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Author Topic: Varicella Zoster Virus (Shingles) Reyataz, Norvir, Truvada  (Read 2226 times)

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Offline HIVEMT

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Varicella Zoster Virus (Shingles) Reyataz, Norvir, Truvada
« on: October 19, 2008, 08:11:00 AM »
I started my combo September 14th, 2008. October 3rd, I suffered what appeared to be a stroke and was rushed to a stroke center here in Oakland, Ca. It turned out that I was suffereing Varicella Zoster Virus (Shingles) and strangely enough it was attacking the left side of my face. Now I didn't officially have a stroke but I had to be treated with Acyclovir and had to be monitored because they though that the combo had caused it. Lucky for me the combo had nothing to do with it...just dumb old me takes his meds but never takes time for himself and is always caring for others...and of course those that I have picked up from the clubs at 2 and 3 in the morning certainly didn't show any care while I was in the hospital. I'm doing much better but be careful...Varicella Zoster Virus is BRUTAL!

Offline Ann

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Re: Varicella Zoster Virus (Shingles) Reyataz, Norvir, Truvada
« Reply #1 on: October 19, 2008, 08:30:22 AM »
Hi hivemt, welcome to the forums.

I hope you're feeling better now. It's good that you got medical care fairly quickly, shingles on the face/head can be quite serious if not treated aggressively. A friend of mine had it on the left side of her head a few years ago and it was initially misdiagnosed. She has serious problems with her eyesight in her left eye to this day, and they're even talking corneal transplant. Sometimes it flares up on her and her eye and part of the left hand side of her face droops and light is unbearable, so she has to wear sunglasses even in the house.

I've never heard of anyone attributing shingles to hiv meds. (how strange!) Stress, poor health, hiv, etc are the usual culprits. Please do try to take care of YOU and reduce your stress, if possible. Maybe the stress of starting meds was the cause, not the meds themselves.

You might want to ask your doctor to give you a script for acyclovir or valacyclovir (in the recommended dose for shingles) in case you have a repeat performance of the shingles. The sooner the antivirals are started, the less intense the outbreak.

Again, welcome to the forums.

Ann
Condoms are a girl's best friend

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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Graywolf

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Re: Varicella Zoster Virus (Shingles) Reyataz, Norvir, Truvada
« Reply #2 on: October 19, 2008, 08:45:56 AM »
I can sympathize fully. It was a long time ago and during a period of extreme stress when I woke up in the middle of the night feeling like someone had gone over one side of my face with a nail gun. It was a Friday and not thinking anything like shingles I went to work. BY that time I had welts covering one side of my face, a few right around my eye,

I went to a local clinic, that rushed me right over to the ER. I was in the hospital for a week on IV acyclovir and on high dose oral for a couple of months. Luckily it never go in my eye as I was told I could have lost sight in that eye, or worse. I had numbness and tingling on one side of my face for 6 months.

Doctor told me that most people get shingles around the trunk of their body,m it's when it gets above the neck when it's serious.

It was good you caught it soon

I take 800MG acyclovir twice a day as prophylactic been on it for years. I wish HIV meds had  the lack of side effects as acyclovir. I've recently been reading and my doctor said that acyclovir may have some limited effect against HIV itself.
"If we don't learn to live as brothers, we will perish as fools" - Dr martin Luther King Jr

Offline ARMANDO

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Re: Varicella Zoster Virus (Shingles) Reyataz, Norvir, Truvada
« Reply #3 on: October 19, 2008, 09:40:51 AM »
i had shingles on the right side of my face  which literally felt like i was  having nails driven into my head,it was so painful that i had to be put on morpheme(not spelled correctly i know).my  eye never fully recovered,eyelashes never grew back,right side still itches to this day and its been over 12 yrs!!! my DOC told me that when shingles occurs anywhere on the  face and head,it is closer to the nerves and thus the intense pain.anyway  i know what you went thru and you have my support!!!

Offline J.R.E.

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  • Joined Dec-2003 Living positive, since 1985.
Re: Varicella Zoster Virus (Shingles) Reyataz, Norvir, Truvada
« Reply #4 on: October 19, 2008, 11:15:04 AM »
...Varicella Zoster Virus is BRUTAL!

Welcome to the forums. Yes it is very brutal. I have had it three times since I was diagnosed positive in 1985. Last time being just about five year ago. Never had it on my face though. Glad to hear that you are doing better now. Shingles is a tough thing to deal with. It put me out of commission for about 3 weeks, and I still have several areas on me that I have no feeling in.


Take care of yourself------Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline mecch

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Re: Varicella Zoster Virus (Shingles) Reyataz, Norvir, Truvada
« Reply #5 on: October 19, 2008, 12:02:26 PM »
I've never heard of anyone attributing shingles to hiv meds. (how strange!) Stress, poor health, hiv, etc are the usual culprits.

Hi, reading the posters words and Ann's response, it occurs to me there may be a miscommunication somewhere along the conduit.  Is it possible that the shingles are part of IRS - immune reconstitution syndrome?  So the cause is herpes zoster virus in the system, and low immunity, but the trigger is going on meds...
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Peter Staley

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Re: Varicella Zoster Virus (Shingles) Reyataz, Norvir, Truvada
« Reply #6 on: October 19, 2008, 12:48:11 PM »
Mecch is right -- the event could have been related to starting your new antiviral regimen:

http://en.wikipedia.org/wiki/Immune_reconstitution_inflammatory_syndrome

That doesn't mean you stop the meds!  You just treat whatever flairs up because of IRS.

Offline J.R.E.

  • Member
  • Posts: 7,161
  • Joined Dec-2003 Living positive, since 1985.
Re: Varicella Zoster Virus (Shingles) Reyataz, Norvir, Truvada
« Reply #7 on: October 19, 2008, 07:51:05 PM »
  Is it possible that the shingles are part of IRS - immune reconstitution syndrome?  So the cause is herpes zoster virus in the system, and low immunity, but the trigger is going on meds...


The last time I had Shingles was in 2003, and this was also shortly after starting on meds. So, I believe in my case it was contributed to immune reconstitution syndrome. That episode was very short lived though, and not as near as painful as other episodes.

Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline BlueMoon

  • Member
  • Posts: 665
  • Calling from the Fun House
Re: Varicella Zoster Virus (Shingles) Reyataz, Norvir, Truvada
« Reply #8 on: October 20, 2008, 08:47:35 PM »
Mecch is right -- the event could have been related to starting your new antiviral regimen:

http://en.wikipedia.org/wiki/Immune_reconstitution_inflammatory_syndrome

That doesn't mean you stop the meds!  You just treat whatever flairs up because of IRS.

I had an outbreak about two months after beginning treatment, on the same combo as HIVEMT.  I can't say with certainty what caused it, but it's my only HIV-related illness so far.  I was fortunate that it was mild, and on the torso.  I imagine a severe outbreak is indeed BRUTAL.  It's taken a little time, but the marks are clearing up.
...................VL.....CD4.....%
-----------------------------------------
08/10-- ......<40.....290.....42
05/10-- ......<48.....290.....46
02/10-- ......<48.....481.....44
10/09-- ......<48.....277.....46
07/09-- ......<48.....300.....38
05/09-- ........51.....449.....39
03/09-- Added Isentress
02/09-- ........65.....299.....34
11/08-- ........62.....242.....40
08/08-- ........66.....212.....29
05/08-- ......202.....217.....27
03/08-- ....5210.....187.....21
02/08-- Began Truvada/Reyataz/Norvir
12/07-- 273,000.....157.....22
11/07-- 229,000.....209.....22
10/07-- Diagnosis

It's a complex world.

 


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