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Author Topic: Marty Delaney Has Passed (formerly: Martin Delaney in Home Hospice Care)  (Read 2661 times)

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Offline edfu

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Martin Delaney, founder of San Francisco's Project Inform and one of the earliest and longest AIDS medical activists--indeed, in my opinion, one of the greatest heroes of the pandemic--has entered home hospice care.  This is extremely sad news.

http://www.thebody.com/content/art50181.html
« Last Edit: January 23, 2009, 11:38:49 AM by Tim Horn »
"No one will ever be free so long as there are pestilences."--Albert Camus, "The Plague"

"Mankind can never be free until the last brick in the last church falls on the head of the last priest."--Voltaire

Offline veritas

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Re: Martin Delaney in Home Hospice Care
« Reply #1 on: January 22, 2009, 08:58:47 AM »


Edfu,

I agree with you totally.  When I first learned I was positive, I contacted Project Inform and they saved my sanity. I remember calling their chat line and speaking one on one with others sharing fears and knowledge.
Marty put together a great group and he will be missed. God bless him.

veritas

Offline allanq

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  • still life with pills
Re: Martin Delaney in Home Hospice Care
« Reply #2 on: January 22, 2009, 10:39:14 AM »
Marty founded Project Inform in 1985. His "town hall" meetings in the late 1980's provided information and hope to many people like me who were overwhelmed by their HIV diagnosis.

Marty has been a tireless advocate for new treatments and for shortening the cycle for bringing new drugs to the community.

In his understanding of treatment options, Marty was sometimes way ahead of the HIV specialists. In April 1996, he published a warning about the use of the new protease inhibitors. Many doctors, including my own, were advising their patients to add Crixivan or unboosted Saquinavir to their failing regimens. Marty strongly warned against doing this, since it could result in resistance to the entire class of protease inhibitors. The title of his article was The New Era in AIDS Treatment ... One Chance to Use it Right or Lose it. I only wish that I had followed his advice, rather than my doctor's.

Here's a YouTube tribute to Marty from Dr. Anthony Fauci, an AIDS researcher who is the head of the National Institute of Allergy and Infectious Diseases (NIAID).

Dr. Fauci's tribute to Martin Delaney
« Last Edit: January 22, 2009, 11:28:15 AM by allanq »
Top (Breakfast): Prezista, Norvir, Isentress, Zoloft (2), Glyburide (2), Aspirin
Bottom right (Dinner): Prezista, Norvir, Isentress
Bottom left (Bedtime): Sustiva, Trazodone (2), Lipitor, Septra (no longer taking this)
Center: Alprazolam (Xanax)
Not shown: various vitamins & supplements

Offline Andy Velez

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Re: Martin Delaney in Home Hospice Care
« Reply #3 on: January 22, 2009, 11:16:31 AM »
Thanks for posting this information.
Andy Velez

Offline aztecan

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Re: Martin Delaney in Home Hospice Care
« Reply #4 on: January 22, 2009, 10:03:44 PM »
This is sad news.

Thank you for letting us know.


"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline John2038

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Project Inform: Update on Martin Delaney's Health
« Reply #5 on: January 23, 2009, 02:23:50 AM »
Hi,

Martin Delaney did a lot for each of us.
No need to say that He deserve a supportive message, a prayer, or a thought.
That's why I am posting this.

Thanks.
John

---------------------

Project Inform: Update on Martin Delaney's Health

By Ryan Clary

January 21, 2009
Dear friends and colleagues,

I've been asked to give an update on Martin's health. I'm sorry thisnews is delivered in such an impersonal way. As you know, there aremany people around the country who love Marty and it is easiest to sendupdates to a group.

Unfortunately, this update does not contain good news. On Mondaynight, Jan. 12, Martin was admitted to the emergency room with manysymptoms associated with advanced liver disease. Since then, his healthhas taken a turn for the worse and he is showing signs of kidneyfailure as well. He has since been discharged from the hospital and hasentered home hospice care. At this point, all treatment is forminimizing discomfort.

Cards with supportive messages are greatly appreciated and havehelped Marty in this difficult time. You can send the card to ProjectInform. We will make sure they are delivered promptly. Our address isafter my signature below.

If you would like to send an e-mail instead, please send it to me. Put Marty's name in the subject field. You can also leave a comment atthe bottom of this page. I will print it out and deliver it along withthe cards. I will not read any e-mail you send me with Marty's name inthe subject field, so feel free to be as personal as you'd like. Isuggest not e-mailing Martin directly, as it is unclear if he will bechecking.

If you have any questions, let me know, but also please be patient as I am getting many calls and e-mails.

Again, I am sorry to deliver such sad news.

--Ryan

Ryan Clary
Director of Public Policy
Project Inform
1375 Mission
San Francisco, CA 94103
phone: 415-558-8669 x224


Note (thebody)

Martin Delaney, a pioneering U.S. HIV activist and the cofounder of Project Inform, has been honored for his long years of tireless work fighting HIV. "It is without hyperbole that I call Marty Delaney a public health hero," said Anthony S. Fauci, M.D., the director of the U.S. National Institute of Allergy and Infectious Diseases (NIAID), who recently presented Delaney with the NIAID Director's Special Recognition Award. Since the mid-1980s, Delaney has been a leader in providing HIV treatment information to HIVers and health care providers. During the early years of HIV treatment, he played a key role in rapidly accelerating the approval of vital HIV meds in the U.S. (Article from NIAID)

Offline RapidRod

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Re: Project Inform: Update on Martin Delaney's Health
« Reply #6 on: January 23, 2009, 03:25:59 AM »
There is already a thread on him in the Off Topic Forum.

Offline Moffie65

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Re: Martin Delaney in Home Hospice Care
« Reply #7 on: January 23, 2009, 09:16:28 AM »
It is truly sad to read this thread, and to see how few posts it has; which highlights the ignorance of the history of this pandemic currently.  Unfortunately, many of the people that knew him and his work, are not here anymore to comment, for they have passed on already. 

Such a sad situation, and I grieve for his health and happiness, and don't  look forward to his passing.  Unfortunately, the liver and kidneys are the two systems in our bodies that are mostly affected by the drugs that make this disease survivable.

The Bible contains 6 admonishments to homosexuals,
and 362 to heterosexuals.
This doesn't mean that God doesn't love heterosexuals,
It's just that they need more supervision.
Lynn Lavne

Offline Tim Horn

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Marty Delaney Has Passed
« Reply #8 on: January 23, 2009, 11:06:47 AM »
I'm extremely saddened to report that Marty passed away at approximately 7:00 this morning, at his home in San Rafael. His illness, fortunately, was relatively short and he died peacefully. He was surrounded by loved ones, including David Evans -- AIDSmeds.com's associate editor and a longtime close and personal friend. 

David shared the following in an e-mail this morning:

If there's one thing that I think we can all do in gratitude for what Marty has done for all of us, it will be to make every effort to fill the massive void that Marty leaves behind. Marty was bound and determined to keep the fire under the asses of researchers, government and industry to find a cure for HIV disease. The least that we can all do is to keep that fire burning brightly.

I cannot echo David's words strongly enough.

A memorial service for Marty will be announced at a later date.

Tim Horn
« Last Edit: January 23, 2009, 11:39:21 AM by Tim Horn »

Offline Peter Staley

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Re: Marty Delaney Has Passed (formerly: Martin Delaney in Home Hospice Care)
« Reply #9 on: January 23, 2009, 11:42:28 AM »
I just posted a blog entry, including a video tribute from Anthony Fauci from earlier this week:

http://blogs.poz.com/peter/archives/2009/01/americas_most_i.html

Offline komnaes

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  • Posts: 1,893
Re: Marty Delaney Has Passed (formerly: Martin Delaney in Home Hospice Care)
« Reply #10 on: January 23, 2009, 11:56:59 AM »
It's sad to hear this news. I didn't know Marty well but back when I was volunteering for GAPA in San Francisco I met him in a few meetings and could still remember how impressive his knowledge and communication skills were. I was just among many people that he'd educated and trained, but he definitely had left his marks and a lasting impression on many, me included.
Aug 07 Diagnosed
Oct 07 CD4=446(19%) Feb 08 CD4=421(19%)
Jun 08 CD4=325(22%) Jul 08 CD4=301(18%)
Sep 08 CD4=257/VL=75,000 Oct 08 CD4=347(16%)
Dec 08 CD4=270(16%)
Jan 09 CD4=246(13%)/VL=10,000
Feb 09 CD4=233(15%)/VL=13,000
Started meds Sustiva/Epzicom
May 09 CD4=333(24%)/VL=650
Aug 09 CD4=346(24%)/VL=UD
Nov 09 CD4=437(26%)/VL=UD
Feb 10 CD4=471(31%)/VL=UD
June 10 CD4=517 (28%)/VL=UD
Sept 10 CD4=687 (31%)/VL=UD
Jan 11 CD4=557 (30%)/VL=UD
April 11 CD4=569 (32%)/VL=UD
Switched to Epizcom, Reyataz and Norvir
(Interrupted for 2 months with only Epizcom & Reyataz)
July 11 CD=520 (28%)/VL=UD
Oct 11 CD=771 (31%)/VL=UD(<30)
April 12 CD=609 (28%)/VL=UD(<20)
Aug 12 CD=657 (29%)/VL=UD(<20)
Dec 12 CD=532 (31%)/VL=UD(<20)
May 13 CD=567 (31%)/VL=UD(<20)
Jan 14 CD=521 (21%)/VL=UD(<50)

Offline Andy Velez

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Re: Marty Delaney Has Passed (formerly: Martin Delaney in Home Hospice Care)
« Reply #11 on: January 23, 2009, 01:31:20 PM »
Dear All,

This is very sad news. Marty was a stalwart, a tireless warrior whom I remember from my earliest years in fighting HIV.

Rest in peace, Marty. Well, well done.

 
Andy Velez

Offline J.R.E.

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  • Posts: 7,093
  • Joined Dec-2003 Living positive, since 1985.
Re: Marty Delaney Has Passed (formerly: Martin Delaney in Home Hospice Care)
« Reply #12 on: January 23, 2009, 04:18:14 PM »


It's been a very difficult week. My deepest heartfelt sympathies go out to Marty's family and to those who knew him well.



In sadness, RIP Marty-----Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline edfu

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Re: Marty Delaney Has Passed (formerly: Martin Delaney in Home Hospice Care)
« Reply #13 on: January 23, 2009, 05:54:19 PM »
Unfortunately, the liver and kidneys are the two systems in our bodies that are mostly affected by the drugs that make this disease survivable.

Dear Tim,

Just to set the record straight, the great irony here--if there is any to be found--is that Marty was not HIV-positive, which makes his revolutionary and singularly effective AIDS-treatment advocacy even more heroic and even more to be appreciated.  He suffered, for a very long time, with liver problems and cancer associated with Hepatitis B. 

That's why, actually, I decided after much cogitation to start this thread in Off Topic rather than Living with....  But if there were anyone not HIV-positive who devoted more of his time and much of his life to solving HIV's problems, I can't think of them.  Marty in that sense, certainly, lived with HIV 24/7 for over twenty-five years.  (He helped to smuggle potential drug treatments from Mexico in the early 80s, even before founding Project Inform.)  So very many of us with HIV today owe our health and our very lives to his indefatigable efforts. 

Official Project Inform press release, with tributes from Nancy Pelosi, etc.:

http://www.projectinform.org/news/2009/012309.shtml
« Last Edit: January 23, 2009, 06:59:09 PM by edfu »
"No one will ever be free so long as there are pestilences."--Albert Camus, "The Plague"

"Mankind can never be free until the last brick in the last church falls on the head of the last priest."--Voltaire

Offline BT65

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Re: Marty Delaney Has Passed (formerly: Martin Delaney in Home Hospice Care)
« Reply #14 on: January 23, 2009, 07:05:18 PM »
This is sad news indeed.  I got in touch with Project Inform after testing + in 1989 and they helped me immensely.  RIP Martin
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline ademas

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Re: Marty Delaney Has Passed (formerly: Martin Delaney in Home Hospice Care)
« Reply #15 on: January 23, 2009, 07:43:10 PM »
Very sad news.
Godspeed, Martin.

Offline AlanBama

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Re: Marty Delaney Has Passed (formerly: Martin Delaney in Home Hospice Care)
« Reply #16 on: January 23, 2009, 10:36:22 PM »
RIP Marty.....


 :'(
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Tim Horn

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Re: Marty Delaney Has Passed (formerly: Martin Delaney in Home Hospice Care)
« Reply #17 on: January 27, 2009, 09:28:17 PM »
David Evans posted this incredibly moving and personal tribute to Marty on AIDSmeds and POZ earlier today:

http://www.aidsmeds.com/articles/hiv_martin_delaney_2042_16017.shtml

 


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