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Author Topic: New member - hmarkwa  (Read 1910 times)

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Offline hmarkwa

  • member
  • Posts: 2
New member - hmarkwa
« on: January 17, 2009, 11:55:59 PM »
Hi,

I was diagnosed with HIV-AIDS Aug. 25th '08. That morning when I got up, instead of going to work, I checked myself into the emergency room at my local hospital; because I had severe congestion and could hardly breath. I felt like I was suffocating. I thought I just had bronchitis and would get some antibiotics and go on. I was not expecting what happened and was shocked. The emergency room doctor examined me and noticed that I also had a rash and was underweight. I knew nothing about AIDS and did not put it together, that these were all AIDS related symptoms, but the doctor did.

Before that day that I finally went to the hospital, I had gradually gotten more and more sick over a period of about a month or so, but had been just taking OTC cold/allergy meds. and using OTC rash cream, hoping I would get better on my own; but I didn't.

After I had been examined and x-rays of my chest taken, when I was in the emergency room, all of a sudden they rushed in wearing masks and gloves, and put a mask on me and put a plastic bag like thing over me on my hospital bed. They told me that I probably had AIDS and might also have TB, which was why they were doing what they were doing. I was then put in an isolation room in critical care and hospitalized for 10 days til Sept. 3rd.

It turned out that I did have AIDS and PCP, which had also caused me to get a pulmonary embolism, but I did not have TB.

The next month in Oct., I found out about the AIDS organization in my area, and they referred me to the Ryan White Clinic in my area.

In Nov. when this clinic started treating me, I had a viral load of 173,060 and a CD4 count of 9/0.9% - full blown stage 4 AIDS. They started me on Azithromycin, in addition to the Bactrim the hospital had put me on.

Last month in Dec. I had improved some and had a VL of 114,370 and a CD4 of 14/1.3%. By then they had decided what my OBT would be, and I started taking Kaletra and Truvada.

This month after one month on this regimen, I now only have a VL of 120 and my CD4 is back up to 204/9.7%.

So I'm happier and more hopeful now, that I will soon achieve undetectable; but I know that doesn't mean I'm "cured", so I still worry about what might happen to me.   

Everyone says you can live a long time with it these days, and can name celebrities who have. Based on looking at my past, and how far the disease had progressed, me and my health care providers figure I have probably been infected for over 8 years already.

Offline Veritee

  • Member
  • Posts: 180
    • Post Natal Illness Support
Re: New member - hmarkwa
« Reply #1 on: January 18, 2009, 12:37:39 PM »
A big welcome to this forum.

I am not long diagnosed either and my husbands diagnosis was in similar circumstances to yours.

My husband was only diagnosed when he became ill with AIDs and PCP with a CD4 of 9 and the same symptoms you describe so was hospitalised - this was in January 2008. He was probably infected also about 8 years ago and me a little later via him. we are both in our 50s

I was then of course tested and I also was found to have HIV but borderline as my CD4s when tested  was 180 ish, but I have not felt 'right' either for over a year,  but not as ill as him and so until he went into hospital and was found to have HIV and PCP we had no idea what was wrong with us

anyway we have been on medication since about April and we are both doing quite well as we are both undetectable and our CD4s in the 200s and hope that they will improve in time - and we both feel a lot better.

We to are hoping that the meds work for us and we have a lot of time together in the future.

This is a great forum

Veritee
I have a blog here, please do not judge me on what I say here- I need to offload and this is where I do it: http://hiv-and-us.blogspot.com/

Offline Andy Velez

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  • Member
  • Posts: 24,399
Re: New member - hmarkwa
« Reply #2 on: January 25, 2009, 09:49:50 AM »
Hello, Hmark,

It's good to know that your numbers and your health are moving in a good direction. 

Having a good working partnership with your doctor is one of the most important things in keeping you healthy. Gradually you're going to learn what you need to know to stay healthy. As shocking as your sudden illness must have been, you're going to see that life is going to go on and it will be about more than just HIV.

You're always welcome here to talk about anything that's on your mind and to ask questions.

Welcome.
Andy Velez

Offline xyahka

  • Member
  • Posts: 778
  • Dance together!! aha!! aha!! I like it!!
Re: New member - hmarkwa
« Reply #3 on: January 25, 2009, 02:22:43 PM »
Hi friend, so glad reading your numbers are doing better, i am sure you will reach the undetectable soon.

Just wanted to say hi and send you a big welcome hug. :)

Juan Carlos .. diagnosed almost 2 years ago (time flies...)
13/03/07 1er diagnóstico /Peso: 79kg
19/04/07 CD4: 494 /CViral: ?? /Peso: 80kg
19/07/07 CD4: 659 /CViral: ?? /Peso: 79.5kg
06/03/08 CD4: 573 (después de meses muy deprimido) /CViral: ?? /Peso: 79kg
17/09/08 CD4: ?? /CViral: ?? /Peso: 84Kg
06/02/09 CD4: ?? /CViral: ?? /Peso: 85Kg /HCV: Neg /HBV: Neg.
07/03/09 CD4: ?? /CViral: ?? /Peso: 87Kg / Gym 3días/semana y Natación 2días/semana.
12/05/09 CD4: 470 /Cviral: ?? /Peso: 87Kg.
08/07/09 CD4: ? /CViral: ? /Peso: 77Kg.
09/12/09 CD4: 510 /CViral: ? /Peso: 78kg. No medicinas aún
10/01/10 CD4: ? /CViral: ? /Peso: 76Kg.
15/05/10 CD4: 320 /CViral: ? /Peso: 76Kg.
01/02/11 CD4: 291 /CViral: ? /Peso: 78kg.
05/05/11 CD4: 366 /CViral: ? /Peso: 78kg.
27/07/11 CD4: 255 /CViral: 138000 /Peso: 78kg.

Disfrutando y aceptando una nueva vida...

 


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