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Poll

What are you Greatful for as A Long Term Survivor

Hope
0 (0%)
Strenght
8 (100%)

Total Members Voted: 8

Author Topic: long term Survivor  (Read 4137 times)

0 Members and 1 Guest are viewing this topic.

Offline AWPIE51

  • Member
  • Posts: 4
long term Survivor
« on: March 30, 2008, 04:16:30 AM »
I am so Greatful because God is still in the Healing business and today I don't look at HIV/AIDS  as a Death Sentence For me I am a African American 52 year old Woman that likes to say that the HIV Virus  is Living with Me because God and I are in Control of this disease :D
I am not a stimga of HIV/AIDS  because I know my status    ;) So for those that don't no their status You are the stigma  ??? so Get Tested & Stop the Stigma  Because the Life You Save just might be your Own Know your Status GET TESTED


                         Life is Worth Living  :D

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,947
Re: long term Survivor
« Reply #1 on: March 30, 2008, 08:56:32 AM »
Awpie, welcome to the forums.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline redhotmuslbear

  • Member
  • Posts: 605
  • A genuine certified freak of nature, and a hot one
Re: long term Survivor
« Reply #2 on: March 30, 2008, 09:15:17 PM »
Welcome!

I have to vote for good genes.  If it wasn't for one trait from my mother and one from my father, I would not have nearly such a relatively easy time.  Not smoking or drinking or doing drugs, and eating well and exercising help, too.

Namaste,
David
"The real problem is not whether machines think but whether men do." - BF Skinner
12-31-09   222wks VL  2430 CD4 690 (37%)
09-30-09   208wks VL  2050  CD4 925 (42%)
06-25-08   143wks VL  1359  CD4 668 (32%)  CD8 885
02-11-08   123wks off meds:  VL 1364 CD4 892(40%/0.99 ratio)
10-19-07   112wks off meds:   VL 292  CD4 857(37%/0.85 ratio)

One copy of delta-32 for f*****d up CCR5 receptors, and an HLA B44+ allele for "CD8-mediated immunity"... beteer than winning Powerball, almost!

Offline J.R.E.

  • Member
  • Posts: 7,162
  • Joined Dec-2003 Living positive, since 1985.
Re: long term Survivor
« Reply #3 on: March 31, 2008, 07:56:05 AM »
I am so Greatful because God is still in the Healing business and today I don't look at HIV/AIDS  as a Death Sentence


Well , I guess if that floats your boat, and works for you, thats all that matters ! Personally, I put  more faith and trust in those intelligent minds in the scientific fields, that are working to find a cure or vaccine, or trying to find less toxic drugs for us to take. I like to remain focused and realistic, but I also remain very hopeful.

Oh,...and also what David says !


All the best-----Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Texan38

  • Member
  • Posts: 686
Re: long term Survivor
« Reply #4 on: April 01, 2008, 10:59:11 AM »
                        Life is Worth Living  :D
Enough said....Welcome!
In Hollywood an equitable divorce settlement means each party getting fifty per cent of publicity.
~ Lauren Bacall

Offline bear60

  • Member
  • Posts: 4,104
Re: long term Survivor
« Reply #5 on: April 01, 2008, 12:03:46 PM »
Survivors are people who through shere "will" and "strength" have the ability to overcome obstacles and go on living. 
Its pretty significant that all of the responders to the poll have put strength first. 
Its surely strength that gets us through the tough times. 
As Gloria Gaynor has put it so well:
http://www.youtube.com/watch?v=ZBR2G-iI3-I
Poz Bear Type in Philadelphia

Offline J.R.E.

  • Member
  • Posts: 7,162
  • Joined Dec-2003 Living positive, since 1985.
Re: long term Survivor
« Reply #6 on: April 01, 2008, 01:54:15 PM »
Survivors are people who through shere "will" and "strength" have the ability to overcome obstacles and go on living. 
Its pretty significant that all of the responders to the poll have put strength first. 
Its surely strength that gets us through the tough times. 
As Gloria Gaynor has put it so well:
http://www.youtube.com/watch?v=ZBR2G-iI3-I


I have posted these words before on these forums. The following is framed in my doctor's waiting room for all to read:

(Author Unknown)

"A person who is fearless with a will to win,

To battle endless obstacles,

to be relentless in the struggle to survive, with an intense determination

to face the toughest opponent, and remain hopeful, is the definition

of a true fighter."




Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,947
Re: long term Survivor
« Reply #7 on: April 01, 2008, 02:25:53 PM »
Love that quote, Ray. 
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Online Dachshund

  • Member
  • Posts: 5,959
Re: long term Survivor
« Reply #8 on: April 01, 2008, 04:39:18 PM »
I'm afraid I chalk it up to luck of the draw myself. I can't attribute it to any special qualities because I lost too many friends who overshadow any meager qualities I might posses. Too many who matched me in strength and will any day of the week but for whatever biological reason where no match for the virus. I want to remember them as special and to do that I must remember that I am just lucky. Nothing special, just lucky.

Offline Miss Philicia

  • Member
  • Posts: 24,113
  • celebrity poster, faker & poser
Re: long term Survivor
« Reply #9 on: April 01, 2008, 04:42:00 PM »
Yeah, I vote luck too... and med adherence.   I've smoked the entire time and I've also had periods of heavy drug use.  I was always amazed when I'd have lab work done after a coke binge and my numbers would improve... I could go on and on.
"Iíve slept with enough men to know that Iím not gay"

Offline ubotts

  • Member
  • Posts: 347
Re: long term Survivor
« Reply #10 on: April 03, 2008, 10:46:41 AM »
Most of us Picked strength...because its not hoping we do...
We or I ususally ask god to give me strength...

Its funny but my mother used to say the same thing when things
were going to well and know I say the same words.

Strength is what got me though 23 yrs of being hiv...
Its a struggle and you need strength almost on a daily basis..

Remember that song.."Only the Strong survive"?.....Maybe theres some
truth in that...

We are alot stronger than most people due to this disease..
Guess its the same with cancer patients as well..
I feel sorry for them because they go under khemo ..lose there hair, there appearance
changes and they have to do that darn khemo for months, and just hope it works.

My friend had ovarian cancer, she went and did what she had to do..Khemo and all.
Was negative for 2 yrs and doing quite well..

Later on, a bit after 2 yrs, she developed lung disease and it was in operable...
Still she hung on, took her khemo and radiation, lost her hair again, and we all
said, your going to make it ..You did it before and you can do it again..

Sadly, she didn't make it and passed away at 52...She was my best friend,
and I look up to her courage and strength....

At times, I think cancer is worse than hiv or aids..
I know theres no cure for aids..but cancer keeps fooling you..You think you got it all taken care of after going though hell, only to have it come back and bite you on your
ass...

All in all, we must remain strong and keep a good attitude... ;)
Live Love Laugh and dance like no ones watching.
Laughter is the best medicine, so try to have a laugh everyday..Even if your not feeling your best, think about something that was funny at one time in your life and work with it..   :o)

Offline aztecan

  • Member
  • Posts: 5,398
  • 29 years positive, 57 years a pain in the butt
Re: long term Survivor
« Reply #11 on: April 03, 2008, 02:37:19 PM »
Life is Worth Living  :D

Strength, regardless of where we obtain it, is the determining factor in survival. Hope is good to have, but when the chips are down and you are facing yet another hopeless situation, it takes strength to pull you through.

Oh, by the way, welcome aboard Awpies. Glad you have joined us.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

 


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