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Author Topic: please help me understand  (Read 1116 times)

PittGurl and 13 Guests are viewing this topic.

Online PittGurl

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please help me understand
« on: August 10, 2015, 02:39:34 PM »
Please bear with me - this is long......I'm a 43 year old female.  2012 was the last HIV test I had which was negative – since then I haven’t had sex with anyone at all. I had been waiting for my husband that left me 3 years ago and hoping for a change in heart…..well my husband left the other woman and came back to me May 16th after 3 years apart. He then left again June 24th to go back to the other woman he had been with for over 2 years. We had unprotected sex.

After he left there was another encounter i had with a friend from July 2nd to July 19th unprotected sex.  My body is very sensitive and when i haven't had sex for a long time i get UTI's pretty quickly. July 21st i had a very bad one, was put on Cipro. I had also been washing my 3 cars and had a horrible backache and just felt yuck.  The Cipro took away the pain and burning. Yet, I was still feeling like my ovaries were going to burst so I went to the ER. They ran blood tests (no HIV – wasn’t even mentioned) and did a CAT scan that showed everything was normal; gave me some morphine in the ER.  My white cells were down a little but ER sent me home to continue Cipro for UTI.

One day later I was feeling like my skin was sensitive to the touch, my head was hurting, and just feeling yuck. I don’t think I had a fever and have had NO rashes at all.  Went to a different ER, then ran more blood work (no HIV – wasn’t even mentioned) They did a CAT scan with contrast to make sure my kidneys were functioning, intervaginal ultrasound – everything was fine. They did a monospot test and said I had Epstein Barr virus but not mono just the virus that causes it.  Said there is nothing they can do for that – just rest, fluids and time.  That I would be tired and achy for a while.  Same place decided to run STD tests and treated me in the IV for gonorrhea without confirmation – just as a precautionary. Called 2 days later and Chlamydia had tested positive. Dr called in Doxycycline for 10 days – which I finished this past Friday. I don’t know if my reaction to that meds is HIV or just the meds, but it gave me very loose bowels, loss of appetite and nausea/tired. They did a spinal tap while there and confirmed viral meningitis.  Again, no medication, rest and fluids and sent me home.

2 days later I followed up with my primary dr from the ER visits. He was sure I was dealing with the Viral Meningitis but I requested additional STD testing and HIV. 

August 3rd - The dr called me in and said my worst fear ever   Initial Blood test was positive for HIV, then they resent it out and it was indeterminate and are now sending it out again for confirmation. 

I feel like a pile of bricks was just dropped on me – Im a single mom of 2 kids (17 and 11) and all they did was refer me to infectious disease and my appt is 10 days later!!!!  The next day the Dept of Health called me – and I wasn’t warmed about that either and didn’t know what to say to her.   Meanwhile, I don’t know what is going on!  I feel so alone, so helpless, so sad, my anxiety is through the roof.  Right now, physically – I don’t feel tired, or achy or anything. I have an occasional shooting pain on the left side of my head which hurts more if I put my head straight down. From what I read that is part of the Viral Meningitis.  The internet scares the poop out of me.  I started having an appetite  again the day after I finished the Doxycycline and my bowels started getting back to normal.  I’m sleeping fine and maybe I went through the seroconversion? Im so scared

Here are my test results because I don’t know what ANY of this means.  

HIV 1,2 AB DIFFERENTIATION
Component   Standard Range   Your Value
HIV-1 AB DIFFERENTIATION   Negative   Indeterminate
Confirmatory HIV-1 antibody test is ordered.
HIV-2 AB DIFFERENTIATION   Negative   Negative

MANUAL DIFFERENTIAL
Component   Standard Range   Your Value
Segmented Neutrophils   37-75 %   49
Bands Present   0-10 %   1
Lymphocytes   14-48 %   36
Monocytes   0-12 %   5
Atypical Lymphocytes   0-1 %   9
nRBC   0-1 /100   1
RBC Morphology   Normal   Present
Anisocytosis   Normal   Slight
Poikilocytes   Normal   Slight
Ovalocytes   Normal   Slight
ANC Manual   2.0-8.0 10E3/UI   2.7

COMPREHENSIVE METABOLIC PANEL
Component   Standard Range   Your Value
Sodium   135-153 meq/L   137
POTASSIUM   3.5-5.3 meq/L   3.6
Chloride   98-109 meq/L   109
CO2   24.0-31.0 meq/L   22.5
Anion Gap   4-12 meq/L   6
Glucose   70-99 mg/dL   119
BUN   5-26 mg/dL   7
Creatinine   0.50-1.50 mg/dL   0.92
Calcium   8.5-10.5 mg/dL   8.7
Total Protein   5.9-7.9 g/dL   7.3
ALBUMIN   3.4-4.6 g/dL   3.4
Total Bilirubin   0.2-1.1 mg/dL   0.6
AST   9-33 IU/L   60
ALT   5-38 IU/L   114
Alk Phos   38-110 IU/L   62
eGFR (MDRD)       66.62
Chronic Kidney Disease: eGFR <60 mL/min/1.73 sq.m.
Renal Failure: eGFR <15 mL/min/1.73 sq.m.
Patient Fasting Status       Non Fasting (<6 Hours)

MONONUCLEOSIS SCREEN
Component   Standard Range   Your Value
Mononucleosis Ab (Mono Spot)   Negative   Negative
CBC WITH AUTO DIFF
Component   Standard Range   Your Value
WBC   4.8-10.8 10E3/uL   4.6
RBC   4.00-5.40 10E6/uL   4.54
Hemoglobin   12.0-16.0 g/dL   12.8
Hematocrit   35.0-47.0 %   40.1
MCV   80.0-99.0 fL   88.3
MCH   27.0-34.0 pg   28.2
MCHC   31.0-37.0 g/dL   31.9
Platelets   130-400 10E3/uL   176
MPV   8.0-13.0 fL   12.1
RDW   11.0-16.0 %   15.8


Apparently i was just told there could be another test that wasn't put on the Patient Portal that i have to go pick up in person because of privacy issues. I wish they would tell you these things!!!!   My nerves are shot!
Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline Joe K

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  • 31 Years Poz
Re: please help me understand
« Reply #1 on: August 10, 2015, 03:09:21 PM »
Unprotected intercourse is a risk for infection, but based on the HIV results you posted, you are negative.  You need to ask your doctor, exactly which tests they are running to determine your HIV status.  You can read about testing here:  Testing Information.

Every other test you posted has nothing to do with HIV and your doctor needs to provide some clarity for you as to your HIV status.

Joe

Online PittGurl

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  • Posts: 16
Re: please help me understand
« Reply #2 on: Yesterday at 02:30:31 PM »
Update.....Western Blot came back positive August 3rd. From my post above i can almost pinpoint when I was infected - somewhere between May 16th through July 19th. I had 3 ER visits after that where i was feeling horrible - never did any of the hospitals ask or do a HVI test. That really bothers me alot...one day I hope that i can advocate for that. But right now I am constantly overwhelmed by this new diagnosis.  Its all i think about.....

So i had my 1st ID appt Monday......CD4 285 and Viral Load - 43800 (which Dr was surprised as many VL's are in the 100K's?) - confirmed that low CD4 was bc i was just infected in last 8 weeks and it should go up with medication.......she mentioned a percentage and ive heard of people talking about it ?  She said 13%? 

CD4 285 and Viral Load - 43800 (which she was suprised as many VL's are in the 100K's?) - confirmed that low CD4 was bc i was just infected in last 8 weeks and it should go up with medication.......she mentioned a percentage and ive heard of people talking about it ?  She said 13%? 

I was recommended to get 2 vaccines (3 really but 2 were lumped in 1 shot).  Hep A and B - bc the blood work came back that I am not immune to either so they want to make sure I am protected against that if exposed.  Also a Prevnar 13 which is a pneumonia vaccine.  The Dr said that all blood work looked good except my liver count was a little low but with starting meds that should come up. 
Dr was pleased with all the blood work and my levels and said as long as I take meds every day at same time (keep it constant in my system) and take care of myself that I should be able to live a normal life.  The Dr presented 2 medication options (Stribild or Triumeq) but was opting more towards the Triumeq  bc if I do need to start an anti anxiety (i was on Zoloft a year ago and am considering it again as i feel like i am obsessed with this) at some point that the best choice was the Triumeq since it doesn’t have a booster in it?  She also said that Triumeq  doesn’t affect the liver or cholesterol as much as the other one.

So the medication came today and Im staring at it like it's my best friend and my worst enemy.....i should have NEVER gone on the internet to see all the side effects and this card that says CARRY THIS WITH YOU BC OF RISKS. Yes, i was tested against the allergy but im so afraid that maybe i could be this 0.000000000% that could still be allergic and die.

Help!!
Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline Joe K

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  • 31 Years Poz
Re: please help me understand
« Reply #3 on: Yesterday at 02:50:06 PM »
PittGurl,

I have moved your thread from the Am I Infected forum to the I Just Tested Positive forum, where you will get the support you need.

Welcome to the forums.

Joe

Offline Wade

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Re: please help me understand
« Reply #4 on: Yesterday at 03:31:59 PM »
Hi Pittgurl,
Welcome to the forums, sorry for your recent DX.
Glad you found us , the forums are filled with many kind , compassionate,
and knowledgeable people. If I'm understanding correctly your Triumeg
Just arrived ? If so it is your best friend and absolutely not your
worst enemy. Sounds like you found a good ID doctor.

I'm sure your overwhelmed and anxious , but try to relax .
You will start feeling and getting better everyday. You'll also find plenty of
support here !
Be well Gurl ,Wade
"Who put the pepper in the....Vaseline  ? " Coffee Butler

Online PittGurl

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  • Posts: 16
Re: please help me understand
« Reply #5 on: Yesterday at 03:43:18 PM »
Thanks Wade - yes the med just arrived from mail order pharm - i was told that was best since sometimes pharmacy's (esp in suburbs) dont carry the meds due to cost and not as many diagnosis out here. 

I feel totally alone - like a walking petri dish. I also am really angry at myself and at 1 of 2 people but bc i dont know i guess im mad at them both.

I do have to say that the Center for Public Health has been wonderful. I have been treated with respect and dignity and as if I am the most important person. The Dr, nurses, case manager, etc have all been a blessing. Yet my head is consumed almost every moment in thinking about death, and those opportunistic infections and what's if's 10 years later or even a year later....and what is the mail system goes down for med delivery .....i have HUGE anxiety!!!   :(
Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline gam65

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  • Posts: 31
  • Enjoying life one day at a time
Re: please help me understand
« Reply #6 on: Yesterday at 04:42:32 PM »
PittGurl,

You're not alone, we are here for you. I felt the same way you did when I first found out a lil over 2 years ago, not sure who to punch so I ended up punching myself.  I took off work for the rest of the week stayed in bed, didn't open the blinds, didn't answer my phone.  It all went away when I contacted a close friend of mine and I told him and come to find out he had found out he was HIV pos just a few weeks before.

I have come to terms with my life, take my meds every day and I move on.  Yes I feel like you when I go to the Dr. or any where I know I'm going to be taken care of so I assist and I help take care of me.  You'll be fine as each day goes by and remember we are here for you; I joined this site and whenever I need to post something everyone has always been here, even if you just need to vent we are here.  Stay happy and walk with your head up as if you were just crowned miss america.  Stay blessed

Gam65

Online PittGurl

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Re: please help me understand
« Reply #7 on: Yesterday at 05:53:46 PM »
Thanks Gam65 - you made me feel like 100 bucks :)   I feel like my entire physical life was yanked away :(    I read about reinfection and the a supervirus if you choose to be intimate. I was somewhat about to puke when at the intake they handed me a bag of a variety of comdoms! I thought how could this possibly be!!! I never wanna think or do that again.
Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline Tonny2

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Re: please help me understand
« Reply #8 on: Yesterday at 09:26:18 PM »
Thanks Gam65 - you made me feel like 100 bucks :)   I feel like my entire physical life was yanked away :(    I read about reinfection and the a supervirus if you choose to be intimate. I was somewhat about to puke when at the intake they handed me a bag of a variety of comdoms! I thought how could this possibly be!!! I never wanna think or do that again.

         ojo      Hello PittGurl...welcome ...I think you should concentrate in digesting your dx, take your med, if you were to be allergic, just call your doctor, he will tell you to stop it, that's it, you will not die from an allergic reaction...stop reading on the internet, and ask your doctor any question you may have...you are going to be fine as long as you take your med as presscribed, I've been doing it for the last 21 years, so, I think you can do it too...please keep us posted, and yes, you are not alone, let's us know when you need a hug, and we will send them to you,...best of luck...hugs               ojo

Online PittGurl

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Re: please help me understand
« Reply #9 on: Yesterday at 09:32:16 PM »
Thanks Tonny2!  21 years WOW!  Everyone says (dr's nurses friends, etc) there's no reason that you cant live a healthy life but my head just has so much fear. Yes, I am in counseling with church and through my dr. But there are times that I seriously feel like i have weeks, days, or hours left and it's not bc i feel bad - i dont feel anything at all right now - a little tired.  Yet, starting this Triumeq in less than 13 hours is totally freaking me out. :(   I could use hugs too :)

I just wish i could erase the past 3 months and change my choices  :(   

Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline gam65

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  • Posts: 31
  • Enjoying life one day at a time
Re: please help me understand
« Reply #10 on: Today at 12:42:23 AM »
I've been on Triumeq since Dec 2104 and I haven't had any side affects or bad dreams, all has been well.  Triumeq is the 3rd med that I've been on because Stribild would only affect my kidneys more.  We all wish we could turn back the hands of time at moments when we dwell on our status but like I said before each day gets sweeter than the day before and I pray to God that he keeps my mind in perfect peace and I go on.  I take med for depression as well but that's just to keep me balanced from all of the anxiety that I have to deal with.

Being pos is just something that's living with me, just like both of my hips that are pertruding into my pelvis and I'm going to have to have double hip surgery soon, earlier this year I had cancer surgery so overall I'm doing great.  I'm glad that I made you feel like a 100 bucks.... :) :) :) :)

So hug yourself everyday and know that you are loved............ You are going to live a long and healthy life and the other thing that I've learned is that being pos has made me the healthiest person that I know because we go see our Dr every 6 months and yes taking precautions is what we do to protect ourselves and others that we meet in our future.

Online PittGurl

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Re: please help me understand
« Reply #11 on: Today at 09:08:01 AM »
Ugh  T-10 mins till I take the Triumeq  :(  Why is it so darn hard to do this!  I hate reading stuff on the internet :(
Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline Tonny2

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  • Posts: 874
Re: please help me understand
« Reply #12 on: Today at 10:13:14 AM »
Ugh  T-10 mins till I take the Triumeq  :(  Why is it so darn hard to do this!  I hate reading stuff on the internet :(

      ojo      Hello again, why don't you chamge your mind set from reading the side effect to the benefits of starting treatment...when you take your pill, thank God or life itself, that there is this medication that will give you life and it will keep you feeling better and enjoy life and your children (I think you mentioned you have kids, I'm getting old), you are going to be fine...let me tell you, that when I was dxed, my doctor told me that I would live for two more years, this was in January 1995, as I told you before, it's been almost twenty one years (November) since my dx...just last June, I went to my niece's graduation ceremony, and she told me,, "Uncle Tonny2, since you made it to my graduation, I want to see you on my wedding party", I also just came back from my old country, where I met my new grand niece (OMG, indeed, I'm old)...so, you will be around to see your kids, graduations, weddings even they will make you a grandmom...so, just take your medication and stop reading the internet, well, just keep reading us, ok?...best of luck   hugs       ojo

Online PittGurl

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Re: please help me understand
« Reply #13 on: Today at 10:21:54 AM »
Tonny2, thank you for that perspective - ive been staring at this pill in my hands for over an hour. It's like i know I am so fortunate to have found out i was positive within 2 months of being infected and I know having meds in the USA is a blessing as opposed to other countries (as far as i know)

Yes, i have 2 kids alone (11 and 17) which is probably the biggest reason i didn't commit myself to a psych ward or worse when i found out. Its like the dr told me - then 10 days later i had an appt with intake. Between those 10 days i amsure the only way i stayed sane was thinking of my kids and God. 

What does ojo mean?

I think the fact that my mom just had an allergic reaction (out of the blue) to a medication really has thrown me for a loop too in my head.  I also get scared (and i know this sounds crazy) but what if i run out bc of a crisis in the US with the mail or a war or something so profound.....i keep thinking how to hoard these pills or where would i go or what foods would help?  i know this sounds nuts - its just how my head works...im sorry :(

My dad just texted me TAKE THE HONKING PILL.  I needed that laugh but am still looking at this darn HUGE pill!   I keep thinking ok in like 3 hours i could be dead from this thing from some freak allergic reaction.
Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline Jeff G

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Re: please help me understand
« Reply #14 on: Today at 11:17:42 AM »
Welcome to the forums . I agree with dad  ;) . I am wishing you the best and sending you courage to do what is right for you. My meds cause me zero side effects so you should expect little or no adjustment and wont even know the difference in two weeks. Its also important to remember that if this combo is not for you there are more to try. Best of luck !

Offline Tonny2

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Re: please help me understand
« Reply #15 on: Today at 11:35:03 AM »
What does ojo mean?

            ojo      Hi again...meds are good when you take them by mouth, holding the pill with your fingers won't do anything to fight hiv, so, take the pill and stay with us, so you don't feel alone, but it's time to do it for your kids, but especially, for yourself, because you want to be around for a while, don't you?...you doctor might have told you if you get a rash to call him, right?, so had the test done (sensitive), so, you are not allergic to it, stop thinking in swallow the saving life treatment...go and get a big glass of water and take it.

ojo=two eyes and a nose, it means to read my message

I'm waiting for you to take it...best of luck, I'll be here with you, you'll be fine...hugs       ojo

Online PittGurl

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Re: please help me understand
« Reply #16 on: Today at 12:02:23 PM »
Thanks JeffG and Tonny2 - Im at the point that I put the darn thing back into the medication Sunday to Saturday holder. Yes i have the test for allergy which came back Im ok to take this - no allergy......so its all in my head.....and im alone here at home.

Dont i have to take at same time everyday?  Im more afraid to take it as the day goes on because then it will be night time....and what if I go to bed and get reaction and die.
Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline Tonny2

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Re: please help me understand
« Reply #17 on: Today at 12:20:04 PM »
Thanks JeffG and Tonny2 - Im at the point that I put the darn thing back into the medication Sunday to Saturday holder. Yes i have the test for allergy which came back Im ok to take this - no allergy......so its all in my head.....and im alone here at home.

Dont i have to take at same time everyday?  Im more afraid to take it as the day goes on because then it will be night time....and what if I go to bed and get reaction and die.

      ojo    I don't know why you think you would die of an allergic reaction?...I did take the abacavir, pasrt of your med, there was no test on those days, I'm allergic to it, I got a bad rash, I looked like the pink panther, my doctor said to me, that I can not take it anymore...you know that you are not allergic to it....when do you want to take it?..I would take it  at night, best, at the same time, and do not worry, you are no going to die in the middle of the night, wouldn't that be nice?, dieing, without suffering...ok, enough, as you are not going to take it right now, I will go and do some work...again, wishing you the best...poor pill...hugs           ojo

Online PittGurl

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Re: please help me understand
« Reply #18 on: Today at 01:09:10 PM »
because the card that came with it says in BIG letters WARNING carry with you at all times! Within hours you may get a life-threatening symptoms that may include very low blood pressure or death.    i tried to attach a pic of it but i dont see a way to do an attachment.
Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline Tonny2

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Re: please help me understand
« Reply #19 on: Today at 01:50:23 PM »
because the card that came with it says in BIG letters WARNING carry with you at all times! Within hours you may get a life-threatening symptoms that may include very low blood pressure or death.    i tried to attach a pic of it but i dont see a way to do an attachment.

        ojo     Helo again my friend, you are going to be the reason I would be fired from "work: (I;m cleaning carpets), lol, don't worry, nobody is going to fire me...do me a favor and do yourself a favor...you know that your meddication is a combination of three drugs, don't you?...look for the side effects of each drug,...I CAN TELL YOU THAT YOU WILL NOT DIE FROM TAKING LAMIVUDINE, THE OTHER ONE i DON'T EVEN REMEMBER THE NAME, ITS A CLASS OF MEDS (INTEGRASE i THIN) , i TAKE RALTEGRAVIR, , i'M STILL HERE, THE ONE THAT IS OF CONCERN, i THINK, (CORREC ME) IS THE ABACAVIR, WHICH YOU WERE TESTED BEFORE YOUR DOCTOR PRESCRIBED TRIQUEM...SO, PLEASE HELP ME OUT BY CHECKING THE SIDE EFFECTS OF EACH INDIVIDUAL DRUGS (i'M LEGALLY BLIND, SO YOU WILL HELP ME BY DOING IT FOR ME) AND LET ME KNOW WHICH ONE IS THE ONE WITH THE WARNING LABEL...BEST OF LUCK...HUGS              OJO

Online PittGurl

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Re: please help me understand
« Reply #20 on: Today at 01:56:10 PM »
I'm sorry Tonny2 :(  I dont want you to get fired. I had my own business and bc of everything i went through since May/June i have lost my entire income....and i certainly dont want that for you :( 

Yes i know it is 3 drugs - the BIG warning is the ABACAVIR.  my entire day has been consumed by that A word! UGH!  It's says the poop outta me - yes i was tested. WAHHHHHHHH 
Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline zach

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  • Posts: 2,773
Re: please help me understand
« Reply #21 on: Today at 02:21:50 PM »
take your pill like a good gurl

only thing i would suggest, and would i say this for any drug or medication... first couple times you dose, take it in a safe place, somewhere no matter what happens, you've got a couch and a phone nearby, and your life responsibilities won't be thrown into turmoil if you freak out or pass out. see first hand how it affects you, instead of the fears the card puts in your head. once you know, you can fit your dosage time around your life and the known effects.

you can change your dose time without harm, not a good idea to dose at random times every day, but if night time works better, take it night the next time, then maintain the new schedule

you're not going to suddenly drop dead, or die in your sleep. we promise. if you have a negative reaction, you'll know, and you'll be able to respond to it.


« Last Edit: Today at 02:36:26 PM by zach »

Online PittGurl

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Re: please help me understand
« Reply #22 on: Today at 02:33:25 PM »
Thanks Zach - how did you get the pic to insert?  that's exactly what is sitting right in front of me the past 6 hours- that card!!!!
Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline zach

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Re: please help me understand
« Reply #23 on: Today at 02:47:20 PM »
i'm peeking in your window now! put some clothes on, it's the middle of the day  8)

no, really, it's a simple process

open an account with image sharing site... imgur or photobucket work well

upload whatever picture you want

i did a google image search for "triumeq warning card" came right up

upload whatever pic you want to post to the image share site.

once uploaded, you'll see a list of addresses on the sidebar... select and copy the "direct link"

paste that direct link into this text field, then highlight it, then click the button above all the smiley faces that says insert image

it will automatically place these [] bracket boxes around the direct link

click preview to confirm you've done it right

profit!!

now, go take your pill, then play with pictures on poz


Online PittGurl

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Re: please help me understand
« Reply #24 on: Today at 03:23:15 PM »
Thanks Zach!  :)  hahaha and thanks for the laugh! :)  I'll start pill tomorrow - id rather do in the morning with a smoothie so i can gauge how i feel all day. Plus, my kids have a 1/2 day and then there's the weekend so at least someone will be around me
Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline Almost2late

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Re: please help me understand
« Reply #25 on: Today at 08:28:26 PM »
Hi Pittgurl & welcome,

I'm so sorry you gotta be here but glad you found your way here.. It's also very nice you've gotten such good support by lots of members, and great advice too..

I've been on 3 different treatments since Jan.2014 but this present treatment Triumeq is the best bc I reached an undetectable viral load while on it  :) so your on a great regimen and I'm wishing you lots of luck on it..

Taking it first thing in the morning is I think a very good idea.. I have my alarm set to a very good song as a reminder to take it in the morning, I have mine with coffee but a smoothie sounds even better ;)..

You shouldn't have to worry about OI's cause your cd4's are in decent shape and will only get better on Triumeq..

I think it's a good idea to be health conscious, eating right and exercise.. Also I don't know if you know but Viiv also offer's a coupon to help with copay for Triumeq..

I'll be honest here, at first I was angry, scared, sad, crazy, stupid, jealous and a big jerk.. and it took some time to get my act together but I did.. We all handle dx somewhat differently but what I've learned was that I'm a very lucky guy with love in my life and a life to live.. I wish you the same.. Lots of luck.

"Being happy is a
very personal thing,
and it really has
nothing to do with
anyone else."
- Abraham Hicks

Online PittGurl

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Re: please help me understand
« Reply #26 on: Today at 08:39:25 PM »
Thanks Almost2late...your name scares me :(  and makes me sad....

I am SO thankful for the conversations everyone so far has had with me. It's helped me through so crucial times and even though i couldn't quite bring myself to take my 1st pill today the support from here has been amazing and so very appreciated.

So you are on this too....should i even ask side effects for you or will that cause me more anxiety LOL.....It just scares me how our lives are in the pharma's hands and really is there long term enough studies on these drugs? Im 43 and i think everything right now is a big QUESTION in my head.

It's been 1 month since i found out and im still consumed with it.....today i just sat here and cried and yelled because i dont want to believe it. I dont want this. And now Im so tired from being emotional. LOL...I want to believe there is more to life than this diagnosis .....then me feeling like everyone knows and its plastered on my head...that I will feel like a human again instead of a statistic :(

Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline emeraldize

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Re: please help me understand
« Reply #27 on: Today at 09:00:40 PM »
Hi PG

Just checking in to see if you noticed what almost too late included in his post above. "Viiv also offer's a coupon to help with copay for Triumeq." If you have insurance, Viiv's co-pay assistance card, which you print out from their website, is worth signing up for. You give it to the pharmacist, and then they have your number on file for all future Triumeq prescriptions until your card expires. Then, you sign up for a new one if the pharmaceutical companies are still extending this graciousness.

Online PittGurl

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  • Posts: 16
Re: please help me understand
« Reply #28 on: Today at 09:06:20 PM »
Hi Emeraldize :)  yup i saw that about the coupon - thank you.
Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

Offline Almost2late

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  • Life goes on
Re: please help me understand
« Reply #29 on: Today at 09:08:38 PM »
It's not plastered on your head, I thought that but realized not true..

I call myself a2l bc when I was dx I had pcp with 13 cd4's and was 40 lbs lighter than I'm now.. My name is Frank :)..

At 54, I work hard, bike 15 to 20 a day and enjoy life, all with 187 strong cd4's  ;)..

No side effects, well I feel energized after my pill.. Our minds can play some awful tricks on us, its important to keep a good attitude which helps us deal with life, even people without HIV have issues..

This virus is very manageable on treatment and with a little sunshine you're gonna do just fine.. Stay positive, no pun intended, lol..
"Being happy is a
very personal thing,
and it really has
nothing to do with
anyone else."
- Abraham Hicks

Offline Almost2late

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  • Posts: 745
  • Life goes on
Re: please help me understand
« Reply #30 on: Today at 09:17:17 PM »
www.mysupportcard.com
A link to the coupon.
"Being happy is a
very personal thing,
and it really has
nothing to do with
anyone else."
- Abraham Hicks

Online PittGurl

  • Member
  • Posts: 16
Re: please help me understand
« Reply #31 on: Today at 09:31:27 PM »
Thank you Frank - you are very encouraging. Im really blessed to have all of these interactions here....i really dont know how i would cope without leaning on you all. Thank you.....

 tomorrow is a new day and im going to do my best to swallow that darn big pill with those letters and numbers on it....grrr....i hate meds to start with so this isn't easy knowing for the rest of my life i am going to be on medication. I dont run to get tylenol for a little headache or what not....but I know once i start it I wont stop bc of the same anxiety i have about starting it LOL.....reverse side effects a catch 22 for me....it's just that initial starting that is a mental block.....i am trying to focus on how its going to help me and to see my #'s change for the better and live for my kids.....asking for prayers of strength just to DO THIS! 
Infected between 5/16/15 - 7/19/15
8-2-15 Positive  CLD 286 VL 43800
9-3-15 Starting Triumeq

 


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