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Author Topic: Ryan White/Medicaid/Medicare/ADAP  (Read 3342 times)

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Offline mewithu

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  • mewithu
Ryan White/Medicaid/Medicare/ADAP
« on: July 13, 2008, 10:48:14 AM »
Why is it that we are sending Billions of dollars overseas to fight HIV/AIDS and cutting funds in our on country for our Infected and disabled HIV/AIDS victims. This is a crime against our on Humanity. Please write comments to your Senators and Congresmen on Congress.org Complain about this and get the Help we need to stay alive in our own country. Thank You
1997 is when I found out, being deathly ill. I had to go to the hospital due to extreme headache and fever. I fell coma like,  two months later weighing 95 pounds and in extreme pain and awoke to knowledge of Pancreatis, Cryptococcal Meningitis, Thrush,Severe Diarea,  Wasting, PCP pneumonia. No eating, only through tpn. Very sick, I was lucky I had good insurance with the company I worked for. I was in the hospital for three months that time. 
(2010 Now doing OK cd4=210  VL= < 75)
I have become resistant to many nukes and non nukes, Now on Reyataz, , Combivir. Working well for me not too many side effects.  I have the wasting syndrome, Fatigue  . Hard to deal with but believe it or not I have been through worse. Three Pulmonary Embolism's in my life. 2012 520 t's <20 V load

Offline Miss Philicia

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Re: Ryan White/Medicaid/Medicare/ADAP
« Reply #1 on: July 13, 2008, 11:39:38 AM »
Why is it that we are sending Billions of dollars overseas to fight HIV/AIDS and cutting funds in our on country for our Infected and disabled HIV/AIDS victims.

Because it makes congregations at mega-churches like Rich Warren's Saddleback Church in conservative Orange Co, CA very, very happy.  His wife is very big on white folk doing penance for ignoring AIDS for 2 decades.  Basically conservative evangelicals (surprisingly) lobbied hard for Bush's foreign AIDS programs, because so many people were dying in Africa that it made their Wal*mart buying asses look like they weren't reading their Bibles.  Bush likes it because it fulfills the political need to pander, but also provides for compassionate legacy enhancement.

So, you see, they've done their good work -- all is right with God.  The fact that Ryan White has been flat-funded the entire time is either irrelevant to them, or they're ignorant of the issue.  There was an article in Poz.com about this couple and I don't recall that angle coming up.  Still, these two seem much nicer than the Falwell's of this world (R.I.P.) so I'd rather have them reserved for future use in domestic HIV program needs.

So sure, write your congressmen.  Hopefully they're Democrats that will listen/vote for it, because not all do that's for sure.  And as the economy continues to tank you'll see less and less political will to fully fund domestic programs like Ryan White -- I hope I'm wrong, of course.

You probably have a local Ryan White planning council, and if you live in an urban area it should be easy to locate -- I think these councils are part of the overall CARE package rules.  Meetings should be open and you can go and state your ideas for what should and should not be cut.  With less funds to go around the tendency is to save these funds for medication/formulary funding, which of course, I agree with.
« Last Edit: July 13, 2008, 11:42:05 AM by philly267 »
"Iíve slept with enough men to know that Iím not gay"

Offline Miss Philicia

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Re: Ryan White/Medicaid/Medicare/ADAP
« Reply #2 on: July 13, 2008, 12:12:08 PM »
Oh, then you read things like this and see that their cuts could be offset greatly by not doling out a huge salary/benefits package to their executive director, which is twice what is normal for a similar position in that area.

It amazes me that someone who directs an HIV/AIDS organization thinks $334,551 was appropriate in the first place.
"Iíve slept with enough men to know that Iím not gay"

 


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