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Author Topic: Wish me well gang.  (Read 4966 times)

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Offline Lisa

  • Member
  • Posts: 1,240
  • Formerly known as sweetieweasel/Joined Nov. 2004
    • http://www.myspace.com/lisanowak58
Wish me well gang.
« on: April 18, 2008, 09:13:30 AM »
I am just now leaving to drive to Greensboro to have my case heard by an Administrative Law judge regaring my SS disability. It has been four years in the making.
The state has had to draft judges from outside to help the current backlog. The judge I am going before has come from Louisville KY.

Send me some positive vibes friends. :)
No Fear  No Shame  No Stigma
Happiness is not getting what you want, but wanting what you have.

Offline Dachshund

  • Member
  • Posts: 5,993
Re: Wish me well gang.
« Reply #1 on: April 18, 2008, 09:16:26 AM »
Good luck!

Offline rondrond

  • Member
  • Posts: 1,712
Re: Wish me well gang.
« Reply #2 on: April 18, 2008, 09:30:51 AM »
I have sent almost half of my life forces to you. Four Years, I can only imagine what you have been gong through. It has been 6 months since I filed and have had two denials and am now 'waiting' for an appearance before a judge I have been told could take 1-2 years. I have Binder & Binder working for me and still I worry as money is so tight.
 What is it in your medical record they don't understand?

keep on hanging in there..
ronnie
« Last Edit: April 18, 2008, 12:31:49 PM by rondrond »
"I may not be exactly where I want to be, but I sure as Hell am not where I was"
Wynnona Judd

Diagnosed/HIV
1993
AZT
Norvir
1994-2001
Crixivan/Epivir/Zerit
No Meds for 7 Years

04jul07/DVT-right leg/Bi Lateral PE's     
16oct08/DVT-left leg
Sept '09  6 blood clots in left arm
Coumadin 5mgs
                                     
Atenolol/50mg/2x
Hydrochlorth 25mg/1x
Gemfibrozil/300mgs/2X
Symbicort
Proventil Inhaler
Potassium
Rhinocort


*APR 08~Viramune/Truvada
March08  CD4 330 23% VL 452.000 
*Jan09 Med change~Epzicom/Viramune

Aug09   CD4 523 23%  VL<48
Diagnosed: COPD
Dec 2013: CD4 645 45% VL 49
Med Change: Viramune/Epivir/Ziagen/Isentress

Offline bear60

  • Member
  • Posts: 4,104
Re: Wish me well gang.
« Reply #3 on: April 18, 2008, 09:32:24 AM »
Wishing you all the best, Lisa.
Poz Bear Type in Philadelphia

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 25,196
Re: Wish me well gang.
« Reply #4 on: April 18, 2008, 10:29:02 AM »
Fingers and other essential body parts crossed for you, Lisa. We'll be waiting to hear...

xo
Andy Velez

Offline David_CA

  • Member
  • Posts: 3,246
  • Joined: March 2006
Re: Wish me well gang.
« Reply #5 on: April 18, 2008, 11:03:40 AM »
D and I are hoping / praying things go your way; it's long overdue.  I'm all of us here are pulling for you!  :)

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline AlanBama

  • Member
  • Posts: 3,644
  • Alabama: the 'other' 3rd World Country!
Re: Wish me well gang.
« Reply #6 on: April 18, 2008, 11:29:26 AM »
Honey,

I'm praying with everything I've got that this goes well for you.    I'm anxiously waiting to find out what happens....

I was at the eye doctor's office this morning, and I started thinking about you and praying that all goes well....it got me sort of choked up, because I love you so much and have been so worried about you.   The nurse asked if I was ok....I said "having my eyes dilated always makes me cry".....

Love & hugs,
Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Peter6836

  • Member
  • Posts: 391
  • Me and my Granddaughter Noa
Re: Wish me well gang.
« Reply #7 on: April 18, 2008, 11:40:10 AM »
Lisa,
Prayers, good vibes, white light, and all are being sent to your from me.

Hope all goes well,
Peter

Offline emeraldize

  • Member
  • Posts: 3,363
Re: Wish me well gang.
« Reply #8 on: April 18, 2008, 12:21:08 PM »
Lisa
Wishing you good listeners and open minds.
And, safe travel.
Em

Offline Miss Philicia

  • Member
  • Posts: 24,424
  • celebrity poster, faker & poser
Re: Wish me well gang.
« Reply #9 on: April 18, 2008, 12:51:27 PM »
Good luck Lisa!
"Iíve slept with enough men to know that Iím not gay"

Offline thunter34

  • Member
  • Posts: 7,318
  • His name is Carl.
Re: Wish me well gang.
« Reply #10 on: April 18, 2008, 01:30:52 PM »
Send me some positive vibes friends. :)

What other kind could we send you?   ::)


All my love and well wishes to you, you extraordinary gal. 

POZ POWER!!
AIDS isn't for sissies.

Offline Lisa

  • Member
  • Posts: 1,240
  • Formerly known as sweetieweasel/Joined Nov. 2004
    • http://www.myspace.com/lisanowak58
Re: Wish me well gang.
« Reply #11 on: April 18, 2008, 01:31:25 PM »
Thank you for all of your positive thoughts and karma. In the end, he did finally make a favorable decision.
You all will almost shudder at this though......He went on a tirade about A)The fact that I am able to write a blog(despite not having done so in several months)  B)In HIS estimation my problem was all stemming from depression, and he was about to deny me until I had sought out psychiatric, or psychologic help for a few months. This because I became a bit wistful about not being able to do my job anymore.
There was an occupational therapist on hand to give expert advice, and her recomendation was that there was not a job desciption that I could possibly fit into. She totally saved my plus sized behind!

WHEW!! I just knew I was going to be sent away for a period of time. If he had made that ruling, I would have gone right there into pieces.
I got lost going, and coming home. So I am off to settle down for a bit. My nerves are shot to hell.

....and she lived happily ever after....kinda, sorta.....
No Fear  No Shame  No Stigma
Happiness is not getting what you want, but wanting what you have.

Offline Dachshund

  • Member
  • Posts: 5,993
Re: Wish me well gang.
« Reply #12 on: April 18, 2008, 01:37:05 PM »
Congrats! I hope his decision is retroactive and you get all the back pay coming to you.

Aunty D

Offline Miss Philicia

  • Member
  • Posts: 24,424
  • celebrity poster, faker & poser
Re: Wish me well gang.
« Reply #13 on: April 18, 2008, 01:37:34 PM »
Congrats!  Now does this mean it's also retroactive?
"Iíve slept with enough men to know that Iím not gay"

Offline David_CA

  • Member
  • Posts: 3,246
  • Joined: March 2006
Re: Wish me well gang.
« Reply #14 on: April 18, 2008, 01:40:18 PM »
Yea!  It sucks that you had to be 'saved', but screw it.  The results are what counts.  I'm happy for you.

I just read Hal's post...  retroactive pay would be great!

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline Lisa

  • Member
  • Posts: 1,240
  • Formerly known as sweetieweasel/Joined Nov. 2004
    • http://www.myspace.com/lisanowak58
Re: Wish me well gang.
« Reply #15 on: April 18, 2008, 01:53:10 PM »
He was about to make retro to last Sept, when I ceased blogging. I almost threw up a little in my mouth.
In the end he did lend creedence to my original complaint of profound fatigue, and confusion.
My case will be covered retroactively to the original filing in November of 2004.
No Fear  No Shame  No Stigma
Happiness is not getting what you want, but wanting what you have.

Offline Cliff

  • Member
  • Posts: 2,645
Re: Wish me well gang.
« Reply #16 on: April 18, 2008, 01:55:48 PM »
I'm glad it all worked out in the end, Lisa! 

How did he know about the blogging?

Offline Lisa

  • Member
  • Posts: 1,240
  • Formerly known as sweetieweasel/Joined Nov. 2004
    • http://www.myspace.com/lisanowak58
Re: Wish me well gang.
« Reply #17 on: April 18, 2008, 02:02:27 PM »
  My big fat plus sized mouth!  :-[   ::)
No Fear  No Shame  No Stigma
Happiness is not getting what you want, but wanting what you have.

Offline Snowangel

  • Member
  • Posts: 1,413
Re: Wish me well gang.
« Reply #18 on: April 18, 2008, 02:12:36 PM »
I am so happy you got it!
That must have been so nerve-racking standing in front of  judge.
Snow
Of all the things you wear, your expression is the most important

The heaviest thing you can carry is a grudge..

One thing you can give and still keep...is your word.

One thing you can't recycle is wasted time.

Offline Queen Tokelove

  • Member
  • Posts: 6,033
  • Smokey the Smurf
Re: Wish me well gang.
« Reply #19 on: April 18, 2008, 05:45:06 PM »
Congrats on everything, Lisa. You deserve it. I've heard horror stories before about people having to get a lawyer to fight to get them disability. Has this always been going on? I didn't have to fight much, they denied me twice and I got it on the third try after my ID doc did the paperwork. How frustrating those 4 years must've been, glad it is over and you got it.
Started Atripla/Ziagen on 9/13/07.
10/31/07 CD4-265 VL- undetectable
2/6/08 CD4- 401 VL- undetectable
5/7/08 CD4- 705 VL- undetectable
6/4/08 CD4- 775 VL- undetectable
8/6/08 CD4- 805 VL- undetectable
11/13/08 CD4- 774 VL--undetectable
2/4/09  CD4- 484  VL- 18,000 (2 months off meds)
3/3/09---Starting Back on Meds---
4/27/09 CD4- 664 VL-- undetectable
6/17/09 CD4- 438 VL- 439
8/09 CD4- 404 VL- 1,600
01-22-10-- CD4- 525 VL- 59,000
Cherish the simple things life has to offer

The Royal Blog

Offline fearless

  • Member
  • Posts: 2,191
Re: Wish me well gang.
« Reply #20 on: April 18, 2008, 06:22:28 PM »
A fair and just result in the end Lisa. Congrats. But, what a nightmare to have to go through
Be forgiving, be grateful, be optimistic

Offline J.R.E.

  • Member
  • Posts: 7,260
  • Joined Dec-2003 Living positive, since 1985.
Re: Wish me well gang.
« Reply #21 on: April 18, 2008, 07:21:40 PM »
Lisa,

Congratulations !! Glad to hear that it went through for you. Take care of yourself..


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 25 mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 8/25/14,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline AlanBama

  • Member
  • Posts: 3,644
  • Alabama: the 'other' 3rd World Country!
Re: Wish me well gang.
« Reply #22 on: April 18, 2008, 07:26:17 PM »
Hallelujah!   You need to celebrate honey, as soon as you calm down.

I'll be calling you real soon.....

hugs,

Alan :-* (who just KNEW this was going to turn out well!)
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,056
Re: Wish me well gang.
« Reply #23 on: April 18, 2008, 07:29:37 PM »
Lisa, congratulations!  Celebrate!
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Jody

  • Member
  • Posts: 1,840
Re: Wish me well gang.
« Reply #24 on: April 18, 2008, 08:12:27 PM »
Congrats Lisa on the decision going your way...I know how difficult and painful even the little movements and things other people take for granted have been for you.  I'm glad it's retroactive and you can maybe treat yourself to a great dinner or something special.  It's a load off your mind and good luck going forward.

Jody  :)
"Wake up to find out that you are the eyes of the world".
 "Try to discover that you are the song that the morning brings."

Grateful Dead

Offline Matty the Damned

  • Member
  • Posts: 12,239
  • Ninja Please
Re: Wish me well gang.
« Reply #25 on: April 18, 2008, 08:13:37 PM »
Outstanding result oh Sweetest Keeper of Weasels. :)

MtD

Offline BlueMoon

  • Member
  • Posts: 665
  • Calling from the Fun House
Re: Wish me well gang.
« Reply #26 on: April 18, 2008, 08:47:39 PM »
You weren't considered disabled because you wrote a blog?

...................VL.....CD4.....%
-----------------------------------------
08/10-- ......<40.....290.....42
05/10-- ......<48.....290.....46
02/10-- ......<48.....481.....44
10/09-- ......<48.....277.....46
07/09-- ......<48.....300.....38
05/09-- ........51.....449.....39
03/09-- Added Isentress
02/09-- ........65.....299.....34
11/08-- ........62.....242.....40
08/08-- ........66.....212.....29
05/08-- ......202.....217.....27
03/08-- ....5210.....187.....21
02/08-- Began Truvada/Reyataz/Norvir
12/07-- 273,000.....157.....22
11/07-- 229,000.....209.....22
10/07-- Diagnosis

It's a complex world.

Offline Robert

  • Member
  • Posts: 2,648
Re: Wish me well gang.
« Reply #27 on: April 18, 2008, 09:46:44 PM »
Oh Lisa...

finally~~~   It's been a long time coming.  You know I just don't get what makes people tick.  This should have been taken care of a long time ago.

When that  check comes, take yourself to dinner, without the boys.

robert

..........

Offline Longislander

  • Member
  • Posts: 2,486
Re: Wish me well gang.
« Reply #28 on: April 18, 2008, 10:11:18 PM »
Great News, Congrats, and ABOUT TIME! It's a pretty sad state of affairs this SS disability. MY stepmom was dying of cancer and getting dialysis. A SS disability check for 20,000 in retro pay arrived the day we returned to her house from her funeral. There ought to be a better way~

All my best to you-
Paul
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline Basquo

  • Member
  • Posts: 3,272
Re: Wish me well gang.
« Reply #29 on: April 18, 2008, 11:37:58 PM »
Great news Lisa! I'm so glad this is behind you. I admit I know nothing about such proceedings, but do they monitor you in any way?  Like, can you start blogging again?

Offline komnaes

  • Member
  • Posts: 1,898
Re: Wish me well gang.
« Reply #30 on: April 19, 2008, 02:57:19 AM »
Smashing Lisa! Please allow me to give you a cyberhug..
Aug 07 Diagnosed
Oct 07 CD4=446(19%) Feb 08 CD4=421(19%)
Jun 08 CD4=325(22%) Jul 08 CD4=301(18%)
Sep 08 CD4=257/VL=75,000 Oct 08 CD4=347(16%)
Dec 08 CD4=270(16%)
Jan 09 CD4=246(13%)/VL=10,000
Feb 09 CD4=233(15%)/VL=13,000
Started meds Sustiva/Epzicom
May 09 CD4=333(24%)/VL=650
Aug 09 CD4=346(24%)/VL=UD
Nov 09 CD4=437(26%)/VL=UD
Feb 10 CD4=471(31%)/VL=UD
June 10 CD4=517 (28%)/VL=UD
Sept 10 CD4=687 (31%)/VL=UD
Jan 11 CD4=557 (30%)/VL=UD
April 11 CD4=569 (32%)/VL=UD
Switched to Epizcom, Reyataz and Norvir
(Interrupted for 2 months with only Epizcom & Reyataz)
July 11 CD=520 (28%)/VL=UD
Oct 11 CD=771 (31%)/VL=UD(<30)
April 12 CD=609 (28%)/VL=UD(<20)
Aug 12 CD=657 (29%)/VL=UD(<20)
Dec 12 CD=532 (31%)/VL=UD(<20)
May 13 CD=567 (31%)/VL=UD(<20)
Jan 14 CD=521 (21%)/VL=UD(<50)

Offline MOONLIGHT1114

  • Member
  • Posts: 1,918
  • Cheech 2.2.94 - 4.23.10 We miss you so much!
Re: Wish me well gang.
« Reply #31 on: April 19, 2008, 08:27:05 AM »
Hi Lisa~

I'm glad to hear that everything turned out in your favor.  My stomach would've been in knots, too!

~ Cindy
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline Andy Velez

  • Global Moderator
  • Member
  • Posts: 25,196
Re: Wish me well gang.
« Reply #32 on: April 19, 2008, 09:11:51 AM »
Oh the energy and all we often have to expend just to get back to where we ought never have had a problem to begin. The way of the world...

Very happy you won out in the end. Congrats, Lisa!
Andy Velez

Offline pozguy75

  • Member
  • Posts: 1,239
    • POZitively Speaking
Re: Wish me well gang.
« Reply #33 on: April 19, 2008, 09:15:36 AM »
good luck babe!! And safe travels!!
Dx 2005
ATRIPLA

Offline Dragonette

  • Member
  • Posts: 1,190
  • Spring symptoms
    • NotPerfectAtAll
Re: Wish me well gang.
« Reply #34 on: April 20, 2008, 09:26:53 AM »
Congratulations!!!

(What the hell does blogging have to do with anything?! It's not like you were blogging about your extreme sport activities. Of all the.... )
"If you keep one foot in yesterday, and one in tomorrow, you piss all over today". Betty Tacy

Offline aztecan

  • Member
  • Posts: 5,414
  • 29 years positive, 57 years a pain in the butt
Re: Wish me well gang.
« Reply #35 on: April 20, 2008, 11:32:58 AM »
Hey Lisa,

Well congrats girl! ;D ;D ;D

Have a nice dinner when that check comes in  and celebrate a little.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Snowangel

  • Member
  • Posts: 1,413
Re: Wish me well gang.
« Reply #36 on: April 20, 2008, 11:55:49 AM »
I was wondering the same thing about blogging? How long do you spend doing that for a week an hour maybe 2, that is crazy!
Thank goodness he came to his senses!!
Of all the things you wear, your expression is the most important

The heaviest thing you can carry is a grudge..

One thing you can give and still keep...is your word.

One thing you can't recycle is wasted time.

Offline heartforyou

  • Member
  • Posts: 1,105
  • I must be a survivor in many ways...
Re: Wish me well gang.
« Reply #37 on: April 20, 2008, 06:17:05 PM »
Lisa baby,


That is the most wonderful news in a long time.
Great for you.
I know how much you struggled to keep your head above water.

this is just GREAT  :-* :-* :-* :-*

Love
Hermie
Diagnosed in 1987 and still kicking
Viread, Kivexa (Epzicom),Viramune once daily

Happiness is the freedom of breathing fresh air every day.

Offline anniebc

  • Member
  • Posts: 5,955
  • AM member since 2003
Re: Wish me well gang.
« Reply #38 on: April 21, 2008, 04:22:59 AM »
Hi lisa

I was away over the weekend so I missed your first post...but I've managed to catch up and I'm glad it all worked out for you.

love and hugs
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Lisa

  • Member
  • Posts: 1,240
  • Formerly known as sweetieweasel/Joined Nov. 2004
    • http://www.myspace.com/lisanowak58
Re: Wish me well gang.
« Reply #39 on: April 22, 2008, 10:00:11 AM »
Thanks so much everybody! Your sweet responses have touched my heart.
The judge thought that if I could sit down to a desk to blog, even if it was only for an hour at a time, then I was capable of doing SOMETHING. Will someone explain to me how finding a job that will allow me to only work an hour or two at a time, with an anticipation of probable missed days, to be able to maintain a dwelling. (along with other such luxuries as heat, food, and water)
There was a brief break where the transcriptionist needed help to make sure her entries were being recorded, and I am willing to bet that he looked up this site in his absence.
When the hearing was over and my attorney and I were well out of the building, the first words out of his mouth were "What a pompous asshole."   ....no argument there.. ::)   :P
Thanks again y'all. It is as if a weight has been lifted off my shoulders.
No Fear  No Shame  No Stigma
Happiness is not getting what you want, but wanting what you have.

Offline BT65

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Re: Wish me well gang.
« Reply #40 on: April 22, 2008, 10:11:29 AM »
I can't get over the fact that the judge thought that an hour of blogging=employability.  I agree with what your lawyer said ("pompous asshole"). 
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline bear60

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Re: Wish me well gang.
« Reply #41 on: April 22, 2008, 10:38:09 AM »
I'm so glad for you Lisa.
Poz Bear Type in Philadelphia

 


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