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Author Topic: My Results  (Read 1222 times)

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Offline cayucosguy

  • Member
  • Posts: 133
My Results
« on: March 18, 2008, 04:58:59 PM »
Well, things aren't really going as well as I had hoped.

First, CD4's have dropped from 420's to 315, % has dropped from 24% to 17%, VL is still undetectable thankfully.  Doctor doesn't want to talk about changing meds until my next set of labs (May 2008), although I think I'm going to force the issue and just go in for another round of blood work in a couple of weeks.

The other issue is the HPV/anal cancer.  After my 4th surgery, and just since January, I've been going through a round of chemo.  (And you wondered where I've been  ???.... thanks for the good thoughts - they helped!)  It's finally over with, and last Tuesday I had surgery no. 5 at the UCSF (University of California San Francisco) Cancer Center.  The doc (strange having a woman up there  ;D) removed additional tissue for biopsy, and then proceeded to "acid wash" (TCH ??) the inside of my ass, after which she removed dead tissue with a set of forceps and a good flushing (yuk! - in front of someone else no less!).

So, now, I'm back to just constant worrying about what is going to come along next.  I'm having trouble getting back into my "relaxation" routines, as I cannot go bike riding for a while longer, not that I have the energy to do so anyway, and I'm so freakin' bored just sitting around.  I wound up coming back to work a week early simply out of sheer boredom from being at home trying to be quiet all day (my roommate works graveyard shift and sleeps all day).

Guess I just needed to get this all off my chest.  Thanks for listening.  If I could afford gas, I might just jump in the car and go see JeffreyJ (you're only a couple hours away, gorgeous!), but that's out of the question for most of us these days!

Thank you all for you support and kindness since I've been a member.  Just wish everyone was closer - I think we could all use a big group hug!

Love ya!  Vince

Offline aztecan

  • Member
  • Posts: 5,430
  • 29 years positive, 57 years a pain in the butt
Re: My Results
« Reply #1 on: March 19, 2008, 10:29:43 AM »
Hey Vince,

Yikes youngun, you have really been through it recently. My butt hurts just thinking about it.  :'(

I am glad you seem to be bouncing back after all that intrusion into your person and your spirits seem good too!

You know before you switch meds, you might ask the doctor what effect the chemo is having on your numbers. Since your viral load is undetectable, it would seem to me the meds are doing what their supposed to do - attack the virus.

The meds can't do anything about getting your CD4s up.

The drop in CD4s and percentage could be a result of the chemo and the surgery. It certainly is worth asking about before switching meds unless there are other reasons you want to change.

I hear you about sitting at home. A few days is fun. After that, sitting around trying to be quiet would be no fun at all.

Anyway, thanks for checking in. I was thinking of you the other day and wondering where you had been.

This all started just before AMG in San Francisco last year, didn't it?  I hope you've seen the end of it.

BIG HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,093
Re: My Results
« Reply #2 on: March 19, 2008, 10:33:38 AM »
Wow, Vince. I've heard of acid-washed jeans, but not someone's tush.  Yikes!  I hope things go better for you.  Good energy being sent your way.
  Luv,
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Robert

  • Member
  • Posts: 2,649
Re: My Results
« Reply #3 on: March 19, 2008, 12:24:56 PM »
Hi vince.

my thinking is along the same line as mark's.  The cancer and the chemo/radioactive therpy (and add a dose of stress and cancer-induced depression) would just cause your numbers to tank.  Considering all that, I don't think it's too bad.  At least you're still undetectable.

Now about that Dr of yours...the one who "...then proceeded to "acid wash" (TCH ??) the inside of (your) ass, after which she removed dead tissue with a set of forceps and a good flushing...."  What a shitty job.  God she must have had bad karma from a previous life to have to settle to clean out assholes in this life.  I think I'd rather be in the army cleaning out latrines.

Can't wait to meet you in Mexico City. 

robert
..........

Offline Iggy

  • Member
  • Posts: 2,435
Re: My Results
« Reply #4 on: March 19, 2008, 02:31:26 PM »
Vince,

I'm very sorry to hear about the drops but agree that it is probably a result of the chemo and all that bad stuff, and know one can blame you for having relaxation issues right now...maybe you should embrace the latter issue and just start blaring metal and yelling at people who walk in front of your house?   It works for me.   ;)

Jeromy and I look forward to meeting you in Mexico City and I wish you the best at this time.

Mark

Offline pozattitude

  • Member
  • Posts: 909
  • Enjoy
    • to find out more about me....
Re: My Results
« Reply #5 on: March 19, 2008, 05:53:26 PM »
Vince babe...I didn't know you were going to go back home to be bored...you could have stayed in the bay area longer....
and for all who know Vince...I met him on Friday night and we had dinner in the Castro and walked around for a little bit...and he looks fantastic, you would never tell he had chemo.
I too believe your numbers will bounce back...the chemo does lower your immune system anyway....

big hugs Vince...see you soon...next time in San Simeon and we go ride together...

 :-*

Rich
POSITIVE PEDALERS... We are a group of people living with HIV/AIDS, eliminating stigma through our positive public example.

 


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