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Author Topic: Not sure if I should be worrying or not  (Read 1714 times)

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Offline havisham

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  • Posts: 15
Not sure if I should be worrying or not
« on: July 20, 2008, 07:27:10 PM »
OK, here's the thing - I had a a little brush with PCP over Christmas, started treatment in January (Sustiva/Truvada). My last set of bloods were done two months ago - CD4 409 (from 195 in Jan) and VL 60 (from 250000). I've put on weight, got back to work, got back to the gym and slowly increased the intensity of workouts etc, whilst being careful of my lungs.
I've been maybe 10 minutes late with the Truvada once or twice, and because I work shifts, I've been given a 4 hour window to take the Sustiva in so I don't fall over at work, but I haven't missed one.
Was starting to feel pretty good, but in the last 4 or 5 weeks, I've been feeling a bit breathy and having an occasional  little cough to myself again. It all feels a bit familiar. Also been very tired and listless, having trouble getting out of bed and not really having much to say about anything.
I know the tiredness is probably a side-effect of the drugs, but my question is: is the two months since my last bloods were done long enough for me to fall back to the PCP levels again? My consultant is on holiday for the next three weeks, and my next scheduled appointment is also in three weeks, and I don't know whether to try and shoe-horn myself in before then.
Or whether I should just try and relax and not worry.

I'm a bit fed up trying to work out what I think - what do you think? :-\
"Bigger teeth than those of mice have gnawed at me."

Offline dgr20002

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  • Posts: 288
Re: Not sure if I should be worrying or not
« Reply #1 on: July 20, 2008, 07:43:21 PM »
I think you know your body. If the symptoms seem famillair and you are obviously worried I'd say better safe than sorry. Another stay in the hospital will be a set back and that's not what you need. Get yourself checked out ASAP is my thought.


Offline atlq

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  • Posts: 518
Re: Not sure if I should be worrying or not
« Reply #2 on: July 20, 2008, 08:27:08 PM »

I agree with David, its always better to be proactive. However your last cd4 count and VL puts you pretty safely out of the PCP zone. So, if your adherence has been good, I wouldn't freakout-just call  your provider's office and explain-    some  Bactrim  (one pill every other day) could be offered as a precaution until your provider returns (provided you have taken Bactrim before and are not allergic)......But if I were a betting man, !'d say you might be working too hard, being back at the job, hitting the gym....Give me a little of that energy!...lol... ;D
“Keep up the good work....   And God bless you.”
  --  Sarah Palin, to members of the Alaskan Independence Party, 2008

Offline havisham

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  • Posts: 15
Re: Not sure if I should be worrying or not
« Reply #3 on: July 21, 2008, 02:19:39 PM »
Hey - thanks for your comments. I took your advice and got to see a doc this afternoon - nothing to report! Maybe it's hayfever or something. My imagination just gets carried away these days.

"Bigger teeth than those of mice have gnawed at me."

Offline aztecan

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  • Posts: 5,512
  • 31 years positive, 59 years a pain in the butt
Re: Not sure if I should be worrying or not
« Reply #4 on: July 22, 2008, 12:51:00 AM »
Hey Haveisham,

Better safe than sorry, I always say. You certainly cannot be too careful.

While it is true your numbers should indicate you aren't at risk for PCP, I have known people who both had their counts fall in short order and who had a repeat performance of PCP even though their counts were pretty good.

So, keep up the good work.

Oh, and keep up the workouts at the gym, It makes you feel great and look even better.


"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)


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