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Author Topic: New on Atripla, also new here  (Read 5931 times)

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Offline David H.

  • Member
  • Posts: 13
New on Atripla, also new here
« on: July 15, 2008, 07:11:15 AM »
Hi guys,
I 'm new here, im from Barcelona (Spain). I was diagnosed 3 years ago, and was fine until now. Now, i started atripla, 5 days ago, and yep, the 1st night/day was as expected: Hell. Im no doing that bad now, progressively, but atripla is been approved just now in europe, so i wonder if in US, any of you, could tell me about his experience. When do u start to feel yourself again? does it provoke lipo? Is it reasonable that i start working next monday (that's 11 days after the 1st pill)?
Thanks a lot for any answer, tip, advise, comment....
David

Offline Nashvegas

  • Member
  • Posts: 196
Re: New on Atripla, also new here
« Reply #1 on: July 16, 2008, 12:29:52 PM »
Hey David -- Welcome to the forums.  I just started meds too, although I'm not on Atripla, so I can't really offer any advice regarding your side-effects.  But I'm sure there's somebody on here who can give you some info.  Hope that you continue to do better with each passing night...
8/12/06 - sero-conversion
9/14/06 -- Positive Test results confirmed
9/21/06 -- CD4 - 586; viral load 8,000; 29%
12/25/06 -- CD4 - 373; VL 2,800; 23%
2/10/07 - CD4 - 228; VL 865; 25%
3/15/07 -  CD4 - 365 (no viral load test)
5/1/07 = CD4 - 341; VL 4,358; 27%
8/1/07 - CD4 - 315; VL - 2,300; 25%
9/20/07 - CD4 - 378
11/22/07 - CD4 - 257; VL 7,300;
2/27/08 - CD4 231 (16.5 %), VL 5,960
5/20/08 - CD4 229 (18.3%), VL 11,100
6/17/08 - CD4 166 (14.5%), VL 9,030
6/17/08 - STARTED VIRAMUNE + TRUVADA
7/2/08 - CD4 272 (20%), VL 113  :-)
7/16/08 - CD4 -217 (21.1 %), VL - Undetectable
7/30/08 - CD4 - 220 (20.4%). VL - 92
8/14/08 - CD4 - 280 (22%) VL-undetectable
1/04/09 - CD4 - 250 (28%) VL-UD
5/15/09 - CD4 -393 (28%) VL-UD
8/15/09 - CD4-346, (26%) VL-UD
11/15/09 - CD4-373 (28%)

Offline David H.

  • Member
  • Posts: 13
Re: New on Atripla, also new here
« Reply #2 on: July 16, 2008, 05:11:12 PM »
Thanks a lot for the feedback :)
I hope someone can post how is he/she doing with atripla as a 1st medication (side effects, bodychanges..)
as i said, in europe has just started...this month! so, no european forums can help me or guide me. However, my doc in Barcelona is an especialist in lipo and said that Atripla causes no distrophia-at all. That's what she stated. Also my doc on London (where i live half of the year), said the same.

So, please, guys, be nice and post any experience. It will be very much appreciated ;D

Offline ozzie

  • Member
  • Posts: 57
Re: New on Atripla, also new here
« Reply #3 on: July 16, 2008, 05:29:54 PM »
Hola David! ;)

I'm glad you started with Atripla and hope you have better luck than me.
I was on atripla for a month and had to stop. I loved that it was only 1 pill but I was dizzy and sleepy all the time. The doctor said sustiva is not good for me so now im taking reyataz and truvada.

Mucha suerte y te deseo lo mejor ;)

Oz

Offline David H.

  • Member
  • Posts: 13
Re: New on Atripla, also new here
« Reply #4 on: July 16, 2008, 05:43:22 PM »
Hola Ozzie,
lamento mucho tus resultados con Atripla, but please, cross fingers for me, as i find it so complicated switching from meds to meds...I also feel sleepy and dizzy (and i have to start next monday >:() but hopefully it will work...

Offline loop78

  • Member
  • Posts: 147
Re: New on Atripla, also new here
« Reply #5 on: July 16, 2008, 05:48:47 PM »
Hi David, and welcome to the forums from a fellow Spaniard!

I'm sorry I can't help you about atripla, I'm still treatment naive. But anyway, even though atripla has just been approved in Spain it's nothing more than sustiva + truvada bundled together, so anything you can find out about the other two would also be applicable to atripla. From I what I've read, I believe atripla (or sustiva + truvada) is not specially linked to lipo, its most common side effects seems to be dizziness and vivid dreams.

Un fuerte abrazo y bienvenido!

Edit: you can check atripla info here, in case you hadn't found it yet: http://www.aidsmeds.com/archive/Atripla_1577.shtml
« Last Edit: July 17, 2008, 04:02:26 AM by loop78 »

Offline YaKaMein

  • Member
  • Posts: 368
Re: New on Atripla, also new here
« Reply #6 on: July 17, 2008, 02:47:20 AM »
Welcome, David H
Basically, I began HAART with Atripla since Aug 06. Usually, I take it anywhere between 9-midnight depending on my schedule. My VL went undetectable almost since as soon as I started and has remained so. My first night was quite enjoyable: hallucinations, wild dreams. I still get the 'buzz' 3-4 times a week. Never know when it's gonna happen. It's suggested to take without food. I've done both food and empty stomach. But that's me and again it's working for me. I sleep well and do not feel any effects in the morning.

So, I"ve had no problems taking Atripla. It has elevated my cholesterol and tryglycerides levels but I take Liptor to keep those lower. I've noticed in crease of weight in my abdominal section but cannot say I have lipodistrophy.

If you're trying it and it works without problem, it pretty ideal to me, only one pill a day.  I have never missed a dose and suggest that you try not miss either.

Good Luck and hope it's a success for you.  -YaKa

09/11 Endocrine Consult
08/11 CD4 328 14.9% VL 0
 Disc'd Bactrim DEXA -3.1 Tscore
03/11 CD4 338 14.7% VL 0
11/10 CD4 300 14.3% VL 0 <20copies
07/10 CD4 336 14.0% VL 0 DEXA -2.7 Tscore
03/10 CD4 308 13.4% VL 0 Vit D normal
01/10 Began FOTO
11/09 CD4 274 13.7% VL 0 Chol 173 Trig 131
07/09 CD4 324 13.5% VL 0 DEXA -3.1 Tscore lumbar
03/09 CD4 207 10.9% VL 0
11/08 CD4 227 10.3% VL 0 Chol 176 Trig 156
04/08 CD4 228 9.5% VL 0
01/08 CD4 194 9.0% VL 0
09/07 CD4 176 8.3% VL 0
03/07 CD4 130 9.5% VL 0 Chol 261  Trig 227
12/06 CD4 109 6.4% VL 0
09/06 CD4  88 5.5% VL und desens'd rtd to Bactrim
08/06  Began Atripla
07/06 CD4  59 5.0% VL 145 Chol 117 Trig 104
06/06  Bactrim rash, X2 Dapsone
 EFV & Truvada Chol 128 Trig 131
05/06 CD4  6 (2.0%) VL 78667 only V179D mutation Dx PC MAC

Offline David H.

  • Member
  • Posts: 13
Re: New on Atripla, also new here
« Reply #7 on: July 17, 2008, 03:27:19 AM »
Thank u all, especially Yakamein for the whole report. My Doc said i would instantly put 4 or 5 extra kilos,but not as a distrophia, just because of eating a bit more ::). In my case, since im only 65 kilos, 5 more won't killl me.
I was wondering if someone who started around 2006, has experienced any body changes 2 years later.
Thanks again. Is great to be able to be in this forum ;D

Offline OutOfDarkness

  • Member
  • Posts: 90
Re: New on Atripla, also new here
« Reply #8 on: July 17, 2008, 07:04:36 PM »
Hi David, welcome!

I take sustiva & truvada, which are the medications in atripla combined into one pill.  I preferred to stay on them separately and not switch to Atripla because I have never taken any other medications and have always experienced some sort of side effect for 2years now.  Remember:  everyone can react differently to medications, so what is true for me may not be true for you.  Although with a recent post I have read it seems like I do have a lot in common with others.  Now that I have done more research and read many many posts, I feel more confident about making a switch from sustiva to viramune, which I will be discussing with my doc at the end of the month.  The meds have provided great results as far as my VL and CD4 so I have suffered with difficulties in sleeping, feeling fatigue all day, weight gain with difficulty seeing weight loss when changing diet and exercise, disturbing dreams - I can even feel and smell in my dreams - I have not been able to hold even a part-time job for any length of time and have been on disability.

I know this does not reflect all that well on Atripla, but side effects do vary and you may do well on it.  I suspect that you will see great changes in your blood work. 

If you can take your meds at night with food, you may feel better in the morning with breakfast and a cup of coffee/tea.  Some caffeine is a MUST with me and my fatigue in the morning. 

I hope you have a better experience and try to stick it out if possible.  There are some great links on the home page of aidsmeds.com regarding all kinds of meds and suggestions for tolerating them.

Keep us posted  :)
2000 - seroconverted
2005 - cd4 350, VL 113,000
3/06 - started sustiva/truvada
3/08 - cd4 1,300 VL >50(undet.)

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,093
Re: New on Atripla, also new here
« Reply #9 on: July 18, 2008, 01:20:09 PM »
Hi David,

I've not been on Atripla.  I have been on Sustiva, but couldn't tolerate it.  I basically just wanted to welcome you to the forums.  Good luck.
  Luv,
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline kcmetroman

  • Member
  • Posts: 567
Re: New on Atripla, also new here
« Reply #10 on: July 18, 2008, 01:57:22 PM »
Hi David, and although I have been a stranger here, welcome anyway.

I started on Combivir and Kaletra, a solid regimen and I went U/D right away.  At that time the talk was that it was the PI's and the AZT in combivir which were threats to cause lypo, so I switched to Atripla, but now the word is Sustiva  is a major suspect.  At any rate, coming from a long time stoner, I welcome the highs I got, and still get on occasions.  The thing about the Sustiva and Truvada elements of Atripla, is that they have a fairly long shelf life in your body.  If for some freakish reason you miss a dose, or are extremely late, don't freak out.  That being said, you need to plan on taking your med(s) every day religiously. 95% is the rule to prevent resistance.

As far as side effects, I have really none other than the occasional buzz when I take it with my steak and toddy. I've shown no signs of lypo, and have in fact filled out. It beats  the diarrhea that I had on the other combo..

Cheers,
John

Offline David H.

  • Member
  • Posts: 13
Re: New on Atripla, also new here
« Reply #11 on: July 19, 2008, 05:50:03 PM »
I wanna thank every one of you who posted a word of guidance or advice :D
Is my 11 day and im not feeling that bad, actually. Some fatigue, but increasingly better (fingers crossed anyway). I guess, my concern is more about lypo and body changes in the future (? ???)

Offline J.R.E.

  • Member
  • Posts: 7,281
  • Joined Dec-2003 Living positive, since 1985.
Re: New on Atripla, also new here
« Reply #12 on: July 20, 2008, 05:14:25 AM »
Hello David,

Can't really give you any advice, as I have never been on Atripla. I am on the other non-nuke Viramune. Just wanted to say hello and welcome you.

oh yes,...You may want to stay away from high fat content foods, several hours before taking Atripla. This may help in minimizing the dreams , from the Sustiva portion. Also make sure to drink plenty of water daily.


Take care----Ray
« Last Edit: July 20, 2008, 05:16:03 AM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 25 mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 12/10/14,  t-cells are at 350,  Previous 8/25/14--- 402/ Viral load remains <40

 Current % is at 13% / Previous 8/25/14 11%

  
 63 years young.

Offline shanewest77

  • Member
  • Posts: 3
Re: New on Atripla, also new here
« Reply #13 on: July 22, 2008, 02:03:50 PM »
Hi David

I am starting Atripla this evening and this is my first med experience.
I have to admit that Im a little nervous, but its nice to know the Docs
in your area(s) say ther is no lypo side effect.
I hope you continue to feel better and better each day and wish you the
best.
I will keep you informed of my progress and side effects and hope to hear the
same from you.

Shane

Offline newbie76

  • Member
  • Posts: 238
Re: New on Atripla, also new here
« Reply #14 on: July 22, 2008, 04:52:25 PM »
Hello David. I have been on Sustiva+ Truvada (the same components of Atripla) for about 15 months now and haven't noticed any changes in my body fat distribution whatsoever.

I did feel a bit spaced out the first few weeks, but now I only have vivid dreams every night, but they don't really bother me. Sometimes I do enjoy them!

I have asked to switch to Atripla and I have an appointment in a week to start with the new pills. As it is really the same as taking Sustiva+Truvada I don't expect any change.

I have NEVER missed a dose and never been late in taking my medications. I hope you'll achieve a similar result as that's the most important thing you can do to keep in good health. Also try to eat healthy as much as you can.

Best of luck and keep us posted!
25th Apr 07: The worst day of my life
27th Apr 07: cd4 202 14%
30th Apr 07: cd4 126 18% VL 110000
19th May 07: Started Truvada/Sustiva
20th Jun 07: cd4 218 25% VL 435
13th Aug 07: cd4 374 20% VL 64
20th Dec 07: cd4 435 24% VL <50
20th Oct 08: cd4 725 31% VL <50
30th Nov 09: cd4 725 30% VL <50
01st Nov 10: cd4 755 33% VL<50
11th Nov 11: cd4 754 32% VL<50
01st May 12: cd4 864 40% VL<50
01st May 13: cd4 615 VL 609 :-/
14th May 13: VL <50

Offline kitty1

  • Member
  • Posts: 66
Re: New on Atripla, also new here
« Reply #15 on: July 25, 2008, 09:41:44 PM »
i was lucky on my first day on atripla.  I did not experience anything. It just kinda was a sleeping pill to me.  I have been on it for a while.  Started as truvanda and sustiva and switched to atripla when they introduced it.  i started with 135 cd4's and am now at 841 cd4's two years later.  Will stay on it until I decide to have a baby and will switch back to it after delivery.  I have no side effects now whatsoever.

Offline webontheweb

  • Member
  • Posts: 110
Re: New on Atripla, also new here
« Reply #16 on: July 29, 2008, 08:13:23 PM »
 :)Welcome!  My partner and I are just now coming up one year of treatment on Atripla.  This is what I can offer-  I follow dosing to the letter,  two hours after a meal and at least one one before I eat anything again-  eating intensifies the effects.  I had a hard time with the dreams in the beginning but now nothing out of the ordinary.
I have noticed no body changes in fat, etc.-  darn!  It is all still there!!!  My VL went down to under 45 almost immediately-  now we are working on getting the cd4 counts up-  i always take my pill at night before bedtime.
I do get the woozy's for a little bit when I take the pill and am going out- but it IS manageable/
Neither my parnter or I have missed a single dose in all this time, it must be a record somewhere!

Best of luck to you-  keep on the meds, and check in with your new friends.
Ciao,

Eric ::) :P 8)

Offline David H.

  • Member
  • Posts: 13
Re: New on Atripla, also new here
« Reply #17 on: August 02, 2008, 02:54:55 PM »
Hi again,
I can't thank u enough for so much feed back about the meds...
I finished today my 3rd week on Atripla, and it was tough all last week going to work in a new place, as it took so much off my energy. I also realised this: I was doing fine and then, when I had a fight 1 day with my partner, which lasted  24 stressing hours--, i noticed it multiplied a lot the side effects, mostly the fatigue....I guess is normal (?)
I hope this one who started with atripla,and meds in general, last week, is doing fine and let us know :)

 


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