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Author Topic: Lymph Nodes  (Read 7089 times)

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Offline HIV? poz about being neg

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Lymph Nodes
« on: June 13, 2008, 03:46:25 AM »
OK so I have been HIV positive for 17 months.
My lymph nodes have consistently been swollen throughout.
 My HIV specialist has sent me for an ultra sound. The specialists has said to be that it is uncommon to have the lymph nodes stay enlarged for such a long period of time?

I'm not on meds. Anyone else have some info on this? The web sites I have looked at say that the lymph nodes are usually only swollen during the asymptomatic period or in most cases up to three months or befor your going to get very sick?
« Last Edit: June 13, 2008, 03:48:57 AM by HIV? poz about being neg »
Jan/25/07 VL > 100 000 CD4 480 21%
Apr/13/10     Started Atripla
May/11/10    VL !! 300 !!     CD4 520
Jul/15/10      VL    75          CD4 400   27%
Dec/20/10    VL UD             CD4 390 28%
Jan/10/12    VL UD              CD4 670 28%
Mar/31/14    VL UD              CD4 580 37%
May/27/14    VL UD              CD4 750

Offline John2038

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Re: Lymph Nodes
« Reply #1 on: June 13, 2008, 05:22:46 AM »
It common say my doc as long as they not growth and become fix and hard.
The sonar shows in  most case "fatty lymph nodes" which is a reaction to the infection.

Do not worry  same here 

John

Offline Central79

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Re: Lymph Nodes
« Reply #2 on: June 13, 2008, 05:44:35 AM »
I've still got lymphadenopathy 2.5 years after being infected. It's very common to have them stay swollen until you start medication and your viral load is suppressed. It's just your body responding to the infection and producing cells and antibodies to fight it. It's nothing to worry about unless, like John said, they become fixed and hard.

M.
Diagnosed January 2006
26/1/06 - 860 (22%), VL > 500,000
24/4/06 - 820 (24.6%), VL 158,000
13/7/06 - 840 (22%), VL 268,000
1/11/06 - 680 (21%), VL 93,100
29/1/07 - 1,020 (27.5%), VL 46,500
15/5/07 - 1,140 (22.8%), VL not done.
13/10/07 - 759 (23.2%), VL 170,000
6/11/07 - 630 (25%), VL 19,324
14/1/08 - 650 (21%), VL 16,192
15/4/08 - 590 (21%), VL 40, 832

Offline HIV? poz about being neg

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Re: Lymph Nodes
« Reply #3 on: June 13, 2008, 11:44:26 AM »
ok thanks. so the ultra sound pretty much a waste of time then...
Jan/25/07 VL > 100 000 CD4 480 21%
Apr/13/10     Started Atripla
May/11/10    VL !! 300 !!     CD4 520
Jul/15/10      VL    75          CD4 400   27%
Dec/20/10    VL UD             CD4 390 28%
Jan/10/12    VL UD              CD4 670 28%
Mar/31/14    VL UD              CD4 580 37%
May/27/14    VL UD              CD4 750

Offline Ann

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Re: Lymph Nodes
« Reply #4 on: June 13, 2008, 03:35:15 PM »
HPABN,

Nobody can diagnose what's going on with your lymph nodes over the internet.

Your doctor is the one who saw you in person and if he thought they warranted further investigation, then perhaps it's the best thing to do. Even if it turns out to be nothing more than run-of-the-mill hiv-related lymphadenopathy, it's far better to be safe than sorry.

Keep that ultrasound appointment!

Ann
Condoms are a girl's best friend

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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline John2038

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Re: Lymph Nodes
« Reply #5 on: June 13, 2008, 05:42:53 PM »
I was willing to say the same as Ann !

Important: While a scan is scanning the whole body, the sonar is only taking images in the targeted area. In others words, if the doc doing the sonar is not carefully investigating your neck, it might miss lymphs nodes. It is important to insist to get all lymphs node checked.

FYI, this is how look a fatty lymph node:



When a lymph node is malignant, it burn the fat.
The fat in a lymph node is not correlated to the body fat.

Normally, when a sonar is requested, a second one need to be done 1 month after, to ensure the lymphs nodes are "benign" (well, for a neg, it might means HIV..).

Offline Tim Horn

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Re: Lymph Nodes
« Reply #6 on: June 14, 2008, 09:16:59 AM »
John:

I'm sorry, but this is the biggest crock of non-information I've ever read in these Forums.

Do all of us a favor and stop handing out advice regarding subjects you seemingly know NOTHING about.

Edited to add: Actually, consider yourself warned. Your misinformation has been teetering on "advice" for quite some time now and I think it's time for you to reel it in -- starting now.

Tim Horn 

« Last Edit: June 14, 2008, 09:47:45 AM by Tim Horn »

Offline John2038

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Re: Lymph Nodes
« Reply #7 on: June 14, 2008, 10:41:42 AM »
Hmm I doutt I'm wrong , the pix above being mine and having  reported  what the ID doc has said about  swollen lymps nodes

So what's wrong? 

Offline Tim Horn

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Re: Lymph Nodes
« Reply #8 on: June 14, 2008, 12:01:03 PM »
You've been warned and now you're hijacking this thread.

Your "understanding" of the structural and metabolic changes that occur in lymphadenopathy is incorrect at best. I encourage you to print out what you've written above, discuss it with your I.D. specialist, and stop passing along misinformation in the Forums.

Respond again and you're looking at a seven-day time out.

Tim Horn
« Last Edit: June 14, 2008, 03:05:03 PM by Tim Horn »

Offline HIV? poz about being neg

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Re: Lymph Nodes
« Reply #9 on: June 25, 2008, 01:05:23 AM »
Ok so now the Specialist is sending me for a CAT Scan now I'm really getting freaked out and talking about doing a biopsy once the Cat Scan results come back.
Jan/25/07 VL > 100 000 CD4 480 21%
Apr/13/10     Started Atripla
May/11/10    VL !! 300 !!     CD4 520
Jul/15/10      VL    75          CD4 400   27%
Dec/20/10    VL UD             CD4 390 28%
Jan/10/12    VL UD              CD4 670 28%
Mar/31/14    VL UD              CD4 580 37%
May/27/14    VL UD              CD4 750

Offline John2038

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Re: Lymph Nodes
« Reply #10 on: June 25, 2008, 02:18:09 AM »
Hi,

got a CAT and a PET scan done + bone marrow biopsy + sonar, and no malignant cell were find.
Due to a lymph node bigger than 2cm, I asked to get a biopsy done, but 3 docs give me the same answers:
You don't have lymphoma. Got instead various comment such as "If so, you will have symptoms such as weight loss, fever, night sweat, bounce in some FBC counts etc."
I said "But must start with swollen lymph nodes greater than 2cm no?"
The answer was: "Never see a lymphoma with such CD4"

I am not telling you of course to not do this biopsy !! Neither has my docs said that there are 0 possibility to have a lymphoma above 200 CD4 (but they said "very unlikely").
I am only telling you that it is not because we ask you to have a scan done, that you are having a lymphoma, as in my case (fingers crossed)

Keep the Faith !

John
« Last Edit: June 25, 2008, 02:49:04 AM by John2038 »

Offline bocker3

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  • You gotta enjoy life......
Re: Lymph Nodes
« Reply #11 on: June 25, 2008, 08:09:36 AM »
I am not telling you of course to not do this biopsy !! Neither has my docs said that there are 0 possibility to have a lymphoma above 200 CD4 (but they said "very unlikely").

First off John -- this is a CRAZY thing to say.  People get lymphoma's all the time who are HIV- (and presumably have normal CD4 counts).  come make these sort of statements after you've gotten your medical degree please.  You may mean to be helpful and comforting, but you really aren't doing either here.

Now -- back tot he poster -- my advice is to take a deep breath and get your tests done.  The whole point of the testing is to determine what is wrong.  If the tests are negative, great --- if they do show something, you can face that then, but at least you'll know and can attack the problem in the proper way.  Your fear is likely based on assuming the worst possible outcome -- try to take things step by step.  First go get the tests -- worry about the results if and when needed.  Easier said then done, I know -- but give it a shot.
When will you be having the tests?  Please do keep us posted.
My thoughts will be with you.

Hugs,
Mike
Atripla - Started 12/05
Reyataz/Norvir - Added 6/06
Labs - Pre-Meds
Sep05 T=350/25% VL98,559
Nov05 288/18%  47,564
Current Labs
May2013 691/31% <20

Offline Andy Velez

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Re: Lymph Nodes
« Reply #12 on: June 25, 2008, 10:54:02 AM »
I agree that you ought to move ahead, take some deep and slow breaths and get the tests done. Hopefully they will give you some solid information including possibly good news.

Mike, John is actually encouraging him to do the tests but I will admit his syntax is not the clearest. Let's not get sidetracked here and keep our focus on the person who began this thread and his needs. 
Andy Velez

Offline Winiroo

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  • Posts: 2,082
  • Positive since 1991
Re: Lymph Nodes
« Reply #13 on: June 25, 2008, 04:00:36 PM »
OK so I have been HIV positive for 17 months.
My lymph nodes have consistently been swollen throughout.
 My HIV specialist has sent me for an ultra sound. The specialists has said to be that it is uncommon to have the lymph nodes stay enlarged for such a long period of time?

I'm not on meds. Anyone else have some info on this? The web sites I have looked at say that the lymph nodes are usually only swollen during the asymptomatic period or in most cases up to three months or befor your going to get very sick?


I've been positive considerably longer than you but my lymph glands have been enlarged consistently for years.
I had one in my neck removed because it continued to get larger to the point where it was obvious visually.
It was not cancerous it just got big. The ones in my arm pits have been the size of peanut MnM's for years. They have been needle biopsied numerous times with nothing showing up on the biopsy.

I thought that swollen glands was a norm with most of us.

Offline ANGEL42

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Re: Lymph Nodes
« Reply #14 on: June 26, 2008, 08:40:04 PM »
As Someone who has been battling HIV related Hodgkins Lymphoma now for over two years ...please move forward with Cat scans and Preferably a PET ct.
I waited to long and ended up Stage IV. By the way my T`s were fine and my VL was below 50,000....We can`t ignore swollen lymphnodes...Always talk with your doctor and be Pro Active.

My prayers and thoughts are with you..
ANGEL
" My Body Might Be Broken, but My Spirit and Soul are Alive and Well " my personal mantra

Offline HIV? poz about being neg

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Re: Lymph Nodes
« Reply #15 on: December 15, 2008, 03:59:57 AM »
WOW ok so had the CatScan done and the DR says that the lymph nodes are somewhat large but that they are normal for a person who is infected with HIV and that a follow up will be done in six months time.. And basically to watch if the lymph nodes become fixed and hardened?
Jan/25/07 VL > 100 000 CD4 480 21%
Apr/13/10     Started Atripla
May/11/10    VL !! 300 !!     CD4 520
Jul/15/10      VL    75          CD4 400   27%
Dec/20/10    VL UD             CD4 390 28%
Jan/10/12    VL UD              CD4 670 28%
Mar/31/14    VL UD              CD4 580 37%
May/27/14    VL UD              CD4 750

Offline GodSon83

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  • El hijo del capitán Trueno tenía pinta de raro
Re: Lymph Nodes
« Reply #16 on: December 15, 2008, 06:58:01 PM »
 ???
I have 3 lymphomas right now, one in each part of my neck, and one more in the back part, down my head. But ther are like round pearls, from 1 cm each one.
My doctor said it´s ok, it´s normal from someone with HIV, now i´m feeling good, so, there isn´t reasons to worry about it.

Xo-Xo
Jun 08  - (-)
Jul 08   - (+)
Dic 08 - CD4:921
May 09- CD4: 1,025   CV: 8,233
Dic 09 - CD4:    911   CV: 5,160
May 10- CD4: 1,054  CV: 6,510
Sep 10- CD4:     923  CV: 1,832
Mar 11- CD4:     508  CV:  1,489
Jul   11- CD4:  1,064  CV:    558
Nov 11- CD4:  1,945  CV:    795
Abr  12- CD4:    859  CV:    401  ´Still no meds´

I like i feel! :)

Offline tag_man08

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  • Keep Dreaming!!!
Re: Lymph Nodes
« Reply #17 on: December 15, 2008, 11:10:50 PM »
I only had one pop up on my neck....it was pretty much there the last 15months since my diagnosis.....and after i started the drugs....it disappeared in less than a week...

It really became one of my reasons to start therapy....i didn't want anything else to come up along with the HIV....everyone reacts differently to HIV....its a ever changing disease that we have to constantly watch for changes....I had hoped my lymph node would go down....but it never did....it was always on my mind...I've become a strong believer behind starting therapy sooner than advised.  I only wish I had the courage during my first months on therapy to start....but I was still in some form of denial.
08/30/07:  The HIV diagnosis...
09/07/07:  CD4 299 (21%)  VL 160K
01/07/08:  CD4 396 (26%)  VL 125K
04/21/08:  CD4 478 (25%)  VL 92K
09/03/08:  CD4 313 (23%)  VL 10K
11/03/08:  CD4 338 (23%)  VL 30K
11/21/08:  Isentress & Truvada
12/05/08:  CD4 485 (29%)  VL  undetectable in two weeks
03/13/09:  CD4 575 (30%)  VL  undetectable

Offline LBpozguy

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Re: Lymph Nodes
« Reply #18 on: December 17, 2008, 05:07:13 PM »
Hey Guys:

don't know if I should be starting a new thread or not.... but I just went to a surgen today because of a Lymph Node on the back of my neck. I got my HIV Diagnosis in Sept 08 but the node has been slightly enlarged for several years. I had an HIV test in Feb 08 that was Neg so I am pretty sure that the node was not enlarged because of hiv. However, in the last few months I noticed that it has gotten larger and is causing some discomfort. So I went to the surgen today, and he told me that he can remove and will remove it on an outpatient basis. Meaning go in the morning and then leave back home in a few hours. He didn't seem to feel that it was cancerous but said it would still be biopsied (sp). So it looks like I will be having it taken out before Xmas.  But now I am a little worried. Everyone is talking about Pet scans and CAT scans.... should my doctor being doing that before he removes it?

HIV? poz about being neg  Sorry if it seems I am hijacking your thread. I really am not tryong to do that. Just coping with the same thing you are right now!!

LB
Feb 08 neg
Sept 08 - First poz test
Sept 08 CD4 558 (% unk) VL 11000
Dec 08 CD4 480 (29%) VL less than 700
Mar 09 CD4 370  VL 25000
June 09 CD4 425 VL 68000
Aug 09 Started Atripla
Sept 09 CD4 639 VL 100
Nov 09  CD4 716 (35%) VL Undet!!!!!!!!!!!!!
Jan 10 CD4 685 VL UND

Offline AtomicA

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Re: Lymph Nodes
« Reply #19 on: December 17, 2008, 05:19:26 PM »
when I had seroconversion illness practically every lymph node in my body quintupled in size. the one on the left side of my neck and in all the ones in my groin stayed huge to the point they were visible through my skin for the next year. It wasn't until I started meds that they subsided, and they did so within a couple of weeks. now you can't even feel the ones in my groin and you have to press pretty hard to feel the one on the left side of my neck.

after being a constant, worrying reminder of what was going on in my body for a year, seeing them shrivel up in two weeks was almost a non-event.

my doc showed me on on the right side of his neck that is permanently enlarged because of a series of strep infections as a kid.

now the only time mine swell up is around exam season when I get less than 5 hours of sleep a night. They're like my little stress barometer.

HIV? poz about being neg: you my friend, are not alone!

Offline YaKaMein

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Re: Lymph Nodes
« Reply #20 on: December 17, 2008, 05:34:50 PM »
H?PABneg, am glad you sought medical attention and have received very encouraging news. I encourage us all to always seek medical advice from our health care providers, be persistent, ask questions, and feel free to seek second or third opinions ... enlarged lymph nodes are common. Once discovered, try not to worry, and make sure your physician or care team is aware and monitors them. Only then can you make the best decisions about the next steps to take.
09/11 Endocrine Consult
08/11 CD4 328 14.9% VL 0
 Disc'd Bactrim DEXA -3.1 Tscore
03/11 CD4 338 14.7% VL 0
11/10 CD4 300 14.3% VL 0 <20copies
07/10 CD4 336 14.0% VL 0 DEXA -2.7 Tscore
03/10 CD4 308 13.4% VL 0 Vit D normal
01/10 Began FOTO
11/09 CD4 274 13.7% VL 0 Chol 173 Trig 131
07/09 CD4 324 13.5% VL 0 DEXA -3.1 Tscore lumbar
03/09 CD4 207 10.9% VL 0
11/08 CD4 227 10.3% VL 0 Chol 176 Trig 156
04/08 CD4 228 9.5% VL 0
01/08 CD4 194 9.0% VL 0
09/07 CD4 176 8.3% VL 0
03/07 CD4 130 9.5% VL 0 Chol 261  Trig 227
12/06 CD4 109 6.4% VL 0
09/06 CD4  88 5.5% VL und desens'd rtd to Bactrim
08/06  Began Atripla
07/06 CD4  59 5.0% VL 145 Chol 117 Trig 104
06/06  Bactrim rash, X2 Dapsone
 EFV & Truvada Chol 128 Trig 131
05/06 CD4  6 (2.0%) VL 78667 only V179D mutation Dx PC MAC

 


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