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Author Topic: word of encouragement (TB and HIV) your advice needed  (Read 1349 times)

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Offline sanitex

  • Member
  • Posts: 385
word of encouragement (TB and HIV) your advice needed
« on: September 29, 2008, 01:20:49 AM »
Hi guys,
             living  with  hiv+ and TB including anxiety makes me feel as if there's no hope again but with prayer i belived i'll be heal.i want someone who has the experince try to help me out,i was daigonised early this month with latent Tb  and i'm on medication already but i figure out that i'm haven stomach disconfort and muscle pains around my lower stomach i went to see my doc and after liver test ,my liver was in good condition he said maybe that will be the sign of muscle pain.abd he add Bcomplex to my medications even my sustiva has gone to 800mg than 600mg,but my weight has not regain same b4,i look slimmy that someone can even notice it telling me you lose weight,but my question are ,is't because of the antibiotics that i'm taken that makes me to lose weight?or because of the Tb and hiv?
27/12/07 cd4 20 vl 1million
10/4 /08 cd4 86 vl 63
1/7/08  cd4 186 vl undetectable
16/10/08 cd4 196 vl undet
23/1/09 cd4 248 vl un
10/9/11 cd4 418 vl <40 %22
13/12/11 cd4 410 vl undet 23%
24/2/12 cd4 545 vl undet 26%
on 22/2/12 change truvada to Recovir-EM
due to no stock on Truvada.
10/9/11 cd4 418 vl <40 %22
7/7/12 cd4 359 vl <40 22%
23/8/12 cd4 400 vl <40 23%,
testosterone test 7.5 ng/ml and
thyroid (TSH)1.32 ulu/ml creatinine.eGFR blck 1.5 all fasting test morning.
13/12/2012 cd4 523 24% vl <40
18/3/2013 cd4  513  23% vl <40
regimen ATRIPLA
03/8/2013 cd4 429 22% vl <40
13/11/2013 cd4 455 23% vl <40
Anti-HBs test (quantitative ) Anti-HBs positive
Titer 16.95 mlu/ml <10.00
22/3/14 cd4 396 vl <40 % 24

Offline LordBerners

  • Member
  • Posts: 415
Re: word of encouragement (TB and HIV) your advice needed
« Reply #1 on: September 29, 2008, 04:29:33 AM »
Sanitex, I can comment, as I am currently under treatment for both these maladies.  I am nearing the end of the treatment for active TB, which though it caused no lung problems in my case, did effect the lymph nodes and caused me to lose about 40 pounds in a few short months.  Now I have gained about 20-25 pounds back (I don't want to gain back all forty, I was chubby!)  and I feel great - I felt all better within 1 week of beginning TB meds, appetite and energy returned, etc. 

I delayed starting ARV meds until several months along in the TB treatment because when I had tried ARV before while suffering from undiagnosed TB, I had terrible side effects (apparently due to the TB, not the ARV), but now am doing very well on Sustiva/Truvada as well, at least in the sense of few side effects (dizziness at night after ingestion of meds being the only important one).  I never noticed any change in my overall 'health' or feeling of vigour or fitness related to beginning the ARV though - no benefit or detriment.

I'm wondering if your weight loss is from your TB.. are they quite sure it is 'inactive' TB?  Weight loss is one of the primary symptoms, and I do believe that the treatment is different for latent compared to active TB - the active case requires the full four drug combo and a long treatment term.. I think the inactive in some case may be only one or two drugs, so I suppose it could be dangerous to assume it is an 'inactive' case, as resistance issues to TB drugs are so important..  If your TB becomes resistant, in the case of an HIV positive person, the prognosis is not good. 

I'm curious how they diagnosed your TB as in my case it was extremely difficult for the doctors to diagnose and they weren't really sure about it until recently (I think once the treatment was so immediately effective it confirmed their guess).  I think they automatically assumed that if it were TB, it was 'active' simply because of the weight loss, regardless of the lack of any effect on the lungs.  I don't mean to second guess your doctors, who are presumably well qualified, but I have been told by HIV docs that not all pulmonary docs - who specialize in TB, etc. - are fully versed in the special requirements and dangers faced by HIV positive people.  Generally my hiv docs have recommended that in the case of TB, HIVers 'err on the side of caution' - for example extending treatment for active TB to the full nine months course rather than the 'short' six month course that is recommended by most TB docs.
Please, just call me Berners.. or Baron.

Offline sanitex

  • Member
  • Posts: 385
Re: word of encouragement (TB and HIV) your advice needed
« Reply #2 on: September 29, 2008, 05:41:33 AM »
Hi lordberners
                   
                          here was my last post before i could be able to post  this new one cause nobody listen to me by then,my ID doc run all the whole blood test and even (ADA, CSF, )was perform then b4 it was confirm,
  HIV AND TB DRUG PLS YOUR ADVICE NEEDED URGENT
on: September 12, 2008, 01:32:27 am    

--------------------------------------------------------------------------------
Hi
         


              for the past two weeks now i noticed that my tempreture was above 38 over 102,then i decide to go and see my ID doc after all set and done he order for blood work to know the exact problem.the test was like this ,ADA,LDH-CSF,fluid p1,protein-CSF,CYTOLOGY/p1,US-CHEST(DF)US-CHEST(H)AFB C/S,AFB stain/p1,Hemoculture for TB,pleural tapping.after all this test he told me that from the X-ray test because some of the other test has not yet come out it takes about two weeks or more, but it seems that  i've TB reaction but from my sputum it dose not show that i've to start TB medication.the medication is like four in one,rifampicin150,isoniazid75,pyrazinamide400 and one other one i forgot the name,but my ID doc siad he should increase the doses of stocrin to 800mg.pls i do not know much about hiv+ and TB your advice will be more appreciate
27/12/07 cd4 20 vl 1million
10/4 /08 cd4 86 vl 63
1/7/08  cd4 186 vl undetectable
16/10/08 cd4 196 vl undet
23/1/09 cd4 248 vl un
10/9/11 cd4 418 vl <40 %22
13/12/11 cd4 410 vl undet 23%
24/2/12 cd4 545 vl undet 26%
on 22/2/12 change truvada to Recovir-EM
due to no stock on Truvada.
10/9/11 cd4 418 vl <40 %22
7/7/12 cd4 359 vl <40 22%
23/8/12 cd4 400 vl <40 23%,
testosterone test 7.5 ng/ml and
thyroid (TSH)1.32 ulu/ml creatinine.eGFR blck 1.5 all fasting test morning.
13/12/2012 cd4 523 24% vl <40
18/3/2013 cd4  513  23% vl <40
regimen ATRIPLA
03/8/2013 cd4 429 22% vl <40
13/11/2013 cd4 455 23% vl <40
Anti-HBs test (quantitative ) Anti-HBs positive
Titer 16.95 mlu/ml <10.00
22/3/14 cd4 396 vl <40 % 24

Offline LordBerners

  • Member
  • Posts: 415
Re: word of encouragement (TB and HIV) your advice needed
« Reply #3 on: September 29, 2008, 02:21:34 PM »
Yes, that four drug combo sounds right for active TB as well.  Great! (though I didn't understand most of your post)
Please, just call me Berners.. or Baron.

Offline sanitex

  • Member
  • Posts: 385
Re: word of encouragement (TB and HIV) your advice needed
« Reply #4 on: September 29, 2008, 11:20:08 PM »
Hi lordberner

                     sorry for disturbing you,what's the cause of my stomach pain at the lower side and both the left and right abdomen,the is like when somebody just at the first time for doing seat up that kind of pain always accure to my stomach,but if i press my hand it'll not show anything.
27/12/07 cd4 20 vl 1million
10/4 /08 cd4 86 vl 63
1/7/08  cd4 186 vl undetectable
16/10/08 cd4 196 vl undet
23/1/09 cd4 248 vl un
10/9/11 cd4 418 vl <40 %22
13/12/11 cd4 410 vl undet 23%
24/2/12 cd4 545 vl undet 26%
on 22/2/12 change truvada to Recovir-EM
due to no stock on Truvada.
10/9/11 cd4 418 vl <40 %22
7/7/12 cd4 359 vl <40 22%
23/8/12 cd4 400 vl <40 23%,
testosterone test 7.5 ng/ml and
thyroid (TSH)1.32 ulu/ml creatinine.eGFR blck 1.5 all fasting test morning.
13/12/2012 cd4 523 24% vl <40
18/3/2013 cd4  513  23% vl <40
regimen ATRIPLA
03/8/2013 cd4 429 22% vl <40
13/11/2013 cd4 455 23% vl <40
Anti-HBs test (quantitative ) Anti-HBs positive
Titer 16.95 mlu/ml <10.00
22/3/14 cd4 396 vl <40 % 24

Offline LordBerners

  • Member
  • Posts: 415
Re: word of encouragement (TB and HIV) your advice needed
« Reply #5 on: September 30, 2008, 07:44:43 AM »
Sorry my friend I do not know why your belly aches like that.  Mine never has.
Please, just call me Berners.. or Baron.

 


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