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Author Topic: My new life with Sustiva/Truvada  (Read 1685 times)

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Offline keyite

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My new life with Sustiva/Truvada
« on: April 22, 2008, 04:04:25 PM »
Today I had the first set of results after starting meds a month ago. I had been warned it could take some time before I would see results so I had a really nice surprise; VL dropped to a mere 123 and, according to my consultant, that ought to mean it will be undetectable when we repeat in a months time. More importantly, CD4 has risen by more than a 100. Liver, kidney and lipids all perfectly normal. This combo is obviously doing a good job at nuking the little bugger. I'm so pleased and so very relieved. :D

The meds have definitely given me more energy and have improved my skin problems noticeably (folliculitis). Everyone have been telling me I look so much better these days. Also starting to gain the weight I'd lost over recent months and not so sure I like that particular side effect! ;)

The first couple of weeks I did have a few side effects; the drunken, dizzy feeling, some pins 'n' needles and a little nausea. Nothing unbearable and none of the sleep problems Sustiva so often seems to cause. Now all I'm left with is a little tinnitus now and again but it looks like it is diminishing so hopefully it will go away completely in due course. I have a suspicion it is caused by an interaction with an antibiotic I'm temporarily on to prevent immune reconstitution causing the skin problems to get worse.

Looking back I feel as if I've been in a bit of a 'war zone' since diagnosis, always hovering in that area where meds needed to be considered, either because of labs or because of symptoms. Having finally started meds, discovered they're not that bad and that they really work, at least for me, I feel I might be able to finally get on with life..  :D

Offline BT65

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Re: My new life with Sustiva/Truvada
« Reply #1 on: April 22, 2008, 08:29:14 PM »
That's really great news, Keyite.  Here's to more good days.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

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Offline Longislander

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Re: My new life with Sustiva/Truvada
« Reply #2 on: April 22, 2008, 10:33:30 PM »
Thnaks for the update on your #''s and general well-being. Very happy to hear it's working well for you. I had my labs drawn today, so I'll know next week how they're working.

I found it very interesting to read that you're on an antibiotic to prevent immune-reconstitution skin problems.

My skin problems have returned since I started Atripla, though I have no other side affects.  I basically assumed it was just from some added stress.  Today my doc told me the skin problems are just a mild reconstitution thing.   I guess the thought of putting me on an antibiotic never occurred to her. Hopefully things will clear up soon!!

Anyway, here's to Atripla!! :D

infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline richva

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  • Posts: 87
Re: My new life with Sustiva/Truvada
« Reply #3 on: April 23, 2008, 06:16:54 PM »
Congrats!  I'll have blood work done tomorrow, the first time since starting Atripla about one month ago.  I'm feeling much better these days and anticipate better test results, too.  Hopefully as good as yours!  ;)
08/1989 Acquired
04/1992 Diagnosed
03/25/2008 (YUP - 16 years later!) CD4 336/21% VL 217,000; started meds
08/2012 - Alive, living! and doing just fine, TYVM (w/ props to my doc, insurance carrier and Complera. I remember every day that I'm a lucky boy.)

Offline AndyArrow

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Re: My new life with Sustiva/Truvada
« Reply #4 on: April 23, 2008, 07:24:47 PM »
That's great that your numbers have improved and your spirits are up!  Often the worry over what the meds might do is much worse then the side effects.  Glad to hear you are tolerating yours so well.

All the best
It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline randym431

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  • Posts: 1,131
Re: My new life with Sustiva/Truvada
« Reply #5 on: April 23, 2008, 09:12:27 PM »
Yes, as much as they talk about the sides from sustiva, sustiva does do a great job. Truvada too.
Its a trade off, pills and sides for more years of living.
Not a hard choice to make...


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