile from people who are scared, ignorant, or both.  Ignore them.  Believe in yourself. 

HIV has made me acutely aware of how important life is and to appreciate each day. 

Welcome to the forums.
-Brian
Don't obsess over the wrong things.  Life isn't about your numbers, it isn't about this forum, it isn't about someone's opinion.  It's about getting out there and enjoying it.   I am a person with HIV - not the other way around.

Offline NewYorkKat

  • Member
  • Posts: 134
  • Hangin' On Staying Strong
Re: Newly Diagnosed Poz
« Reply #10 on: January 15, 2009, 10:31:56 AM »
I know how you feel but do not let it stop you! Just like everyone has said: monitor your health and make healthy choices. Learn all you can about HIV. I am graduating from college and looking into grad school and  I AM 38 YEARS OLD! You think I have time wishing could have, would have, should have! No way, No how, No Puppy Chow!(An Old School saying from my Double Dutch Bus days)

Remember, do not let a diagnosis ruin your dream. I am not letting it!


Offline odyssey

  • Member
  • Posts: 767
  • One Crazy Mofo!
Re: Newly Diagnosed Poz
« Reply #11 on: January 15, 2009, 02:14:30 PM »
Thank you all for the kind words. I go to see the ID doctor for the first time tomorrow. I am already working with a wonderful therapist, and have told him about my diagnosis. He is very supportive, and I'm confident he'll help me through this as he has helped me through tough times in the past. I am determined to live my life to the fullest and not let being poz destroy my body or my spirit. I guess being stubborn is a good thing!
01/09/09- diagnosed HIV+
01/16/09   CD4-425    22%  VL- 32,415
11/09- started Reyetaz/Norvir/Truvada
03/10- stopped R/N/T
10/18/11   CD4- 328   20%  VL- 84,000
10/25/11   CD4- 386   22%
10/28/11- start Truvada/Reyetaz/Norvir
12/30/11  CD4- 523  29%
03/08/12  CD4- 503  31%  VL 57
07/02/12  CD4- 897  43%
08/31/12  CD4- 745  39%
12/27/12  CD4- 884  40%
03/28/13  CD4- 819  39%
07/19/13  CD4- 739  40%
10/17/13  CD4- 535  36%
01/16/14  CD4- 743  43%

02/14- switched from R/N/T to Tivicay/Epzicom because of CKD 3 suspected from tenofovir.

03/14- switched back to R/N/T due to severe nausea and inability to eat on T/E.
 
04/01/14 CD4- 898  42%   VL-

Offline tag_man08

  • Member
  • Posts: 118
  • Keep Dreaming!!!
Re: Newly Diagnosed Poz
« Reply #12 on: January 16, 2009, 07:25:04 PM »
Just to add like some others have said....I was diagnosed half-way through my graduate program in Aug 2007...and even at 36yr I felt afraid, dirty, and ashamed.  But, the best advise I got...was to continue my dreams.  It was so hard going back to school.  My grades dropped a little, but they came back up.  I told my best friend in school and she helped me mentally along the way.  You definitely need a good support system right now.  Just continue to live and follow your dreams.  There is nothing that can stop you.  I finished a few months ago and look back now at what I accomplished.  I am a winner.   I am so proud I stuck through the hardest days.  It some ways...school got me to thinking about other things instead of my new diagnosis.  So...all I can tell you....is find some friends who are winners...you just found many here in this topic that are telling you it can be done.  We are here for you.  You are not alone.
08/30/07:  The HIV diagnosis...
09/07/07:  CD4 299 (21%)  VL 160K
01/07/08:  CD4 396 (26%)  VL 125K
04/21/08:  CD4 478 (25%)  VL 92K
09/03/08:  CD4 313 (23%)  VL 10K
11/03/08:  CD4 338 (23%)  VL 30K
11/21/08:  Isentress & Truvada
12/05/08:  CD4 485 (29%)  VL  undetectable in two weeks
03/13/09:  CD4 575 (30%)  VL  undetectable

Offline jayjax

  • Member
  • Posts: 83
Re: Newly Diagnosed Poz
« Reply #13 on: February 02, 2009, 09:00:27 PM »
Hotpuppy !

I just want to comment on how inspiring your words are.  You write from the heart !

jayjax
08 Oct 08:  Diagnosed
18 Oct 08:  1st Lab Work: CD4 - 268, VL 7,000
18 Nov 08:  Started Atripla
28 Jan 09:   CD4 - 195, VL 70
05 May 09:  CD4 - 201, VL = Undetectable
16 Aug 09: CD4 - 235, VL = Undetectable
30 Nov 09 CD4 - 300, VL = Undetectable
30 Mar 10 CD4 - 305, VL = Undetectable
27 Jul 10 CD4 -  301, VL = 100
13 Aug 10 -- Switched to Truvada/Reyataz/Norvir
30 Sep 10 --  CD4 598, VL = Undetectable

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.