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Author Topic: Just Tested Positive and SCARED !!!  (Read 19616 times)

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Offline jayjax

  • Member
  • Posts: 83
Re: Just Tested Positive and SCARED !!!
« Reply #50 on: June 23, 2009, 08:31:27 PM »
Hey Mikey

Glad to hear you're starting the meds. I wish I would have started on the weekend. I probably would have been better prepared to starting my meds for the rest of my life.  Instead, I started during the middle of the week and luckily I had no initial side effects, but definately was stressed out.  Everyones body will react to the meds differently. You may not have any side effects and you may feel mild side effects to the meds initially.  Your ID doc probably wants you to start over the weekend, simply to overcome any initial reactions. Also, if you're working during the week, you have the added stress of work related issues  the big change doesn't need to be one more stress during the week. I encourage you to take your ID doc's advise.  If you have any problems, please let them know immediately.

We're all praying for you Buddy!  Keep in touch and let us know how you progress. 

JayJax
08 Oct 08:  Diagnosed
18 Oct 08:  1st Lab Work: CD4 - 268, VL 7,000
18 Nov 08:  Started Atripla
28 Jan 09:   CD4 - 195, VL 70
05 May 09:  CD4 - 201, VL = Undetectable
16 Aug 09: CD4 - 235, VL = Undetectable
30 Nov 09 CD4 - 300, VL = Undetectable
30 Mar 10 CD4 - 305, VL = Undetectable
27 Jul 10 CD4 -  301, VL = 100
13 Aug 10 -- Switched to Truvada/Reyataz/Norvir
30 Sep 10 --  CD4 598, VL = Undetectable

Offline mikey62

  • Member
  • Posts: 32
Re: Just Tested Positive and SCARED !!!
« Reply #51 on: June 24, 2009, 12:27:34 AM »
Ok, so it's 9:25PM PST and I just took my first dose of Truvada/Sustiva.  I also took a Benadryl so as to combat the possible rash from the Sustiva.  Also, to hopefully help me fall asleep.

Wish me luck and I'll report back sometime tomorrow.
Hopefully I'll hear the alarm clock go off.  LOL

Oct '07 - seroconverted (didn't know what it was at the time)
8/21/08 - tested HIV+
9/18/08 - CD4:329  21%  VL:7000
11/13/08 - CD4:415  19%  VL:5470
1/30/09 - CD4:109  18%  VL:5000 (bad lab count) THAT was scarey!
2/12/09 - CD4:389  19%  VL:5500 (re-tested)
4/15/09 - CD4:365  19%  VL:18,320  (due to slight infection)
5/30/09 - CD4:279  20%  VL:285K  time for meds (Atripla)
6/23/09 - CD4:264  20%  VL:683
9/25/09 - CD4:318  21%  VL:325
11/20/09 - CD4:330  24%  VL:123.  I'm gettin there...
1/15/10- CD4:337  24%  VL:118
2/26/10 - CD4:389  28%  VL:ud
6/25/10 - CD4:395  25%  VL:ud
8/24/10 - CD4:407  28%  VL:ud
1/14/11 - CD4:512  26%  VL:ud
6/09/11 - CD4:535  29%  VL:ud
4/02/13 - CD4:605  32%  VL:ud
6/14/13 - CD4:470  29%  VL:ud

Offline mikey62

  • Member
  • Posts: 32
Re: Just Tested Positive and SCARED !!!
« Reply #52 on: June 24, 2009, 11:30:39 AM »
Well, I made it through the first night.  A couple of odd dreams, but nothing bizzare or scarey.
I woke up a couple times but was able to go back to sleep.  I even woke up before my alarm clock went off but stayed in bed as long as I could.

Feeling a little light-headed, but I'm sure that's to be as expected.  No nausea or anything.  I had some yogurt with granola and I feel pretty good. 

Overall, I'm really surprised and pleased so far.  I'm probably a little more in tune with my body today and looking or waiting for other signs.  We'll see how the day progresses.

I sure hope this works.
Today is the first of a new day for the rest of my life.   I'm glad to be alive.   
Oct '07 - seroconverted (didn't know what it was at the time)
8/21/08 - tested HIV+
9/18/08 - CD4:329  21%  VL:7000
11/13/08 - CD4:415  19%  VL:5470
1/30/09 - CD4:109  18%  VL:5000 (bad lab count) THAT was scarey!
2/12/09 - CD4:389  19%  VL:5500 (re-tested)
4/15/09 - CD4:365  19%  VL:18,320  (due to slight infection)
5/30/09 - CD4:279  20%  VL:285K  time for meds (Atripla)
6/23/09 - CD4:264  20%  VL:683
9/25/09 - CD4:318  21%  VL:325
11/20/09 - CD4:330  24%  VL:123.  I'm gettin there...
1/15/10- CD4:337  24%  VL:118
2/26/10 - CD4:389  28%  VL:ud
6/25/10 - CD4:395  25%  VL:ud
8/24/10 - CD4:407  28%  VL:ud
1/14/11 - CD4:512  26%  VL:ud
6/09/11 - CD4:535  29%  VL:ud
4/02/13 - CD4:605  32%  VL:ud
6/14/13 - CD4:470  29%  VL:ud

Offline jayjax

  • Member
  • Posts: 83
Re: Just Tested Positive and SCARED !!!
« Reply #53 on: June 24, 2009, 09:00:26 PM »
Mikey,

Hey glad to hear your first night went well.  Your first week will be the adjustment period. Hang in there buddy ... Keep us posted.

Each day will get easier.

JayJax
08 Oct 08:  Diagnosed
18 Oct 08:  1st Lab Work: CD4 - 268, VL 7,000
18 Nov 08:  Started Atripla
28 Jan 09:   CD4 - 195, VL 70
05 May 09:  CD4 - 201, VL = Undetectable
16 Aug 09: CD4 - 235, VL = Undetectable
30 Nov 09 CD4 - 300, VL = Undetectable
30 Mar 10 CD4 - 305, VL = Undetectable
27 Jul 10 CD4 -  301, VL = 100
13 Aug 10 -- Switched to Truvada/Reyataz/Norvir
30 Sep 10 --  CD4 598, VL = Undetectable

Offline mikey62

  • Member
  • Posts: 32
Re: Just Tested Positive and SCARED !!!
« Reply #54 on: July 22, 2009, 11:51:30 PM »
Ok, so here is my recent update.
After 4 weeks on Truvada/Sustiva, my CD4 went from 279 to 264, 19.9% to 20.3%, VL went from 285000 to 264.  Not sure why my cells went down, but my ID doc said my numbers may fluctuate.  But I'm really excited that my VL load drop dramatically and my % went up, probably to two more important numbers to keep a watch on.  My cholesterol has even gone down for the first time in 20 years.  YAY!!!  I'm pleased to see that because I have read that some meds may have an adverse affect on cholesterol. 

So, because I did relatively well in dealing with the Sustiva, I am starting Atripla tonight and will continue to have bloodwork done until my VL is undetectable.  And then, just routine every 3 months. My ID doc also said that my t-cell numbers will start to go back up.  I sure hope so.

As for the Sustiva, I didn't really have major problems like I have read some other people have had.  The first 3 weeks were definitely and adjustment to the fogginess and dizziness in the morning, but the 4th week was much better.  Oh, and I am dreaming much more than I ever have, but no nightmares or night terrors.  Thank God.
Other than that, I haven't had any other issues with the meds, so I'm excited to go on just one-a-day. 

Thanks to everyone for your help, advice and support on this thread.  I'm continuing to have a positive attitude (no pun intended) and know I will live long.

So for those of you who are just finding out your poz, it is nothing to be scared about and it is no longer the death sentence it once was.  Today's meds are so much more advanced than they were more than 20 years ago.  Modern medicine has definitely come a long way and I'm glad to be part of it.  You can too and will, now that you have found us here on the forums.  We have all been through the same feelings you're going through and it is completely normal.  Just stay strong and live long.

Cheers for now,
mikey  :)
Oct '07 - seroconverted (didn't know what it was at the time)
8/21/08 - tested HIV+
9/18/08 - CD4:329  21%  VL:7000
11/13/08 - CD4:415  19%  VL:5470
1/30/09 - CD4:109  18%  VL:5000 (bad lab count) THAT was scarey!
2/12/09 - CD4:389  19%  VL:5500 (re-tested)
4/15/09 - CD4:365  19%  VL:18,320  (due to slight infection)
5/30/09 - CD4:279  20%  VL:285K  time for meds (Atripla)
6/23/09 - CD4:264  20%  VL:683
9/25/09 - CD4:318  21%  VL:325
11/20/09 - CD4:330  24%  VL:123.  I'm gettin there...
1/15/10- CD4:337  24%  VL:118
2/26/10 - CD4:389  28%  VL:ud
6/25/10 - CD4:395  25%  VL:ud
8/24/10 - CD4:407  28%  VL:ud
1/14/11 - CD4:512  26%  VL:ud
6/09/11 - CD4:535  29%  VL:ud
4/02/13 - CD4:605  32%  VL:ud
6/14/13 - CD4:470  29%  VL:ud

 


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