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Author Topic: Transplants and Tumors of this stuff I sing....  (Read 3048 times)

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Offline CaptCarl

  • Member
  • Posts: 1,114
  • Located in the Palinsville subdivision, JesusLand
Transplants and Tumors of this stuff I sing....
« on: June 12, 2008, 09:31:37 PM »
    ....these are a few of my favorite things!

   ( I was going to post this in the Off Topic forum, but thought that it was more appropriate here. I'm not sure though as this isn't about Living with HIV, though it is about serious health issues. Moderators if you feel the need to move this thread to a different forum, please do so. I promise I won't have a hissy fit ;))

   As some of you here on the forums may remember, last year I had an exciting bout with Liver cancer, or, Hepatocellular Carcinoma, HCC for short. I went through a lot of crap from the cancer center here and finally 8 months after being diagnosed, I was finally treated for it. The first treatment was when they shot the tumor full of alcohol, and in addition to being stunningly painful, was also a failure. Timmy the Tumor, as I named it, still lived. A month later they fried the little bastard with electricity and killed him. Timmy was dead ;D
  
   Last week though, after a CT scan, it seems that little Timmy has a sibling. After careful consideration, and in the name of Gender Equality, I have decided that the newbie is Twyla the Tumor. Twyla is about as big as Timmy was, and in the same general area. The idea for treatment this time around is called ChemoEmbolization. This is where they go through an artery in the leg up into the liver. Once there, the shoot something into the artery that blocks off the blood supply to Twyla and starves her to death. As and added bonus, the stuff that blocks the artery is embedded with chemotherapy, so the she gets poisoned at the same time, and the chemo stays in one place rather than going through my entire body. The procedure should only need to be done once, and should be scheduled soon. I will keep you posted...

   Earlier this week, I also went to San Francisco to with the Doctor there who is overseeing my upcoming liver transplant. When all was said and done, it seems that mid-September to mid-October is when it will be happening. I will have the required score at the end of August, and then I will have to go to SF and wait for the "We got yer new Liver"call. I could stay in NM and wait, but that would make things difficult as there may be as little as 4 hours prior notification and that is not enough. So at least now I have a time frame I can work with. Get as ready as I can for this. Save some money 'cuz living in SF ain't cheap, and I will need to stay there for at least 6 weeks after the surgery. So there it all is, in a big happy fun ball. Oddly enough though, I don't feel overly stressed about any of this. But then again, I don't get stressed about much as there doesn't seem to be any point in it. I guess I summed it up best earlier whe talkin gto my supervisor at work. Without even realizing what I had said, I made the comment "Jeez, it's just cancer, it's not like it's a big deal or anything." And that my dear kiddies,  is exactly how your ol' CaptCarl feels about it. Have a great day everyone.

CaptCarl
The only thing I can do straight is shoot..

Offline Matty the Damned

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  • Ninja Please
Re: Transplants and Tumors of this stuff I sing....
« Reply #1 on: June 12, 2008, 09:54:17 PM »
Sorry to hear that Timmy's bitch sister has rocked up, Cap'n C. It's good to know you're dealing with her so well.

Love,

MtD

Offline Oceanbeach

  • Member
  • Posts: 3,565
Re: Transplants and Tumors of this stuff I sing....
« Reply #2 on: June 12, 2008, 09:56:51 PM »
Hey Carl,

There used to be a temporary housing program offered with HOPWA funds.  The name Chrip sounds familiar and it is/was develpoed for people living with HIV who would become temporarily homeless.  It was offered in Title I EMA's and San Francisco is.  I would contact The Positive Resourse Center in San Francisco for help    ;D Have the best day
Michael

www.positiveresource.org
« Last Edit: June 12, 2008, 10:03:40 PM by Sonomabeach »

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: Transplants and Tumors of this stuff I sing....
« Reply #3 on: June 12, 2008, 10:30:13 PM »
Hey Capt. Carl

Have you considered hanging around the Sacramento area? It is only 80 miles away and a hell of a lot cheaper (then again it is Sacramento  :-\, but still).

You are handling it well bud, sorry bout Twyla that really sucks.

Take care,

sharkie

Offline anniebc

  • Member
  • Posts: 5,939
  • AM member since 2003
Re: Transplants and Tumors of this stuff I sing....
« Reply #4 on: June 12, 2008, 11:11:47 PM »
The Captain knows how to handle his women.. ;)

Thinking of you.

Hugs
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline rondrond

  • Member
  • Posts: 1,712
Re: Transplants and Tumors of this stuff I sing....
« Reply #5 on: June 12, 2008, 11:13:05 PM »
CaptCarl..
I'm so sorry that you are having to go through this. It seems that you have planned this out and have a pretty good handle on what to do.
I wish you all the best.
ronnie
"I may not be exactly where I want to be, but I sure as Hell am not where I was"
Wynnona Judd

Diagnosed/HIV
1993
AZT
Norvir
1994-2001
Crixivan/Epivir/Zerit
No Meds for 7 Years

04jul07/DVT-right leg/Bi Lateral PE's     
16oct08/DVT-left leg
Sept '09  6 blood clots in left arm
Coumadin 5mgs
                                     
Atenolol/50mg/2x
Hydrochlorth 25mg/1x
Gemfibrozil/300mgs/2X
Symbicort
Proventil Inhaler
Potassium
Rhinocort


*APR 08~Viramune/Truvada
March08  CD4 330 23% VL 452.000 
*Jan09 Med change~Epzicom/Viramune

Aug09   CD4 523 23%  VL<48
Diagnosed: COPD
Dec 2013: CD4 645 45% VL 49
Med Change: Viramune/Epivir/Ziagen/Isentress

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,945
Re: Transplants and Tumors of this stuff I sing....
« Reply #6 on: June 13, 2008, 08:30:46 AM »
My captain, I'm sorry about the new occupier.  You sound like you have a really good handle on it.  I'm thinking about you.
  Luv,
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline bear60

  • Member
  • Posts: 4,104
Re: Transplants and Tumors of this stuff I sing....
« Reply #7 on: June 13, 2008, 10:40:11 AM »
Hey Carl
I hope everything works out for you.  I think the housing thing can be arranged somehow!  Doesnt the hospital have some advice....input....information...counseling....etc to offer?

Joel
Poz Bear Type in Philadelphia

Offline Miss Philicia

  • Member
  • Posts: 24,104
  • celebrity poster, faker & poser
Re: Transplants and Tumors of this stuff I sing....
« Reply #8 on: June 13, 2008, 11:01:55 AM »
Capt. Carl is teh bestest -- always with a fighting spirit.  Sorry to hear the news and will be thinking of you. 
"Iíve slept with enough men to know that Iím not gay"

Offline Peter Staley

  • Member
  • Posts: 1,337
  • Founder & Advisory Editor, AIDSmeds.com
    • AIDSmeds.com
Re: Transplants and Tumors of this stuff I sing....
« Reply #9 on: June 13, 2008, 11:40:22 AM »
Wow, Carl -- that's a full plate!  But you're handling it with good planning, and a dash of humor -- the best combo for fighting back.

Good luck with the move to SF.

Peter

Offline heartforyou

  • Member
  • Posts: 1,105
  • I must be a survivor in many ways...
Re: Transplants and Tumors of this stuff I sing....
« Reply #10 on: June 13, 2008, 07:14:44 PM »
hey capt Karl.

that really sucks buddy...

I just had two skincancers removed. one on my back and last week, one on my leg.
They were both malignant.

But wenn I hear about your ordeal, mine seems peanuts

Good luck in killing Twyla.

Hermie
Diagnosed in 1987 and still kicking
Viread, Kivexa (Epzicom),Viramune once daily

Happiness is the freedom of breathing fresh air every day.

Offline CaptCarl

  • Member
  • Posts: 1,114
  • Located in the Palinsville subdivision, JesusLand
Re: Transplants and Tumors of this stuff I sing....
« Reply #11 on: June 13, 2008, 07:55:50 PM »
   Hey Kiddies! Thanks for the concern and advice regarding housing. I was talking to a friend today at work, who, ironcially also has cancer. She has offered me the use of her 32 foot motorhome. I checked on RV spaces, and they are much cheaper than renting an apartment, and as an extra added bonus, I should be able to bring at least two of the dogs with me, which would be great. Baby Elmo cannot take being away from her dad fro too long. When I was gone for the four days this past week, she basically stopped eating, and spent most of her time moping under the coffee table. I called the Liverologist today and they will be setting the appointment next week for my latest abortion, RIP Twyla ;D

CaptCarl
The only thing I can do straight is shoot..

Offline GSOgymrat

  • Member
  • Posts: 5,025
  • HIV+ since 1993. INTJ
Re: Transplants and Tumors of this stuff I sing....
« Reply #12 on: June 14, 2008, 03:20:13 PM »
Glad to hear you have the housing issue solved. It is great that you will be able to have your dogs with you. Take care and be strong.

Ford

Offline bear60

  • Member
  • Posts: 4,104
Re: Transplants and Tumors of this stuff I sing....
« Reply #13 on: June 15, 2008, 04:43:17 PM »
Carl
How close to the city are the RV spaces?
Just curious.
Poz Bear Type in Philadelphia

Offline Iggy

  • Member
  • Posts: 2,435
Re: Transplants and Tumors of this stuff I sing....
« Reply #14 on: June 15, 2008, 06:04:30 PM »
I'm sorry to read of this happening to you, though inspired by the way you are handling. 

My best wishes for you in this time.

Offline CaptCarl

  • Member
  • Posts: 1,114
  • Located in the Palinsville subdivision, JesusLand
Re: Transplants and Tumors of this stuff I sing....
« Reply #15 on: June 17, 2008, 06:52:01 AM »
Bear,
   I have found a few pretty close in, the closest one being in Pacifica. The downsid is that it looks like a parking lot, with very little space between the RVs, but it is on a bluff overlooking the Pacific. There are a few up north, about an hours drive away that look nicer with trees and space and all that godawful nature type crap ;)

CaptCarl
The only thing I can do straight is shoot..

Offline Dachshund

  • Member
  • Posts: 5,957
Re: Transplants and Tumors of this stuff I sing....
« Reply #16 on: June 17, 2008, 07:06:44 AM »
Bear,
   I have found a few pretty close in, the closest one being in Pacifica. The downsid is that it looks like a parking lot, with very little space between the RVs, but it is on a bluff overlooking the Pacific. There are a few up north, about an hours drive away that look nicer with trees and space and all that godawful nature type crap ;)

CaptCarl

Check the burbs Capt. I know there use to be one in Vallejo (North Bay) which ain't too far from the city. Good luck my friend.

Hal

Offline Oceanbeach

  • Member
  • Posts: 3,565
Re: Transplants and Tumors of this stuff I sing....
« Reply #17 on: June 17, 2008, 08:17:31 PM »
If an hour drive is not too much, there are several places on Santa Rosa Ave, North on 101.  There are also a couple of nice friendly places on the Russian River but that is an hour and a half commute.  Add an extra hour during peak traffic.  ;D  Have the best day
Michael

Check Bolinas, Hwy 1 North
« Last Edit: June 17, 2008, 08:19:32 PM by Sonomabeach »

Offline AlanBama

  • Member
  • Posts: 3,626
  • Alabama: the 'other' 3rd World Country!
Re: Transplants and Tumors of this stuff I sing....
« Reply #18 on: June 17, 2008, 08:34:20 PM »
You're a brave guy Carl, and I wish you nothing but the best.   I hope you will soon be able to give us a "good report".

Keeping you in my prayers.....

Alan  :-*
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline YaKaMein

  • Member
  • Posts: 368
Re: Transplants and Tumors of this stuff I sing....
« Reply #19 on: June 17, 2008, 10:16:17 PM »
Capt

Sounds like something's looking up for ya! Thoughts are with you
YaKa
09/11 Endocrine Consult
08/11 CD4 328 14.9% VL 0
 Disc'd Bactrim DEXA -3.1 Tscore
03/11 CD4 338 14.7% VL 0
11/10 CD4 300 14.3% VL 0 <20copies
07/10 CD4 336 14.0% VL 0 DEXA -2.7 Tscore
03/10 CD4 308 13.4% VL 0 Vit D normal
01/10 Began FOTO
11/09 CD4 274 13.7% VL 0 Chol 173 Trig 131
07/09 CD4 324 13.5% VL 0 DEXA -3.1 Tscore lumbar
03/09 CD4 207 10.9% VL 0
11/08 CD4 227 10.3% VL 0 Chol 176 Trig 156
04/08 CD4 228 9.5% VL 0
01/08 CD4 194 9.0% VL 0
09/07 CD4 176 8.3% VL 0
03/07 CD4 130 9.5% VL 0 Chol 261  Trig 227
12/06 CD4 109 6.4% VL 0
09/06 CD4  88 5.5% VL und desens'd rtd to Bactrim
08/06  Began Atripla
07/06 CD4  59 5.0% VL 145 Chol 117 Trig 104
06/06  Bactrim rash, X2 Dapsone
 EFV & Truvada Chol 128 Trig 131
05/06 CD4  6 (2.0%) VL 78667 only V179D mutation Dx PC MAC

Offline aztecan

  • Member
  • Posts: 5,398
  • 29 years positive, 57 years a pain in the butt
Re: Transplants and Tumors of this stuff I sing....
« Reply #20 on: June 18, 2008, 09:51:32 AM »
Hey Carl,

Kick Twyla's ass out the door, hon.

I was hoping to see you and your other half last weekend at Pride, but I didn't make it down to the city.

Copious amounts of positive energy heading your way.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

 


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