Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
August 27, 2014, 09:14:19 AM

Login with username, password and session length


Members
  • Total Members: 23330
  • Latest: ryant99
Stats
  • Total Posts: 636304
  • Total Topics: 48287
  • Online Today: 185
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 5
Guests: 142
Total: 147

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: To those who use Norvir  (Read 4090 times)

0 Members and 1 Guest are viewing this topic.

Offline ubotts

  • Member
  • Posts: 347
To those who use Norvir
« on: April 21, 2008, 12:39:34 PM »
Does anyone take 2 pills instead of one here?

I was taking one norvir 1 day, then the doctor upped it to 2 because in 8 yrs I have had my VL undetectable, but since they put me on one norvir, my t cells went up from 161 to
338, the highest its been in years, but my VL showed a number of 402, so they upped my norvir to 2 pills a day...

I hope this works..........but damn..do I got the runs from taking 2 instead of one..
I go back in 3 weeks and hope this is resolved, if not its back to the drawing board.

Did this happen to anyone else.... ???
Live Love Laugh and dance like no ones watching.
Laughter is the best medicine, so try to have a laugh everyday..Even if your not feeling your best, think about something that was funny at one time in your life and work with it..   :o)

Online Miss Philicia

  • Member
  • Posts: 24,005
  • celebrity poster, faker & poser
Re: To those who use Norvir
« Reply #1 on: April 21, 2008, 01:01:48 PM »
I take 1 norvir (100mg) with each dose of Prezista, so yeah that's 2/day -- is that what you're asking?

If you have the runs then why aren't you taking imodium (or prescription stregth loperamide) with each dose?  I do.
"Iíve slept with enough men to know that Iím not gay"

Offline ubotts

  • Member
  • Posts: 347
Re: To those who use Norvir
« Reply #2 on: April 21, 2008, 09:07:29 PM »

I take 2 novir and 2 lexiva, plus one truvada..I called my doctor today and she said to stop taking 2 novir and just take one..

Btw, I did take meds for the runs...
I feel better that they are bringing me back to my orginal dose..
The reason they upped it is because, My VL was 408
and I was always undectable for yrs..
But it did bring up my tcells from 161 to 338...
My doctor was concerned that my VL was showing up so she put me on
another novir.....NOT A GOOD IDEA.. >:(
Live Love Laugh and dance like no ones watching.
Laughter is the best medicine, so try to have a laugh everyday..Even if your not feeling your best, think about something that was funny at one time in your life and work with it..   :o)

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: To those who use Norvir
« Reply #3 on: April 21, 2008, 09:25:47 PM »
Does anyone take 2 pills instead of one here?

I was taking one norvir 1 day, then the doctor upped it to 2 because in 8 yrs I have had my VL undetectable, but since they put me on one norvir, my t cells went up from 161 to
338, the highest its been in years, but my VL showed a number of 402, so they upped my norvir to 2 pills a day...

I hope this works..........but damn..do I got the runs from taking 2 instead of one..
I go back in 3 weeks and hope this is resolved, if not its back to the drawing board.

Did this happen to anyone else.... ???

I had HIV for the last 22 yrs. I'm 51 yrs old, in 1991 I started taking meds, and I'm still on them, in 1998 I came down with FULL-BLOWN-AIDS, had 3 IO's PCP, and a few other problems, also, back then, I had 90 to 100 T-cells, and my VL-load was OFF-THE-CHARTS, so I went on SSDI....................I don't know why I'm still alive, but I'am.....and after 10 yrs of being disabled, I got better, now I'm at 450 to 500 T-cells, and NO VL-Load, and seem to be doing well, at least for now.........

I take 4 Norvir a day 2 in the AM and 2 at the PM, also take 4 Aptivus a day 2 in the AM and 2 at night......here the rest of what I'm on:
Truvada 1 a day
Isentress 1 a day

 Now for the NON-HIV Meds:

Accupril 1 a day for High Blood pressure caused by the HIV meds
Tricor 1 a day for High Colesterol caused by the HIV Meds
Omega-3-fatty-acids for high Colesterol caused by the HIV Meds 2grams a day 1 in the AM and 1 in the PM
Lopermide for loose stools caused by all of the HIV-Meds
Bactrum DS 1 a day for them nasty little infections, like Trush, fever Blisters and swollen glands (limph nodes) under my jaw-bone, and for urinary-trac-infections

So 1 Novir a day depends on what other meds your on, and what your doctor recomends, but in my case, I take 4 a day............yeah I know I take a lot of Meds, and my stomach is always upset 24/7  but, I eat a lotta tums, and they seems to work well....... my doctor told me that I can take as many tums as I want, and that they won't hurt me........so, I would consider  myself VERY LUCKY, If I only took 1 novir a day, you should be glad ,you only take one a day.................
« Last Edit: April 21, 2008, 09:57:45 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Winiroo

  • Member
  • Posts: 2,082
  • Positive since 1991
Re: To those who use Norvir
« Reply #4 on: April 21, 2008, 09:51:00 PM »
I take 1 Norvir a day along with one Truvada and 1 Reytaz.
I do well on a once a day regimen. I've had trouble adhering to anything other.
I wouldn't want to take any more Norvir. I cant stand taking the one I do take. LOL

I hope it works out for you.

Offline newt

  • Member
  • Posts: 3,878
  • the one and original newt
Re: To those who use Norvir
« Reply #5 on: April 22, 2008, 06:23:40 AM »
This is empirical (read speculative) prescribing to try and inrease the drug level of your main PI. Which PI are you on?

- matt
"The object is to be a well patient, not a good patient"

Online Miss Philicia

  • Member
  • Posts: 24,005
  • celebrity poster, faker & poser
Re: To those who use Norvir
« Reply #6 on: April 22, 2008, 09:43:39 AM »
This is empirical (read speculative) prescribing to try and inrease the drug level of your main PI. Which PI are you on?

- matt


ubotts takes Lexiva
"Iíve slept with enough men to know that Iím not gay"

Offline allopathicholistic

  • Member
  • Posts: 3,258
Re: To those who use Norvir
« Reply #7 on: April 22, 2008, 10:23:41 AM »

Offline newt

  • Member
  • Posts: 3,878
  • the one and original newt
Re: To those who use Norvir
« Reply #8 on: April 22, 2008, 04:50:21 PM »
Okay

The 200mg Norvir is the recommended dose for Lexiva in treatment-experience people, ie people who have taken a combo beforehand. If Lexiva was part of your first combo this probably doesn't mean you.

On the not getting "undetectable"  (less than 50 copies) viral load any more...hmmm....I would ask for a retest. (How long) were you undetectable for before? It would be quite odd if you were undetectable on a 100mg Norvir boost for Lexiva but became detectable on 200mg...Did the jump in viral load happen before or after adding the extra bit of Norvir?

- matt
"The object is to be a well patient, not a good patient"

Offline ubotts

  • Member
  • Posts: 347
Re: To those who use Norvir
« Reply #9 on: April 23, 2008, 08:50:35 AM »


I have never taken Lexiva before...I was undectable for 6 yrs..They are retesting me and that is why they tried to put me on 2 novir a day instead of 1...but I got sick so I called my dr and now they put me back on 1 novir..

My VL was detectable when I was taking one norvir, so thats when they put my ass on
two ....I felt sick to my stomach, so now I am back on one norvir..

I go back at the end of this month, and Ill let you know what happens. ???
Live Love Laugh and dance like no ones watching.
Laughter is the best medicine, so try to have a laugh everyday..Even if your not feeling your best, think about something that was funny at one time in your life and work with it..   :o)

Offline newt

  • Member
  • Posts: 3,878
  • the one and original newt
Re: To those who use Norvir
« Reply #10 on: April 23, 2008, 08:54:32 AM »
It's probably a blip .. the +1 Norvir seems very random.

Good luck  :)


- matt
"The object is to be a well patient, not a good patient"

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: To those who use Norvir
« Reply #11 on: April 23, 2008, 05:49:30 PM »

I have never taken Lexiva before...I was undectable for 6 yrs..They are retesting me and that is why they tried to put me on 2 novir a day instead of 1...but I got sick so I called my dr and now they put me back on 1 novir..

My VL was detectable when I was taking one norvir, so thats when they put my ass on
two ....I felt sick to my stomach, so now I am back on one norvir..

I go back at the end of this month, and Ill let you know what happens. ???

Like I said earlier.........try taking 4 NORVIR along with 4 APTIVUS............it's not fun.............now you know how bad I feel, and I've been doing this for the last 3 yrs...............I eat a lotta TUMS, they seem to help...........also your suppose to EAT something before you take NORVIR, you simply CANNOT take it on an empty stomach...........
« Last Edit: April 23, 2008, 05:52:54 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline ubotts

  • Member
  • Posts: 347
Re: To those who use Norvir
« Reply #12 on: April 24, 2008, 09:06:09 AM »
Like I said earlier.........try taking 4 NORVIR along with 4 APTIVUS............it's not fun.............now you know how bad I feel, and I've been doing this for the last 3 yrs...............I eat a lotta TUMS, they seem to help...........also your suppose to EAT something before you take NORVIR, you simply CANNOT take it on an empty stomach...........

No thank you. I can barely take TWO and you want me to take 4..geesh.. :(

If your feeling so badly, why dont you ask the drs. to change your regime? Hell I would..
Who whats to feel like crap on a daily basis......the answer is NO ONE...... :-[
Live Love Laugh and dance like no ones watching.
Laughter is the best medicine, so try to have a laugh everyday..Even if your not feeling your best, think about something that was funny at one time in your life and work with it..   :o)

Offline Speedmotion

  • Member
  • Posts: 4
    • myspace.com/rhzoo
Re: To those who use Norvir
« Reply #13 on: April 24, 2008, 09:06:46 AM »
4 100 mg Norvir, 2 100mg Invarase in the morning
Same plus Sustiva in the evening.

This is my 5th combo and I'm doing well on it, finally
I'll be riding my bicycle 180 miles in the Ride for AIDS 2008.
Donations can be made online
http://www.events.org/sponsorship.aspx?id=7685

Offline aztecan

  • Member
  • Posts: 5,394
  • 29 years positive, 57 years a pain in the butt
Re: To those who use Norvir
« Reply #14 on: April 24, 2008, 10:03:45 AM »
My daily regimen is two Lexiva, two Norvir and two Combivir.

I don't have too much trouble with the hershey squirts with this combo.

Hey Denb, have you thought of replacing the tums with protonix. It really helped me with the stomach acid issues.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: To those who use Norvir
« Reply #15 on: April 24, 2008, 12:17:58 PM »
No thank you. I can barely take TWO and you want me to take 4..geesh.. :(

If your feeling so badly, why dont you ask the drs. to change your regime? Hell I would..
Who whats to feel like crap on a daily basis......the answer is NO ONE...... :-[

I wish it was that EASY, but it's not, this is Salvage Therapy, I have a lotta Resistance to most of the HIV drugs so, finding the correct combo for me is hit or miss, besides I 'm doing quite well on this combo, it's different for everyone, not one of us is the same, (what works for you may not work for me are anybody else) we all react differently to the many many HIV combo Meds  :) at the very least all we can do is hope for the best........... ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Online Miss Philicia

  • Member
  • Posts: 24,005
  • celebrity poster, faker & poser
Re: To those who use Norvir
« Reply #16 on: April 24, 2008, 12:29:14 PM »
I take 2 x 100mg of Norvir daily and I can't say that it's given me much to complain about.  In fact, my current combo is the most void of side effects of any combo I've taken in 15 years.
"Iíve slept with enough men to know that Iím not gay"

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: To those who use Norvir
« Reply #17 on: April 24, 2008, 12:32:05 PM »
My daily regimen is two Lexiva, two Norvir and two Combivir.

I don't have too much trouble with the hershey squirts with this combo.

Hey Denb, have you thought of replacing the tums with protonix. It really helped me with the stomach acid issues.

HUGS,

Mark


No ,I also take RANITDINE (it's ZANTAC 150) twice a day, seems to work, but I still get the hershey squirts tho, I think my BIG problem is the Norvir ( I take 4 a day) but, untill they come out with a NEW PI, not many options for me right now............Here's my current MEDS:

APTIVUS 2 twice a day= 4
NORVIR  2 tiwice a day = 4
Truvavda 1 once a day = 1
Isentress 1 twice a day= 2

Accupril 1 once a day= 1
Omega-3 fatty acids twice a day =2
Tricor 1 once a day =2

Lopermide 2 tiwice a day =2 ( FOR THE HERSHEY SQUIRTS)
RANITDINE 2 tiwice a day = 2 ( for the stomach acid issues)
TUMS whenever I want as many as I can eat ( for the stomach acid issues)
« Last Edit: April 24, 2008, 06:02:06 PM by denb45 »
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline AndyArrow

  • Member
  • Posts: 1,196
Re: To those who use Norvir
« Reply #18 on: April 24, 2008, 01:08:05 PM »
It's interesting how everyone is so different when it comes to reactions from their meds.  I take norvir twice a day and have no reaction from it.  Maybe it's because I take the liquid from and just pump it right in.

And to denb45  if you are taking all those tums for stomach acid maybe protonix or prevacid would give you better relief.  I take 30mg of prevacid solu tabs twice a day.  They just dissolve right on your tongue ... no fuss no muss.   Just a thought.

AA
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: To those who use Norvir
« Reply #19 on: April 24, 2008, 02:00:26 PM »
It's interesting how everyone is so different when it comes to reactions from their meds.  I take norvir twice a day and have no reaction from it.  Maybe it's because I take the liquid from and just pump it right in.

And to denb45  if you are taking all those tums for stomach acid maybe protonix or prevacid would give you better relief.  I take 30mg of prevacid solu tabs twice a day.  They just dissolve right on your tongue ... no fuss no muss.   Just a thought.

AA

Might be something I can look into, and thanks to both you and MARK for the Tip, but, I Live in Albuquerque, NM, and I just cannot stop eating those DELICIOUS RED & GREEN Chillie peepers, YUM  ;D
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.