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Author Topic: CMV Information Please  (Read 1981 times)

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Offline PCDMan

  • Member
  • Posts: 4
CMV Information Please
« on: April 08, 2008, 07:46:35 PM »
My viral load is undetectable but my CD4 level has been below 50 for just over a year.  Overall I am great.  However, late winter I've had three times with eye symptoms:  1.  flashing lightning like light   2.  like looking through clear jello  3.  blind streaks/columns  Each time these lasted about 30 to 45 minutes, no pain or discomfort. 

Now, I have daily grayish/black floaters and definitely to the Doctor this week.

I am looking for anyone else with eye problems, please.  Thanks.


Offline AndyArrow

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  • Posts: 1,196
Re: CMV Information Please
« Reply #1 on: April 08, 2008, 08:16:24 PM »
Wish I could help you out ... I had a CMV infection but it was in my esophagus.  I was on a course of Valcyte and it cleared it right up.  Best of luck to you!

It is not the arrival that matters.  It is the journey along the way. -- Michel Montaigne

Offline Oceanbeach

  • Member
  • Posts: 3,565
Re: CMV Information Please
« Reply #2 on: April 08, 2008, 08:16:35 PM »
During the years my T cells were below 200, I was going to an Ophthalmologist for a check up for CMV Retinitis and each time, there was no cause for concern.  I have been maintaining about 350- 450 for a few years now with an undetectable VL since 1998... They don't send me anymore.

I have regular seeing glasses, reading glasses and prescription sun glasses, should wear bifocals but have the vanity thing to deal with.  I kind of cruise through the average day wondering if I am seeing everything or not and I'm sorry but do not know the symptoms.  Have the best day

Offline AlanBama

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  • Alabama: the 'other' 3rd World Country!
Re: CMV Information Please
« Reply #3 on: April 08, 2008, 10:12:49 PM »

With T-cells at 50, you need to be seeing an opthalmologist on a regular basis.  Mine always insisted on every 3 months, when I was severely immuno-compromised.

I honestly don't know what the symptoms of onset of CMV are, but I do know what the results of it can be, and it's not good.   Please see your eye doctor as soon as possible.  Please keep us posted....

« Last Edit: April 08, 2008, 11:19:23 PM by AlanBama »
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline aztecan

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  • Posts: 5,512
  • 31 years positive, 59 years a pain in the butt
Re: CMV Information Please
« Reply #4 on: April 08, 2008, 11:30:58 PM »
Hey PCD,

Don't put off the doctor visit. In fact, you should see an HIV-savvy opthamologist, as Alan suggested. But, in the meantime, get in to see your doctor.

The things you mentioned are classic CMV retinitis symptoms. They also could be caused by a number of other things, but if it is CMV, you will need treatment post haste.

Delaying Valcyte or Gancyclovir treatment for CMV retinitis could result in a loss of vision. Once its gone honey, its gone. It ain't coming back.

I don't mean to sound like an alarmist, but get your butt in to see the doctor pronto.

Let us know how things come out.


« Last Edit: April 08, 2008, 11:34:11 PM by aztecan »
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Assurbanipal

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  • Posts: 2,175
  • Taking a forums break, still see PM's
Re: CMV Information Please
« Reply #5 on: April 08, 2008, 11:51:43 PM »
That sounds like it may have been your retina detaching from your eyeballs.  Gross as it sounds, it turns out that it happens naturally as one ages but can be a symptom of CMV.  You might want to talk to a retina specialist

But I just wanted to stress that f you have had no recent problems they may have detached without an issue (sometimes they tear but often not) -- that's what happened to me-- I had the couple of hours of lightening flashes etc and it was basically frightening but a non-issue.

Hoping the best for you.

5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%
2014 VL UD - 48
2015 VL 130 Moved to Triumeq


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