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Author Topic: New to forum  (Read 4115 times)

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Offline #1 mom

  • Member
  • Posts: 114
New to forum
« on: August 04, 2008, 02:20:05 AM »
Hi, I'm new to this site. I have an adopted son who will turn 2 August 30. His birthmother was HIV & Hep C +. When we met him in the NICU his initial tests were negative and he was getting AZT prophylactic. He was premature somewhere between 28-31 weeks gestation and weighed 3# 3.5 oz. At about a month while still in the NICU he became very anemic. Before transfussing him they tested him again and he was still negative. I was told that it was unlikely with two negative tests that he would become +. After 48 days in the NICU he was well enough to come home. He did well and gained 1 # in the first week home.   :) Our pediatrician sent us to an infectious disease doctor right away to be sure everything was done right. The ID examined Lucas and said he felt that Lucas was negative but ran tests again. This time he had a detectable viral load. :'( His viral load skyrocketed between his initial test, confirmatory test and test at the start of medication (~1mo time). Fortunately he responded to the cocktail and quickly became undetectable and stayed that way. His CD4 has always been normal. Once he was over 18mo. we confirmed he does not have Hep C.  :)
Lucas also has Cerebral Palsy but has done amazingly with therapy. His deficits are so slight most people would not notice now. He is a bright, loving, happy child and I'm lucky to be his mom. I want to do what is best for him. If there is anyone that has an HIV+ child that could give me tips I would appreciate it. I'd also love to hear from anyone living with HIV who can give me advice. Thank you.  :) 
Amy

Offline Matty the Damned

  • Member
  • Posts: 12,228
  • Ninja Please
Re: New to forum
« Reply #1 on: August 04, 2008, 03:08:32 AM »
Welcome to you and Lucas. :)

We have a special lessons section for Women and Children and we have at least one other mother of an HIV positive child here too.

MtD

Offline #1 mom

  • Member
  • Posts: 114
Re: New to forum
« Reply #2 on: August 04, 2008, 03:37:10 AM »
Thank you for the welcome. :-*
Amy

Offline lucas clay

  • Member
  • Posts: 518
Re: New to forum
« Reply #3 on: August 04, 2008, 03:48:20 AM »
Welcome to the forum mom

                              Lucas

Offline rondrond

  • Member
  • Posts: 1,712
Re: New to forum
« Reply #4 on: August 04, 2008, 04:33:06 AM »
Welcome Mom and Lucas

He looks real happy on that tractor. :D

ronnie
"I may not be exactly where I want to be, but I sure as Hell am not where I was"
Wynnona Judd

Diagnosed/HIV
1993
AZT
Norvir
1994-2001
Crixivan/Epivir/Zerit
No Meds for 7 Years

04jul07/DVT-right leg/Bi Lateral PE's     
16oct08/DVT-left leg
Sept '09  6 blood clots in left arm
Coumadin 5mgs
                                     
Atenolol/50mg/2x
Hydrochlorth 25mg/1x
Gemfibrozil/300mgs/2X
Symbicort
Proventil Inhaler
Potassium
Rhinocort


*APR 08~Viramune/Truvada
March08  CD4 330 23% VL 452.000 
*Jan09 Med change~Epzicom/Viramune

Aug09   CD4 523 23%  VL<48
Diagnosed: COPD
Dec 2013: CD4 645 45% VL 49
Med Change: Viramune/Epivir/Ziagen/Isentress

Offline auspoz

  • Member
  • Posts: 158
Re: New to forum
« Reply #5 on: August 04, 2008, 07:07:48 AM »
Welcome to the forum, mom. I've found very useful information here. And comfort too.

I hope you do too.

Auspoz

Offline emeraldize

  • Member
  • Posts: 3,347
Re: New to forum
« Reply #6 on: August 04, 2008, 07:31:17 AM »
Hello Mom,

I will send a PM to you --look in the upper lefthand of the screen and you'll see notice of such messages in bold type. Perhaps there will be some information I may offer you as my adopted child is HIV+. Further, you may be able to help me as the second child I am in the initial phases of considering adopting has cerebral palsy.

Em

Offline Alain

  • Member
  • Posts: 680
  • I am.
Re: New to forum
« Reply #7 on: August 04, 2008, 08:02:55 AM »
Welcome, mom's are always number 1! ;)

Offline Winiroo

  • Member
  • Posts: 2,082
  • Positive since 1991
Re: New to forum
« Reply #8 on: August 04, 2008, 10:31:58 AM »
Welcome to AIDSmeds.  i love your screen name.

The ladies are currently chit chatting in the thread located here
http://forums.poz.com/index.php?topic=22284.msg284053#msg284053

You are welcome to join us. Minismom is the other mommy with a pos child. I had a pos child but he passed away a long time ago. Its not neccesary to say I'm sorry or anything. Thank you.

We look forward to getting to know you.  ;D

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,938
Re: New to forum
« Reply #9 on: August 04, 2008, 10:35:17 AM »
Welcome mom,

Your son is very fortunate to have such a loving mum.  Minismum posts in the thread mentioned by Winiroo above.  Maybe you two can connect.  I hope to hear more from you.  Oh, give your son a kiss from me.
  Luv,
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: New to forum
« Reply #10 on: August 04, 2008, 10:48:17 AM »
Welcome welcome welcome!

hugs

Sharkie

Offline aztecan

  • Member
  • Posts: 5,396
  • 29 years positive, 57 years a pain in the butt
Re: New to forum
« Reply #11 on: August 04, 2008, 11:29:15 AM »
Howdy No. 1 Mom!

Welcome to the forums. I am very glad you found us and have joined in.

I think little Lucas is a very lucky lad.

I look forward to hearing more from you.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline DanKenny

  • Member
  • Posts: 147
Re: New to forum
« Reply #12 on: August 04, 2008, 01:21:30 PM »
Hi #1 Mom,

Welcome to the forum !!

Your courage and affection is admirable. Keep up the good work, and visit here often.  I've sent you a PM, and we should arrange and talk.  I will share with you various tips and tricks I've learned over the years..

rgds, DanKeny
My Progress:

09/07:   771   ~    <50     ~   29%
03/07:   493   ~    227      ~   22%
02/07:   Began Meds ~~ ATRIPLA
01/07:   315   ~   45, 000  ~   18%
10/06:   350   ~   32, 430  ~   22%
04/06:   440   ~   23, 997  ~   24%
07/05:   621   ~   36,000   ~   24%
01/05:   842   ~   2306      ~   28%
07/04:   615   ~   3370      ~   27%
04/04:   674   ~   739        ~   26%
11/03:   439   ~   2800      ~   22%
Infected probably around 1997 / Diagnosed 2002

Offline letmebeyourhero

  • Member
  • Posts: 27
Re: New to forum
« Reply #13 on: August 04, 2008, 01:37:46 PM »
omg, cutest little boy...ever!
A decent guy, named Chris - spanning time.

Offline #1 mom

  • Member
  • Posts: 114
Re: New to forum
« Reply #14 on: August 04, 2008, 04:12:54 PM »
 :-* :-* :-* :-* :-*
Thank you everyone for such a warm welcome!

[attachment deleted by admin]
Amy

Offline AlanBama

  • Member
  • Posts: 3,625
  • Alabama: the 'other' 3rd World Country!
Re: New to forum
« Reply #15 on: August 04, 2008, 04:50:20 PM »
He is absolutely adorable, Mom!   Glad you found us, and I look forward to hearing more from you.

Hugs to you and the little one,

Alan   :-*
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline 100proofBrandy

  • Member
  • Posts: 71
Re: New to forum
« Reply #16 on: August 04, 2008, 06:04:30 PM »
hes a cutie welcome mom !!!
The person you educate today maybe the one you save tomorrow :)

Offline Peter Staley

  • Member
  • Posts: 1,337
  • Founder & Advisory Editor, AIDSmeds.com
    • AIDSmeds.com
Re: New to forum
« Reply #17 on: August 04, 2008, 08:08:28 PM »
Welcome, Mom.  Glad you both found us!

Peter Staley
Founder
AIDSmeds.com

Offline mjmel

  • Member
  • Posts: 2,069
Re: New to forum
« Reply #18 on: August 04, 2008, 08:28:03 PM »
A very big welcome to a #1 mom.

Mike

Offline Longislander

  • Member
  • Posts: 2,486
Re: New to forum
« Reply #19 on: August 04, 2008, 08:58:53 PM »
Welcome! He's adorable ;D
 You'll get lots of help here, don't worry about that!!
To know there are people like you in this world puts a huge smile on my face~

Paul
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline minismom

  • Member
  • Posts: 2,608
  • Quocumque jeceris stabit
Re: New to forum
« Reply #20 on: August 04, 2008, 09:20:04 PM »
Now Mini has a boyfriend - and they have the SAME birthday (but she's 6yrs older).  So, how does Lucas feel about older women? :P

Mum
www.watoto.com
www.MotherBearProject.org
"Whichever way you throw me, i will stand"
"Don't worry about the world coming to an end today...it's already tomorrow in Australia"  Charles Schultz

Offline YaKaMein

  • Member
  • Posts: 368
Re: New to forum
« Reply #21 on: August 04, 2008, 10:04:19 PM »
Welcome Mom,
Lucas is adorable! Sounds like he's in great loving hands. Am glad you've connected here.
-YaKaMein
09/11 Endocrine Consult
08/11 CD4 328 14.9% VL 0
 Disc'd Bactrim DEXA -3.1 Tscore
03/11 CD4 338 14.7% VL 0
11/10 CD4 300 14.3% VL 0 <20copies
07/10 CD4 336 14.0% VL 0 DEXA -2.7 Tscore
03/10 CD4 308 13.4% VL 0 Vit D normal
01/10 Began FOTO
11/09 CD4 274 13.7% VL 0 Chol 173 Trig 131
07/09 CD4 324 13.5% VL 0 DEXA -3.1 Tscore lumbar
03/09 CD4 207 10.9% VL 0
11/08 CD4 227 10.3% VL 0 Chol 176 Trig 156
04/08 CD4 228 9.5% VL 0
01/08 CD4 194 9.0% VL 0
09/07 CD4 176 8.3% VL 0
03/07 CD4 130 9.5% VL 0 Chol 261  Trig 227
12/06 CD4 109 6.4% VL 0
09/06 CD4  88 5.5% VL und desens'd rtd to Bactrim
08/06  Began Atripla
07/06 CD4  59 5.0% VL 145 Chol 117 Trig 104
06/06  Bactrim rash, X2 Dapsone
 EFV & Truvada Chol 128 Trig 131
05/06 CD4  6 (2.0%) VL 78667 only V179D mutation Dx PC MAC

Offline dolcevita08

  • Member
  • Posts: 26
Re: New to forum
« Reply #22 on: August 05, 2008, 01:02:47 PM »
Welcome Mom!

This forum is a great resource for information and support. Lucas is adorable!!

:-) Tim

Dance as though no one is watching. Love as though you have never been hurt before. Sing as though no one can hear you. Live as though heaven is on earth.

Offline Iggy

  • Member
  • Posts: 2,435
Re: New to forum
« Reply #23 on: August 05, 2008, 03:54:21 PM »
Welcome Mom and Lucas!



 


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