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Author Topic: new to site; long term survivor  (Read 6386 times)

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Offline netta

  • Member
  • Posts: 396
new to site; long term survivor
« on: February 26, 2008, 11:44:12 AM »
 hello, nice to know this site exsist. I am a 20 plus years long term survivor. I am a 50 yr.old, african american woman, who was diagnosed first in 1990. I was in denial.I startd getting sick in 1994 when I had moved south from new york. Untill then I  lived years in denial and ignorant about hiv and aids. my former fiance was an ex- herione addict back in 1985. We parted ways after he got very sick and had to move back home with family. Up untill that time we were living together, until he got sick and had to be hospitalized a number of times , he was even quarintined in the hospital and I was never told this man had aids, or sids as it was called at the time. He died 2 years later and it was rumored that he had aids. He also had a former girlfriend who had died of aids a year before. i will never know if he knew he had it and why I was not told, by him or his doctors since we were living together at the time. Iwas not even notified when he died so i didn't  get to attend the funeral. Well here I am 20 + years later,( I stop counting years after 20) because I dont want ot fell like my number is coming up! lol. I have been blessed to raise two healthy children  and become a grandmother. at the time of my final diagnosis in 1994, I prayed to god to live long enough to see my 13 and 15 year old kids graduate high school.i have been blessed to not only see them graduate high school, but to see my girl graduated college and my son move to a new york and have a son go to college and have a career. I have survived against all odds and have lost lots of friends to aids in the past two decades, I am still doing well and looking good. I have become an icon in the aids community and an activist over the years,fighting for education in our schools and communities, and helping my plwa anyway I can. I am still giving  my testimony,after surviving a rough life, I am currently trying to write a book of my life. It is my pleasure to meet my new family here on this site!
« Last Edit: February 26, 2008, 11:48:22 AM by netta »
"to thine own self be true"

Offline bear60

  • Member
  • Posts: 4,104
Re: new to site; long term survivor
« Reply #1 on: February 26, 2008, 12:36:24 PM »
Hi Netta
Congratulations on being a Long Term Survivor.  We are many and diverse.   
AIDSMEDS is a good place to be.
 I know you will find the Womens Forum a lively place too.

Have a good day..
Joel aka Bear
Poz Bear Type in Philadelphia

Offline netta

  • Member
  • Posts: 396
Re: new to site; long term survivor
« Reply #2 on: February 26, 2008, 12:58:07 PM »
thanks joel.
"to thine own self be true"

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,938
Re: new to site; long term survivor
« Reply #3 on: February 26, 2008, 02:05:12 PM »
Netta, welcome to these, our forums. :) 

It's nice to hear your story.  I am a grandmother also.  I was diagnosed in 1989.  Please join us in the 'Positive Women' forum.  Especially the dating threads.  It's not all about dating, it's about our daily lives, bitches, struggles etc. 

Look forward to hearing more from you!
  Luv,
Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline aztecan

  • Member
  • Posts: 5,396
  • 29 years positive, 57 years a pain in the butt
Re: new to site; long term survivor
« Reply #4 on: February 26, 2008, 02:13:58 PM »
Hey Netta,

Welcome to the forums. I'm looking forward to hearing more from you.

We LTS folk have to stick together.  ;)

I'm glad you've joined in.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Fabrizio

  • Member
  • Posts: 17
Re: new to site; long term survivor
« Reply #5 on: February 26, 2008, 04:45:38 PM »
Welcome to the forum!
Worried and Optimistic Negative Partner

Offline BlueMoon

  • Member
  • Posts: 665
  • Calling from the Fun House
Re: new to site; long term survivor
« Reply #6 on: February 26, 2008, 06:09:55 PM »
Welcome, Netta.

Quote
We LTS folk have to stick together. 

I hope to join that club someday.   
...................VL.....CD4.....%
-----------------------------------------
08/10-- ......<40.....290.....42
05/10-- ......<48.....290.....46
02/10-- ......<48.....481.....44
10/09-- ......<48.....277.....46
07/09-- ......<48.....300.....38
05/09-- ........51.....449.....39
03/09-- Added Isentress
02/09-- ........65.....299.....34
11/08-- ........62.....242.....40
08/08-- ........66.....212.....29
05/08-- ......202.....217.....27
03/08-- ....5210.....187.....21
02/08-- Began Truvada/Reyataz/Norvir
12/07-- 273,000.....157.....22
11/07-- 229,000.....209.....22
10/07-- Diagnosis

It's a complex world.

Offline Snowangel

  • Member
  • Posts: 1,413
Re: new to site; long term survivor
« Reply #7 on: February 26, 2008, 06:12:17 PM »
Welcome, Netta.
I have been poz since early 90's, meds started in 94.  I am glad you found this forum.  I think you will enjoy it.
Take care, Snow
Of all the things you wear, your expression is the most important

The heaviest thing you can carry is a grudge..

One thing you can give and still keep...is your word.

One thing you can't recycle is wasted time.

Offline AlanBama

  • Member
  • Posts: 3,625
  • Alabama: the 'other' 3rd World Country!
Re: new to site; long term survivor
« Reply #8 on: February 26, 2008, 08:15:35 PM »
Hey Netta,

Glad you joined us, honey and we're happy to have you.  We have some of the greatest people here, and quite a few LTS amongst us.

Looking forward to hearing more from you

hugs,

Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline J.R.E.

  • Member
  • Posts: 7,148
  • Joined Dec-2003 Living positive, since 1985.
Re: new to site; long term survivor
« Reply #9 on: February 26, 2008, 08:33:00 PM »
Hello Netta,

Welcome to the forums !! Glad to have you with us....


All the best----Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline sharkdiver

  • Member
  • Posts: 1,350
Re: new to site; long term survivor
« Reply #10 on: February 27, 2008, 07:23:23 AM »
Welcome Netta!

I'm glad you found us!

big hugs,
Sharkie

Offline keepingfaith

  • Member
  • Posts: 168
  • Go Me!
Re: new to site; long term survivor
« Reply #11 on: February 27, 2008, 05:09:13 PM »
HI, Netta How are you doing?

Offline netta

  • Member
  • Posts: 396
Re: new to site; long term survivor
« Reply #12 on: February 27, 2008, 05:14:58 PM »
  :o :-*thanks to you all, now, I am interested in going to the gathering they are having in Mexico in August.but I know I can't afford it, living off disability ($6,000 a year) If there is any help available, someone please let me know. I really  want to go and meet new friends and I have never been to Mexico.
"to thine own self be true"

Offline netta

  • Member
  • Posts: 396
Re: new to site; long term survivor
« Reply #13 on: February 27, 2008, 05:15:55 PM »
 I am fine, hugs and kisses to you alll.
"to thine own self be true"

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,938
Re: new to site; long term survivor
« Reply #14 on: February 27, 2008, 06:52:05 PM »
Hey Netta.  Check out this link, which is in one of the forums here:

http://forums.poz.com/index.php?topic=19224.0

It might be of some help to you.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline mjmel

  • Member
  • Posts: 2,069
Re: new to site; long term survivor
« Reply #15 on: February 29, 2008, 06:56:59 PM »
Hi Netta. Welcome.

I found your post an outstanding read....you raised kids and are now a granny. Amazing huh?
I am thinking of your early days of diagnosis. Indeed, they were hard years which you struggled through and endured...by sheer willfulness.

Mike

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: new to site; long term survivor
« Reply #16 on: March 04, 2008, 12:59:49 AM »
Netta,
A huge hug to you! Welcome to the forums. I hope you like it here as much as I do!
Looking forward to hearing more about you and those two soon-to-graduate kids!
Positive since 1985

Offline ubotts

  • Member
  • Posts: 347
Re: new to site; long term survivor
« Reply #17 on: March 04, 2008, 02:45:40 AM »
Hi and welcome to our forum..

I am also a long time survivor..My  lover had aids and didn't tell me.. I found out when my
lover was in the hospital......Why didn't she share that with me is still a mystery..she knew this for 2 yrs.. >:(

This was back in 85, that she knew she had it...After the hospital visit I had myself checked and of course I was hiv poz as well...

I was in denial for 16 yrs..then the shit hit the fan ...I felt weak tired and started to get rashes..so I went in and my tcells were down to 27... :(

That's when I finally took meds..........I waited as long as possible, because I saw the side effects of azt and what it did to her and many other friends at that time, and I didn't like the outcome...............It was worth the wait...

Now we have cocktails that keeps us going...........Thank god.....
Hopefully in the future they will be able to cure this dreaded disease, just dont think it
will be in my lifetime, but if it is..then I have one big major relief off my mind, body and soul...

Time will tell.........
Live Love Laugh and dance like no ones watching.
Laughter is the best medicine, so try to have a laugh everyday..Even if your not feeling your best, think about something that was funny at one time in your life and work with it..   :o)

Offline OneTampa

  • Member
  • Posts: 2,195
  • "Butterflies are free."
Re: new to site; long term survivor
« Reply #18 on: March 06, 2008, 08:59:18 PM »
Welcome Netta,

I am also a long term survivor in my 22nd year, and also 10 years with a non-detectable viral load as of this month.  My doctor checked my chart and told me with great fanfare the other day. He is such a sweet man. I am so grateful.

I am also very proud of you and how you have survived and raised your children.  I sense that you are a fantastic person and mother. Bless you.

Hugs!!
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaíto frito."

Offline netta

  • Member
  • Posts: 396
Re: new to site; long term survivor
« Reply #19 on: March 15, 2008, 04:18:39 PM »
Today is my 50th birthday, glad to be alive!!11
"to thine own self be true"

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,938
Re: new to site; long term survivor
« Reply #20 on: March 15, 2008, 07:58:38 PM »
I said it in our women's forum and I'll say it again-

HAPPY BIRTHDAY NETTA!
Make sure you celebrate all those 50 year milestones! :)
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Assurbanipal

  • Member
  • Posts: 2,173
  • Taking a forums break, still see PM's
Re: new to site; long term survivor
« Reply #21 on: March 15, 2008, 09:14:21 PM »
Happy birthday to you Netta -- may you have joy.
5/06 VL 1M+, CD4 22, 5% , pneumonia, thrush -- O2 support 2 months, 6/06 +Kaletra/Truvada
9/06 VL 3959 CD4 297 13.5% 12/06 VL <400 CD4 350 15.2% +Pravachol
2007 VL<400, 70, 50 CD4 408-729 16.0% -19.7%
2008 VL UD CD4 468 - 538 16.7% - 24.6% Osteoporosis 11/08 doubled Pravachol, +Calcium/D
02/09 VL 100 CD4 616 23.7% 03/09 VL 130 5/09 VL 100 CD4 540 28.4% +Actonel (osteoporosis) 7/09 VL 130
8/09  new regimen Isentress/Epzicom 9/09 VL UD CD4 621 32.7% 11/09 VL UD CD4 607 26.4% swap Isentress for Prezista/Norvir 12/09 (liver and muscle issues) VL 50
2010 VL UD CD4 573-680 26.1% - 30.9% 12/10 VL 20
2011 VL UD-20 CD4 568-673 24.7%-30.6%
2012 VL UD swap Prezista/Norvir for Reyataz drop statin CD4 768-828 26.7%-30.7%

Offline MOONLIGHT1114

  • Member
  • Posts: 1,918
  • Cheech 2.2.94 - 4.23.10 We miss you so much!
Re: new to site; long term survivor
« Reply #22 on: March 15, 2008, 10:44:28 PM »
Happy Birthday, Netta!  I hope you're out kicking up your heels tonight!  :D
HIV+ since '93, 1/12 - CD4 785 and undet.   WOO-HOO!!

Offline J.R.E.

  • Member
  • Posts: 7,148
  • Joined Dec-2003 Living positive, since 1985.
Re: new to site; long term survivor
« Reply #23 on: March 16, 2008, 05:59:25 AM »
Today is my 50th birthday, glad to be alive!!11

Happy belated birthday to you Netta !!


All the best-----Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline aztecan

  • Member
  • Posts: 5,396
  • 29 years positive, 57 years a pain in the butt
Re: new to site; long term survivor
« Reply #24 on: March 16, 2008, 11:42:11 AM »
Hey Netta,

HAPPY BIRTHDAY!
Here's a toast to many, many more! ;D ;D ;D

Now, I don't know if you are aware of the tradition here, but I am the official purveyor of the Birthday Swats! ™

So, let's see, that would be 50 Birthday Swats, plus one to grow on!  :o :o :o :o :o

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline bear60

  • Member
  • Posts: 4,104
Re: new to site; long term survivor
« Reply #25 on: March 16, 2008, 11:48:13 AM »
Happy Belated Birthday Wishes Netta
Poz Bear Type in Philadelphia

 


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