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Author Topic: Ladies Thread #56 Marching to a Different Drummer  (Read 23623 times)

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Offline minismom

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  • Posts: 2,605
  • Quocumque jeceris stabit
Re: Ladies Thread #56 Marching to a Different Drummer
« Reply #100 on: March 26, 2009, 09:40:34 PM »
I'll take #100.  I've got a thought about a title, but we'll see if someone beats me to it. 

Just a quick recap of our appoitment today. I posted a bit more in LW thread.  In short: WE LOVE DR.F! He spent 2hours talking to us and examining Mim.  He wrote down goals that we wanted to have happen.  She will be taken off Zerit, but not right now.  He's got 4 possible drug combos that he wants to research in terms of developmental side-effects.  We talked about acceptable side-effects (lipo) vs. unacceptable (neurotoxins).  In other words, if a med combo is easy on the neuro-issues, but causes lipo, we'll take it.  Seeing as all combos have some sort of long-term side effects, we prioritized them.  Sounds odd, but it makes sense to us.  He'll have her new combo ready for her when we go back April 15th.

He also found something today that 10 doctors in the last 3mths (including 1 on Monday) have completely missed - a heart murmur!  It wasnt' subtle and even Hubby heard it.  So, now, she has an EKG scheduled for 4/24.  6 appointments in 6wks.  By the middle of May, we should be well on our way to having our answers.

Netta, we are certainly keeping your family in our prayers.  I'm so sorry about the loss of your brother.

Mum
www.watoto.com
www.MotherBearProject.org
"Whichever way you throw me, i will stand"
"Don't worry about the world coming to an end today...it's already tomorrow in Australia"  Charles Schultz

Offline BT65

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Re: Ladies Thread #56 Marching to a Different Drummer
« Reply #101 on: March 27, 2009, 09:03:04 AM »
Morning all,

Andrea, I hope you feel better.  Hey, I've gained a little over 20 lbs this winter.  I know I need to lose weight, and will probably get back on the diet after Easter.  There is just too much good candy out there right now. :)

Netta, I am so sorry about your brother.  You have my condolences.  And I'll keep Bernie in my thoughts.  I'm glad he died peacefully; that's important.  He's at rest finally.

Wendy, yeah, I'm confused a bit also about the happy birthday thing.  Was it your birthday?

Queen, I'm sorry about Lucifer.  I've never had a cat that did that.  That's got to be a hard decision to make about giving him up.  How do you get that rent rebate?

Mum, I'm so glad you like the new doctor.  I hope he finds a good combo for Min.  And I hope her EKG is unremarkable and the heart murmur is not causing problems.  You may as well start the new thread, especially if you have a title for it. 

I guess they started putting only 50 posts per page, because I was a bit confused when I came on and saw we're on the 3rd page of this thread already.  Anyway, yesterday I went to that church I'm going to have a four-week part-time job at and met the pastor and the lady in charge of the soup kitchen.  They serve breakfast to the homeless there.  The lady told me yesterday that they had 64 people there for breakfast.  I start Monday at 8:15 a.m.    I don't have unrealistic expectations, I know I'm not going to cure anyone.  I just hope I make a tiny difference to someone. 

Other than that, I'm 1/2 way done with this semester.  Today I might go to the new women's HIV support group.  Other than that, I'll be doing homework.  You all have a good one.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Queen Tokelove

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Re: Ladies Thread #56 Marching to a Different Drummer
« Reply #102 on: March 27, 2009, 06:15:18 PM »
Hmmm, I thought the rent rebate was for everyone on disability. I don't think it is just for Pa. Anyway, you have to get the rebate book and fill out the form in it. You also must have a lease or rent receipts to where you are living now. Or where you lived in 2008. The landlord has a part to fill out too or if you are having problems with your landlord you can get that section notarized. The most you can get is $650 dollars, that's what I am getting. And if you send it in early enough you can have it by July 1 otherwise it will come later.

Not much going on with me. The weather was nice today. I did laundry and worked out for about 30 minutes doing anything and everything I could think of. I have to get rid of this stomach. And I guess it is going to take about 2 years, well going by Valerie Bertinelli, who was way heavier than I am. I am still trying to find a gym to go to or I may have to pay for guest passes at the Y. I haven't gotten that far yet. But the exercises I am doing at home are sit ups, the girly kind, dancing even, focusing on my core area, and leg exercises. I am also trying to find a tai chi video but haven't been able to find one. Anyone have any suggestions?

I am going stir crazy sitting in the house. I did go out for a few but was too nervous about driving and running out of gas since the gas gage is messed up in the car. It's hard for me to tell how much gas I have. I do have to get an oil change, it's overdue.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline minismom

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  • Posts: 2,605
  • Quocumque jeceris stabit
Re: Ladies Thread #56 Marching to a Different Drummer
« Reply #103 on: March 27, 2009, 06:33:38 PM »
OK, ladies, consider this thread closed.  Please post in the Ladies Thread #57

Mum
www.watoto.com
www.MotherBearProject.org
"Whichever way you throw me, i will stand"
"Don't worry about the world coming to an end today...it's already tomorrow in Australia"  Charles Schultz

 


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