Subscribe to:
POZ magazine
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Welcome, Guest. Please login or register.
November 25, 2015, 05:44:33 PM

Login with username, password and session length

  • Total Posts: 679567
  • Total Topics: 52880
  • Online Today: 216
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 6
Guests: 188
Total: 194


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: kidney damage  (Read 4408 times)

0 Members and 1 Guest are viewing this topic.

Offline Lovinglife

  • Member
  • Posts: 24
  • Life is too short for fussing & fighting my friend
kidney damage
« on: March 27, 2008, 10:08:56 AM »
Hello all,
It has been awhile since I have logged in.  I've been in a lot of emotional pain this week.  I have been positive for 23 years, my t-cells are currently 274 viral load less than 48.  I am resistant to almost all the meds out there currently taking norvir, aptivus, viread and DDI, along with tricor, and marinol.  It seems I have some kidney damage from the meds, mainly DDI, which my docs have decreased the dose but still want me to take it.  I go in for a ultra sound of my kidneys tomorrow and will see a kidney specialist on Tuesday.  The past couple of days I have just cried like a baby.  I have a great support system, so my phone has not stopped ringing and no one wants to let me feel sad.  Damn it, sometimes I just want to cry and let it go.  Crying, for me, can be a form of soul cleansing, feeling the pain, understanding it, grieving and then moving forward.  There was a time in my past that I didn't feel anything, too busy trying to hide from my pain.  But today is different and I am grateful for that.

I know that whatever changes I need to make in my diet in order to protect my kidneys I can do, it might not be easy, but I will try.  Most of my support system are "neggies" so they can only understand to a certain level and those that are positive just do not have the time that I have or the issue.  But everyone is very supportive.  I was wondering if any other long term survivors have had experience in this area and might be willing to give me some strength and hope.

Thanks for being here!

Life is not measured by the number of breaths we take but by the moments that take our breath away.

Online BT65

  • Member
  • Posts: 10,464
Re: kidney damage
« Reply #1 on: March 27, 2008, 12:52:04 PM »
Loving, though I haven't yet experienced kidney damage, I just want you to know I'm sending lots of thoughts and positive energy your way.  Please hang in there and let us know how you're doing.  Oh, and go ahead and cry, baby.  Let it out.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Lovinglife

  • Member
  • Posts: 24
  • Life is too short for fussing & fighting my friend
Feeling better
« Reply #2 on: March 28, 2008, 11:17:33 AM »
Thank you for responding.  Your kind words are appreciated.  I feel a whole lot better.  Sometimes it is good to be a baby  . . . then I have to grow up again.  The longer we live the more challenges we must face and I am grateful that there are others who are caring, compassionate, and understand the difficulties of this journey.  Have a wonderful weekend.

Life is not measured by the number of breaths we take but by the moments that take our breath away.

Offline AlanBama

  • Member
  • Posts: 3,658
  • Alabama: the 'other' 3rd World Country!
Re: kidney damage
« Reply #3 on: March 28, 2008, 11:47:05 AM »
So sorry you are going through this.   Kidney damage is a very serious consequence from some of these toxic meds we all take.

When I am emotional about something, and I feel the need to cry, I allow myself to.   Not sure if that is good or bad, but I feel better after letting it out a little.

I'll be keeping you in my prayers.

"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline aztecan

  • Member
  • Posts: 5,504
  • 30 years positive, 58 years a pain in the butt
Re: kidney damage
« Reply #4 on: April 03, 2008, 10:47:14 AM »
Hey Loving,

While not having had permanent damage to my kidneys, I have dealt with kidney problems caused by my meds - Crixivan as it happens.

I did the ultrasound and found I had "sludge" (their term) caused by Crixivan crystals forming in my kidneys. It wasn't quite as painful as a full-fledged stone, but certainly wasn't fun.

I now drink at least a half-gallon of water a day, usually more. I don't know if that will help you, but you might ask your doc.

I believe Viread also can cause kidney problems. Has your doc mentioned changing your meds out to something else, maybe one of the new drugs like Isentress or Selzentry? That way you could dump the DDI and maybe even the Viread.

Keep your chin up and keep us posted on how things go.


« Last Edit: April 03, 2008, 10:50:00 AM by aztecan »
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline beaubrent

  • Member
  • Posts: 44
Re: kidney damage
« Reply #5 on: April 03, 2008, 01:32:49 PM »
I would be most interested to know what they recommend for your kidneys. I'm always curious how to cleanse the liver/kidneys and the new reports on the ineffectiveness of water intake (http://news.yahoo.com/s/nm/20080402/hl_nm/water_health_dc_2) don't make me sure.

You mention diet. Can a certain diet help "cleanse" your kidneys from the effects of meds?
When I found out I had HIV,

I woke up and started living.

Offline pozniceguy

  • Member
  • Posts: 1,222
  • Niceguy Dallas
Re: kidney damage
« Reply #6 on: April 03, 2008, 04:18:14 PM »
I recently went through a weeks stay in the Hospital because of severe Kidney issues ( acute kidney failure actually )   the Dr's say that a combination of the meds ( had Crixivan for 14 yrs) and a significant dehydration caused them to just shut down...the only  real  "cure" was several rounds of dialysis...I really don't reccommend this... which got me back to about 60% functionality  a few weeks of antibiotics brought some more functionality  and in two weeks I will be tested again to see if any improvement.......  so "cleansing" kidneys doesn't seem to be an easy issue to confront and if you reach the stage I did then you are in for a round of Dialysis...

sounds pretty harsh I know but it knocked me out for more than a week....

remember the good times...honor the past but don't live there
Le stelle la notte sono grandie luminose, nel cuore profondo del Texas

Offline Lovinglife

  • Member
  • Posts: 24
  • Life is too short for fussing & fighting my friend
Re: kidney damage
« Reply #7 on: April 03, 2008, 07:21:04 PM »
Thanks everyone for sharing info with me and thanks for your support.  I went to the kidney doctor on Wed. and he turned out to be a real jerk but he did tell me that the ultra sound showed that my kidneys have shrunk.  He explained that it was due to having HIV for so long; so my kidneys are working harder and there is damage from the meds.  He did say that dialysis was probably down the road.  He wanted to put me on tekturna which he said would help slow the damage process.  I found out it is a medication that reduces blood pressure.  I already have very low blood pressure so I don't want to be passing out all the time.  I am going to find a different doc since I wasn't comfortable with him - we'll see what he/she says.  Regarding changing my meds I see my primary next Thursday, but due to the fact that I am resistant to most the meds out there; it might be difficult to change them.

The longer we live the more challenges we face.  Thanks for being here.
Life is not measured by the number of breaths we take but by the moments that take our breath away.

Online BT65

  • Member
  • Posts: 10,464
Re: kidney damage
« Reply #8 on: April 03, 2008, 10:00:19 PM »
Loving, good luck with finding a new urologist and please keep us updated. :-*
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline allanq

  • Member
  • Posts: 701
  • still life with pills
Re: kidney damage
« Reply #9 on: April 03, 2008, 10:48:26 PM »
I'm sorry to hear of the pain that you're going through.

Several years ago, my creatinine level suddenly starting increasing. Normal is below 1.3; mine was at 2.2. At the time I was taking Aptivus/Norvir, Fuzeon, Sustiva, Truvada, and Tricor. I was referred to a nephrologist (kidney specialist) and he had me stop the Viread (a component of Truvada). My creatinine level went down, but not enough. Then he had me stop Tricor, and that did the trick. My creatinine level returned to normal.

So it may not be the Videx, but rather the Viread and/or Tricor that are causing your kidney problems. Or it might be all three.

You mentioned that you have extensive drug resistance, but I hope that if you do have to stop the Videx or the Viread, you'll be able to use one of the newer drugs, like Isentress.

I hope this helps.

Good luck to you.

« Last Edit: April 03, 2008, 11:45:43 PM by allanq »
Top (Breakfast): Prezista, Norvir, Isentress, Zoloft (2), Glyburide (2), Aspirin
Bottom right (Dinner): Prezista, Norvir, Isentress
Bottom left (Bedtime): Sustiva, Trazodone (2), Lipitor, Septra (no longer taking this)
Center: Alprazolam (Xanax)
Not shown: various vitamins & supplements


Terms of Membership for these forums

© 2015 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.