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Author Topic: Bad numbers  (Read 1529 times)

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Offline aliveinla

  • Member
  • Posts: 247
Bad numbers
« on: March 19, 2008, 07:08:09 PM »
I went to be screened for pomgranate juice study yesterday and got disqualified today. CD4: 318; VL: 125K. CD4 was at 393 only 2 months ago. WHY?! Now I am really depressed. I was only tested poz 2 months ago, do I have to start meds so soon? Is that possible my low CD4 is due to my long weekend drive between LA and Vegas?

I have a China trip scheduled by end of March, I plan to wait till I come back then get another set of lab on 4/8, which is the scheduled date with my ID doctor. Hopefully my number won't drop below 200 and make me an AIDS patient so soon... My immune system must be really vulnerable, but I don't feel anything, no symptom, no fatigue, nothing...

Any advice or sharing of experience will be appreicated.
4/24/07: Last tested Neg
1/22/08: First tested Poz
1/30/08: CD4 393; 28%; VL: 44k
3/18/08: CD4 218; 26%; VL: 222K
4/24/08: CD4 402; 26%; VL: lab forgot
7/22/08: CD4 405; 25%; VL: 6,780
10/15/08: CD4 340, 26%; VL: N/A
2/4/09: CD4 394, 26%; VL: N/A
Jun 09: CD4 300, 25%; VL: 4000
Oct 09: CD4 324, 23%, VL: 10K
11/22/09: started Atripla
11/20/11: CD4 405; VL: UD

Offline Matty the Damned

  • Member
  • Posts: 12,160
Re: Bad numbers
« Reply #1 on: March 19, 2008, 07:13:46 PM »
Actually there ain't a great deal of difference between 318 and 393. You didn't happen to get your CD4 % did you?

MtD

Offline Iggy

  • Member
  • Posts: 2,435
Re: Bad numbers
« Reply #2 on: March 19, 2008, 07:14:54 PM »
Some people progress faster than others to be honest.  There are a lot of factors including how long you may have possibly been poz before it was detected.

I am curious and forgive me for not knowing in advance, but how many labs have you had done before these results - and what exactly is this study that you signed up for?  I hope it wasn't as a holistic approach to your virus?

Offline aliveinla

  • Member
  • Posts: 247
Re: Bad numbers
« Reply #3 on: March 19, 2008, 08:57:56 PM »
Actually there ain't a great deal of difference between 318 and 393. You didn't happen to get your CD4 % did you?

MtD

Don't know yet, they told me over the phone. I asked them to mail the copy to me and I will post when i get it. I think last time was 26%.
4/24/07: Last tested Neg
1/22/08: First tested Poz
1/30/08: CD4 393; 28%; VL: 44k
3/18/08: CD4 218; 26%; VL: 222K
4/24/08: CD4 402; 26%; VL: lab forgot
7/22/08: CD4 405; 25%; VL: 6,780
10/15/08: CD4 340, 26%; VL: N/A
2/4/09: CD4 394, 26%; VL: N/A
Jun 09: CD4 300, 25%; VL: 4000
Oct 09: CD4 324, 23%, VL: 10K
11/22/09: started Atripla
11/20/11: CD4 405; VL: UD

Offline aliveinla

  • Member
  • Posts: 247
Re: Bad numbers
« Reply #4 on: March 19, 2008, 09:01:25 PM »
Some people progress faster than others to be honest.  There are a lot of factors including how long you may have possibly been poz before it was detected.

I am curious and forgive me for not knowing in advance, but how many labs have you had done before these results - and what exactly is this study that you signed up for?  I hope it wasn't as a holistic approach to your virus?

Before this lab I've only done one on 1/30/08 with CD4 at 393. This is the study I went for: http://www.aidsresearch.org/POMgocard2.jpg. I wasn't qualified nothing has started so they should have no effect on my bad numbers. I was last tested neg on 4/22/07. I guess I am one of those who progress faster. I will see what the lab result is on my 4/8 test...
4/24/07: Last tested Neg
1/22/08: First tested Poz
1/30/08: CD4 393; 28%; VL: 44k
3/18/08: CD4 218; 26%; VL: 222K
4/24/08: CD4 402; 26%; VL: lab forgot
7/22/08: CD4 405; 25%; VL: 6,780
10/15/08: CD4 340, 26%; VL: N/A
2/4/09: CD4 394, 26%; VL: N/A
Jun 09: CD4 300, 25%; VL: 4000
Oct 09: CD4 324, 23%, VL: 10K
11/22/09: started Atripla
11/20/11: CD4 405; VL: UD

Offline CraigMKE

  • Member
  • Posts: 35
Re: Bad numbers
« Reply #5 on: March 20, 2008, 09:54:34 AM »
First of all, don't (specifically) worry about the term AIDS.  I was diagnosed with HIV and AIDS the same day with a CD4 of 7.

AIDS is a clinical term, a classification if you will, but that does not change the fact that you are HIV+ and have to take care of yourself.

I did not have the luxury of waiting until X time period before starting the meds.  Well, in retrospect, as I type this I guess I did have X time period, I just chose to live in ignorance and not get tested at all.

I have been in the low 200's for CD4 counts since starting the meds, 6 years ago.  I spent a lot of nights crying over the numbers.  It took about 4 years to stop worrying about the numbers and pay more attention to the fact that I was no longer getting any infections.  Your Mid 300's numbers are the same as my 200's numbers as long as neither of us get sick!

Remember these numbers are relative to the cd8 cells, it is your percentage that you need to look at. 

That being said, I would talk with my Dr. about getting on meds, if I were you.  Just keep in mind it is a lifetime commitment and a lot of responsibility.  If you are not ready to grasp that, missing pills could be worse than never taking them at all.

Craig

Offline aliveinla

  • Member
  • Posts: 247
Re: Bad numbers
« Reply #6 on: March 20, 2008, 09:17:14 PM »
Actually there ain't a great deal of difference between 318 and 393. You didn't happen to get your CD4 % did you?

MtD
I got the test report in the mail. CD4% is still 26% as my last test on 1/30/08. BUT, the actual CD4 is only 218!!!!!!!!!!! How could this happen? I am really confused and paniced now... It's only been 2 months, and I didn't do anything dramtic, how could my # drop so fast from 393 to 218? VL now is 222K.
4/24/07: Last tested Neg
1/22/08: First tested Poz
1/30/08: CD4 393; 28%; VL: 44k
3/18/08: CD4 218; 26%; VL: 222K
4/24/08: CD4 402; 26%; VL: lab forgot
7/22/08: CD4 405; 25%; VL: 6,780
10/15/08: CD4 340, 26%; VL: N/A
2/4/09: CD4 394, 26%; VL: N/A
Jun 09: CD4 300, 25%; VL: 4000
Oct 09: CD4 324, 23%, VL: 10K
11/22/09: started Atripla
11/20/11: CD4 405; VL: UD

Offline aliveinla

  • Member
  • Posts: 247
Re: Bad numbers
« Reply #7 on: March 20, 2008, 09:56:54 PM »
My CD8+/CD3+ # on 3/18 is 403...

Can someone please share some advice? I need to go for colonscopy next week, then a trip to China 3/30-4/4. Can I wait till I come back from China to get another lab test then talk to my ID doctor about meds, or am I running the risk of getting seriously ill in China?

Again, my CD4% is still at 26%, does that indicate I can possibly safely last 2 weeks normally w/o meds, through a cross ocean flight?
4/24/07: Last tested Neg
1/22/08: First tested Poz
1/30/08: CD4 393; 28%; VL: 44k
3/18/08: CD4 218; 26%; VL: 222K
4/24/08: CD4 402; 26%; VL: lab forgot
7/22/08: CD4 405; 25%; VL: 6,780
10/15/08: CD4 340, 26%; VL: N/A
2/4/09: CD4 394, 26%; VL: N/A
Jun 09: CD4 300, 25%; VL: 4000
Oct 09: CD4 324, 23%, VL: 10K
11/22/09: started Atripla
11/20/11: CD4 405; VL: UD

Offline Matty the Damned

  • Member
  • Posts: 12,160
Re: Bad numbers
« Reply #8 on: March 20, 2008, 10:40:17 PM »
Darlin'

Calm the fuck down already.  ::)

26% is a mighty fine number for poz bod and yes you can last two more weeks without medications. :)

The CD4 % Rule of Thumb is this:

> 21% -- You're ok.
<21% >13% -- Damage has been done to your immune system, medication is a consideration.
<13% -- You should probably start medication.

That's only a rough guide, but yes, you should survive a two week trip to China.

MtD

/edited coz I had an angle bracket the wrong way/
« Last Edit: March 20, 2008, 11:32:12 PM by matty.the.damned »

Offline aliveinla

  • Member
  • Posts: 247
Re: Bad numbers
« Reply #9 on: March 20, 2008, 11:29:33 PM »
Matty, thank you so much buddy. Your words cheered me up so much. Buddy Shaun sent me PM also. I am so glad that I found this forum and met you guys. Sorry for my panic and being too dramatic. I will live on!
4/24/07: Last tested Neg
1/22/08: First tested Poz
1/30/08: CD4 393; 28%; VL: 44k
3/18/08: CD4 218; 26%; VL: 222K
4/24/08: CD4 402; 26%; VL: lab forgot
7/22/08: CD4 405; 25%; VL: 6,780
10/15/08: CD4 340, 26%; VL: N/A
2/4/09: CD4 394, 26%; VL: N/A
Jun 09: CD4 300, 25%; VL: 4000
Oct 09: CD4 324, 23%, VL: 10K
11/22/09: started Atripla
11/20/11: CD4 405; VL: UD

Offline Matty the Damned

  • Member
  • Posts: 12,160
Re: Bad numbers
« Reply #10 on: March 20, 2008, 11:33:55 PM »
Well darlin' I understand why you're freaked but there's no need to fuss right now. Get your trip to China out of the way, then we'll talk about medications.

Ok? :)

MtD

Offline aliveinla

  • Member
  • Posts: 247
Re: Bad numbers
« Reply #11 on: March 20, 2008, 11:46:02 PM »
Yes matty honey. I might have to cut back on consumption of the free flowing liquor in business class now...

Now I am calm, kind of looking forward to the vivid dreams you guys all talked about from taking Atripla. I can never remember any dreams so I felt half of my life is being wasted.
4/24/07: Last tested Neg
1/22/08: First tested Poz
1/30/08: CD4 393; 28%; VL: 44k
3/18/08: CD4 218; 26%; VL: 222K
4/24/08: CD4 402; 26%; VL: lab forgot
7/22/08: CD4 405; 25%; VL: 6,780
10/15/08: CD4 340, 26%; VL: N/A
2/4/09: CD4 394, 26%; VL: N/A
Jun 09: CD4 300, 25%; VL: 4000
Oct 09: CD4 324, 23%, VL: 10K
11/22/09: started Atripla
11/20/11: CD4 405; VL: UD

 


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