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Author Topic: Hello ALL! going on 27 years here  (Read 10176 times)

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Offline rispeed

  • Member
  • Posts: 4
Hello ALL! going on 27 years here
« on: March 05, 2008, 12:56:12 PM »
Im ryan, got a blood transfusion when i was 1 day Old, November 12, 1981.
I found out when i was 12 years old, my family found out the same time, as i had never been sick and still to this day never been sick from the hiv or anything serious.
The reason we found out was because the guy that donated blood to me in 1981, tried to donate blood again, and they checked under his records and saw he gave me blood 12 years earlier. So my whole family had to go in for blood tests, and mine came back poz.
It was the second to last day of school in 7th grade, and i went to school on the next day after i found out and told the kids in the one class i had that day, and the teacher. Then the start of 8th grade i had an assembly and told the entire school. Its been a roller coaster ride ever since, but im still here and healthy for now. I was actually wondering if i was like the longest documented survivor. I know alot of people got it in the early 80s and stuff but dont really know when.

Hope to meet some new friends on here.

Ryan

Online Miss Philicia

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  • celebrity poster, faker & poser
Re: Hello ALL! going on 27 years here
« Reply #1 on: March 05, 2008, 01:32:59 PM »
Hi Ryan, and welcome to the board.  Glad to read your story and see that you're doing well with your HIV infection after that long of a period. 

Quote
I was actually wondering if i was like the longest documented survivor. I know alot of people got it in the early 80s and stuff but dont really know when.

I recall that there's a few here that somehow know that they were infected earlier than you -- one guy in particular has a blood sample that was frozen from the mid/late 70's or something... can't recall which screen name he uses here though.

"Iíve slept with enough men to know that Iím not gay"

Offline DanielMark

  • Member
  • Posts: 1,475
Re: Hello ALL! going on 27 years here
« Reply #2 on: March 05, 2008, 03:51:21 PM »
Welcome Ryan,

You are the longest surviving person I've heard of, but regardless, glad you are doing well after this long. I reached 19 years last September. Life is life with its ups and downs, but so far, so good.

Daniel
MEDS: REYATAZ & KIVEXA (SINCE AUG 2008)

MAY 2000 LAB RESULTS: CD4 678
VL STILL UNDETECTABLE

DIAGNOSED IN 1988

Offline BT65

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Re: Hello ALL! going on 27 years here
« Reply #3 on: March 05, 2008, 07:11:31 PM »
Hi Ryan, welcome to the forums. 

I must say you're a brave young man to have told your school.  Wow.  I'm surprised you didn't have problems (like Ryan White). 

Hope to hear more from you in the future.
  Luv,
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline rispeed

  • Member
  • Posts: 4
Re: Hello ALL! going on 27 years here
« Reply #4 on: March 05, 2008, 10:38:02 PM »
No i honestly never had issues with peers, and people in the community like that at all.
Ive never even had issues with girls either every girl i ever dated i told about before we were serious, and i can honestly say its never once been an issue . Although right now im just really looking for a girl who understands what i go through.

The school department had some issues, and made things pretty hard for me, but forget them, the kids in school were there for me, the teachers were there for me, all the kids parents were there for me, and its just been easy for me compared to most i guess.

It amazes me when i talk to people who are poz and there just like telling me about how secretive they are about it. And hide it from even their close friends, and family, and im just like wow.

Being open about it, and talking about it, and educating people around me, its all that i know. If you have to deal with it , i think its our job to educate people and not be so sheltered about it. Because it defineatly makes the world a better place for people who are poz. Because if you are educated about it, you just wont be scared of it.

Ive always told everyone, even like just in conversation at my jobs and stuff, coworkers-bosses, customers, really just like whatever about it. And its always worked out good.

Cya all,

Ryan


Offline AlanBama

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  • Alabama: the 'other' 3rd World Country!
Re: Hello ALL! going on 27 years here
« Reply #5 on: March 05, 2008, 10:49:04 PM »
Hi Ryan, and welcome.   You are definitely a long-term survivor!   Wow, since 1981....

I'm surprised, as Betty was, that you never encountered any problems/confrontations, etc.   May I ask if you are in the USA?  If so, what state/city?   You can tell from my name that I am in Alabama, and while I can be open about it with most everyone in my life, I still feel that I cannot be completely "out", due to living in a redneck State with mean people.   I try to put my safety first; it would be a shame to be a 21 year survivor of AIDS, and get knifed or shot by some stupid redneck who is afraid of AIDS.

Glad you've joined us!   It's a great group of people, especially our LTSers.   We all pretty much stick together too, and support each other.

hugs,
Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline mjmel

  • Member
  • Posts: 2,069
Re: Hello ALL! going on 27 years here
« Reply #6 on: March 06, 2008, 09:08:09 AM »
Welcome, Ryan.
That's great that you are so open about your HIV status and have not encountered much slack because of it--but it's risky business to disclose for some people. Some pockets of Americana are not so supportive, as you may already know.
An extreme case: The late William F. Buckley, Jr. ( (November 24, 1925 Ė February 27, 2008) once proposed that all HIV+ people should have a stamp placed on their foreheads. Yikes!
I hope you continued good health status and that your life will always be blessed with caring people such as surrounds you now.
I hope you find friends here. Lots of supportive folks here.

Mike

Online Miss Philicia

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  • celebrity poster, faker & poser
Re: Hello ALL! going on 27 years here
« Reply #7 on: March 06, 2008, 11:12:53 AM »
I'm not surprised that Ryan has encountered less AIDS stigma -- he's one of the "innocent victims" while the rest of us are either sexual deviants or drug addicts.  Keep in mind that Ryan didn't learn of his status for the first 12 years, and those first 12 years were when "innocent victim" stigma would have occurred.  By 1993 -- 3 years post Ryan White's death -- I'd figure that this particular stigma was considerably less due to the media attention.
"Iíve slept with enough men to know that Iím not gay"

Offline aztecan

  • Member
  • Posts: 5,398
  • 29 years positive, 57 years a pain in the butt
Re: Hello ALL! going on 27 years here
« Reply #8 on: March 11, 2008, 08:46:25 AM »
Hey Ryan,

Welcome to the forums, glad you joined in.

I'm glad you haven't had any problems from your peers to date and things go well for you.

You are certainly a survivor and I look forward to getting to know you better.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline me123wonka

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  • Posts: 2
Re: Hello ALL! going on 27 years here
« Reply #9 on: March 12, 2008, 02:27:44 AM »
Well Ryan, you have me beat!  I had a transfusion in 1983 at 9 mths old.  My story sounds similar to yours.  I've told everyone and have only run into a problem once.  I've wondered before what's the longest someone has lived with HIV cuz I'm curious about the long term effects and stuff.  Do you know of anyone who has had it longer than you?  Ya know, life in general has been pretty good, but relationships can get kinda difficult.  I say difficult, but it's the same here...no one has ever left me right away because I have it.  I've just been wondering lately how other people handle it in their relationships. 

Offline Dorian

  • Member
  • Posts: 4
Re: Hello ALL! going on 27 years here
« Reply #10 on: March 12, 2008, 06:05:50 AM »
Good morning Ryan!

Yes it is good to be reading about another long term survivor.  It was in 1984 after an outbreak of the shingles that I learned about my positive status.  No meds back then, just healthy living tips and trying not to get sick.  Had a brief scare in 1996 (given less than a year to live then, lo and behold anti-viral regimens came on the market and worked for me) then 2003 the dreaded pneumonia struck but a great hospital team pulled me through.  Some days I wonder why so many of my friends have died and I am still here.  Although I admit the purpose evades me in the short term, I think there must be some higher power or purpose for my still being here. 

Oddly, the experience has been liberating in some ways and limiting in others.  I have learned to be 'as innocent as a babe, but as wise as a serpent' when it comes to sharing my condition.  There is always a stigma attached to any disease, so one has to tread carefully when divulging information. 

Blessings to you for joining the forum!  Here's to many years to come of joy, life and love!  Make every day count by expanding your horizons.  Our condition is a strange 'gift' that as you age you may come to understand more about yourself and the possibilities of helping others.

Pax tecum hodie et semper!  D

Offline netta

  • Member
  • Posts: 396
Re: Hello ALL! going on 27 years here
« Reply #11 on: March 12, 2008, 02:04:14 PM »
Hi Ryan,
 welcome and congradulation!!!!
"to thine own self be true"

Offline Jeffreyj

  • Member
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Re: Hello ALL! going on 27 years here
« Reply #12 on: March 20, 2008, 03:19:44 AM »
Ryan,
Welcome to the forums. I hope you end of loving this place as much as I do.

Welcome to our little family. I am glad you are doing so well!
Positive since 1985

Offline ubotts

  • Member
  • Posts: 347
Re: Hello ALL! going on 27 years here
« Reply #13 on: March 26, 2008, 10:34:01 AM »
HI Ryan..

Nice to know theres a chance I could reach 27 yrs hiv..

I am going on 22 years myself..

I remember a long time back watching a tv show about a man who
was hiv poz, and at that time he was hiv for 16 yrs and didnt even take meds..

I was diagonsed on april 1986, but I didnt take meds till 16 yrs later...

I saw how my lover died on azt and how the rest of my friends were
dropping like flies..So I waited as long as possible hoping there would be better
meds out there by the time I needed to take them..

My tcell count was down to 27 and I felt like shit..I knew it was my time to
get on meds....and I did...

I am not sure of the oldest suvivor is....Can someone look it up on line.?
Ill try...
Btw, great to know you... :)
Live Love Laugh and dance like no ones watching.
Laughter is the best medicine, so try to have a laugh everyday..Even if your not feeling your best, think about something that was funny at one time in your life and work with it..   :o)

Offline J.R.E.

  • Member
  • Posts: 7,161
  • Joined Dec-2003 Living positive, since 1985.
Re: Hello ALL! going on 27 years here
« Reply #14 on: March 28, 2008, 02:23:31 PM »
Hello Ryan,

Welcome to the forums !!



Ray 8)
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline atxpozguy

  • Member
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  • POZ+ 30 year milestone reached for Austin man
    • It's Your Vehicle & Money
Re: Hello ALL! going on 27 years here
« Reply #15 on: March 30, 2008, 04:18:34 PM »
Hello Ryan,

You like many of us have many more years to look forward to!

Poz since 1983, I've had many experiences living with the virus, some down right interesting, some near death and met alot of wonderfull people.

So given the fact that I am still alive after 25 years with HIV/AIDS is a miracle in itself.

Adherence to meds and doctor appointments along with Medicare will help a majority of infected people.
30 years poz with no expiration date

atxlovingqueer@gay.com
atxniceguy@gmail.com

Diagnosed HIV 1983
Diagnosed AIDS 2001

As of Jan 17, 2012: VL <20k CD4 183  28.5%

Offline DAF

  • Member
  • Posts: 20
Re: Hello ALL! going on 27 years here
« Reply #16 on: March 31, 2008, 11:54:56 AM »
Hey Ryan,

Glad to see you on here. I've never heard of someone infected so long, I was wondering if I was the only one alive for so long until I got hooked up on these forums. I have been infected for sure since 1985 but with the latency of the infection I suspect it was  in 78 or 79. Keep on and stay healthy.

DAF
No disease on the face of the planet has been 100% fatal

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: Hello ALL! going on 27 years here
« Reply #17 on: March 31, 2008, 02:16:30 PM »
I guess we scared him away

Offline bear60

  • Member
  • Posts: 4,104
Re: Hello ALL! going on 27 years here
« Reply #18 on: March 31, 2008, 02:39:46 PM »
you think?
Poz Bear Type in Philadelphia

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: Hello ALL! going on 27 years here
« Reply #19 on: March 31, 2008, 09:56:58 PM »
maybe its all the butt problem threads...doh!

modified to say "sorry bad joke" my bad
« Last Edit: April 01, 2008, 12:42:09 AM by sharkdiver »

Offline Texan38

  • Member
  • Posts: 686
Re: Hello ALL! going on 27 years here
« Reply #20 on: April 01, 2008, 11:01:35 AM »
LOL!!  :D
Sometime the bad jokes are the most hilarious!!
In Hollywood an equitable divorce settlement means each party getting fifty per cent of publicity.
~ Lauren Bacall

Offline boluq68

  • member
  • Posts: 1
Re: Hello ALL! going on 27 years here
« Reply #21 on: April 03, 2008, 06:38:43 AM »
Congrats,,,, going on 26th yr. Not sure why I'm  still here but, I am. Sorta lonely, miss my friends and past partners.

Offline BT65

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Re: Hello ALL! going on 27 years here
« Reply #22 on: April 03, 2008, 07:42:34 AM »
Welcome to the forums, boluq68.  Hope to hear more from ya.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline 25YRSAGO

  • Member
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Re: Hello ALL! going on 27 years here
« Reply #23 on: April 08, 2008, 03:10:58 PM »
Hey Ryan,

WOW, what an amazing story.  You are a true trooper.  I've been infected for 25 yrs.  Although, it could have been 24...I guess I might change my screen name.  Anyhow... you stay strong!!  It's great to hear your story, you are an amazing person.

J
STRONG MIND, STRONG BODY, STRONG SPIRIT!!!

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: Hello ALL! going on 27 years here
« Reply #24 on: April 08, 2008, 03:30:33 PM »
Hey Ryan,

WOW, what an amazing story.  You are a true trooper.  I've been infected for 25 yrs.  Although, it could have been 24...I guess I might change my screen name.  Anyhow... you stay strong!!  It's great to hear your story, you are an amazing person.

J

it remains to be seen if he is real or not.

just sayin

Offline Fabrizio

  • Member
  • Posts: 17
Re: Hello ALL! going on 27 years here
« Reply #25 on: April 09, 2008, 04:24:28 PM »
WELCOME TO THE FORUM!

My partner has been positive for just over a year and it is inspiring to read your story!

f.
Worried and Optimistic Negative Partner

Offline rispeed

  • Member
  • Posts: 4
Re: Hello ALL! going on 27 years here
« Reply #26 on: June 05, 2008, 11:24:08 AM »
it remains to be seen if he is real or not.

just sayin

you should look into things, before  just saying, stupid things, im really gonna make this shit up.... dumbass.... google my name and youll find so much stuff about me, hmmm not to mention my article in the most recent poz magazine and giant photo ... heres the link to my article on poz.com
http://www.poz.com/articles/2186_14614.shtml

and if you want to see the high resolution scan of the page click here
http://www.rispeed.com/poz/poz.JPG


peace!!



oh yeah the reason i came on here today is to share with everybody that i got the greatest news yesterday....
I was off medicine for 3 years and my viral load was 150,000 and t-cells were single digits, for almost 2 years
and i never was sick or whatever, hiv has never affected me, but anyways i started my new meds and in 4 weeks
i am undetectable, and my t-cells trippled  :) :) :) im so happy.....

Online Miss Philicia

  • Member
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  • celebrity poster, faker & poser
Re: Hello ALL! going on 27 years here
« Reply #27 on: June 05, 2008, 11:33:07 AM »
Good luck Ryan!  You've certainly had a long an interesting ride that surely differs from many of us.

David.
"Iíve slept with enough men to know that Iím not gay"

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: Hello ALL! going on 27 years here
« Reply #28 on: June 05, 2008, 01:02:54 PM »
you should look into things, before  just saying, stupid things, im really gonna make this shit up.... dumbass.... google my name and youll find so much stuff about me, hmmm not to mention my article in the most recent poz magazine and giant photo ... heres the link to my article on poz.com
http://www.poz.com/articles/2186_14614.shtml

and if you want to see the high resolution scan of the page click here
http://www.rispeed.com/poz/poz.JPG


peace!!



oh yeah the reason i came on here today is to share with everybody that i got the greatest news yesterday....
I was off medicine for 3 years and my viral load was 150,000 and t-cells were single digits, for almost 2 years
and i never was sick or whatever, hiv has never affected me, but anyways i started my new meds and in 4 weeks
i am undetectable, and my t-cells trippled  :) :) :) im so happy.....


well sugar pie it's about time.

it's good to know you are real and not some nut case.

hope you post more often and become an active member, rather than some fly by night (which happens much more often than you think)

oh and congrats
« Last Edit: June 05, 2008, 03:56:07 PM by sharkdiver »

Offline BT65

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  • Member
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Re: Hello ALL! going on 27 years here
« Reply #29 on: June 05, 2008, 09:58:26 PM »
Hi Ryan, don't be offended by people wondering about you.  Like Sharkdiver said, there are many people who come in, post something amazing, and then we never hear from them again.

I'm glad you're doing so well.  Come back and chat some more. ;)
  Luv,
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline rispeed

  • Member
  • Posts: 4
Re: Hello ALL! going on 27 years here
« Reply #30 on: June 06, 2008, 09:33:07 AM »
I know, but im just kinda insulted, i mean its the way i am, ive been dealing with this my whole life and its been very hard, to hear someone say im fake is the worst thing you could call me. I just dont chat in forums a whole lot thats all but anyone can feel free to email me or private message me :)

Ryan

Offline redhotmuslbear

  • Member
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  • A genuine certified freak of nature, and a hot one
Re: Hello ALL! going on 27 years here
« Reply #31 on: June 06, 2008, 09:48:00 AM »
I know, but im just kinda insulted, i mean its the way i am, ive been dealing with this my whole life and its been very hard, to hear someone say im fake is the worst thing you could call me. I just dont chat in forums a whole lot thats all but anyone can feel free to email me or private message me :)


Ryan,

He probably got "years" and "inches" mixed up.... this is the internet, after all.   Still, I'm glad you re-surfaced.  I'll hit 26 years in three months, though I contracted HIV "the old-fashioned way."

Namaste,
David
"The real problem is not whether machines think but whether men do." - BF Skinner
12-31-09   222wks VL  2430 CD4 690 (37%)
09-30-09   208wks VL  2050  CD4 925 (42%)
06-25-08   143wks VL  1359  CD4 668 (32%)  CD8 885
02-11-08   123wks off meds:  VL 1364 CD4 892(40%/0.99 ratio)
10-19-07   112wks off meds:   VL 292  CD4 857(37%/0.85 ratio)

One copy of delta-32 for f*****d up CCR5 receptors, and an HLA B44+ allele for "CD8-mediated immunity"... beteer than winning Powerball, almost!

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: Hello ALL! going on 27 years here
« Reply #32 on: June 06, 2008, 10:30:09 AM »
no one called you a fake, we were just wondering who you were.  I have been living with it most of my life as well. We are glad you are real and doing fine. If you spent anytime on hear, you would know I tease a lot.  But hey it worked, you got back online to talk with us. Sorry you felt insulted or were hurt.



Offline sharkdiver

  • Member
  • Posts: 1,350
Re: Hello ALL! going on 27 years here
« Reply #33 on: June 06, 2008, 10:50:07 AM »

Ryan,

He probably got "years" and "inches" mixed up.... this is the internet, after all.   Still, I'm glad you re-surfaced.  I'll hit 26 years in three months, though I contracted HIV "the old-fashioned way."

Namaste,
David

wow, I never thought I'd see an insult and a Namaste in the same message.  Is that the new "Bless his little heart?"  lol

 


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